Commercial Exergaming in Home-Based Pediatric Constraint-Induced Therapy: A Randomized Trial

2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen
Keyword(s):  
Parental Stress ◽  
Short Form ◽  
Self Care ◽  
Stress Index ◽  
Dose Equivalent ◽  
Nintendo Wii ◽  
Home Based ◽  
Significant Difference ◽  
Motor Outcomes ◽  
Psychosocial Benefits

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.

Home-based music therapy for children with developmental disorders during the COVID-19 pandemic

2021 ◽  
pp. 1357633X2098121
Author(s):  
Sarah Bompard ◽  
Tommaso Liuzzi ◽  
Susanna Staccioli ◽  
Fiammetta D’Arienzo ◽  
Sahereh Khosravi ◽  
...  
Keyword(s):  
Sleep Quality ◽  
Music Therapy ◽  
Developmental Disorders ◽  
Developmental Process ◽  
Short Form ◽  
Stress Index ◽  
Parental Distress ◽  
Home Based ◽  
Clinical Conditions ◽  
Children’S Sleep

Introduction During the COVID-19 pandemic, children with neurodevelopmental disabilities could not attend their usual rehabilitation therapies, with a consequent reduced support of developmental process and risk of worsening of their clinical conditions. Methods We prospectively enrolled 14 children with developmental delay, who had already tried a personalised music therapy (Euterpe method). We included them in a 12-day programme of home-based music therapy. The children and their parents were investigated using the Sleep Disturbance Scale for Children and the Parent Stress Index-Short Form. Results Fourteen children started the intervention, while only 12 children completed all the planned home sessions and assessments. We observed a significant improvement in children’s sleep quality and a reduction of parental distress. Discussion The significant improvements in parental distress and sleep quality must be considered important achievements for the quality of life of a child and their family. Home-based music therapy can provide a feasible approach to improving sleep and parent’s stress for children with developmental disorders.

Mindfulness-based wellbeing for socio-economically disadvantaged parents: a pre-post pilot study

2015 ◽  
Vol 10 (1) ◽  
pp. 17-28 ◽  
Author(s):  
Catrin Eames ◽  
Rebecca Crane ◽  
Eluned Gold ◽  
Sophie Pratt
Keyword(s):  
Risk Factors ◽  
Parental Stress ◽  
Economically Disadvantaged ◽  
Short Form ◽  
Small Sample ◽  
Stress Index ◽  
Post Intervention ◽  
Content Type ◽  
Mindfulness Skills ◽  
The Impact

Purpose – Behavioural parent training (PT) interventions partially mediate risk factors for the development of child behavioural problems. Mindfulness skills could have benefit in alleviating the impact of these risk factors for parents who are socio-economically disadvantaged. The paper aims to discuss these issues. Design/methodology/approach – A pre-post single group comparison of disadvantaged mothers attending the Mindfulness-Based Wellbeing for Parents (MBW-P) programme. Findings – Changes were observed in facets of parental stress (Parenting Stress Index-Short Form; Abidin, 1995), depression (Beck Depression Inventory-II; Beck et al., 1996) and brooding (Ruminative Responses Scale; Nolen-Hoeksema and Morrow, 1991), with moderate to large effect sizes and incidences of clinical change. Research limitations/implications – The research design, although pragmatic, includes a small sample and no control or long-term comparison group. Social implications – Mothers considered as the “hardest to reach” group in terms of vulnerability, risk factors and being likely to gain from intervention demonstrated positive shifts post-intervention. A targeted mindfulness-based intervention, delivered pragmatically within a health service context, may have benefit in reducing the impact of risk factors on parental wellbeing. Originality/value – To the authors’ knowledge, this is the first evaluation of a targeted mindfulness group delivered within routine health care settings, in identified “high risk” areas, by routine staff.

