Home-based music therapy for children with developmental disorders during the COVID-19 pandemic

2021 ◽  
pp. 1357633X2098121
Author(s):  
Sarah Bompard ◽  
Tommaso Liuzzi ◽  
Susanna Staccioli ◽  
Fiammetta D’Arienzo ◽  
Sahereh Khosravi ◽  
...  

Introduction During the COVID-19 pandemic, children with neurodevelopmental disabilities could not attend their usual rehabilitation therapies, with a consequent reduced support of developmental process and risk of worsening of their clinical conditions. Methods We prospectively enrolled 14 children with developmental delay, who had already tried a personalised music therapy (Euterpe method). We included them in a 12-day programme of home-based music therapy. The children and their parents were investigated using the Sleep Disturbance Scale for Children and the Parent Stress Index-Short Form. Results Fourteen children started the intervention, while only 12 children completed all the planned home sessions and assessments. We observed a significant improvement in children’s sleep quality and a reduction of parental distress. Discussion The significant improvements in parental distress and sleep quality must be considered important achievements for the quality of life of a child and their family. Home-based music therapy can provide a feasible approach to improving sleep and parent’s stress for children with developmental disorders.

2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.


2017 ◽  
Author(s):  
Τερψιχόρη Κόρπα

Εισαγωγή: Τα τελευταία χρόνια έχει αυξηθεί η επιστημονική διερεύνηση των λειτουργιών του άξονα Υποθάλαμου-Υπόφυσης-Επινεφριδίιων (ΗΡΑ Axis) στα παιδιά και τους ενήλικους με Διαταραχής Ελλειμματικής Προσοχής-Υπερκινητικότητας (ΔΕΠΥ), καθώς τα ευρήματα υποστηρίζουν την συσχέτιση της δυσλειτουργίας του άξονα HPA με παράγοντες συνοσηρότητας και βαρύτητας. Η δραστηριότητα του άξονα HPA έχει παρατηρηθεί ότι επηρεάζεται από ψυχοκοινωνικoύς στρεσογόνους παράγοντες, όπως το γονεϊκό στρες, που φαίνεται να παρατηρείται σε υψηλότερα επίπεδα σε μητέρες παιδιών με ΔΕΠΥ σε συγκριση με μητέρες παιδιών τυπικής αναπτυξης. Σκοπός: Στην παρούσα έρευνα μελετήθηκε η πιθανή συσχέτιση ανάμεσα στα επίπεδα γονεϊκου στρες που βιώνουν μητέρες παιδιών με ΔΕΠΥ και μητέρες υγιών παιδιών, με το ημερήσιο μοτίβο έκλυσης κορτιζόλης στα παιδιά τους. Επιπλέον, διερευνήθηκε η ύπαρξη συμπτωματολογίας ΔΕΠΥ στις μητέρες και η πιθανή επιρροή της μέσω του στρες του γονεϊκού ρόλου τους στο μοτίβο έκλυσης κορτιζόλης των παιδών τους. Μέθοδος: Στη μελέτη συμμετείχαν 120 παιδιά ηλικίας 6-11 ετών με τις μητέρες τους, τα οποία αξιολογήθηκαν και ταξινομήθηκαν σε τρεις ομάδες (Ν= 26 ως ΔΕΠΥ-Απρόσεκτου Υπότυπου/ ADHD-I, Ν= 49 ως ΔΕΠΥ-Συνδυασμένου Υπότυπου/ADHD-C και ΔΕΠΥ Υπερκινητικού-Παρορμητικού Υπότυπου/ADHD-ΗΙ και Ν=45 ως υγιείς ομάδας Eλέγχου). Συμπληρώθηκαν επίσης τα απαραίτητα ψυχομετρικά εργαλεία αξιολόγησης του Γονεικού Στρες των μητέρων (Parenting Stress Index – Short Form, PSI–SF), ανίχνευσης συμπτωματολογίας ΔΕΠΥ και γενικής ψυχοπαθολογίας τους, ενώ ελήφθησαν καταγραφές για την κοινωνική υποστήριξη και την κοινωνικο-οικονομική κατάσταση αυτών. Ελήφθησαν επίσης και έξι (6) δείγματα κορτιζόλης σιέλου των παιδιών κάθε ομάδας σε τακτά διαφορετικά χρονικά σημεία στη διάρκεια μιας τυπικής ημέρας. Αποτελέσματα: Οι μητέρες των παιδιών ADHD-C/HI κατέγραψαν υψηλότερα επίπεδα γονεϊκού στρες από τις μητέρες των παιδιών με ADHD–I. Όλες οι υποκλίμακες του PSI–SF κατέδειξαν σημαντικές συσχετίσεις με την Ανταπόκριση Κορτιζόλης Αφύπνιση (CAR) των παιδιών στις δύο ομάδες ADHD-C/HI και ADHD–I, με εξαίρεση την υποκλίμακα Γονεϊκή Δυσφορία (Parental Distress) του PSI–SF στην ομάδα ADHD–I. Και στις δύο ομάδες ADHD-C/HI και ADHD–I, κατεδείχθησαν υψηλές τιμές στις υποκλίμακες Δυσλειτουργική Αλληλεπίδραση Μητέρας – Παιδιού (Parent–Child Dysfunctional Interaction) και Δύσκολου Παιδιού (Difficult Child) καθώς επίσης και στη συνολική βαθμολογία του PSI, που είχαν σημαντικά αποτελέσματα αλληλεπίδρασης με την CAR. Επίσης, για τα παιδιά με ΔΕΠΥ που είχαν μητέρα με συμπτωματολογία ΔΕΠΥ καταγράφηκαν σημαντικά υψηλότερες βαθμολογίες σε όλες τις διαστάσεις του PSI των μητέρων τους, σε σύγκριση με τα παιδιά με ΔΕΠΥ με μητέρα χωρίς συμπτωματολογία ΔΕΠΥ. Στις μητέρες με συμπτώματα ΔΕΠΥ καταγράφηκαν αυξημένα επίπεδα στρες και συσχετίσεις με την Ανταπόκριση Κορτιζόλης Αφύπνισης (CAR) των παιδιών τους. Οι τιμές CAR των παιδιών με μητέρα χωρίς συμπτώματα ΔΕΠΥ και χαμηλές βαθμολογίες τόσο σε όλες τις διαστάσεις του PSI όσο και στη συνολική βαθμολογία, ήταν σημαντικά υψηλότερες σε σύγκριση με τις τιμές CAR των παιδιών που επίσης είχαν μητέρα χωρίς συμπτώματα ΔΕΠΥ αλλά με υψηλά επίπεδα στις αντίστοιχες βαθμολογίες του PSI. Συμπεράσματα: Διαπιστώθηκε συσχέτιση ανάμεσα στα υψηλά επίπεδα γονεϊκού στρες της μητέρας και στη λειτουργία του Άξονα ΗΡΑ στα παιδιά με ΔΕΠΥ, όπου η CAR επισημάνθηκε ως ένα ευαίσθητο περιφερειακό μέτρο λειτουργίας του Άξονα των παιδιών αυτών. Η ύπαρξη συμπτωματολογίας ΔΕΠΥ στη μητέρα του παιδιού φαίνεται να παίζει σημαντικό ρόλο στην αύξηση των επιπέδων γονεϊκού στρες και να αυξάνει την πιθανότητα επιβάρυνσης της λειτουργίας του Άξονα ΗΡΑ. Μέσω των ευρημάτων της μελέτης αποπειράθηκε ένα μοντέλο απεικόνισης της σχέσης του γονεϊκού στρες των μητέρων και της λειτουργίας του Άξονα HPA των παιδιών τους με ΔΕΠΥ, παρουσιάζοντας τη σημαντικότητα της πρώιμης κλινικής παρέμβασης στον κύκλο των αρνητικών αλληλεπιδράσεων που βιώνουν οι οικογένειες των παιδιών με ΔΕΠΥ.


