The relationship between chronic paediatric feeding disorders and caregiver stress

2020 ◽  
pp. 136749352090538
Author(s):  
Alan H Silverman ◽  
Gina Erato ◽  
Praveen Goday
Keyword(s):  
Mental Health Professionals ◽  
Parental Stress ◽  
Short Form ◽  
Stress Index ◽  
Hierarchical Regression ◽  
Feeding Disorders ◽  
Parental Distress ◽  
Older Children ◽  
Child Development Inventory ◽  
The Relationship

Paediatric feeding disorders (PFDs) are common. Earlier studies have shown an association between PFD and caregiver stress, but these studies have been hampered by insufficient power. This study reports stress for caregivers of children diagnosed with PFD. These caregivers were then compared to community norms of the Parental Stress Index–Short Form. Caregivers also completed the Mealtime Behaviour Questionnaire, Child Behaviour Checklist and Child Development Inventory. Linear regression and hierarchical regression analyses assessed the relationship among the variables. Caregivers of 840 children with PFD responded. Negative child behaviours and lower child developmental function predicted higher levels of total parenting stress, parental distress, parent–child dysfunctional interaction and caregiver perceptions of their child as difficult. Higher rates of child internalizing and externalizing problems and child mealtime aggression were associated with parent perceptions of their child as difficult and contributed to total parental stress. Parents of older children reported higher levels of stress, whereas parents of younger children were more likely to be defensive responders. Overall, parents of children with PFD have more caregiver-related stress. These caregivers may benefit from consultations with mental health professionals to provide the most appropriate care to affected families.

scholarly journals Parental stress and support of parents of children with spina bifida in Uganda

2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Femke Bannink ◽  
Richard Idro ◽  
Geert Van Hove
Keyword(s):  
Spina Bifida ◽  
Parental Stress ◽  
Short Form ◽  
Sub Saharan Africa ◽  
Stress Index ◽  
Daily Functioning ◽  
Adaptive Behaviour ◽  
Parental Distress ◽  
Bowel Management ◽  
Vineland Adaptive Behaviour Scales

Background: Children with disabilities in Sub-Saharan Africa depend for a large part of their functioning on their parent or caregiver. This study explores parental stress and support of parents of children with spina bifida in Uganda.Objectives: The study aimed to explore perceived stress and support of parents of children with spina bifida living in Uganda and the factors that influence them.Methods: A total of 134 parents were interviewed. Focus group discussions were held with four parent support groups in four different regions within the country. The Vineland Adaptive Behaviour Scales, Daily Functioning Subscales and Parental Stress Index Short Form (PSI/SF) were administered to measure the child’s daily functioning level and parental stress levels.Results: Parental stress was high in our study population with over half of the parents having a > 90% percentile score on the PSI/SF. Stress outcomes were related to the ability to walk (Spearman’s correlation coefficient [ρ] = −0.245), continence (ρ = −0.182), use of clean intermittent catheterisation (ρ = −0.181) and bowel management (ρ = −0.213), receiving rehabilitative care (ρ = −0.211), household income (ρ = −0.178), geographical region (ρ = −0.203) and having support from another parent in taking care of the child (ρ = −0.234). Linear regression showed parental stress was mostly explained by the child’s inability to walk (β = −0.248), practicing bowel management (β = −0.468) and having another adult to provide support in caring for the child (β = −0.228). Parents in northern Uganda had significantly higher scores compared to parents in other regions (Parental Distress, F = 5.467*; Parent–Child Dysfunctional Interaction, F = 8.815**; Difficult Child score, F = 10.489**).Conclusion: Parents of children with spina bifida experience high levels of stress. To reduce this stress, rehabilitation services should focus on improving mobility. Advocacy to reduce stigmatisation and peer support networks also need to be strengthened and developed.Keywords: Parents; Stress; Spina Bifida; Disability; Africa 

Parental stress in autistic parents: The counseling effects

2017 ◽  
Vol 41 (S1) ◽  
pp. s787-s787
Author(s):  
R. Ferrara ◽  
M. Esposito
Keyword(s):  
Parental Stress ◽  
Short Form ◽  
Autism Spectrum ◽  
Stress Index ◽  
Control Group ◽  
Parental Distress ◽  
Counseling Intervention ◽  
Positive Effects ◽  
Treatment Centre ◽  
Competing Interest

