scholarly journals Do partners to patients with heart failure experience caregiver burden?

2012 ◽  
Vol 11 (3) ◽  
pp. 367-367
Author(s):  
Anna Strömberg ◽  
Susanna Ågren
Keyword(s):  
Heart Failure ◽  
Caregiver Burden ◽  
Patients With Heart Failure ◽  
Failure Experience

Caregiver burden of patients with heart failure with a left-ventricular ejection fraction (LVEF) less than or equal to 60%: a cross-sectional survey in the EU

2020 ◽  
Vol 41 (Supplement_2) ◽  
Author(s):  
R Lahoz ◽  
S Corda ◽  
C Proudfoot ◽  
A.F Fonseca ◽  
S Cotton ◽  
...  
Keyword(s):  
Heart Failure ◽  
Caregiver Burden ◽  
Nyha Class ◽  
Left Ventricular ◽  
Left Ventricular Ejection ◽  
Funding Source ◽  
Cross Sectional Survey ◽  
Private Company ◽  
Cross Sectional ◽  
Patients With Heart Failure

Abstract Background and purpose The majority of patients with heart failure (HF) have difficulties in independently carrying out activities of daily living and hence, require support from caregivers (CGs). This study assessed the quality of life (QoL) of CGs of HF patients with sub-normal LVEF (≤60%). Methods A cross-sectional survey of HF patients and their CGs was conducted in France, Germany, Italy, Spain and the UK. Cardiologists and primary care physicians completed patient record forms (PRF) between June and November 2019. Caregivers of the same patients were invited to complete a caregiver self-completion survey, which included the Family Caregiver QoL Scale (FAMQOL) and EQ-5D. Patient demographics were derived from PRFs. Results 361 CGs (73.1% female, mean age: 58.8 yrs) and HF patients (39.9% female, mean age: 71.2 yrs) were included. 58.2% of the CGs were spouses, 23.4% a child of the patient. On average, CGs devoted 20 hrs/week in the care of HF patients; this CG time increased from 12 to 26 hrs/week with NYHA class I to III/IV of the HF patient. Further, anxiety/stress was experienced overall by 29/31% of CGs which increased from 27/17% for NYHA I to 40/41% for NYHA III/IV of the HF patient (Table 1). Conclusions Caregivers of patients with HF and LVEF ≤60% spend a significant amount of time to provide daily support to HF patients. Patients with progressive disease were older, more polymorbid and had a higher disease duration. These factors likely contributed towards increased caregiver burden of HF patients with increased NYHA class. Funding Acknowledgement Type of funding source: Private company. Main funding source(s): Novartis Pharma AG

Resilience among caregivers of patients with heart failure: a convergent mixed methods study

2021 ◽  
Vol 20 (Supplement_1) ◽  
Author(s):  
A Durante ◽  
A Younas ◽  
A Cuoco ◽  
J Boyne ◽  
R Juarez-Vela ◽  
...  
Keyword(s):  
Heart Failure ◽  
Mixed Methods ◽  
Caregiver Burden ◽  
Qualitative Content Analysis ◽  
Affective State ◽  
Family Members ◽  
Anxiety And Depression ◽  
Extreme Stress ◽  
Patients With Heart Failure ◽  
The Mean

Abstract Funding Acknowledgements Type of funding sources: Private grant(s) and/or Sponsorship. Main funding source(s): HFA Nurse training Fellowship Award Center for Excellence for Culture and Nursing Research (CECRI)Nursing Scholarship OPI Rome Italy Introduction Resilience is a dynamic process of utilising abilities to harness personal, social, and spiritual resources and coping characteristics and developing regulatory flexibility to manage challenges and bounce back from emotional and physical distress. Caregivers of patients with heart failure are prone to increased stress and reduced resilience while assisting their family members in meeting self-care needs, activities of daily living, and complex medical and dietary regimens. To date, limited research exists on resilience and its predictors among caregivers of people with heart failure. Purpose To develop a comprehensive understanding of resilience and its predictors among caregivers of patients with heart failure.  Methods A convergent mixed methods design was used. In total, 50 caregivers completed the Connor-Davidson Resilience Scale (CDRS) (score range: 0–100, with higher scores indicating higher resilience), the Caregiver Burden Inventory (CBI) (higher scores indicate greater caregiver burden; there are no cut-off points for classifying burden), and the Hospital Anxiety and Depression Scale (HADS) (two subscales, range score 0 and 21 per each subscale; higher scores mean worse anxiety and depression) and participated in semi-structured face-to-face interviews. Data were analysed using multiple regression, qualitative content analysis, and joint displays.  Results The caregivers’ mean age was 62.8 ± 12.83 years. The CDRS mean score was 62.37 ± 24.2, and the mean HADS scores for anxiety and depression were 12.38 ± 2.74 and 8.54 ± 2.49, respectively. The mean CBI score was 16.82 ± 17.12. Regression analysis showed that the resilience score was only predicted by depression (B = -1.491, p = 0.031). Qualitative analysis generated three resilience-inhibiting factors (psychological outlook, physical weariness, and affective state) and two promoting factors (community interconnectedness and self-comforting activities). Mixed analysis confirmed that depression decreased caregivers’ resilience.   Conclusions Caregivers of people with heart failure are likely to experience extreme stress and anxiety that affect their resilience to provide better care for their family members. This study identified that depression, hopelessness, pessimism, powerlessness, physical fatigue, and fluctuating emotional states affected negatively caregivers’ resilience. However, self-comforting activities and community interconnectedness improved caregivers’ resilience. Community care organizations and hospitals could establish alliances to develop programs for enhancing caregivers’ resilience.