2020 ◽  
Vol 25 ◽  
pp. 1-7
Author(s):  
Luiz José Frota Solon Júnior ◽  
Leonardo de Sousa Fortes ◽  
Bruno Teixeira Barbosa ◽  
José Valdir Alves Feitosa Júnior ◽  
Carlos Henrique Tomaz Ribeiro ◽  
...  

This study compared the quality of life, sleep quality, eating attitudes, and psychological aspects among adults (22.93 ± 2.58 years), whether physically inactive or not, before and during the COVID-19 pandemic. Participants were enrolled into: home-based exercise during the confinement (HBE group, n = 34), physically inactive during (PIDC group, n = 28), and before the confinement (PIBC group, n = 27). The depression, anxiety, and stress scale - Short Form, the Pittsburgh sleep quality index, the Eating Attitudes Test, and the quality of life questionnaire were used to assess variables. The covariance analysis (covariable - gender) was used to compare variables among the groups. The effect size was calculated by Cohen "d" (ESd). The HBE group presented a better quality of life compared to both PIDC (p = 0.002, ESd = 1.26) and PIBC (p = 0.008, ESd = 1.00) groups. Anxiety (p = 0.004, ESd = 0.96), depression (p = 0.02, ESd = 0.65) and stress (p = 0.02, ESd = 0.72) were significantly higher in the PIDC group when compared to HBE group. Self-reported sleep quality was better in the HBE group than in both other groups (p < 0.05). No group presented eating disorder symptoms; however, the HBE group has shown higher scores compared to both PIBC group (p = 0.01). In conclusion, adults who had exercised at home during the COVID-19 pandemic presented better quality of life, self-reported sleep quality, and reduced anxiety, depression, and stress levels than those physically inactive ones before and during the pandemic.


