Patient-oriented research: A qualitative study of research involvement of parents of children with neurodevelopmental disabilities

2020 ◽  
pp. 174462952094201
Author(s):  
Emma Vanderlee ◽  
Megan Aston ◽  
Karen Turner ◽  
Patrick McGrath ◽  
Lucyna Lach
Keyword(s):  
Qualitative Research ◽  
Qualitative Study ◽  
Children And Adolescents ◽  
Advisory Committee ◽  
Research Study ◽  
Research Process ◽  
Research Project ◽  
Neurodevelopmental Disabilities ◽  
Research Involvement ◽  
Oriented Research

Patient-oriented research engages patients and caregivers as partners contributing to all phases of the research process. This was the goal of the Strongest Families Institute Neurodevelopmental research, in Halifax, Nova Scotia, when they included a parent advisory committee, made up of parents and caregivers of children and adolescents with a neurodevelopmental condition, to complete their research project. The purpose of this qualitative research was to examine the experiences of researchers and parents of children with a neurodevelopmental condition who participated on a research study advisory committee for the Strongest Families Neurodevelopment research project. From interviews with both parents/caregivers and researchers that played a role on the advisory committee, four major themes emerged on how to negotiate and navigate their time on the committee and what worked well and what did not. This led to recommendations for future researchers and patients who may create or be a part of an advisory committee.

The Research Audit Trail: Methodological Guidance for Application in Practice

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Marian Carcary
Keyword(s):  
Qualitative Research ◽  
Critical Reflection ◽  
Research Process ◽  
Qualitative Inquiry ◽  
Research Project ◽  
Information Systems Management ◽  
Audit Trail ◽  
Research Outcomes ◽  
Time Period ◽  
Research Findings

The merits of qualitative research remain an issue of ongoing debate and investigation. Qualitative researchers emphasise issues such as credibility, dependability, and transferability in demonstrating the trustworthiness of their research outcomes. This refers to the extent to which the research outcomes are conceptually sound and serves as the basis for enabling other researchers to assess their value. Carcary (2009) proposed trustworthiness in qualitative inquiry could be established through developing a physical and intellectual research audit trail – a strategy that involves maintaining an audit of all key stages and theoretical, methodological, and analytical decisions, as well as documenting how a researcher’s thinking evolves throughout a research project. Since 2009, this publication has been cited in greater than 600 studies. The current paper provides an analysis of the use and value of the research audit trail, based on the author’s application of this strategy across diverse research projects in the field of Information Systems management over a ten year time period. Based on a critical reflection on insights gained through these projects, this paper provides an in‑depth discussion of a series of guidelines for developing and applying the research audit trail in practice. These guidelines advance existing thinking and provide practical recommendations in relation to maintaining a research audit trail throughout a research project. Based on these guidelines and the core issues that should be covered at a physical and intellectual research audit trail level, a checklist that can be tailored to each project’s context is provided to support novice researchers and those who are new to the research audit trail strategy. As such, this paper demonstrates commitment to rigor in qualitative research. It provides a practical contribution in terms of advancing guidelines and providing a supporting checklist for ensuring the quality and transparency of theoretical, methodological, and analytical processes in qualitative inquiry. Embedding these guidelines throughout the research process will promote critical reflection among researchers across all stages of qualitative research and, in tracing through the researcher’s logic, will provide the basis for enabling other researchers to independently assess whether the research findings can serve as a platform for further investigation.

Muddling Through the Passage of Qualitative Research: Experiences of a Novice Researcher

2017 ◽  
Vol 21 (3) ◽  
pp. 314-322 ◽  
Author(s):  
Richa Saxena
Keyword(s):  
Qualitative Research ◽  
Data Analysis ◽  
Data Collection ◽  
Research Study ◽  
Research Work ◽  
Research Process ◽  
Research Proposal ◽  
Independent Research ◽  
Research Experiences

