Ethical Dilemmas in Participatory Action Research: A Case Study from the Disability Community

2002 ◽  
Vol 29 (1) ◽  
pp. 14-29 ◽  
Author(s):  
Meredith Minkler ◽  
Pamela Fadem ◽  
Martha Perry ◽  
Klaus Blum ◽  
Leroy Moore ◽  
...  

Participatory action research (PAR) is a collaborative approach to inquiry for education and social change that is gaining increasing prominence in health education. This case study explores the use of PAR by and with a community of people with disabilities in addressing a polarizing issue in that community: death with dignity or physician-assisted suicide legislation. Following a brief review of the debate within the community about this issue and the goals, methods, and findings of this project, the authors examine four key ethical challenges. These are dilemmas in issue selection when the community is deeply divided over a problem area, inclusion and exclusion in study team makeup and sample selection, insider/outsider issues, and how best to use findings in ways that can unite and strengthen the community. The implications of these issues for health educators and others engaged in community-based PAR efforts are presented.

2016 ◽  
Vol 14 (4) ◽  
pp. 1197 ◽  
Author(s):  
Rubi Arellano ◽  
Fabricio Balcazar ◽  
Sergio Suarez ◽  
Francisco Alvarado

For several decades, community interventions have promoted community development with strategies involving capacity building, advocacy, social change, and empowerment. Although community interventions intend to ameliorate social and economic inequalities, there is still a need to evaluate the outcomes of Participatory Action Research (PAR). PAR approaches have demonstrated to be a helpful tool for addressing and identifying community issues and strengths, while leading community members into action. The PAR approach described in this case study of “Ciudad Renace” (Town Reborn)—the Concerns Report Method (CRM)—provided a process for the community to come together and identify main issues, organize, and take actions. The findings suggest multiple activities and outcomes in areas like environmental contamination, social services, and education. Participatory methodologies like the Concerns report Method provided opportunities for community members to become engaged in pursing issues and addressing their own needs. The implications for community psychology research and practice are discussed.


Author(s):  
Colin Bryson

This case study evaluates a new initiative to establish a cross-disciplinary forum focusing on enhancing learning, teaching and the student experience. All staff and students are welcome to participate and participants set the agenda themselves. The intention is to have open and informal dialogue and to work in partnership towards setting up collective participatory action-research projects. This is modelled on the Teaching and Learning Academy at Western Washington University (Werder and Otis, 2010). An important aim was to create a space to give voice for those - the so-called ‘hard to reach’- who do not get such opportunities in traditional structures. There have been many challenges to creating a sustainable and successful working model, not least such barriers as communications, creating time and opportunity and working against current dominant cultures. Nonetheless, staff and students, including many international students, have participated and found legitimacy to discuss their own priorities. 


2017 ◽  
Vol 18 (3) ◽  
pp. 282-301 ◽  
Author(s):  
Alejandra Boni ◽  
Aurora López-Fogués ◽  
Gynna Millán ◽  
Sergio Belda-Miquel

The aim of this paper is to analyse participatory video as a participatory action research method through the lenses of the capability approach. In order to do this, we used a participatory video experience that took place in the municipality of Quart de Poblet (Valencia, Spain) from February to March 2014. The participants were 11 young people between 16 and 24 years of age, severely affected by the economic crisis that has hit Spain in recent years. To develop our analysis, we introduced the participatory video as a technique and a process within the participatory action research methods. Then, we analysed the participatory process to verify the extent to which it had contributed to expanding the capabilities and agency of the participants. The evidence revealed a significant expansion of the awareness capability and, in some cases, of the capability for voice. In contrast, the capability to aspire and the agency of the participants were not expanded, due to contextual factors and the limitations of the process itself.


Author(s):  
Kylie Murphy ◽  
Tracey Parnell ◽  
Rodney Pope ◽  
Clarissa Hughes ◽  
Marguerite Bramble ◽  
...  

This paper synthesises the results of three participatory action research (PAR) studies undertaken to improve the integration of evidence-based practice (EBP) education in three undergraduate health courses at one Australian university: Bachelor of Nursing, Bachelor of Occupational Therapy, and Bachelor of Physiotherapy. The PAR process with interested academics uncovered a range of EBP education strengths and weaknesses in the three courses. Common themes were evident, which are likely to be applicable in other similar courses. Identified weaknesses included a lack of explicit teaching about the meaning, principles, steps, and importance of EBP, partly stemming from a lack of shared understanding. A relative lack of emphasis on certain EBP steps was also noted, particularly the first step of ‘asking’ questions. A lack of communication with workplace learning (WPL) supervisors about how to facilitate EBP was also noted, raising concerns about variable EBP-education quality across WPL settings.  Opportunities for improvement were identified by academics in each course, across multiple subjects and year levels. In our experience, PAR has been a highly constructive approach to EBP curriculum improvement. We encourage consideration of a PAR approach for addressing similarly complex curriculum challenges.


Author(s):  
Katie Richards-Schuster

This article reviews 'Revolutionizing education', a deeply reflective and retrospective book of scholarship on critical questions about youth participatory action research. The book contains a series of case study chapters that examine how youth participatory action research transforms young people and the social contexts in which they live as well as the learnings and implications yielded from this research. The book examines youth participatory action research both for its radical and revolutionary challenge to 'traditional research' practices but also for its active focus on research as a vehicle for increasing critical consciousness, developing knowledge for 'resistance and transformation' and for creating social change. It represents an important contribution to the field of youth participatory action research and community-based research.


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