Stress, Burden and Coping between Caregivers of Cerebral Palsy and Autism Children

2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Pushpalatha. r ◽  
Shivakumara. K
Keyword(s):  
Cerebral Palsy ◽  
Short Form ◽  
Sampling Technique ◽  
Children With Autism ◽  
Stress Index ◽  
Group Research ◽  
Significant Difference ◽  
The Difference ◽  
Stress Burden ◽  
And Coping

The objective of the study was to find the difference in stress, burden and coping between caregivers with cerebral palsy and autism children. 30 caregivers having children with cerebral palsy and 30 caregivers having children with autism were part of the study. The age of the caregivers ranged between 23-40 years.  For the study caregivers of children aged between 7-12 years were considered. A between group research design with purposive sampling technique was opted for the study. After obtaining socio-demographic details the caregivers were administered Parenting Stress Index (Short Form), Schedule to Assess Burden and Coping Checklist.  The data was subjected to ‘t’ test to find the significant difference between the two sample groups. Results revealed that there was significant difference in stress, burden and coping between caregivers of cerebral palsy children and caregivers of autistic children.

scholarly journals Parental Stress and Disability in Offspring: A Snapshot during the COVID-19 Pandemic

2021 ◽  
Vol 11 (8) ◽  
pp. 1040
Author(s):  
Martina Siracusano ◽  
Assia Riccioni ◽  
Leonardo Emberti Gialloreti ◽  
Eugenia Segatori ◽  
Lucrezia Arturi ◽  
...  
Keyword(s):  
Parental Stress ◽  
Neurodevelopmental Disorders ◽  
Short Form ◽  
Autism Spectrum ◽  
Self Report ◽  
Stress Index ◽  
Sotos Syndrome ◽  
Typical Development ◽  
Genetic Syndromes ◽  
Neurodevelopmental Disabilities

Parenting a child with a disability, such as neurodevelopmental disorders and genetic syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period implying additional challenges—few studies have specifically investigated caregivers’ distress among neurodevelopmental disabilities. The objective of the study is to investigate whether during the COVID-19 pandemic, the level of parental stress differs between four disability groups including neurodevelopmental disorders (autism spectrum disorder (ASD), attention deficit and hyperactivity disorder (ADHD)) and genetic syndromes (Rett syndrome (RTT), Sotos syndrome (SS)) in comparison to families with typical development offspring (TD). In total, 220 Italian parents of children affected by neurodevelopmental disabilities (74 ASD, 51 ADHD, 34 SS, 21 RTT, 40 TD; age M 9.4 ± SD 4.2) underwent a standardized evaluation for stress related to parenting through the self-report questionnaire, Parental Stress Index-Short Form (PSI-SF). The main findings show greater levels of parental stress—mainly linked to child behavioral characteristics rather than parental sense of competence—in parents of children affected by a disability in comparison to children with typical development. This study highlights the need to support not only individuals with special needs but also their own caregivers: core figures in the management and outcome of children disorders.

scholarly journals 1. Neuropsychiatric disorders and parental stress during the covid-19 pandemic: an Italian retrospective longitudinal study

2021 ◽  
Vol 11 (4) ◽  
pp. 5-9
Author(s):  
Grazia Maria Giovanna Pastorino ◽  
Francesca Operto ◽  
Valeria De Simone ◽  
Valentina Vivenzio ◽  
Chiara Scuoppo ◽  
...  
Keyword(s):  
Behavioral Problems ◽  
Parental Stress ◽  
Telephone Interview ◽  
Short Form ◽  
Neuropsychiatric Disorders ◽  
Autism Spectrum ◽  
University Hospital ◽  
Stress Index ◽  
Daily Routine ◽  
The Impact

Aim: The objective of our study is to evaluate the impact that the COVID-19 emergency and the related measures adopted have had on the family management of minors with neuropsychiatric disorders. Another objective of this study is to carry out a first longitudinal evaluation of this impact on parental stress, comparing the data collected before the pandemic with those collected during the lockdown. Methods: This is an observational study that involved 271 families of patients already treated at the Child Neuropsychiatry Unit of the Salerno University Hospital between 2 and 23 years (112 with Autism Spectrum Disorder, 86 with epilepsy and 73 with other disorders of neurodevelopment). All participants were given an ad hoc telephone interview and a standardized questionnaire (PSI - Parenting Stress Index-Short Form). The telephone interview showed that a significant percentage of parents reported an increase in their child's daily management difficulties during the lock-down and emotional / behavioral problems, in particular the externalizing disorder. Comparison of the mean scores of the PSI-SF questionnaires completed before and during the lockdown showed a statistically significant increase in scores in the Total Stress scale and in the Parental Distress subscales. Results & Conclusion: The results of our study suggest that the confinement measures and changes in daily routine imposed by quarantine negatively affected the behavioral and emotional dimensions of both children and parents causing a significant increase in parental stress, which is mainly related to feelings of inadequacy in relation to their role in such a delicate situation, and concern for the future.