2020 ◽  
pp. 136749352090538
Author(s):  
Alan H Silverman ◽  
Gina Erato ◽  
Praveen Goday

Paediatric feeding disorders (PFDs) are common. Earlier studies have shown an association between PFD and caregiver stress, but these studies have been hampered by insufficient power. This study reports stress for caregivers of children diagnosed with PFD. These caregivers were then compared to community norms of the Parental Stress Index–Short Form. Caregivers also completed the Mealtime Behaviour Questionnaire, Child Behaviour Checklist and Child Development Inventory. Linear regression and hierarchical regression analyses assessed the relationship among the variables. Caregivers of 840 children with PFD responded. Negative child behaviours and lower child developmental function predicted higher levels of total parenting stress, parental distress, parent–child dysfunctional interaction and caregiver perceptions of their child as difficult. Higher rates of child internalizing and externalizing problems and child mealtime aggression were associated with parent perceptions of their child as difficult and contributed to total parental stress. Parents of older children reported higher levels of stress, whereas parents of younger children were more likely to be defensive responders. Overall, parents of children with PFD have more caregiver-related stress. These caregivers may benefit from consultations with mental health professionals to provide the most appropriate care to affected families.


2011 ◽  
Vol 14 (2) ◽  
pp. 990-997 ◽  
Author(s):  
Ángela Díaz-Herrero ◽  
José Antonio López-Pina ◽  
Julio Pérez-López ◽  
Alfredo G. Brito de la Nuez ◽  
María Teresa Martínez-Fuentes

The purpose of this study was to analyze the psychometric properties of the Spanish version of the Parenting Stress Index-Short Form in a sample of 115 fathers of infants aged between ten and thirty-nine months old. The exploratory factor analysis revealed three reasonably distinct factors, as in the original version of the instrument. The three extracted factors: Parental Distress, Parent-Child Dysfunctional Interaction and Difficult Child accounted for 47.48 % of the variance. The internal consistency coefficients were high in each factor or subscale. These results provided empirical evidence in favour of the reliability and validity of the Parenting Stress Index-Short Form in Spanish fathers, and can be useful to elucidate the mechanisms through which stress impacts parenting and permitting to develop more targeted interventions for infants and their families.


2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Femke Bannink ◽  
Richard Idro ◽  
Geert Van Hove

Background: Children with disabilities in Sub-Saharan Africa depend for a large part of their functioning on their parent or caregiver. This study explores parental stress and support of parents of children with spina bifida in Uganda.Objectives: The study aimed to explore perceived stress and support of parents of children with spina bifida living in Uganda and the factors that influence them.Methods: A total of 134 parents were interviewed. Focus group discussions were held with four parent support groups in four different regions within the country. The Vineland Adaptive Behaviour Scales, Daily Functioning Subscales and Parental Stress Index Short Form (PSI/SF) were administered to measure the child’s daily functioning level and parental stress levels.Results: Parental stress was high in our study population with over half of the parents having a > 90% percentile score on the PSI/SF. Stress outcomes were related to the ability to walk (Spearman’s correlation coefficient [ρ] = −0.245), continence (ρ = −0.182), use of clean intermittent catheterisation (ρ = −0.181) and bowel management (ρ = −0.213), receiving rehabilitative care (ρ = −0.211), household income (ρ = −0.178), geographical region (ρ = −0.203) and having support from another parent in taking care of the child (ρ = −0.234). Linear regression showed parental stress was mostly explained by the child’s inability to walk (β = −0.248), practicing bowel management (β = −0.468) and having another adult to provide support in caring for the child (β = −0.228). Parents in northern Uganda had significantly higher scores compared to parents in other regions (Parental Distress, F = 5.467*; Parent–Child Dysfunctional Interaction, F = 8.815**; Difficult Child score, F = 10.489**).Conclusion: Parents of children with spina bifida experience high levels of stress. To reduce this stress, rehabilitation services should focus on improving mobility. Advocacy to reduce stigmatisation and peer support networks also need to be strengthened and developed.Keywords: Parents; Stress; Spina Bifida; Disability; Africa 


