scholarly journals Family care for immigrants with dementia: The perspectives of female family carers living in the Netherlands

Dementia ◽  
2014 ◽  
Vol 15 (1) ◽  
pp. 69-84 ◽  
Author(s):  
Nienke van Wezel ◽  
Anneke L Francke ◽  
Emine Kayan-Acun ◽  
Walter LJM Devillé ◽  
Nies J van Grondelle ◽  
...  
Keyword(s):  
The Netherlands ◽  
Family Care ◽  
Family Carers

scholarly journals Seeing the collective: family arrangements for care at home for older people with dementia

2018 ◽  
Vol 39 (06) ◽  
pp. 1200-1218 ◽  
Author(s):  
CHRISTINE CECI ◽  
HOLLY SYMONDS BROWN ◽  
MARY ELLEN PURKIS
Keyword(s):  
Family Care ◽  
High Volume ◽  
Ethnographic Study ◽  
Family Carers ◽  
Care Giving ◽  
People With Dementia ◽  
Home Based ◽  
Health And Social Care ◽  
Care At Home ◽  
At Home

ABSTRACTWith the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to sustain the effective functioning of health and social care systems. To date, the high volume of research related to care at home and acknowledged low impact of interventions suggests that a re-examination of the nature of care at home, and how we come to know about it, is necessary if we are to advance strategies that will contribute to better outcomes for families. This paper describes findings from an ethnographic study that was designed to support an analysis of the complexity and materiality of family care arrangements – that is, the significance of the actual physical, technological and institutional elements shaping care-giving situations. In this paper, we describe the arrangements made by one family to show the necessary collectivity of these arrangements, and the consequences of the formal care system's failure to respond to these.

The influence of individualistic and collectivistic morality on dementia care choices

2018 ◽  
Vol 26 (7-8) ◽  
pp. 2047-2057 ◽  
Author(s):  
Ingrid Hanssen ◽  
Phuong Thai Minh Tran
Keyword(s):  
Research Question ◽  
Family Members ◽  
Family Care ◽  
Dementia Care ◽  
Family Carers ◽  
Severe Dementia ◽  
Professional Help ◽  
The Balkans ◽  
The Family ◽  
Ethical Approval

Background: If collectivistic-oriented family carers choose professional care for dependents with dementia, they risk being stigmatised as failing their obligation. This may influence dementia care choices. Research question: How may individualistic and collectivistic values influence choices in dementia care? Method: Qualitative design with in-depth interviews with a total of 29 nurses, 13 family members in Norway and the Balkans and 3 Norwegian dementia care coordinators. A hermeneutic content-focused analysis was used. Ethical considerations: Ethical approval was obtained from the Regional Ethics Committee for Research, South-Eastern Norway, and the nursing homes’ leadership. Findings: Family domain reasons why institutionalisation of dependents with dementia was seen as a last resort: obligation towards family members, particularly parents; worry about other family members’ reactions and inability to cope with the care for the person with dementia. Social domain reasons: feelings of shame and stigma regarding dementia, particularly in connection with institutionalisation of family members. Discussion: Children’s obligation towards their parents is an important aspect of the morality of collectivistic societies. Institutionalising parents with dementia may cause feelings of guilt and shame and worry about being stigmatised and ostracised. To avoid blame and rejection, caregiver(s) try to keep the fact that family members have dementia ‘in the family’. The decision to accept professional healthcare for dependents with severe dementia or have them admitted to a geriatric institution was postponed as long as possible. Conclusion: Family care morality may constitute a significant barrier against seeking professional help for persons with dementia, a barrier based on the expectation that the family will care for their old, even when suffering from severe dementia. Hence, stigma and shame may significantly affect the provision of care. Culturally tailored information may encourage family carers to seek professional help before the disruptive influence of the disease makes institutionalisation the only feasible option.

scholarly journals Parenting Stress and the Use of Formal and Informal Child Care: Associations for Fathers and Mothers

