scholarly journals A qualitative study of the shared experience of humour between people living with dementia and their partners

Dementia ◽  
2018 ◽  
Vol 19 (6) ◽  
pp. 1794-1810
Author(s):  
Helen Hickman ◽  
Chris Clarke ◽  
Emma Wolverson
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Emotional Experience ◽  
Well Being ◽  
Future Research ◽  
Structured Interviews ◽  
Relationship Strength ◽  
Social And Emotional ◽  
People With Dementia ◽  
Care Partners ◽  
Person With Dementia

Humour is a complex social and emotional experience which could constitute a positive resource for people endeavouring to live well with dementia. However, little is currently known about the shared use and value of humour in dyads where one person has dementia. The purpose of this study was therefore to explore how people with dementia and their care-partners experience, use and draw meaning from humour in relation to their shared experiences of dementia and their ongoing relationships. Ten participant dyads (the person with dementia and their spousal partner) took part in joint semi-structured interviews. Interpretative Phenomenological Analysis revealed eight subthemes that were subsumed under three super-ordinate themes: ‘Humour Has Always Been There (and Always Will Be)’; ‘Withstanding Dementia’ and ‘Renewing the Value of Humour in Dementia’. Overall, the findings suggest that humour, in different forms, can represent a salient and enduring relationship strength that helps dyads maintain well-being and couplehood by providing a buffer against stressors associated with dementia. The findings highlight the potential value of integrating a dyadic perspective with strengths-based approaches in future research into how people live well with dementia.

Library services enriching community engagement for dementia care: The Tales & Travels Program at a Canadian Public Library as a case study

2021 ◽  
pp. 096100062110651
Author(s):  
Jiamin Dai ◽  
Joan C. Bartlett ◽  
Karyn Moffatt
Keyword(s):  
Public Libraries ◽  
Public Library ◽  
Well Being ◽  
Dementia Care ◽  
Future Research ◽  
Library Services ◽  
Structured Interviews ◽  
Community Based ◽  
People With Dementia

Growing dementia-friendly library services are contributing to community-based dementia care. Emerging community programs in libraries and museums provide notable opportunities for promoting engagement and inclusivity, but these programs have yet to receive in-depth assessments and analyses to guide future research and practice. This paper presents a case study examining a social and storytelling program for people with dementia run by a Canadian public library. It investigates two research questions: How can public library programs contribute to community-based dementia care? And what are public libraries’ strengths and challenges in running programs for people with dementia? The study involves participant observations of the program and semi-structured interviews with people with dementia, caregivers, and program facilitators (librarians and Alzheimer Society coordinators). Through thematic analysis of fieldnotes and transcripts, the study reveals how this inclusive platform supports engagement, fosters relationships, helps caregivers, and reaches broader communities. This research further uncovers the librarians’ diversified roles as demonstrated through their collaboration with professionals, preparation and research, and facilitation of the sessions. This paper advances librarianship research on enriching community-based dementia care, including furthering inclusivity and engagement and extending accessible library services. By analyzing library programming for the dementia community and assessing its strengths and challenges, the paper highlights librarians’ awareness of the community’s evolving needs and their collaboration with other professionals. It offers practical insights on useful resources and emerging best practices that will hopefully inspire other initiatives in which information professionals can help improve the well-being of vulnerable populations.

scholarly journals Understanding the lived experience of British non-offending paedophiles

2020 ◽  
Vol 22 (2) ◽  
pp. 71-81
Author(s):  
Harriet Dymond ◽  
Simon Duff
Keyword(s):  
Sexual Abuse ◽  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Sexual Attraction ◽  
Well Being ◽  
Future Research ◽  
Structured Interviews ◽  
Content Type ◽  
Management Techniques ◽  
The Uk

Purpose Research into paedophilia mainly uses offender samples; thus, little is understood about non-offending paedophiles. The limited body of research has been conducted in North America or Europe whose health and legal systems differ from those in the UK. Using semi-structured interviews, the purpose of this study is to explore the experience of three non-offending British paedophilic males. Design/methodology/approach The interview discussed their paedophilia, refraining from offending and perspectives on treatment initiatives. Data were analysed using interpretative phenomenological analysis. Findings Three superordinate themes emerged: “paedophilia as more than a sexuality,” “acceptance leads to management” and “barriers to support.” These encapsulated how paedophilia was understood, how accepting one’s sexual attraction is tantamount to well-being and the various obstacles to providing support were discussed. Research limitations/implications Acknowledging the sampling considerations (size and recruitment), the results implicate research into paedophilia. The onset of paedophilia was chronologically associated with typical sexual attraction, and not the result of sexual abuse as some theories suggest. Furthermore, the tenets of attraction to children extending beyond sexual desire were highlighted. Practically, the results influence future research into the area and highlight the dearth in our understanding of diverse behavioural management techniques (i.e. computerised images of children or human-like dolls). Originality/value This paper presents novel insight into the aspects of paedophilia, excluding offensive behaviour and highlights the need for affordable, UK-based services targeted towards people with a paedophilic attraction to manage child sexual abuse preventatively and not reactively.