scholarly journals Pediatric Chronic Migraine Severity and Maternal Stress

2021 ◽  
Vol 13 (4) ◽  
pp. 576-582
Author(s):  
Daniela Smirni ◽  
Marco Carotenuto
Keyword(s):  
Parental Stress ◽  
Maternal Stress ◽  
Short Form ◽  
Primary Headache ◽  
Well Being ◽  
Stress Index ◽  
School Aged Children ◽  
Pediatric Migraine ◽  
Being There ◽  
The Impact

Primary headache is an increasing phenomenon in pediatric age, and very often, it causes disabling limitations in children’s daily activities, negatively affecting family well-being. There are conflicting data in the literature on the impact of children’s migraines on parental experienced stress. This study aimed to evaluate maternal stress in a sample of school-aged children with a migraine without aura (MwoA) and its correlation with migraine intensity and frequency. A total of 474 mothers aged between 31 and 55 participated in the study: 237 were mothers of children with MwoA, and 237 were mothers of typical developing children. All participants were administered the Parent Stress Index-Short Form (PSI-SF) for the assessment of parental stress; the Pediatric Migraine Disability Assessment (PedMIDAS) was administered to children with MwoA to assess the presence of a related disability migraine. The results showed a significantly higher rate of stress in mothers of MwoA children (p < 0.001) in all the domains explored by the PSI-SF and a statistically significant correlation between the maternal stress total score and the intensity and frequency of migraine attacks (p < 0.0001). This study highlights the need for the holistic contribution of the family to be considered in the clinical management of pediatric migraines.

scholarly journals Estresse materno pós-alta do recém-nascido prematuro

2019 ◽  
Vol 13 ◽  
Author(s):  
Fernanda De Castro Pereira ◽  
Maria Aparecida Baggio ◽  
Cláudia Silveira Viera ◽  
Beatriz Rosana Gonçalves de Oliveira Toso ◽  
Eloeth Kaliska Piva
Keyword(s):  
Parental Stress ◽  
Neonatal Intensive Care ◽  
Maternal Stress ◽  
Daily Life ◽  
Stress Index ◽  
Premature Newborns ◽  
Premature Newborn ◽  
Significant Difference ◽  
Mother Child Relationships ◽  
Hospital To Home