2018 ◽  
Vol 39 (12) ◽  
pp. 3203-3224 ◽  
Author(s):  
Lyn Craig ◽  
Brendan Churchill
Keyword(s):  
Parenting Stress ◽  
Household Income ◽  
Regression Models ◽  
Family Care ◽  
Formal Care ◽  
Panel Survey ◽  
Family Carers ◽  
Stress Scale ◽  
Using Data ◽  
Employed Parents

We investigated relationships between nonparental care and psychological strains of parenthood. Using data from employed parents of children below 5 years of age ( n = 6,886 fathers and mothers) from Waves 4 to 11 of the household panel survey Household, Income and Labour Dynamics in Australia (HILDA), we constructed a parenting stress scale from the average of four items (α = .76) administered in the Self-Completion Questionnaire. We ran panel random-effects regression models testing associations between amount and type of nonparental care and parenting stress, for both mothers and fathers. We distinguished between formal care, informal and family care (mainly grandparents), and mixed care. Results showed that fathers and mothers’ parenting stress is positively associated with hours of nonparental care, but that for both genders parenting stress is significantly lower if the care is provided by informal/family carers.

scholarly journals Carers continuing to care after residential care placement

2014 ◽  
Vol 27 (6) ◽  
pp. 877-880 ◽  
Author(s):  
Kirsten J. Moore ◽  
Briony Dow
Keyword(s):  
Residential Care ◽  
Care Home ◽  
Family Care ◽  
Daily Basis ◽  
Family Carers ◽  
Residential Placement ◽  
Loved One ◽  
Difficult Times ◽  
Qualitative Literature

One of the most difficult times for family carers is when the person they care for moves into a residential care home. Although they are relieved to some extent of the day-to-day tasks of caring, they lose the company of their loved one, which can be especially difficult for spouse carers. It is not always easy to obtain residential placement near to the carer's home, so carers may have to travel some distance to see the person they care for, which they often do on a daily basis. Furthermore, they lose control of the care provided, including the perceived quality of that care. They may also lose services, such as home care, or benefits, such as carer payments, that they were receiving on behalf of the person they were caring for or due to their caring responsibilities. These issues are often poorly recognized and managed in a service system that focuses more on the instrumental rather than emotional and social aspects of care for older people. It is often thought that residential care placement signifies the end of the caring role. However, qualitative research in this area highlights that family care is not relinquished when the cared for person goes into residential care and this is clearly demonstrated in the review of the qualitative literature by Afram and colleagues in this issue.

Sorgepolitiken und die Konsequenzen für die Gleichstellung von pflegenden Familienangehörigen: Deutschland und Schweden im Vergleich

2020 ◽  
Vol 69 (3) ◽  
pp. 183-201
Author(s):  
Hildegard Theobald
Keyword(s):  
Long Term Care ◽  
Family Care ◽  
Care Work ◽  
Female Employment ◽  
Equal Treatment ◽  
Developmental Trend ◽  
Family Carers ◽  
Term Care ◽  
Care Policies

Zusammenfassung Im Fokus des Artikels steht der Einfluss von Sorgepolitiken für Ältere auf die Gleichstellung von pflegenden Familienangehörigen in Deutschland und Schweden. Sorgepolitiken in Schweden, die darauf zielen, die Familie in ihrer Sorgearbeit zu entlasten, haben zu einem Rückgang des zeitlichen Umfangs informeller Sorgearbeit und gleichzeitig einer breiten Verteilung der weniger umfangreichen Sorgetätigkeiten in der Bevölkerung geführt. Veränderungen in den Sorgepolitiken und die zunehmende Erwerbstätigkeit von Frauen haben in Deutschland einen ähnlichen Entwicklungstrend ausgelöst, wobei informelle Sorgearbeit deutlich zeitlich umfassender und stärker als in Schweden durch eine ungleiche Beteiligung von Männern und Frauen abhängig von der sozialen Schicht charakterisiert ist. Abstract: Care-Policies and the Effects on Equal Treatment for Family Carers: Germany and Sweden Compared The article analyses the influence of long-term care-policies for older adults on equal treatment of family carers in Germany and Sweden. Long-term policies in Sweden aim on an unburdening of family carers by the provision of public services, which resulted in a reduction of time-intense informal care activities and an increasing distribution of occasional care tasks among the population. Changing long-term care policies and increasing female employment triggered a similar developmental trend in Germany, however, family care work is still more comprehensive than in Sweden and more strongly characterized by an unequal involvement dependent on gender and socio-economic position.

