Family-Centered Information Dissemination: A Multidisciplinary Virtual COVID-19 “Town Hall”

2020 ◽  
Vol 163 (5) ◽  
pp. 929-930
Author(s):  
Asitha D. L. Jayawardena ◽  
Sarah Romano ◽  
Kevin Callans ◽  
M. Shannon Fracchia ◽  
Christopher J. Hartnick

Significant misinformation about COVID-19 has been spread on the internet. Parents of children with complex aerodigestive problems have a hard time understanding the information they encounter on the internet and the news media and interpreting how it relates to their child’s complex needs. Our multidisciplinary team, at the suggestion of a parent, hosted 3 virtual “town halls” in which families could ask questions directly of pediatric otolaryngology, pediatric pulmonology and case management in order to efficiently obtain factual evidence-based up-to-date advice. The information discussed at the town halls was then annotated and disseminated via active, parent-run aerodigestive social media forums. The information disseminated via the town halls reached 4787 Facebook participants.

2001 ◽  
Vol 19 (23) ◽  
pp. 4291-4297 ◽  
Author(s):  
Xueyu Chen ◽  
Lillian L. Siu

PURPOSE: To evaluate the use of the news media and the Internet as sources of medical information by patients and oncologists in Canada and to investigate the impact on patients’ treatment decisions and the patient-doctor relationship. PATIENTS AND METHODS: During a 2-week period, 191 ambulatory patients participated in the survey. Questionnaires were also mailed to Canadian oncologists: 410 of 686 questionnaires were returned (response rate = 60%). RESULTS: Of the 191 patients, 86% wanted as much information as possible about their illness, 54% reported receiving insufficient information, 83% cited physicians as their primary information source, and 7% cited the Internet. Seventy-one percent of patients actively searched for information, and 50% used the Internet. Patients’ opinions about the balance, accuracy, and relevance of news media reports were evenly split. English as the first language, access to the Internet, and use of alternative treatments predicted a higher rate of information seeking. Most oncologists routinely pay some attention to medical news and believe that it is difficult for patients to interpret medical information in the media and on the Internet accurately. Both patients and oncologists agree that information seeking does not affect the patient-physician relationship. CONCLUSION: Information searching is common among cancer patients in Canada. It does not affect the patient-doctor relationship. The media and the Internet are powerful means of medical information dissemination. Strategic efforts are needed to improve the quality of medical news reporting by the media, and to provide guidance for patients to understand their disease and interpret such information better.


Daedalus ◽  
2011 ◽  
Vol 140 (4) ◽  
pp. 108-120 ◽  
Author(s):  
R. Kelly Garrett ◽  
Paul Resnick

Must the Internet promote political fragmentation? Although this is a possible outcome of personalized online news, we argue that other futures are possible and that thoughtful design could promote more socially desirable behavior. Research has shown that individuals crave opinion reinforcement more than they avoid exposure to diverse viewpoints and that, in many situations, hearing the other side is desirable. We suggest that, equipped with this knowledge, software designers ought to create tools that encourage and facilitate consumption of diverse news streams, making users, and society, better off. We propose several techniques to help achieve this goal. One approach focuses on making useful or intriguing opinion-challenges more accessible. The other centers on nudging people toward diversity by creating environments that accentuate its benefits. Advancing research in this area is critical in the face of increasingly partisan news media, and we believe these strategies can help.


Affilia ◽  
2017 ◽  
Vol 33 (1) ◽  
pp. 126-138 ◽  
Author(s):  
Rachel C. Casey

As the number of women incarcerated in the United States continues to rise and their complex needs become more apparent, social workers must fortify their historical commitment to criminal justice reform. However, crafting more effective and compassionate responses to the needs of justice-involved women may very well require a more nuanced understanding of the holistic impact of incarceration on women’s well-being than the current literature offers. Utilizing the framework of feminist standpoint epistemology, the researcher engaged in qualitative content analysis to examine published personal accounts from 43 women to better understand their experiences in prisons and jails in the United States. Two overarching themes emerged from the analysis. First, the personal accounts illustrated that women experience prisons and jails as environments of denial insofar as these carceral environments deny women’s basic needs, their sense of humanity, and their personal power. The second overarching theme pertains to the holistic impact of the carceral environment upon women’s lives, meaning it has expansive effects on women’s biopsychosocial–spiritual functioning. Social workers should dedicate efforts to dramatically reducing the number of women behind bars and engaging in holistic intervention approaches that might counteract the negative effects of incarceration across domains of well-being.


2018 ◽  
Vol 6 (4) ◽  
pp. 115-118 ◽  
Author(s):  
Anette Novak

User participation in the journalistic context has theoretically been possible since the emergence of the Internet. The few interface formats which have been developed to link newsrooms and citizens have, however, not followed the same explosive development as other parts of the media landscape. One reason often referred to by the scientific community is the defensive newsroom culture. This essay presents an alternative interpretation and argues that bridging the gap between interaction design research, media and communications research, and practitioners within digital news media, could shed new light on the stalled process of newsroom co-creation with users.