Impact of a dementia-specific program of equine-assisted activities: providers’ perspectives

2019 ◽  
Vol 20 (2) ◽  
pp. 37-47
Author(s):  
Beth Fields ◽  
Wendy Wood ◽  
Rebecca Lassell
Keyword(s):  
Service Providers ◽  
Institutional Care ◽  
Complex Interventions ◽  
Well Being ◽  
Scientific Development ◽  
Structured Interviews ◽  
Content Type ◽  
People With Dementia ◽  
Person With Dementia ◽  
Equine Assisted

Purpose Establishing acceptability of complex interventions to stakeholders is vital in early scientific development. The purpose of this paper is to ascertain the acceptability of a program of equine-assisted activities (EAAP) for people with dementia by elucidating programmatic practices needed to enhance their safety and quality of life (QoL) from the perspectives of service providers. Design/methodology/approach Semi-structured interviews with five providers were analyzed using a basic qualitative approach. Findings Providers perceived the EAAP as acceptable and revealed potential mechanisms of change supporting well-being, including aspects related to the physical and social environment and person with dementia. Linkages identified among the EAAP and its physical and social context support its complexity. Providers explicated program practices that promoted safety and QoL, such as implementing staff trainings and tailoring activities to each person’s preferences and needs. These practices aligned with best dementia care approaches, underscoring that the EAAP is a promising complex intervention that merits further scientific development. Originality/value This work is novel and adds to the literature by illuminating the role of a community-based, animal-assisted program for enhancing the QoL of older adults with dementia residing in institutional care facilities.

scholarly journals A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners

Dementia ◽  
2021 ◽  
pp. 147130122199889
Author(s):  
Lydia Morris ◽  
Anthea Innes ◽  
Sarah Smith ◽  
Jack Wilson ◽  
Sophie Bushell ◽  
...  
Keyword(s):  
Social Life ◽  
Social Connectedness ◽  
Good Life ◽  
Qualitative Evaluation ◽  
Well Being ◽  
Structured Interviews ◽  
People With Dementia ◽  
Care Partners ◽  
Set Up ◽  
The Impact

Background Research suggests there is a lack of post-diagnostic support to enable people living with dementia to fulfil social and active lives throughout their dementia journey. Gardening has been found to have many benefits for people living with dementia. Although such research is important, most research frames people with dementia as passive recipients of stimulation. Research into the impact of a community-based gardening group, where people living with dementia are active in the development of an outdoor space, is underdeveloped. Knowledge about the impact of participating in such groups is also sparse. The Good Life Club (GLC) was co-developed and evaluated to respond to these gaps. Objectives The primary aim of this article is to present the findings regarding the impact of attending the GLC on the self-reported well-being for people living with dementia and care partners. Methods Qualitative data were collected via 22 semi-structured interviews. Fourteen interviews were conducted before the GLC and eight after the GLC. Thematic analysis was used to analyse data. Dementia Care Mapping data were collected to supplement the interview data. Findings Four key themes were identified. The first was that participants considered having active participation in social life to be a key aspect of living a good life. The second was that the way that the GLC was set up and delivered gave the participants ownership of the GLC and within this they felt able to contribute. The third was the importance of social connectedness and peer support to the well-being of both people living with dementia and care partners. Fourth, positive mood and well-being was directly experienced through gardening. Conclusions The combination of long-term investment of time and energy to the GLC, ongoing friendships and in-session autonomy act as key ingredients in creating a group that is relaxed, full of humour and highly valued.