IntroductionIn parents of autistic children there are high levels of stress. For parents, counseling can help them face the world of autism through the many stressors they experiment.ObjectivesTo evidence a possible effect of the counseling intervention on parental stress.MethodsThe sample consisted of 24 parents (mean age = 38.7) of children diagnosed with autism spectrum disorder related to the treatment centre “Una breccia nel muro”. Parents’ group was randomly divided into two subgroups, the first (EG experimental group) consists in 12 parents, which were included in a counseling treatment of six months (one meeting of 2 hours every 15 days), while the other subgroup parents, (CG control group) were not included. We used parenting stress index–short form (PSI-SF) before counseling intervention (T0) and after (T1) with every parent. PSI values stress level in following scales: parental distress (PD), parent-child dysfunctional interaction (PCDI) and difficult child characteristics (DC). Figure 1 shows all the variables in each group at T0 and T1.ResultsThen a 2-tail t-test was separately carried out for each group (Counseling Yes; Counseling No). Counseling Yes: PD (t22 = .70, P = .49); PCDI (t22 = .72, P = .47); DC (t22 = 2.23, P = .03); Tot Stress (t22 = 1.04, P = .3). Counseling No: PD (t22 = .82, P = .42); PCDI (t22 = 1.7, P = .09); DC (t22 = .59, P = .56); Tot Stress (t22 = .72, P = .48)ConclusionsOur data confirm the positive effects of counseling especially on the difficulties related to children (DC scale).Disclosure of interestThe authors have not supplied their declaration of competing interest.

Home-based music therapy for children with developmental disorders during the COVID-19 pandemic

2021 ◽  
pp. 1357633X2098121
Author(s):  
Sarah Bompard ◽  
Tommaso Liuzzi ◽  
Susanna Staccioli ◽  
Fiammetta D’Arienzo ◽  
Sahereh Khosravi ◽  
...  
Keyword(s):  
Sleep Quality ◽  
Music Therapy ◽  
Developmental Disorders ◽  
Developmental Process ◽  
Short Form ◽  
Stress Index ◽  
Parental Distress ◽  
Home Based ◽  
Clinical Conditions ◽  
Children’S Sleep

Introduction During the COVID-19 pandemic, children with neurodevelopmental disabilities could not attend their usual rehabilitation therapies, with a consequent reduced support of developmental process and risk of worsening of their clinical conditions. Methods We prospectively enrolled 14 children with developmental delay, who had already tried a personalised music therapy (Euterpe method). We included them in a 12-day programme of home-based music therapy. The children and their parents were investigated using the Sleep Disturbance Scale for Children and the Parent Stress Index-Short Form. Results Fourteen children started the intervention, while only 12 children completed all the planned home sessions and assessments. We observed a significant improvement in children’s sleep quality and a reduction of parental distress. Discussion The significant improvements in parental distress and sleep quality must be considered important achievements for the quality of life of a child and their family. Home-based music therapy can provide a feasible approach to improving sleep and parent’s stress for children with developmental disorders.

Commercial Exergaming in Home-Based Pediatric Constraint-Induced Therapy: A Randomized Trial

2021 ◽  
pp. 153944922098411
Author(s):  
Tien-Ni Wang ◽  
Yu-Lun Chen ◽  
Jeng-Yi Shieh ◽  
Hao-Ling Chen
Keyword(s):  
Parental Stress ◽  
Short Form ◽  
Self Care ◽  
Stress Index ◽  
Dose Equivalent ◽  
Nintendo Wii ◽  
Home Based ◽  
Significant Difference ◽  
Motor Outcomes ◽  
Psychosocial Benefits

Constraint-induced therapy (CIT) is highly effective yet not accessible to many families. Integrating commercial exergaming in home-based CIT may support the availability and attainability of the intervention. The study compared the effects of supplementary use of Nintendo Wii in home-based CIT with dose-equivalent conventional CIT. Eighteen children with cerebral palsy were randomly assigned to 8 weeks of CIT (CIT) or 4 weeks of CIT, followed by 4 weeks of Wii-augmented CIT (CIT-Wii). Outcome measures included the Bruininks–Oseretsky Test of Motor Proficiency (Manual Dexterity), the ABILHAND-Kids, the WeeFIM (Self-Care), the Test of Playfulness, the Engagement Questionnaire, and the Parenting Stress Index–Short Form. Both groups significantly improved motor outcomes and playfulness. The CIT group demonstrated greater improvement in self-care skills, whereas parental stress decreased only in the CIT-Wii group. CIT-Wii yields no significant difference in treatment effects from conventional CIT and may provide psychosocial benefits.