Objetivo: identificar o nível de estresse materno após a alta do recém-nascido prematuro da Unidade de Terapia Intensiva Neonatal. Método: trata-se de estudo quantitativo e exploratório, comr 51 mães de recém-nascidos prematuros em seguimento ambulatorial pós-alta. Coletaram-se e analisaram-se os dados pela aplicação da escala Índice de Estresse Parental. Apresentaram-se os resultados em forma de tabelas. Resultados: revela-se que a maioria das mães era composta por adultas jovens; 62,7% com renda de até três salários mínimos; 66,6% eram casadas/união estável; 49,0% possuíam entre 10-12 anos de estudo e a média de estresse materno foi de 49,6%, sendo compatível ao estresse de vida cotidiano. Observa-se que, na correlação das variáveis, não houve diferença estatística significativa entre o estresse materno e características sociodemográficas familiares. Conclusão: conclui-se que, após a alta hospitalar, as mães apresentaram estresse compatível com o estresse de vida cotidiano, o mesmo enfrentado por mães de recém-nascido a termo, sem influências das condições sociodemográficas. Acredita-se que este estudo pode contribuir com a assistência em saúde de famílias de recém-nascidos prematuros, na transição do hospital para casa, pois são incipientes os estudos sobre este assunto. Descritores: Estresse Psicológico; Recém-nascido Prematuro; Cuidado do Lactente; Relações Mãe-filho; Alta Hospitalar; Enfermagem.Abstract Objective: to identify the level of maternal stress after discharge of the premature newborn from the Neonatal Intensive Care Unit. Method: this is a quantitative and exploratory study with 51 mothers of premature newborns in outpatient follow-up. Data were collected and analyzed by applying the Parental Stress Index scale. Results were presented in tables. Results: it is revealed that most mothers were young adults; 62.7% with income of up to three minimum wages; 66.6% were married / stable union; 49.0% had between 10-12 years of schooling and the average maternal stress was 49.6%, being compatible with the stress of daily life. In the correlation of the variables, there was no statistically significant difference between maternal stress and family sociodemographic characteristics. Conclusion: it is concluded that, after discharge from the hospital, the mothers presented stress compatible with the stress of daily life, which is the same faced by mothers of full-term newborns, without influence of sociodemographic conditions. It is believed that this study may contribute to the health care of families of premature newborns in the transition from hospital to home, as studies on this subject are incipient. Descriptors: Psychological Stress; Premature Newborn; Infant Care; Mother-child Relationships; Hospital Discharge; Nursing.Resumen Objetivo: identificar el nivel de estrés materno después del alta del recién nacido prematuro de la Unidad de Cuidados Intensivos Neonatales. Método: se trata de un estudio cuantitativo y exploratorio con 51 madres de recién nacidos prematuros en seguimiento ambulatorio después del alta. Los datos fueron recolectados y analizados aplicando la escala del índice de Estrés Parental. Los resultados se presentaron en tablas. Resultados: se revela que la mayoría de las madres eran adultos jóvenes; 62.7% con ingresos de hasta tres salarios mínimos; 66.6% eran casados / unión estable; el 49.0% tenía entre 10 y 12 años de escolaridad y el estrés materno promedio fue del 49.6%, siendo compatible con el estrés de la vida diaria. En la correlación de las variables, no hubo diferencia estadísticamente significativa entre el estrés materno y las características sociodemográficas familiares. Conclusión: se concluye que, después del alta del hospital, las madres presentaron estrés compatible con el estrés de la vida diaria, que es el mismo que enfrentan las madres de recién nacidos a término, sin influencia de las condiciones sociodemográficas. Se cree que este estudio puede contribuir a la atención médica de las familias de recién nacidos prematuros, en la transición del hospital al hogar, ya que los estudios sobre este tema son incipientes. Descriptores: Strés Psicológico; Recién Nacido Prematuro; Cuidado del Lactante; Relaciones Madre-Hijo; Alta Hospitalaria; Enfermería.

The Predictive Role of Maternal Parenting and Stress on Pupils’ Bullying involvement

2016 ◽  
Vol 34 (17) ◽  
pp. 3691-3710 ◽  
Author(s):  
Fatemeh Alizadeh Maralani ◽  
Mirmahmoud Mirnasab ◽  
Touraj Hashemi
Keyword(s):  
Parenting Style ◽  
Parenting Styles ◽  
Parental Stress ◽  
Maternal Stress ◽  
Function Analysis ◽  
Short Form ◽  
Screening Method ◽  
Stress Index ◽  
Cluster Sampling

The link between inappropriate parenting style and both bullying and victimization is well documented. However, it is not clear as to which kind of parenting style is associated with victimization. Furthermore, no studies have yet been conducted regarding the role of parental stress in bullying and victimization. This study aimed to examine the role of parenting styles and maternal stress in pupils’ bullying and victimization. A total of 300 primary school pupils, enrolled in fourth and fifth grades, participated in the study. Initially, 100 noninvolved pupils were randomly selected using a multistage cluster sampling method. Then using a screening method, 100 bully pupils and 100 victimized peers were selected. Olweus Bullying Scale and teacher nomination were administered for screening these pupils. Baumrind Parenting Style Questionnaire and revised version of Abidin Parental Stress Index (short form) were also applied to all pupils in the study. Data were analyzed using discriminant function analysis. The findings showed that (a) with regard to parenting styles, significant differences were found among groups. Authoritarian parenting style could significantly predict pupils’ bullying behavior, whereas victimization was predictable in families with permissive parenting style. In addition, noninvolved pupils were predicted to have authoritative parenting style. (b) Considering maternal stress, significant differences were observed across groups. Parents of bullies and victims were predicted to have higher maternal stress than noninvolved pupils. The implications of the study in relation to the role of mothers in bullying and victimization are discussed.

