scholarly journals In My Shoes: Children's Quality of Life after Heart Transplantation

2007 ◽  
Vol 17 (3) ◽  
pp. 199-208 ◽  
Author(s):  
Angela Green ◽  
Jean McSweeney ◽  
Kathy Ainley ◽  
Janet Bryant
Keyword(s):  
Quality Of Life ◽  
Heart Transplantation ◽  
Heart Transplant ◽  
Family Interactions ◽  
Key Factors ◽  
School Activities ◽  
Medical Regimen ◽  
Data Collection And Analysis ◽  
End Stage

Background Although heart transplantation has been offered for 2 decades to prolong the lives of children with end-stage heart disease, we know little about how these children view their lives, how they deal with their complicated medical regimen, and how the transplantation affects their quality of life. Objectives To examine the quality of life of school-aged heart transplant recipients and to identify the key factors they believe affect their quality of life. Design Focused ethnography. Participants and Setting Eleven children (7 girls, 4 boys) between the ages of 6 and 12 years (mean 9.1 years) who had received a transplant at least 6 months earlier were recruited from a large children's hospital. Data Collection and Analysis Semistructured interviews were conducted in private locations. Data were analyzed using content analysis and constant comparison. Results The children described their quality of life as “mostly good,” yet reported that life was “easy and not easy.” Ten factors that affected the children's quality of life were Doing Things/Going Places, Favorite School Activities, Hard Things About School, Being With Friends and Family, Doing Things/Going Places With Friends and Family, Interactions With Friends and Family, Taking Care of My Heart, My Body, The Transplant Team, and Other Health Problems. Based on similarities in meaning, these factors were combined into 3 themes: Doing What Kids Do, Being With Friends and Family, and Being a Heart Transplant Kid. The themes and factors can provide useful direction for interventions aimed at improving the quality of life for children after heart transplantation.

scholarly journals SEXUAL DISORDERS AFTER HEART TRANSPLANT

2020 ◽  
Vol 73 (10) ◽  
pp. 2277-2281
Author(s):  
Kamila Fuczyło ◽  
Magdalena Piegza ◽  
Robert Pudlo
Keyword(s):  
Quality Of Life ◽  
Erectile Dysfunction ◽  
Sexual Dysfunction ◽  
Heart Transplantation ◽  
Heart Transplant ◽  
Sexual Disorders ◽  
State Of Health ◽  
Review Of The Literature ◽  
Pubmed Database

The aim: To systematize and bring the reader closer to knowledge about the occurrence of sexual disorders in people after heart transplantation based on available bibliography. Material and methods: A review of the literature on this topic from the last 30 years made with using the PubMed database, using a total of 17 articles. Conclusions: The incidence of sexual dysfunction (SD) is higher in heart recipients than in the general population and erectile dysfunction is the most common. When the symptoms of dysfunction occur before the transplant – they do not improve, rather they get worse, which reduces the improvement in the quality of life of these patients compared to patients without sexual dysfunction. Improvement in quality of life is observed in patients with SD after heart transplantation, but not as pronounced as in subjects without sexual dysfunction. Some patients notice an increase in libido, with the genital response being insufficient or completely disappearing, which results in a decrease in the quality of relationships between partners and a deterioration in the quality of life. The cause of SD in heart recipients is unclear, but it is associated with the type of immunosuppression used, the level of sexual activity and the state of health of patients prior to transplantation. Nowadays patients after ortotrophic heart transplant live longer and their quality of life improves, but not in sexual terms. The articles concerned almost exclusively men, that is why the topic requires exploration in subsequent research.

164: The Relationships among Satisfaction with Heart Transplant on Quality of Life (QOL) Outcomes 5 to 10 Years after Heart Transplantation(HT)

2010 ◽  
Vol 29 (2) ◽  
pp. S59-S59
Author(s):  
C. White-Williams ◽  
K.L. Grady ◽  
E. Wang ◽  
D.C. Naftel ◽  
J.K. Kirklin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Transplantation ◽  
Heart Transplant

Quality of life 6 months after heart transplantation compared with indicators of illness severity before transplantation

1998 ◽  
Vol 7 (2) ◽  
pp. 106-116 ◽  
Author(s):  
KL Grady ◽  
A Jalowiec ◽  
C White-Williams
Keyword(s):  
Quality Of Life ◽  
New York ◽  
Heart Transplantation ◽  
Heart Transplant ◽  
Severity Of Illness ◽  
Heart Association ◽  
Psychological State ◽  
New York Heart Association ◽  
United Network

BACKGROUND: Quality of life is an important healthcare outcome to study. Quality of life after heart transplantation has not been compared with indicators of severity of illness before heart transplantation. OBJECTIVE: To compare differences in quality of life 6 months after heart transplantation with two preoperative indicators of severity of illness: New York Heart Association classification and United Network for Organ Sharing status. METHODS: Data were collected from a nonrandom sample of 219 adult patients who had received a heart transplant 6 months earlier. Patients were divided into groups on the basis of their New York Heart Association classification and United Network for Organ Sharing status immediately before transplantation. Instruments used were the Heart Transplant Symptom Checklist, Heart Transplant Stressor Scale, Rating Question Form, Quality of Life Index, Sickness Impact Profile, and Jalowiec Coping Scale. Data were analyzed with descriptive statistics, chi-square tests, and independent t tests. RESULTS: Quality of life 6 months after receiving a heart transplant varied with severity of illness before transplantation. These differences in quality of life were in the following domains: physical and occupational function, psychological state, and social interaction. Six months after receiving a heart transplant, patients who were more severely ill before transplantation were less satisfied with their lives, perceived that they were not doing as well, experienced more family-related stress, and used more negative coping strategies than did patients who were less severely ill preoperatively. CONCLUSIONS: These findings indicate the need for further study of quality of life in the transplant recipients who are the most critically ill in intensive care settings before surgery, to develop interventions to improve recipients' quality of life, and to evaluate effectiveness of those interventions longitudinally.

