Perspectives on Policy and the Value of Nursing Science in a Big Data Era

2017 ◽  
Vol 31 (1) ◽  
pp. 78-81 ◽  
Author(s):  
Sheila M. Gephart ◽  
Mary Davis ◽  
Kimberly Shea

As data volume explodes, nurse scientists grapple with ways to adapt to the big data movement without jeopardizing its epistemic values and theoretical focus that celebrate while acknowledging the authority and unity of its body of knowledge. In this article, the authors describe big data and emphasize ways that nursing science brings value to its study. Collective nursing voices that call for more nursing engagement in the big data era are answered with ways to adapt and integrate theoretical and domain expertise from nursing into data science.

2014 ◽  
Vol 2014 ◽  
pp. 1-19 ◽  
Author(s):  
Mark J. van der Laan ◽  
Richard J. C. M. Starmans

This outlook paper reviews the research of van der Laan’s group on Targeted Learning, a subfield of statistics that is concerned with the construction of data adaptive estimators of user-supplied target parameters of the probability distribution of the data and corresponding confidence intervals, aiming at only relying on realistic statistical assumptions. Targeted Learning fully utilizes the state of the art in machine learning tools, while still preserving the important identity of statistics as a field that is concerned with both accurate estimation of the true target parameter value and assessment of uncertainty in order to make sound statistical conclusions. We also provide a philosophical historical perspective on Targeted Learning, also relating it to the new developments in Big Data. We conclude with some remarks explaining the immediate relevance of Targeted Learning to the current Big Data movement.


Author(s):  
Ryan McGranaghan ◽  
Enrico Camporeale ◽  
Manolis Georgoulis ◽  
Anastasios Anastasiadis

The onset and rapid advance of the Digital Age have brought challenges and opportunities for scientific research characterized by a continuously evolving data landscape reflected in the four V’s of big data: volume, variety, veracity, and velocity. The big data landscape supersedes traditional means of storage, processing, management, and exploration, and requires adaptation and innovation across the full data lifecycle (i.e., collection, storage and processing, analytics, and representation). The Topical Issue ``Space Weather research in the Digital Age and across the full data lifecycle'' collects research from across the full data lifecycle (collection, management, analysis, and communication; collectively `Data Science') and offers a tractable compendium that illustrates the latest computational and data science trends, tools, and advances for Space Weather research. We introduce the paradigm shift in Space Weather and the articles in the Topical Issue. We create a network view of the research that highlights the contribution to the change of paradigm and reveals the trends that will guide it hereafter.


Author(s):  
Linnet Taylor

International development and humanitarian organizations are increasingly calling for digital data to be treated as a public good because of its value in supplementing scarce national statistics and informing interventions, including in emergencies. In response to this claim, a ‘responsible data’ movement has evolved to discuss guidelines and frameworks that will establish ethical principles for data sharing. However, this movement is not gaining traction with those who hold the highest-value data, particularly mobile network operators who are proving reluctant to make data collected in low- and middle-income countries accessible through intermediaries. This paper evaluates how the argument for ‘data as a public good’ fits with the corporate reality of big data, exploring existing models for data sharing. I draw on the idea of corporate data as an ecosystem involving often conflicting rights, duties and claims, in comparison to the utilitarian claim that data's humanitarian value makes it imperative to share them. I assess the power dynamics implied by the idea of data as a public good, and how differing incentives lead actors to adopt particular ethical positions with regard to the use of data. This article is part of the themed issue ‘The ethical impact of data science’.


Author(s):  
Shaveta Bhatia

 The epoch of the big data presents many opportunities for the development in the range of data science, biomedical research cyber security, and cloud computing. Nowadays the big data gained popularity.  It also invites many provocations and upshot in the security and privacy of the big data. There are various type of threats, attacks such as leakage of data, the third party tries to access, viruses and vulnerability that stand against the security of the big data. This paper will discuss about the security threats and their approximate method in the field of biomedical research, cyber security and cloud computing.


2020 ◽  
Author(s):  
Bankole Olatosi ◽  
Jiajia Zhang ◽  
Sharon Weissman ◽  
Zhenlong Li ◽  
Jianjun Hu ◽  
...  

BACKGROUND The Coronavirus Disease 2019 (COVID-19) caused by the severe acute respiratory syndrome coronavirus (SARS-CoV-2) remains a serious global pandemic. Currently, all age groups are at risk for infection but the elderly and persons with underlying health conditions are at higher risk of severe complications. In the United States (US), the pandemic curve is rapidly changing with over 6,786,352 cases and 199,024 deaths reported. South Carolina (SC) as of 9/21/2020 reported 138,624 cases and 3,212 deaths across the state. OBJECTIVE The growing availability of COVID-19 data provides a basis for deploying Big Data science to leverage multitudinal and multimodal data sources for incremental learning. Doing this requires the acquisition and collation of multiple data sources at the individual and county level. METHODS The population for the comprehensive database comes from statewide COVID-19 testing surveillance data (March 2020- till present) for all SC COVID-19 patients (N≈140,000). This project will 1) connect multiple partner data sources for prediction and intelligence gathering, 2) build a REDCap database that links de-identified multitudinal and multimodal data sources useful for machine learning and deep learning algorithms to enable further studies. Additional data will include hospital based COVID-19 patient registries, Health Sciences South Carolina (HSSC) data, data from the office of Revenue and Fiscal Affairs (RFA), and Area Health Resource Files (AHRF). RESULTS The project was funded as of June 2020 by the National Institutes for Health. CONCLUSIONS The development of such a linked and integrated database will allow for the identification of important predictors of short- and long-term clinical outcomes for SC COVID-19 patients using data science.