A review of couple-centred interventions in dementia: Exploring the what and why – Part A

Dementia ◽  
2017 ◽  
Vol 18 (7-8) ◽  
pp. 2436-2449 ◽  
Author(s):  
Therése Bielsten ◽  
Ingrid Hellström
Keyword(s):  
Cognitive Function ◽  
Relationship Quality ◽  
Negative Impact ◽  
Well Being ◽  
Dyadic Relationship ◽  
People With Dementia ◽  
Care Partners ◽  
Diagnosis Of Dementia ◽  
Person With Dementia ◽  
The Relationship

Introduction Symptoms of dementia bring about challenges to couples’ relationships. Relationship-focused support has been highlighted to be of significant importance for sustained relationship quality and to reduce the negative impact of dementia on the dyadic relationship. This review aimed to explore the ‘what’ and ‘why’ of interventions aimed at couples where one partner has a diagnosis of dementia and in which the couple jointly participate. Method Searches were performed in Academic Search Premier, CINAHL, PsycINFO, PubMed, Scopus and Web of Science from January 2000 to August 2017. Results Six studies were included. Objectives for the person with dementia was related to cognitive function and for the care partner the objectives were related to well-being. The majority of the outcomes were mirrored by the objectives and focused on cognitive function for people with dementia and depression and relationship quality for care partners. Our findings indicate that people with dementia should be included in the assessment of the relationship in order to gain an overall picture of relationship dynamics and to increase tailored support in couple-centred interventions. Conclusions The findings of this review indicate that joint interventions for people with dementia and care partners are lacking a genuine dyadic approach where both partners’ views of their relationship are valued. In order to identify targets for support and to use the appropriate outcome measures, the quality of the relationship should be recognised and taken into account. Moreover, there is a lack of a salutogenic approach in couple-centred interventions in which couples’ strengths and resources can be identified and supported.

scholarly journals “He Just Doesn’t Want to Get Out of the Chair and Do It”: The Impact of Apathy in People with Dementia on Their Carers

2021 ◽  
Vol 18 (12) ◽  
pp. 6317
Author(s):  
Chern Yi Marybeth Chang ◽  
Waqaar Baber ◽  
Tom Dening ◽  
Jennifer Yates
Keyword(s):  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Psychological Symptom ◽  
Subjective Experiences ◽  
Structured Interviews ◽  
The People ◽  
People With Dementia ◽  
Societal Level ◽  
Person With Dementia ◽  
The Impact

Apathy, defined as a lack of motivation, is a prevalent and persistent behavioural and psychological symptom of dementia. Limited research suggests that apathy is associated with increased carer burden, but there are no studies investigating carers’ subjective experiences of apathy. This study aimed to fill this gap and explore the lived experience of apathy in dementia from the perspectives of the people with dementia and their carers. This article reports on the carers’ perspectives. Six dyads of people with dementia and carers participated in semi-structured interviews, which were analysed using interpretative phenomenological analysis. Three superordinate themes were identified: (1) achieving a balance of conflicting emotions—the challenges of apathy led to feelings of guilt, acceptance, and frustration; (2) new roles imposed by caring, which involved taking on new responsibilities and promoting remaining interests of person with dementia; and (3) having a life of one’s own—coping with apathy by talking to others, and spending time away from the caring role. This study highlighted that carers are caught in a struggle between wanting to involve the person with dementia in decisions and finding that they cannot if they want to overcome the hurdle of apathy. Implications of this study suggest that a wider understanding of apathy at a societal level could lead to the provision of a helpful forum for carers to share their experiences.

scholarly journals Qualitative Exploration of Collegiate Student-Athletes’ Constructions of Health

2020 ◽  
Vol 13 (1) ◽  
pp. 24-47
Author(s):  
Bradley Crocker ◽  
Lindsay R Duncan
Keyword(s):  
Mental Health ◽  
Psychological Health ◽  
Interpretative Phenomenological Analysis ◽  
Student Athletes ◽  
Health Resources ◽  
Well Being ◽  
Future Research ◽  
Structured Interviews ◽  
Collegiate Sport

Collegiate student athletes are faced with unique challenges as they are often forced to negotiate between demanding social, athletic, and academic roles. These competing priorities can put student athletes at greater risk for experiencing physical and psychological health problems than their non-athlete peers. To better understand the underlying behaviours and lifestyle factors leading to these negative outcomes, we must consider how they think about health. The purpose of this study was to examine how student athletes conceptualize health in the Canadian context, and to examine how they formulate these understandings. Semi-structured interviews were conducted with 20 actively-competing collegiate student athletes from nine varsity sports at two academic institutions, and data were analysed using interpretative phenomenological analysis. Participants constructed health holistically, with particular emphasis on physical and mental domains over social well-being. The quality of one’s physical health was equated in many ways with athletic capacity, as was the quality of mental health to a lesser degree. Participants discussed a variety of sources from which they drew health ideas, but sport experiences were commonly cited as particularly significant and formative. Findings can inform future research into health conceptualizations of other university student populations, and may inform further inquiry into how health ideas manifest into behaviour. Recommendations are provided for collegiate sport administrators including placing heavier emphasis on mental health resources, and improving support while athletes are acclimating to the demanding lifestyle of varsity sport.   