scholarly journals Mental health, coercion and family caregiving: issues from the international literature

2017 ◽  
Vol 14 (3) ◽  
pp. 56-58 ◽  
Author(s):  
Jorun Rugkåsa ◽  
Krysia Canvin
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
North America ◽  
Family Life ◽  
Family Caregiving ◽  
Current Knowledge ◽  
Family Care ◽  
International Literature ◽  
Family Carers ◽  
People With Mental Illness

This article summarises current knowledge about two aspects of family care for people with mental illness: potentially pressurising or coercive aspects of family life; and family carers' experiences of being involved in coercive service interventions. There is a paucity of studies on these topics, especially outside Europe, North America and Australasia, and further research is recommended.

scholarly journals Parenting Support in the Dutch ‘Participation Society’

2015 ◽  
Vol 14 (4) ◽  
pp. 645-656 ◽  
Author(s):  
Trudie Knijn ◽  
Marit Hopman
Keyword(s):  
The Netherlands ◽  
Family Care ◽  
Parent Support ◽  
Public Healthcare ◽  
Evidence Based ◽  
Parenting Support ◽  
Major Reform ◽  
Family Based

This article focuses on ‘the turn to parenting’ in the Netherlands and embeds it in a major reform called ‘transition and transformation’. While support for parenting by way of public healthcare and denominational family care and advice has a long tradition in the Netherlands, the field gained new importance in the 1990s under the influence of medical and psychological ‘scientification’ and the introduction of evidence-based methods. Current reforms are modulated with a critique of specialised forms of parent support and (re-)introduce a community- and family-based approach in which professionals are charged with helping families to help themselves and with guiding and supervising volunteers who actually do the job of parenting support.

scholarly journals Non-pharmacological interventions a feasible option for addressing dementia-related sleep problems in the context of family care

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Rosemary Gibson ◽  
Anthony Dowell ◽  
Linda Jones ◽  
Philippa Gander
Keyword(s):  
Sleep Disturbances ◽  
Sleep Problems ◽  
Treatment Options ◽  
Family Care ◽  
Bright Light ◽  
Light Therapy ◽  
Future Research ◽  
Family Carers ◽  
Pharmacological Interventions ◽  
Care Recipients

Abstract Background Sleep disturbances are challenging symptoms associated with mild cognitive impairment or dementia (MCIoD). This study assessed the feasibility of sleep monitoring and non-pharmacological interventions to improve the sleep of New Zealanders with MCIoD and their family carers. Methods A 5-week multi-modal intervention consisting of timed bright light therapy, physical activity, and sleep education was piloted. Sleep was monitored for a week at baseline and conclusion of the trial using actigraphy, diaries, and questionnaires alongside additional health and wellbeing information concerning both care recipients and carers. Results Fifteen pairs participated, 9 completed the trial. Patterns of attrition and participant feedback are discussed. Case studies showed that six of the care recipients had minor improvements to sleep efficiency. Some also had improved subjective sleep ratings and quality of life. Changes did not clearly translate to family carers. However, five of them also showed some improvements in sleep status and mental health. Health deterioration of care recipients may mask the effects of the intervention. Conclusions It is feasible to use non-pharmacological sleep interventions for people with MCIoD and their family carers. Given the limited treatment options, further consideration of such interventions in future research and clinical practice is warranted. Trial registration As this study was to assess the feasibility of proposed methods, it was an observational study without case-control groups nor a medical-based intervention, clinical registration was not required. A future full version of the trial would be registered with the Australian New Zealand Clinical Trails Registry.

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