Development of a Comprehensive Quality-of-Life Measure for Facial and Torso Acne

2018 ◽  
Vol 22 (3) ◽  
pp. 304-311 ◽  
Author(s):  
Chelsea McLellan ◽  
Marc P. Frey ◽  
Diane Thiboutot ◽  
Alison Layton ◽  
Mary-Margaret Chren ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Skin Disorder ◽  
Well Being ◽  
Delphi Survey ◽  
Psychometric Validation ◽  
Cognitive Interviews ◽  
Life Measure ◽  
Chronic Skin

Background Acne is a chronic skin disorder which generally presents in adolescence but continues into adulthood, and negatively affects both physical and psychosocial well-being. Presently, there are no validated acne-specific quality-of-life (QoL) measures that include dimensions for both facial and torso acne. Objective: The objective of this study was to develop a QoL instrument for both facial and torso acne (CompAQ) in accordance with recommended standards. Methods: A literature review and Delphi survey of patients and clinicians were used to develop the conceptual framework for outcomes perceived important to acne patients. An initial version of the measure was developed, CompAQ-v1, and pilot tested with patients via cognitive interviews. Results: The Delphi survey generated 4 domains (physical, psychological, sociological, and treatment) and 54 items. These, along with a literature review and input from clinical experts, informed the development of the CompAQ-v1. Eleven cognitive interviews were conducted, resulting in the second version of the measure, CompAQ-v2. Psychometric validation resulted in the final 20-item CompAQ measure comprising 5 domains. An abbreviated 5-item measure was also developed (CompAQ-SF). Conclusion: CompAQ and CompAQ-SF are instruments intended to evaluate QoL in patients with acne on their face or torso. The former is a 21-item QoL intended for research, while the latter is intended for clinical practice.

scholarly journals Development of a Quality-of-Life Measure for Hidradenitis Suppurativa

2016 ◽  
Vol 21 (2) ◽  
pp. 152-155 ◽  
Author(s):  
Mia Sisic ◽  
Joslyn S. Kirby ◽  
Sanwarjit Boyal ◽  
Lisa Plant ◽  
Chelsea McLellan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hidradenitis Suppurativa ◽  
Well Being ◽  
Psychometric Validation ◽  
Cognitive Interviews ◽  
Concept Elicitation ◽  
Patient Interviews ◽  
Being There ◽  
Expert Input

Background: Hidradenitis suppurativa (HS) is a chronic skin disorder with adverse impacts on both physical and psychosocial well-being. There is presently no validated HS-specific quality-of-life (QoL) measure. Objective: The objective of this study is to develop a QoL instrument for HS (HS-QoL) in accordance with recommended standards. Methods: Patient interviews (concept elicitation) and expert input were used to develop the conceptual framework for outcomes perceived important to patients with HS. A HS-QoL-v1 measure was developed, and cognitive interviews with patients were conducted for pilot testing. Results: Concept elicitation interviews with patients with HS (n = 21) generated 12 themes. Most frequently reported were impacts on daily activities and symptoms due to HS. These themes, along with literature review and input from clinical experts, informed development of the HS-QoL-v1. Nine cognitive interviews were conducted in a pilot test and resulted in the HS-QoL-v2 measure. Conclusion: The HS-QoL-v2 is a preliminary QoL instrument for which further psychometric validation and establishment of clinimetric properties will be undertaken.

Impact of Design on Emotional, Psychological, or Social Well-Being for People With Cognitive Impairment

2018 ◽  
Vol 12 (3) ◽  
pp. 220-232 ◽  
Author(s):  
Elizabeth Karol ◽  
Dianne Smith
Keyword(s):  
Quality Of Life ◽  
Cognitive Impairment ◽  
Literature Review ◽  
Thermal Comfort ◽  
Well Being ◽  
Design Expertise ◽  
Relationship Of ◽  
The Impact ◽  
The Relationship

Aim:The objective of this article is to identify and analyze what is known about characteristics in and around the home that support well-being for those with cognitive impairment. This could provide direction for designers of homes in general, but specifically for designers trying to meet the needs of people with cognitive impairment.Background:It has been established that there is a relationship between psychological well-being and a person’s environment. Research also shows that particular design aspects can reduce the impact of cognitive impairment. However, there is limited design expertise in the Australian housing market to create supportive spaces which will help to reduce the impact of the disability for those with cognitive impairment.Method:A literature review was carried out to determine the extent and details of what is known about the relationship of home design and its impact on emotional, psychological, or social well-being for people with cognitive impairment.Conclusions:The study indicates that researchers in various disciplines understand that pragmatic design inputs such as thermal comfort and adequate lighting are important for people with cognitive impairment. In addition, some researchers have shown or surmise that there are other “intangible” designer-controlled elements that have beneficial impacts on people with cognitive impairment. Details of these intangible elements are sparse, and how much they might improve the quality of life for a person with cognitive impairment is not well understood. Further research is required to meet a growing need.