Mindfulness-based wellbeing for socio-economically disadvantaged parents: a pre-post pilot study

2015 ◽  
Vol 10 (1) ◽  
pp. 17-28 ◽  
Author(s):  
Catrin Eames ◽  
Rebecca Crane ◽  
Eluned Gold ◽  
Sophie Pratt
Keyword(s):  
Risk Factors ◽  
Parental Stress ◽  
Economically Disadvantaged ◽  
Short Form ◽  
Small Sample ◽  
Stress Index ◽  
Post Intervention ◽  
Content Type ◽  
Mindfulness Skills ◽  
The Impact

Purpose – Behavioural parent training (PT) interventions partially mediate risk factors for the development of child behavioural problems. Mindfulness skills could have benefit in alleviating the impact of these risk factors for parents who are socio-economically disadvantaged. The paper aims to discuss these issues. Design/methodology/approach – A pre-post single group comparison of disadvantaged mothers attending the Mindfulness-Based Wellbeing for Parents (MBW-P) programme. Findings – Changes were observed in facets of parental stress (Parenting Stress Index-Short Form; Abidin, 1995), depression (Beck Depression Inventory-II; Beck et al., 1996) and brooding (Ruminative Responses Scale; Nolen-Hoeksema and Morrow, 1991), with moderate to large effect sizes and incidences of clinical change. Research limitations/implications – The research design, although pragmatic, includes a small sample and no control or long-term comparison group. Social implications – Mothers considered as the “hardest to reach” group in terms of vulnerability, risk factors and being likely to gain from intervention demonstrated positive shifts post-intervention. A targeted mindfulness-based intervention, delivered pragmatically within a health service context, may have benefit in reducing the impact of risk factors on parental wellbeing. Originality/value – To the authors’ knowledge, this is the first evaluation of a targeted mindfulness group delivered within routine health care settings, in identified “high risk” areas, by routine staff.

Relationship between the Maternal Social Support Index and the Parenting Stress Index in Mothers of Very-Low-Birthweight Children Now Age 7

1998 ◽  
Vol 83 (1) ◽  
pp. 173-174 ◽  
Author(s):  
Anita M. Farel ◽  
Stephen R. Hooper
Keyword(s):  
Social Support ◽  
Parenting Stress ◽  
Parental Stress ◽  
Low Birthweight ◽  
Stress Index ◽  
Very Low Birthweight ◽  
Parenting Stress Index ◽  
Two Measures ◽  
Maternal Social Support ◽  
The Relationship

Two measures, the Maternal Social Support Index and the Parenting Stress Index were used to assess parents' stress and social support among mothers of 7-yr.-old children born at very low birthweight. The MSSI Total scores did not significantly correlate with the PSI Total Child, Total Parent, or Total Stress Indices, although they were significant, but modestly correlated with scores on the Parent subscale of Social Isolation. The relationship between parental stress and maternal social support requires continued investigation.

scholarly journals Μητρικό στρες και ημερήσια διακύμανση κορτιζόλης σε παιδιά με Διαταραχή Ελλειμματικής Προσοχής-Υπερκινητικότητας

2017 ◽  
Author(s):  
Τερψιχόρη Κόρπα
Keyword(s):  
Parenting Stress ◽  
Short Form ◽  
Stress Index ◽  
Parental Distress ◽  
Parenting Stress Index ◽  
Η Car ◽  
Parent Child