scholarly journals RELACIÓN ENTRE ESTRÉS PARENTAL Y HABILIDADES LINGÜÍSTICAS EN NIÑOS CON TEA

2016 ◽  
Vol 1 (1) ◽  
pp. 105
Author(s):  
Irene Puchol Fraile ◽  
Mª Inmaculada Fernández Andrés ◽  
Gemma Pastor Cerezuela ◽  
Pilar Sanz Cervera ◽  
Eva Herraiz Llongo
Keyword(s):  
Parenting Stress ◽  
Parental Stress ◽  
Expressive Language ◽  
Autism Spectrum ◽  
Stress Index ◽  
Typical Development ◽  
Parenting Stress Index ◽  
Significant Difference ◽  
Linguistic Skills ◽  
The Relationship

Abstract:The objectives of this study were: 1) Compare the perceived parental stress between a group of parents of children with ASD and a group of parents of children with typical development. The rest of the objectives are focused on the analysis of the ASD group.2) Compare the perceived parental stress between the parents of the ASD children with language and the parents of the ASD children without language. 3) Analyze the relationship between the perceived parental stress and the child’s receptive linguistic skills. 4) Analyze the relationship between the perceived parental stress and the child’s expressive linguistic skills. The Parenting Stress Index scale (the child domain) was used to evaluate the parental stress. The main results obtained were: 1) Parental stress in the parents of ASD children was higher than in the parents of the children with typical development. 2) There was no significant difference on the perceived parental stress between the parents of ASD children with and without language. 3) Parental stress showed a statistically significant relation with some of the evaluated variables, both receptive and expressive language. Thus, the child’ limitations on language skills were linked to a higher parental stress in the child domain, particularly the one obtained in the Acceptability subscale, relative to the parental expectations about the child’s capacities. This result is discussed in the context of the importance that our culture gives to the achievement motivation and the possible connection of this with parental stress.Keywords:  Autism Spectrum Disorder, expressive language, parental stress, receptive language.Resumen:Los objetivos de este estudio fueron: 1) Comparar el estrés parental percibido entre un grupo de padres de niños con TEA y un grupo de padres de niños de desarrollo típico. El resto de objetivos se centraron en el análisis del grupo con TEA. 2) Comparar el estrés parental percibido entre los padres de niños TEA con lenguaje y los padres de niños TEA sin lenguaje. 3) Analizar la relación entre el estrés parental percibido y las habilidades lingüísticas receptivas del niño. 4) Analizar la relación entre el estrés parental percibido y las habilidades lingüísticas expresivas del niño. Para evaluar el estrés parental se utilizó la escala Parenting Stress Index (dominio del niño). Los principales resultados obtenidos  fueron: 1) Un nivel de estrés parental superior en los padres de niños TEA que en los padres de niños de desarrollo típico. 2) No hubo diferencia significativa en el nivel de estrés parental percibido entre los padres de niños TEA con y sin lenguaje. 3) El estrés parental mostró una relación estadísticamente significativa con algunas de las variables evaluadas, tanto de lenguaje receptivo como expresivo. Así, las limitaciones en las competencias lingüísticas del niño se vincularon con un mayor estrés parental asociado a las características del niño, y en particular, el obtenido en la subescala de aceptabilidad, relativa a las expectativas parentales sobre las capacidades del niño. Se discute este resultado en el marco de la importancia que nuestra cultura otorga a la consecución de metas de logro y la posible vinculación que este hecho podría presentar con el estrés parental.Palabras clave: Trastorno del Espectro Autista, estrés parental, lenguaje expresivo, lenguaje receptivo.

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