scholarly journals A Systematic Literature Review and Head-to-Head Comparison of Social Support and Social Constraint in Relation to the Psychological Functioning of Cancer Survivors

2019 ◽  
Vol 54 (3) ◽  
pp. 176-192 ◽  
Author(s):  
Jessica N Rivera Rivera ◽  
Jessica L Burris
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Literature Review ◽  
Cancer Survivors ◽  
Social Functioning ◽  
Psychological Functioning ◽  
Well Being ◽  
Social Constraint ◽  
Multidimensional Concept

Abstract Background Quality of life is a multidimensional concept that includes perceptions of one’s physical, psychological, social, and spiritual functioning, all of which are theorized to be interdependent. The focus of this study is social functioning, which itself is a multidimensional concept that includes social support and social constraint among other things. In cancer survivors, social support receives most of the research attention, but social constraint may have a stronger influence on quality of life. Purpose This systematic literature review evaluates which aspect of social functioning—social support or social constraint—has a stronger relationship with the psychological functioning of cancer survivors. Methods The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed in the identification and review of 32 independent records. Multiple measures of social support and social constraint were used across studies, with most having adequate psychometric properties. Psychological outcomes were divided into (a) general distress, (b) cancer-specific distress, (c) general well-being, and (d) cancer-specific well-being. Results For general and cancer-specific distress, social constraint exhibited a larger association with distress than social support. Similarly, for general well-being, most studies reported a stronger association with social constraint than social support. For cancer-specific well-being, the opposite was true such that associations were stronger for social support than social constraint. Conclusions Results highlight the importance of considering social constraint when examining quality-of-life outcomes like psychological distress and well-being. Findings support social constraint as a target in interventions to reduce cancer survivors’ distress, while social support could be considered in attempts to promote cancer-specific well-being.

Burden of idiopathic pulmonary fibrosis on patients’ emotional well being and quality of life: a literature review

2020 ◽  
Vol 26 (5) ◽  
pp. 457-463 ◽  
Author(s):  
Katerina Antoniou ◽  
Apostolos Kamekis ◽  
Emmanouil K. Symvoulakis ◽  
Maria Kokosi ◽  
Jeffrey J. Swigris
Keyword(s):  
Quality Of Life ◽  
Idiopathic Pulmonary Fibrosis ◽  
Pulmonary Fibrosis ◽  
Literature Review ◽  
Well Being

scholarly journals Validation of the Spanish Version of Newcastle Stroke-Specific Quality of Life Measure (NEWSQOL)

2020 ◽  
Vol 17 (12) ◽  
pp. 4237
Author(s):  
Concepción Soto-Vidal ◽  
Soraya Pacheco-da-Costa ◽  
Victoria Calvo-Fuente ◽  
Sara Fernández-Guinea ◽  
Carlos González-Alted ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Response Rate ◽  
Spanish Version ◽  
Psychometric Validation ◽  
Alpha Coefficient ◽  
Cronbach’S Alpha ◽  
Life Measure ◽  
Cronbach's Alpha

Background: Stroke causes a wide variety of clinical manifestations that may have a negative impact on quality of life. Therefore, it is very important to use specific instruments for measuring quality of life in individuals who suffered a stroke. The aim of this study was to develop a psychometrically validated Spanish version of the Newcastle stroke-specific quality of life measure (NEWSQOL). Methods: A psychometric validation of the Spanish version of the NEWSQOL questionnaire was carried out in 159 patients. The reliability (intraclass correlation coefficient and Cronbach’s alpha coefficient), validity (factorial analysis and Spearman’s coefficient), feasibility (response rate), and the ceiling and floor effects were calculated. Results: Internal consistency showed that Cronbach’s alpha coefficient was 0.93. The test–retest reliability was high or excellent for all domains (range 0.71–0.97 p < 0.001). The response rate of the questionnaire was 100% and the average administration time was 20.5 (±7.2) min. No ceiling effect was detected and two domains (pain and vision) may have a significant potential for floor effect. Construct validity showed that all the variables are important enough to keep them all in the questionnaire. Concerning convergent construct validity, a high correlation was found with the Nottingham Health Profile, the Barthel Index, and the Modified Rankin Scale. Conclusion: The Spanish version of the NEWSQOL questionnaire is reliable, valid, and feasible to evaluate quality of life in the Spanish population.

scholarly journals Validation of a vascular access specific quality of life measure (VASQoL)

2021 ◽  
pp. 112972982110467
Author(s):  
Sabine Richarz ◽  
Sharon Greenwood ◽  
David B Kingsmore ◽  
Peter C Thomson ◽  
Mark Dunlop ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Vascular Access ◽  
Kidney Failure ◽  
Adult Patients ◽  
Cognitive Interviews ◽  
Life Measure ◽  
Retest Reliability ◽  
Test Retest Reliability ◽  
Responsiveness To Change