Εισαγωγή: Τα τελευταία χρόνια έχει αυξηθεί η επιστημονική διερεύνηση των λειτουργιών του άξονα Υποθάλαμου-Υπόφυσης-Επινεφριδίιων (ΗΡΑ Axis) στα παιδιά και τους ενήλικους με Διαταραχής Ελλειμματικής Προσοχής-Υπερκινητικότητας (ΔΕΠΥ), καθώς τα ευρήματα υποστηρίζουν την συσχέτιση της δυσλειτουργίας του άξονα HPA με παράγοντες συνοσηρότητας και βαρύτητας. Η δραστηριότητα του άξονα HPA έχει παρατηρηθεί ότι επηρεάζεται από ψυχοκοινωνικoύς στρεσογόνους παράγοντες, όπως το γονεϊκό στρες, που φαίνεται να παρατηρείται σε υψηλότερα επίπεδα σε μητέρες παιδιών με ΔΕΠΥ σε συγκριση με μητέρες παιδιών τυπικής αναπτυξης. Σκοπός: Στην παρούσα έρευνα μελετήθηκε η πιθανή συσχέτιση ανάμεσα στα επίπεδα γονεϊκου στρες που βιώνουν μητέρες παιδιών με ΔΕΠΥ και μητέρες υγιών παιδιών, με το ημερήσιο μοτίβο έκλυσης κορτιζόλης στα παιδιά τους. Επιπλέον, διερευνήθηκε η ύπαρξη συμπτωματολογίας ΔΕΠΥ στις μητέρες και η πιθανή επιρροή της μέσω του στρες του γονεϊκού ρόλου τους στο μοτίβο έκλυσης κορτιζόλης των παιδών τους. Μέθοδος: Στη μελέτη συμμετείχαν 120 παιδιά ηλικίας 6-11 ετών με τις μητέρες τους, τα οποία αξιολογήθηκαν και ταξινομήθηκαν σε τρεις ομάδες (Ν= 26 ως ΔΕΠΥ-Απρόσεκτου Υπότυπου/ ADHD-I, Ν= 49 ως ΔΕΠΥ-Συνδυασμένου Υπότυπου/ADHD-C και ΔΕΠΥ Υπερκινητικού-Παρορμητικού Υπότυπου/ADHD-ΗΙ και Ν=45 ως υγιείς ομάδας Eλέγχου). Συμπληρώθηκαν επίσης τα απαραίτητα ψυχομετρικά εργαλεία αξιολόγησης του Γονεικού Στρες των μητέρων (Parenting Stress Index – Short Form, PSI–SF), ανίχνευσης συμπτωματολογίας ΔΕΠΥ και γενικής ψυχοπαθολογίας τους, ενώ ελήφθησαν καταγραφές για την κοινωνική υποστήριξη και την κοινωνικο-οικονομική κατάσταση αυτών. Ελήφθησαν επίσης και έξι (6) δείγματα κορτιζόλης σιέλου των παιδιών κάθε ομάδας σε τακτά διαφορετικά χρονικά σημεία στη διάρκεια μιας τυπικής ημέρας. Αποτελέσματα: Οι μητέρες των παιδιών ADHD-C/HI κατέγραψαν υψηλότερα επίπεδα γονεϊκού στρες από τις μητέρες των παιδιών με ADHD–I. Όλες οι υποκλίμακες του PSI–SF κατέδειξαν σημαντικές συσχετίσεις με την Ανταπόκριση Κορτιζόλης Αφύπνιση (CAR) των παιδιών στις δύο ομάδες ADHD-C/HI και ADHD–I, με εξαίρεση την υποκλίμακα Γονεϊκή Δυσφορία (Parental Distress) του PSI–SF στην ομάδα ADHD–I. Και στις δύο ομάδες ADHD-C/HI και ADHD–I, κατεδείχθησαν υψηλές τιμές στις υποκλίμακες Δυσλειτουργική Αλληλεπίδραση Μητέρας – Παιδιού (Parent–Child Dysfunctional Interaction) και Δύσκολου Παιδιού (Difficult Child) καθώς επίσης και στη συνολική βαθμολογία του PSI, που είχαν σημαντικά αποτελέσματα αλληλεπίδρασης με την CAR. Επίσης, για τα παιδιά με ΔΕΠΥ που είχαν μητέρα με συμπτωματολογία ΔΕΠΥ καταγράφηκαν σημαντικά υψηλότερες βαθμολογίες σε όλες τις διαστάσεις του PSI των μητέρων τους, σε σύγκριση με τα παιδιά με ΔΕΠΥ με μητέρα χωρίς συμπτωματολογία ΔΕΠΥ. Στις μητέρες με συμπτώματα ΔΕΠΥ καταγράφηκαν αυξημένα επίπεδα στρες και συσχετίσεις με την Ανταπόκριση Κορτιζόλης Αφύπνισης (CAR) των παιδιών τους. Οι τιμές CAR των παιδιών με μητέρα χωρίς συμπτώματα ΔΕΠΥ και χαμηλές βαθμολογίες τόσο σε όλες τις διαστάσεις του PSI όσο και στη συνολική βαθμολογία, ήταν σημαντικά υψηλότερες σε σύγκριση με τις τιμές CAR των παιδιών που επίσης είχαν μητέρα χωρίς συμπτώματα ΔΕΠΥ αλλά με υψηλά επίπεδα στις αντίστοιχες βαθμολογίες του PSI. Συμπεράσματα: Διαπιστώθηκε συσχέτιση ανάμεσα στα υψηλά επίπεδα γονεϊκού στρες της μητέρας και στη λειτουργία του Άξονα ΗΡΑ στα παιδιά με ΔΕΠΥ, όπου η CAR επισημάνθηκε ως ένα ευαίσθητο περιφερειακό μέτρο λειτουργίας του Άξονα των παιδιών αυτών. Η ύπαρξη συμπτωματολογίας ΔΕΠΥ στη μητέρα του παιδιού φαίνεται να παίζει σημαντικό ρόλο στην αύξηση των επιπέδων γονεϊκού στρες και να αυξάνει την πιθανότητα επιβάρυνσης της λειτουργίας του Άξονα ΗΡΑ. Μέσω των ευρημάτων της μελέτης αποπειράθηκε ένα μοντέλο απεικόνισης της σχέσης του γονεϊκού στρες των μητέρων και της λειτουργίας του Άξονα HPA των παιδιών τους με ΔΕΠΥ, παρουσιάζοντας τη σημαντικότητα της πρώιμης κλινικής παρέμβασης στον κύκλο των αρνητικών αλληλεπιδράσεων που βιώνουν οι οικογένειες των παιδιών με ΔΕΠΥ.