2017 ◽  
Vol 41 (S1) ◽  
pp. s787-s787
Author(s):  
R. Ferrara ◽  
M. Esposito

IntroductionIn parents of autistic children there are high levels of stress. For parents, counseling can help them face the world of autism through the many stressors they experiment.ObjectivesTo evidence a possible effect of the counseling intervention on parental stress.MethodsThe sample consisted of 24 parents (mean age = 38.7) of children diagnosed with autism spectrum disorder related to the treatment centre “Una breccia nel muro”. Parents’ group was randomly divided into two subgroups, the first (EG experimental group) consists in 12 parents, which were included in a counseling treatment of six months (one meeting of 2 hours every 15 days), while the other subgroup parents, (CG control group) were not included. We used parenting stress index–short form (PSI-SF) before counseling intervention (T0) and after (T1) with every parent. PSI values stress level in following scales: parental distress (PD), parent-child dysfunctional interaction (PCDI) and difficult child characteristics (DC). Figure 1 shows all the variables in each group at T0 and T1.ResultsThen a 2-tail t-test was separately carried out for each group (Counseling Yes; Counseling No). Counseling Yes: PD (t22 = .70, P = .49); PCDI (t22 = .72, P = .47); DC (t22 = 2.23, P = .03); Tot Stress (t22 = 1.04, P = .3). Counseling No: PD (t22 = .82, P = .42); PCDI (t22 = 1.7, P = .09); DC (t22 = .59, P = .56); Tot Stress (t22 = .72, P = .48)ConclusionsOur data confirm the positive effects of counseling especially on the difficulties related to children (DC scale).Disclosure of interestThe authors have not supplied their declaration of competing interest.


2016 ◽  
Vol 17 (2) ◽  
pp. 207-225 ◽  
Author(s):  
Lara Ayala-Nunes ◽  
Cristina Nunes ◽  
Ida Lemos

Summary Families that are at psychosocial risk live under personal and contextual circumstances that hinder their parenting skills. They frequently lack the resources necessary for addressing the challenges of parenting and encounter multiple stressful life events. Social support may help diminish the parenting stress that is experienced from living in a disadvantaged environment by enhancing coping strategies. However, previous research examining the associations between parenting stress and social support among at-risk families has been inconclusive. This study analyzed the psychosocial profile of at-risk Portuguese families, the size and composition of their social support networks and the associations between social support and parenting stress. Participants consisted of 167 parents (80% mothers) who received assistance from Child Protection Services. Measures included the Parenting Stress Index-Short Form, the Arizona Social Support Interview Schedule and a socio-demographic questionnaire. Findings Parenting stress levels were extremely high, with 44.51% of parents showing clinically significant levels. Emotional support was the type of support that was most closely related to parental distress, namely the network size available for providing emotional support ( r = −.27, p = .000) and satisfaction with the emotional support received ( r = −.24, p = .006). Applications The size of the emotional support network was significantly smaller among parents who reported clinically significant levels of parenting stress. Hence, having the opportunity to express feelings and concerns as well as engaging in social interactions during leisure time may serve as protective factors against parental stress in at-risk families. Implications of for the interventions of professionals who work with at-risk families are discussed.


2020 ◽  
Vol 39 (3) ◽  
pp. 335-357
Author(s):  
Kyong-Mee Chung ◽  
Seungmin Jung ◽  
Yoon Jung Yang

2021 ◽  
Vol 141 (2) ◽  
pp. 89-96
Author(s):  
Hsin-Yen Yen ◽  
Hao-Yun Huang

Aims: Wearable devices are a new strategy for promoting physical activity in a free-living condition that utilizes self-monitoring, self-awareness, and self-determination. The main purpose of this study was to explore health benefits of commercial wearable devices by comparing physical activity, sedentary time, sleep quality, and other health outcomes between individuals who used and those that did not use commercial wearable devices. Methods: The research design was a cross-sectional study using an Internet survey in Taiwan. Self-administered questionnaires included the International Physical Activity Questionnaire–Short Form, Pittsburgh Sleep Quality Index, Health-Promoting Lifestyle Profile, and World Health Organization Quality-of-Life Scale. Results: In total, 781 participants were recruited, including 50% who were users of wearable devices and 50% non-users in the most recent 3 months. Primary outcomes revealed that wearable device users had significantly higher self-reported walking, moderate physical activity, and total physical activity, and significantly lower sedentary time than non-users. Wearable device users had significantly better sleep quality than non-users. Conclusion: Wearable devices inspire users’ motivation, engagement, and interest in physical activity through habit formation. Wearable devices are recommended to increase physical activity and decrease sedentary behavior for promoting good health.


Sign in / Sign up

Export Citation Format

Share Document