Author(s):  
Leilah Santiago Bufrem ◽  
Fábio Mascarenhas Silva ◽  
Natanael Vitor Sobral ◽  
Anna Elizabeth Galvão Coutinho Correia

Introdução: A atual configuração da dinâmica relativa à produção e àcomunicação científicas revela o protagonismo da Ciência Orientada a Dados,em concepção abrangente, representada principalmente por termos como “e-Science” e “Data Science”. Objetivos: Apresentar a produção científica mundial relativa à Ciência Orientada a Dados a partir dos termos “e-Science” e “Data Science” na Scopus e na Web of Science, entre 2006 e 2016. Metodologia: A pesquisa está estruturada em cinco etapas: a) busca de informações nas bases Scopus e Web of Science; b) obtenção dos registros; bibliométricos; c) complementação das palavras-chave; d) correção e cruzamento dos dados; e) representação analítica dos dados. Resultados: Os termos de maior destaque na produção científica analisada foram Distributed computer systems (2006), Grid computing (2007 a 2013) e Big data (2014 a 2016). Na área de Biblioteconomia e Ciência de Informação, a ênfase é dada aos temas: Digital library e Open access, evidenciando a centralidade do campo nas discussões sobre dispositivos para dar acesso à informação científica em meio digital. Conclusões: Sob um olhar diacrônico, constata-se uma visível mudança de foco das temáticas voltadas às operações de compartilhamento de dados para a perspectiva analítica de busca de padrões em grandes volumes de dados.Palavras-chave: Data Science. E-Science. Ciência orientada a dados. Produção científica.Link:http://www.uel.br/revistas/uel/index.php/informacao/article/view/26543/20114


Author(s):  
Muhammad Waqar Khan ◽  
Muhammad Asghar Khan ◽  
Muhammad Alam ◽  
Wajahat Ali

<p>During past few years, data is growing exponentially attracting researchers to work a popular term, the Big Data. Big Data is observed in various fields, such as information technology, telecommunication, theoretical computing, mathematics, data mining and data warehousing. Data science is frequently referred with Big Data as it uses methods to scale down the Big Data. Currently<br />more than 3.2 billion of the world population is connected to internet out of which 46% are connected via smart phones. Over 5.5 billion people are using cell phones. As technology is rapidly shifting from ordinary cell phones towards smart phones, therefore proportion of using internet is also growing. There<br />is a forecast that by 2020 around 7 billion people at the globe will be using internet out of which 52% will be using their smart phones to connect. In year 2050 that figure will be touching 95% of world population. Every device connect to internet generates data. As majority of the devices are using smart phones to<br />generate this data by using applications such as Instagram, WhatsApp, Apple, Google, Google+, Twitter, Flickr etc., therefore this huge amount of data is becoming a big threat for telecom sector. This paper is giving a comparison of amount of Big Data generated by telecom industry. Based on the collected data<br />we use forecasting tools to predict the amount of Big Data will be generated in future and also identify threats that telecom industry will be facing from that huge amount of Big Data.</p>


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
J Doetsch ◽  
I Lopes ◽  
R Redinha ◽  
H Barros

Abstract The usage and exchange of “big data” is at the forefront of the data science agenda where Record Linkage plays a prominent role in biomedical research. In an era of ubiquitous data exchange and big data, Record Linkage is almost inevitable, but raises ethical and legal problems, namely personal data and privacy protection. Record Linkage refers to the general merging of data information to consolidate facts about an individual or an event that are not available in a separate record. This article provides an overview of ethical challenges and research opportunities in linking routine data on health and education with cohort data from very preterm (VPT) infants in Portugal. Portuguese, European and International law has been reviewed on data processing, protection and privacy. A three-stage analysis was carried out: i) interplay of threefold law-levelling for Record Linkage at different levels; ii) impact of data protection and privacy rights for data processing, iii) data linkage process' challenges and opportunities for research. A framework to discuss the process and its implications for data protection and privacy was created. The GDPR functions as utmost substantial legal basis for the protection of personal data in Record Linkage, and explicit written consent is considered the appropriate basis for the processing sensitive data. In Portugal, retrospective access to routine data is permitted if anonymised; for health data if it meets data processing requirements declared with an explicit consent; for education data if the data processing rules are complied. Routine health and education data can be linked to cohort data if rights of the data subject and requirements and duties of processors and controllers are respected. A strong ethical context through the application of the GDPR in all phases of research need to be established to achieve Record Linkage between cohort and routine collected records for health and education data of VPT infants in Portugal. Key messages GDPR is the most important legal framework for the protection of personal data, however, its uniform approach granting freedom to its Member states hampers Record Linkage processes among EU countries. The question remains whether the gap between data protection and privacy is adequately balanced at three legal levels to guarantee freedom for research and the improvement of health of data subjects.


2016 ◽  
Vol 16 (4) ◽  
pp. 219-224 ◽  
Author(s):  
Alex Smith

AbstractIn a world where articles and tweets are discussing how artificial intelligence technology will replace humans, including lawyers and their support functions in firms, it can be hard to understand what the future holds. This article, written by Alex Smith, is based on his presentation at the British and Irish Association of Law Librarians conference in Dublin 2016 and looks at demystifying the emerging technology boom and identifies the expertise needed to make these tools work and be deployed in law firms. The article then looks at the skills and expertise of the knowledge and information teams, based in law firms, and suggests how they are ideally placed to lead these challenges as a result of their domain expertise and their existing, well defined skills that are essential to this new generation of technology. The article looks at the new technical environment, the emerging areas of products and legal problems, the skills needed for the new roles that this revolution is creating and how this could fit into a reimagined knowledge team.


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