Compliance with the medical regimen and partner's quality of life after heart transplantation

1993 ◽  
Vol 2 (3) ◽  
pp. 205-212 ◽  
Author(s):  
R. A. M. Erdman ◽  
L. Horstman ◽  
R. T. van Domburg ◽  
K. Meeter ◽  
A. H. H. M. Balk
Keyword(s):  
Quality Of Life ◽  
Heart Transplantation ◽  
Medical Regimen

Returning to Work After Heart Transplantation: A Replication

1997 ◽  
Vol 7 (3) ◽  
pp. 370-377 ◽  
Author(s):  
Wayne Paris ◽  
Sarah Tebow ◽  
Ahmad S. Dahr ◽  
David K. C. Cooper
Keyword(s):  
Quality Of Life ◽  
Clinical Practice ◽  
Social Work ◽  
Discriminant Analysis ◽  
Heart Transplantation ◽  
Heart Transplant ◽  
Self Esteem ◽  
Work Assessment ◽  
Returning To Work

Employment is an important component in the reestablishment of a heart transplant recipient's identity, self-esteem, and quality of life. An attempt was made to replicate the results of an earlier six-factor discriminant analysis that profiled posttransplant employment options for patients exposed to a center policy specific in the expectation of employment. Results indicate that the model accurately predicted 95% of those employed, confirming the model's validity. Implications for social work assessment and clinical practice are explored.

scholarly journals Heart transplantation as a radical method of restoring the quality of life in recipients with end-stage heart failure

2019 ◽  
Vol 21 (2) ◽  
pp. 7-15
Author(s):  
S. V. Gautier ◽  
V. M. Zacharevich ◽  
T. A. Khalilulin ◽  
A. О. Shevchenko ◽  
V. N. Poptsov ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Heart Transplantation ◽  
Radical Method ◽  
End Stage Heart Failure ◽  
End Stage

scholarly journals Understanding Heart Transplantation—Gift of Life

2017 ◽  
Vol 01 (02) ◽  
pp. 72-81
Author(s):  
Kalpana Irpachi ◽  
Poonam Malhotra Kapoor
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Survival Rate ◽  
Heart Transplantation ◽  
Ex Vivo ◽  
End Stage Heart Failure ◽  
Heart Injury ◽  
End Stage ◽  
Single Organ

AbstractHeart transplantation (HTx) provides a longer and better quality of life to patients with end-stage heart failure when all other options of treatment have been exhausted. There are nearly 500 heart donors yearly in India. Approximately 60 cases of HTx are performed every year; 70% survival rate is for nearly 1 year whereas 30% survival rate is for 10 years. Scarcity of donors is further complicated by the use of single organ, heart injury with common brain-death injuries, difficulty with ex vivo preservation, heart disease among donors, and complexity of the operation.

scholarly journals Emergency Medicine Palliative Care Access (EMPallA): protocol for a multicentre randomised controlled trial comparing the effectiveness of specialty outpatient versus nurse-led telephonic palliative care of older adults with advanced illness

BMJ Open ◽  
2019 ◽  
Vol 9 (1) ◽  
pp. e025692 ◽  
Author(s):  
Corita R Grudzen ◽  
Deborah J Shim ◽  
Abigail M Schmucker ◽  
Jeanne Cho ◽  
Keith S Goldfeld
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Palliative Care ◽  
Randomised Controlled Trial ◽  
Case Management ◽  
Controlled Trial ◽  
Chronic Obstructive ◽  
Randomised Controlled ◽  
End Stage

IntroductionEmergency department (ED)-initiated palliative care has been shown to improve patient-centred outcomes in older adults with serious, life-limiting illnesses. However, the optimal modality for providing such interventions is unknown. This study aims to compare nurse-led telephonic case management to specialty outpatient palliative care for older adults with serious, life-limiting illness on: (1) quality of life in patients; (2) healthcare utilisation; (3) loneliness and symptom burden and (4) caregiver strain, caregiver quality of life and bereavement.Methods and analysisThis is a protocol for a pragmatic, multicentre, parallel, two-arm randomised controlled trial in ED patients comparing two established models of palliative care: nurse-led telephonic case management and specialty, outpatient palliative care. We will enrol 1350 patients aged 50+ years and 675 of their caregivers across nine EDs. Eligible patients: (1) have advanced cancer (metastatic solid tumour) or end-stage organ failure (New York Heart Association class III or IV heart failure, end-stage renal disease with glomerular filtration rate <15 mL/min/m2, or global initiative for chronic obstructive lung disease stage III, IV or oxygen-dependent chronic obstructive pulmonary disease); (2) speak English; (3) are scheduled for ED discharge or observation status; (4) reside locally; (5) have a working telephone and (6) are insured. Patients will be excluded if they: (1) have dementia; (2) have received hospice care or two or more palliative care visits in the last 6 months or (3) reside in a long-term care facility. We will use patient-level block randomisation, stratified by ED site and disease. Effectiveness will be compared by measuring the impact of each intervention on the specified outcomes. The primary outcome will measure change in patient quality of life.Ethics and disseminationInstitutional Review Board approval was obtained at all study sites. Trial results will be submitted for publication in a peer-reviewed journal.Trial registration numberNCT03325985; Pre-results.

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