2015 ◽  
Vol 6 (2) ◽  
pp. 90-95
Author(s):  
Nigel Knott

The news media are presently filled with headline stories concerning the security of electronic communications and the internet. The Financial Times’ weekend supplement FT Money devoted three pages under the title ‘Hack attack’ and asked whether companies are doing enough to protect data online. 1 Substitute dental practices for companies and we have an unhappy picture of the reasons why so much sensitive personal data is going missing or being accessed without properly informed consent.


2020 ◽  
pp. 115-142
Author(s):  
Kathryn E. Graber

This chapter analyzes Buryat language standardization as an example of truncated standardization, a problem that characterizes many minority languages in postcolonial contexts. It discusses why indigenous languages like Buryat are more likely to be surrounded by a different lingua franca, such as Russian, and used between speakers of different dialects to reduce the immediate need for a standardized indigenous language. It assesses how media makers and other language elites persist in trying for standardization in an effort to create and maintain a strong literary standard as a crucial component of the Buryat modernizing project. The chapter also talks about contemporary audiences who control colloquial forms of Buryat but have a hard time understanding Buryat-language media, particularly news media. It investigates linguistic resources, such as dialects and Russian–Buryat mixed forms, that are not part of the literary standard but serve important social functions in certain contexts.


2021 ◽  
pp. 85-116
Author(s):  
Ran Wei ◽  
Ven-hwei Lo

How do Asian college students keep track of and interact with news on their phone? Using data from the two waves of surveys, this chapter examines the behavior and patterns of engagement with mobile news by virtue of following and sharing. It also explores the differences in news engagement attributed to demographics, motivation, and city of residence. Findings show that following and sharing mobile news are prevalent, especially in the 4G era, making consuming news on the smartphone different from that of traditional news media. The chapter concludes that engagement with mobile news results from both user motivation and the empowering tools afforded by the Internet-enabled smartphone.


Author(s):  
Hung Chim

The Bulletin Board System (BBS), when it first appeared in the middle 1970s, was essentially “a personal computer, not necessarily an expensive one, running inexpensive BBS software, plugged into an ordinary telephone line via a small electronic device called modem” (Rheingold, 1993). The networked computers used to create these parallel worlds and facilitate communication between human beings constitute the technical foundations of computer-mediated communication (CMC) (Nancy, 1998). CMC systems link people around the world into public discussions. While CMC can exist solely between two people or between one person and an anonymous group, increasingly, virtual communities of many people are being formed. With advent of the Internet, the World Wide Web (WWW) brought more new technologies to the BBS. Thousands of BBSs sprang up across the world. Many turned out tremendously successful and evolved into lively virtual communities. These communities provided forums with increasing importance for individuals and groups that share a professional interest or share common activities. Online BBS communities now play an important role in information dissemination and knowledge collaboration on the Internet. On one hand, online forums enable people to disseminate information in an extremely efficient way without geographical restriction. On the other hand, the freedom also comes with uncertainty. Any information can be released and the content is almost beyond control, or even unreliable. To understand the content and quality of the information in BBSs, we would split the task into two subjects: one is to assess the information sources; another is to assess the information providers, people themselves in the virtual communities. Most BBSs are anonymous, because people usually use a pseudonym rather than their real name when registering. A user does not need to provide real personal information to the system, either. Thus, how to assess the trust of the users in a BBS community and attract more trustful and worthy users to participate in the activities of the community have become crucial topics to establish a successful community. Two subjects are important for establishing user trust in a BBS community: First, a BBS system must be able to identify a user and provide efficient security protection for each user and his/her privacy. Second, the value and the trustworthiness of a user should be assessed according to that user’s behavior and contribution to the community in comparison to peers.


Author(s):  
Kuanchin Chen

Digital representation of data is becoming popular as technology improves our ways of information dissemination, sharing and presentation. Without careful planning, digitized resources could easily be misused, especially those distributed broadly over the Internet. Examples of such misuse include use without owner’s permission and modification of a digitized resource to fake ownership. One way to prevent such behaviors is to employ some form of authentication mechanism, such as digital watermarks.


2018 ◽  
Vol 7 (2.7) ◽  
pp. 320
Author(s):  
Dr JKR Sastry ◽  
N Sreenidhi ◽  
K Sasidhar

Information dissemination is taking place these days heavily using web sites which are hosted on the internet. The effectiveness and effi-ciency of the design of the WEB site will have great effect on the way the content hosted on the WEB can be accessed. Quality of a web site, places a vital role in making available the required information to the end user with ease satisfying the users content requirements. A framework has been proposed comprising 42 quality metrics using which the quality of a web site can be measured. Howevercompu-tations procedures have not been stated in realistic terms.In this paper, computational procedures for measuring “usability” of a WEB site can be measured which can be included into overall computation of the quality of a web site.


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