Background: A self-administered 11 item vascular access specific quality of life measure (VASQoL) was previously derived from detailed qualitative interviews with adult patients with kidney failure who have experienced vascular access using the Capabilities Approach as a theoretical base. This study reports the psychometric validation of the VASQoL measure including its reliability, content validity and responsiveness to change. Methods: Cognitive interviews were conducted with 23 adult patients with kidney failure after completion of the VASQoL measure. Focus group discussion with a vascular access professional multidisciplinary team was undertaken ( n = 8) and subsequently a further 101 adult kidney failure patients with vascular access (TCVC, AVF or AVG) completed the digital VASQoL measure, EQ-5D and SF-36 questionnaires in a longitudinal study with prospectively recorded vascular access events. Results: Transcript analysis of cognitive interviews after VASQoL completion indicated that the content was comprehensive and well understood by participants. Assessment of Internal reliability for the VASQoL measure was high (Cronbach’s alpha 0.858). Test-retest reliability of the overall VASQoL measure was high (intra class correlation coefficient 0.916). In those patients who experienced a vascular access event, significant differences were observed in paired analysis of the VASQoL physical domain questions and vascular access function domain questions and in the EQ-5D usual activities, pain and anxiety domains. In those with no vascular access event, variation was observed in longitudinal analysis in VASQoL questions relating to worry about VA function and capability domains, whilst no variation was observed in the EQ5D measure. Conclusion: The VASQoL measure has good internal consistency, test-retest reliability, convergent validity and responsiveness to change for clinically relevant vascular access outcomes. This provides a validated, vascular access specific quality of life measure that can be used in future trials of vascular access, evaluation of new technologies and routine use as a patient reported outcome measure (PROM).

scholarly journals Tinjauan Literatur Kesan Obesiti ke atas Psikososial Remaja

2015 ◽  
Author(s):  
NORFADILAWATI ALIAS ◽  
FUZIAH SHAFFIE
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Physical Health ◽  
Adolescent Development ◽  
Health Problem ◽  
Human Life ◽  
Well Being ◽  
Obese Adolescent ◽  
Drastic Increase

Obesity is a health problem that threatens all aspects of human life. While rising rates of obesity involving adolescents do not show such a drastic increase, this problem should not be underestimated. In addition to grappling with the issue of adolescent development, adolescent obesity is also facing with the problem of physical health, social and psychological caused by obesity. If the issue is not addressed with appropriate intervention, obese adolescent will have the quality of life and well-being of poor and disrupt their functioning in society. Therefore, this paper will try to discuss about the health effects of psychological and social (psychosocial) experienced by obese adolescents based on the literature review and proposed interventions that can be used to help them.  

Interventions to Improve Quality of Life, Well-Being, and Care in Latino Cancer Survivors: A Systematic Literature Review

2016 ◽  
Vol 43 (3) ◽  
pp. 374-384 ◽  
Author(s):  
Julie McNulty ◽  
Wonsun Kim ◽  
Tracy Thurston ◽  
Jiwon Kim ◽  
Linda Larkey
Keyword(s):  
Quality Of Life ◽  
Literature Review ◽  
Cancer Survivors ◽  
Systematic Literature Review ◽  
Well Being ◽  
Improve Quality

scholarly journals Impact of the use of the internet on quality of life in older adults: review of literature

2020 ◽  
Vol 21 ◽  
Author(s):  
Bhumika Aggarwal ◽  
Qian Xiong ◽  
Elisabeth Schroeder-Butterfill
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Information Technology ◽  
Literature Review ◽  
Internet Use ◽  
Well Being ◽  
The Internet ◽  
Use Of Internet ◽  
The Impact

Abstract Aim: Given the paucity of data on the use of internet and quality of life (QoL), this literature review aimed to identify the motivations and barriers for internet use and the impact on QoL on older adults using the internet. Background: Even though older adults are increasingly using information technology, the numbers remain quite small globally. Currently published research primarily focuses on the various ways and methods of information technology use by older adults and the factors influencing use rather than on the impact of information technology on QoL of older adults. Methods: The studies included in this literature review were searched in three databases: WEB of Science, GoogleScholar and PubMed. English language articles were searched using the terms ‘older’, ‘elderly’, ‘senior’, ‘well-being’, ‘life satisfaction’, ‘quality of life’, ‘internet’ and “computer”. Findings: The review demonstrated the association of internet use on QoL in older adults. The majority of the studies substantiate the advantages of internet use by older adults including the ability to communicate with family and friends, maintain a wide social network, have access to information and participate in online leisure activities. There are some studies, though less in number, which did not find a relationship between well-being and use of internet by older adults. The policy implications of this review advocate a multidimensional strategy to support internet use by the older people incorporating internet training and education, financial issues, technical support and access needs to be developed.

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