scholarly journals Examining the Relationship between Self-rumination and Happiness: The Mediating and Moderating Role of Subjective Vitality

2016 ◽  
Vol 15 (2) ◽  
pp. 383 ◽  
Author(s):  
Hakan SARIÇAM
Keyword(s):  
Regression Analysis ◽  
Correlation Analysis ◽  
Short Form ◽  
Hierarchical Regression ◽  
Subjective Vitality ◽  
Hierarchical Regression Analysis ◽  
Basic Purpose ◽  
The Relationship ◽  
Moderating Role

The basic purpose of this study is to examine the mediating and moderating role of subjective vitality in relationship between rumination and subjective happiness. The participants were 420 university students. In this research, the Self-rumination Scale-SRS, the Subjective Vitality Scale and the Short Form of Oxford Happiness Questionnaire were used. The relationships between rumination, subjective vitality, and happiness were examined using correlation analysis and hierarchical regression analysis. In correlation analysis, happiness and subjective vitality were found negatively related to self-rumination. On the other hand, happiness had positive relation with subjective vitality. Hierarchical regression analysis showed that rumination levels in a decrease of subjective vitality on an unhappy person whereas enhances in subjective vitality leads to happiness; however, rumination also produces unhappiness. Results were debated in the light of the related literature.

scholarly journals Parental Stress and Disability in Offspring: A Snapshot during the COVID-19 Pandemic

2021 ◽  
Vol 11 (8) ◽  
pp. 1040
Author(s):  
Martina Siracusano ◽  
Assia Riccioni ◽  
Leonardo Emberti Gialloreti ◽  
Eugenia Segatori ◽  
Lucrezia Arturi ◽  
...  
Keyword(s):  
Parental Stress ◽  
Neurodevelopmental Disorders ◽  
Short Form ◽  
Autism Spectrum ◽  
Self Report ◽  
Stress Index ◽  
Sotos Syndrome ◽  
Typical Development ◽  
Genetic Syndromes ◽  
Neurodevelopmental Disabilities

Parenting a child with a disability, such as neurodevelopmental disorders and genetic syndromes, implies a high level of stress. During the COVID-19 outbreak—as a period implying additional challenges—few studies have specifically investigated caregivers’ distress among neurodevelopmental disabilities. The objective of the study is to investigate whether during the COVID-19 pandemic, the level of parental stress differs between four disability groups including neurodevelopmental disorders (autism spectrum disorder (ASD), attention deficit and hyperactivity disorder (ADHD)) and genetic syndromes (Rett syndrome (RTT), Sotos syndrome (SS)) in comparison to families with typical development offspring (TD). In total, 220 Italian parents of children affected by neurodevelopmental disabilities (74 ASD, 51 ADHD, 34 SS, 21 RTT, 40 TD; age M 9.4 ± SD 4.2) underwent a standardized evaluation for stress related to parenting through the self-report questionnaire, Parental Stress Index-Short Form (PSI-SF). The main findings show greater levels of parental stress—mainly linked to child behavioral characteristics rather than parental sense of competence—in parents of children affected by a disability in comparison to children with typical development. This study highlights the need to support not only individuals with special needs but also their own caregivers: core figures in the management and outcome of children disorders.

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