scholarly journals The Bi-directional Impact of Two Chronic Illnesses: Heart Failure and Diabetes – A review of the Epidemiology and Outcomes

2015 ◽  
Vol 1 (1) ◽  
pp. 8 ◽  
Author(s):  
Patrick Campbell ◽  
Selim Krim ◽  
Hector Ventura ◽  
◽  
◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Heart Failure ◽  
Hospital Admissions ◽  
Chronic Illnesses ◽  
Morbidity And Mortality ◽  
Developing Heart ◽  
Increased Risk ◽  
Patients With Heart Failure ◽  
The Us ◽  
Failure Experience

Heart failure and diabetes mellitus contribute significantly to the morbidity and mortality of the US population. The combined economic impact on the US health care system reaches nearly $300 billion. Much of this cost stems from the frequent hospital admissions and direct cost of managing the two diseases. The presence of diabetes significantly increases the risk of developing heart failure compared to the general population and diabetics with heart failure experience significantly higher mortality. Patients with heart failure have a high incidence of insulin resistance and are at increased risk of developing diabetes mellitus. Traditionally these two chronic illnesses have been managed in relative isolation. However the adverse effects of each disease has significant impact on the other. The combination of heart failure and diabetes mellitus significantly increases the morbidity and mortality compared to either in isolation. This paper reviews the epidemiology and impact of the bidirectional effects of these two chronic illnesses.

Abstract 2724: Predictors of Depressive Symptoms in Caregivers of Patients with Heart Failure

Circulation ◽  
2008 ◽  
Vol 118 (suppl_18) ◽  
Author(s):  
Misook L Chung ◽  
Susan J Pressler ◽  
Terry A Lennie ◽  
Debra K Moser
Keyword(s):  
Heart Failure ◽  
Depressive Symptoms ◽  
Functional Status ◽  
Caregiver Burden ◽  
Perceived Control ◽  
Functional Disability ◽  
Medical Center ◽  
Academic Medical Center ◽  
Caregiving Burden ◽  
Patients With Heart Failure

Millions of family members deliver informal care and support to patients with heart failure (HF). Accumulating evidence suggests that caregivers of patients with HF suffer from depressive symptoms, but factors associated with depressive symptoms are unknown. Identification of such factors could provide targets for intervention. Three possible factors that are amenable to intervention are caregivers’ functional status, their sense of caregiving burden, and perceived control. (1) To examine differences in functional status, perceived control, and caregiving experiences (time, difficulty, and burden) between depressed and non-depressed caregivers; (2) To examine whether these factors predict caregivers’ depressive symptoms. A total of 92 caregivers (mean age of 57 years; female 75%; spousal caregiver 80%) of patients with HF were recruited from outpatient clinics at two community hospitals and an academic medical center in central Kentucky. Their depressive symptoms were assessed using the Beck Depression Inventory-II (BDI-II). Functional status was assessed using the Duke Activity Status Index. Perceived control was assessed using the Control Attitudes Scale-Revised. Caregiving difficulty, time, and burden were assessed using the Bakas Caregiving Inventory and the Zarit Caregiver Burden Scale. Caregivers were grouped using the standard cut point of 13 on the BDI-II score. The 27% of caregivers with depressive symptoms had poorer functional status (21± 20 vs. 34 ± 19; p =.007), lower perceived control (22 ± 4 vs. 25 ± 4; p = .005), and higher caregiving burden (26 ± 14 vs. 13 ± 10; p< .001) than caregivers without depressive symptoms. Controlling for age and gender in a multiple regression, functional disability (sβ= −.298, p<.001), perceived control (sβ= −.298, p<.001), and caregiver burden (sβ= .328, p=.002) explained 45% of the variance in caregivers’ depressive symptoms. Caregivers’ functional disability, poor controllability, and burden related to caregiving were associated with depressive symptoms. These findings suggest that depressed caregivers of patients with HF may benefit from interventions that improve perceived control, address caregiving burden and functional status.

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