Illness Representations: Mapping the Experience of Lupus

1999 ◽  
Vol 26 (4) ◽  
pp. 443-453 ◽  
Author(s):  
Kristin L. Wiginton

Lupus, a chronic illness that mainly affects women, presents numerous challenges to health professionals due to the unpredictable nature of the disease course. To provide appropriate educational interventions for those living with lupus, health educators must develop methods best suited to individuals’current mental representations of their illness. A cognitive mapping strategy was used in this study to ascertain the patients’own perceptions of living with lupus. The participants ( N = 20) identified 192 unduplicated concepts in their maps, which were ultimately collapsed into 12 major categories. The results of this study indicate that, although diagnosed with the same illness, the women presented with different mental representations of their illness. Consequently, cognitive mapping could serve as a useful tool to initiate tailored educational interventions for those living with lupus.

2020 ◽  
Author(s):  
Krishna Krishna Prasad Pathak

BACKGROUND Health professionals (HPs) play a key role in dementia management and detection. However, there is a gap in the literature as to what represents best practice with regard to educating HPs to improve their dementia detection practices and management. OBJECTIVE The objective of this scoping review is to synthesize the aggregated studies aimed at improving health care knowledge, detection practices and management of dementia among HPs. METHODS We searched electronically published relevant articles with inclusion criteria; (1) intervention studies aimed at improving HPs practices concerning dementia care and (2) educational interventions focused on nurses and doctors’ knowledge, detection practice and management of dementia. Twenty-five articles fit the inclusion criteria. RESULTS Collaborative programs of practice based workshops, interactive learning activities with community and multi-faced educational program were the most effective. CONCLUSIONS HPs should be supported to improve their knowledge, tackle behavioural problems associated with dementia, be made aware of services and be enabled to engage in more early diagnosis. CLINICALTRIAL no applicable


1999 ◽  
Vol 8 (2) ◽  
pp. 63-72
Author(s):  
Kristin L. Wiginton ◽  
Deborah Rhea

The incidence of eating disorders among female athletes continues to increase, presenting intervention challenges to athletic trainers. Additionally, a number of female athletes have disordered eating behaviors that do not yet constitute an eating disorder diagnosis, but have similar characteristics to those athletes diagonised with eating disorders. However, each athlete exhibits individual mental representations of disordered eating and the impact of those representations on important aspects of her life. The athletic trainer has the potential to offer comprehensive preventive education when all aspects of the athlete’s own understanding of disordered eating are assessed. Cognitive mapping is an assessment technique that can be used in addition to other preventive practices and can be useful in determining an athlete’s current mental representations of disordered eating.


Author(s):  
SUPRIYA SONOWAL ◽  
CHETNA K DESAI ◽  
JIGAR R PANCHAL

Objectives: The objectives of the study were to evaluate the impact of certain educational interventions on adverse drug reaction (ADR) reporting by nursing health professionals at a tertiary care hospital. Methods: Knowledge, attitude, and practice (KAP) of the nurses regarding ADR reporting were evaluated before and after interventions using a KAP questionnaire. Educational interventions carried out among the nurses were workshops, booklets, SMSes, personal briefings, and posters. Number and quality of ADR reported by nurses in pre-intervention (3 months), intervention (10 months), and post-intervention (3 months) phase were compared. Results: There was a significant increase in response rate to questionnaires in the post-intervention phase (post-IP) (97.74%) as compared to pre-intervention (91.28%) phase (pre-IP). The knowledge score of the nurses increased significantly in post-IP (11.65 ± 2.14) as compared to the pre-intervention (6.98 ± 2.46) phase. No ADR was reported by nurses in pre-IP. Thirty nurses reported 30 ADRs in the intervention phase and six nurses reported six ADRs in the post-IP. The mean score of completeness of ADR notification forms decreased significantly in post-IP. Maximum ADRs (10) were reported after the workshops. Conclusion: Educational interventions improved the KAP of ADR reporting by nurses, albeit temporary. This suggests the need of continuous educational interventions.


2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e18532-e18532
Author(s):  
Ash B. Alpert ◽  
Vikas Gampa ◽  
Susan Thomas Vadaparampil ◽  
Gwendolyn P. Quinn

e18532 Background: Little is known about the training needs of allied health professionals who provide reproductive health counseling and other support services to sexual and gender minority (SGM) adolescent and young adult (AYA) people with cancer. Methods: A 28-item electronic survey with 4 qualitative items was distributed to 601 allied health professionals who had participated in a training focused on reproductive health needs in AYA people with cancer. Open-ended questions invited respondents to describe personal experiences, reservations, and suggestions for improving SGM AYA cancer care. Using an interpretive description methodology, two investigators independently analyzed qualitative survey responses noting thematic saturation. Together, they refined themes, resolving disagreements with consensus. Interrater reliability was 88%. Results: 321 people participated in the survey and 190 answered open-ended questions. Themes included: 1) an ecosystem exists around patients’ interactions with clinicians and institutions; 2) institutional and individual assumptions result in stigmatization of SGM AYA people with cancer; 3) accommodating patients and providing clinicians with relevant education and experiences are initial steps to decrease stigma; and 4) improving the care for SGM AYA people with cancer may require transformative approaches that incorporate intersectional frameworks and challenge current systems. Conclusions: Improving the quality of care for SGM AYA people with cancer will require systemic and institutional change as well as educational interventions.


2008 ◽  
Vol 27 (2) ◽  
pp. 117-127 ◽  
Author(s):  
Carrie A. Mcainey ◽  
David Harvey ◽  
Mary E. Schulz

While primary care faces many challenges, including an increasing prevalence of older individuals, emerging knowledge about the potential benefits of collaborative partnerships has encouraged the development of new means of providing and supporting primary care. First Link™ is an innovative program involving collaborations among primary care providers, Alzheimer Societies, and other health professionals. The program aims to support persons with Alzheimer's and related diseases after the diagnosis is made and to link them with support services earlier in the disease course. This paper describes the First Link program, provides an overview of a study currently underway to evaluate it, and identifies some of the benefits and challenges associated with this partnership.


1995 ◽  
Vol 18 (6) ◽  
pp. 531-548 ◽  
Author(s):  
Kathleen M. Schiaffino ◽  
Christine D. Cea

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