scholarly journals Paradoxical and powerful: Volunteers’ experiences of befriending people with dementia

Dementia ◽  
2016 ◽  
Vol 17 (7) ◽  
pp. 821-839 ◽  
Author(s):  
Diane E Greenwood ◽  
Carolyn Gordon ◽  
Claire Pavlou ◽  
Jessica V Bolton
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Human Experience ◽  
Phenomenological Analysis ◽  
Future Research ◽  
Structured Interviews ◽  
Personal Learning ◽  
People With Dementia ◽  
Power Equality ◽  
The Relationship

This qualitative UK study explored the lived experiences of volunteer befrienders to people with dementia, using interpretative phenomenological analysis. Individual semi-structured interviews were conducted with nine befrienders aged between 25 and 66 years. The relationship that developed between befriender and befriendee was at the heart of befrienders’ experiences. It comprised numerous paradoxical processes that generated issues of power, equality and boundaries, characterising befriending as a complex and unique phenomenon. Befriending was expressed as a deeply personal and human experience, often with emotional power and profound meaning. Befrienders’ personal learning included seeing past dementia stereotypes, challenging their own assumptions and boundaries, and reflecting on love, life and humanness. Dissemination of these findings could help to challenge the stigma around dementia, and enhance recruitment and support of dementia befrienders. Future research should consider befriendee experiences of the relationship, additional measures of befriending effectiveness, and exploration of befriender attrition and support.

scholarly journals Toward a Greater Contextualization of Music and the Arts in Aging and Cognitive Disorders

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 841-841
Author(s):  
Sophie Lee ◽  
Hilary Moss ◽  
Desmond O’Neill
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Empirical Studies ◽  
Cognitive Disorders ◽  
Well Being ◽  
Family Carers ◽  
Structured Interviews ◽  
Music Therapists ◽  
Music Making ◽  
People With Dementia ◽  
Arts And Health

Abstract Research suggests that group music-making can improve well-being and cognitive function in people with dementia and their family carers. The importance of the music facilitator’s role is recognised. However, empirical studies rarely capture their experiences and perspectives. Semi-structured interviews were conducted with three music therapists and three community musicians with specialisms in dementia care. The interviews sought to gain a detailed understanding of their work with people with dementia. Interpretative Phenomenological Analysis revealed eight super-ordinate themes: (1) benefits of music-making for people with dementia; (2) challenges of working with people with dementia; (3) involving family carers; (4) musical content; (5) impact of the facilitator; (6) developing field of Arts and Health; (7) work as a privilege; and (8) potential for misuse of music. This study provides a useful basis from which to further develop concepts for the amelioration of people living with dementia and their families.

Achieving Financial Inclusion for Persons With Disabilities: Exploring Preparedness and Accessibility of Financial Services for Persons With Disabilities in Malawi

2021 ◽  
pp. 104420732110275
Author(s):  
Alex Nester Jiya ◽  
Maxwell Peprah Opoku ◽  
William Nketsia ◽  
Joslin Alexei Dogbe ◽  
Josephine Nkrumah Adusei
Keyword(s):  
Financial Literacy ◽  
Financial Services ◽  
Commercial Banks ◽  
Empirical Studies ◽  
Well Being ◽  
Living Conditions ◽  
Inclusive Development ◽  
Future Research ◽  
Structured Interviews ◽  
Persons With Disabilities

Deplorable living conditions among persons with disabilities and the need to improve their living conditions cannot be overemphasized. This has triggered international discussion on the need for deliberate social policies to bridge the poverty gap between persons with and without disabilities. In Malawi, expansion of financial services has been identified as an essential tool to accelerate economic and inclusive development. However, empirical studies are yet to explore the preparedness of financial institutions to extend their services to persons with disabilities. In this qualitative study, semi-structured interviews were conducted with managers from commercial banks in Malawi to understand their perspectives on extending financial services to persons with disabilities. Interviews were transcribed verbatim and a descriptive thematic analysis was performed. Although participants reiterated the need to provide persons with disabilities with financial services to improve their well-being, few initiatives have been undertaken to improve their participation. Particularly, participants stated that barriers, such as a lack of financial literacy and adaptive technologies, communication barriers, and high rates of unemployment, explained the reluctance of commercial banks to extend financial services to persons with disabilities. The limitations, recommendations for future research, and implications of the study for policymaking have been highlighted.

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