The article is written as a travelogue by the author while exploring the passage of qualitative research in her maiden independent research work—her dissertation. The author describes in the article how her journey of qualitative research took shape right from the take-off point: the choice of topic and methodology to the data collection, analysis and presentation of the findings. The article also throws light on the various experiences of the researcher during the journey including the issues and challenges faced by her in different stages of the study like the research proposal stage, data collection stage and the data analysis stage. The objective of the article is to familiarize the qualitative researchers, who are currently at the beginner stage, with the possible issues and pitfalls of qualitative research process. For that the author has used her own experiences to explain the nuances of the process. In the article, the author also highlights that irrespective of the challenges faced in the process how the research study helped her in developing herself as a better researcher and a wiser person, making her efforts fruitful and providing her a sense of achievement.

scholarly journals Experiences of mid-level managers in student affairs : a qualitative study

2017 ◽  
Author(s):  
◽  
Jennifer Suzanne Rabas
Keyword(s):  
Qualitative Research ◽  
Qualitative Study ◽  
Student Affairs ◽  
Research Study ◽  
Qualitative Research Study ◽  
Personal Experiences ◽  
Synergistic Supervision

Although there is some research on mid-level managers in student affairs, there is little information on their personal experiences of supervision. The primary purpose of this qualitative research study is to understand their experiences and examine them through the lens of synergistic supervision (Winston and Creamer, 2002). Synergistic supervision is the idea of a shared relationship between the supervisor and supervisee. This study also examined training given to mid-level managers. The findings include the three major themes. They are training and preparation, relationship, and support. Implications for practice are discussed.

scholarly journals Tūhono Māori: A Research Study of Attachment from an Indigenous Māori Perspective

2020 ◽  
Vol 23 (2) ◽  
pp. 61-76
Author(s):  
Alayne Mikahere-Hall
Keyword(s):  
Qualitative Research ◽  
Family Relationships ◽  
Social System ◽  
Research Study ◽  
Knowledge Gap ◽  
Research Project ◽  
Emotional Bonds ◽  
Kaupapa Māori ◽  
Trauma Informed

Tūhono Māori is a qualitative research project that engages with Indigenous Kaupapa Māori methodology and methods. The purpose is to investigate a uniquely Māori approach for understanding the nature in which healthy whānau (family) relationships are fostered within a Māori social system. The research seeks to advance what we understand about healthy attachments through an Indigenous Māori lens, exploring traditional and contemporary notions of attachment in which healthy emotional bonds are fostered and secure whānau attachments promoted. The aim of this research is to develop Māori theory that will shape trauma-informed interventions for Māori children and their whānau. The study is intended to address a knowledge gap in which tūhono (attach/bond) and related concepts such as tūhonotanga (attachment/connectedness) are proposed as a contemporary Māori notion of attachment. This paper discusses the methodology and methods employed in the Tūhono Māori research project.

scholarly journals Reflexivity in Qualitative Research: A Journey of Learning

2017 ◽  
Author(s):  
Erlinda Palaganas ◽  
Marian Sanchez ◽  
Ma. Visitacion Molintas ◽  
Ruel Caricativo
Keyword(s):  
Qualitative Research ◽  
Lived Experiences ◽  
Research Process ◽  
The Philippines ◽  
Research Project ◽  
Social Phenomena ◽  
Research Findings ◽  
Conducting Research

Conducting research, more so, fieldwork, changes every researcher in many ways. This paper shares the various reflexivities – the journeys of learning – that we underwent as field researchers. Here, we share the changes brought about to ourselves, as a result of the research process, and how these changes have affected the research process. It highlights the journey of discovering how we, as researchers, shaped and how we were shaped by the research process and outputs. All these efforts were done in our attempts to discover and understand various social phenomena and issues such as poverty, development, gender, migration, and ill health in the Philippines. This article includes the challenges encountered in our epistemological stance/s and personal and methodological concerns shown in our reflexivity notes/insights. Indeed, it is when researchers acknowledge these changes, that reflexivity in research constitutes part of the research findings. It is through this consciousness of the relational and reflective nature of being aware of personal and methodological concerns that we honor ourselves, our teammates/co-researchers and all others involved with the research project. As researchers, we need to be cognizant of our contributions to the construction of meanings and of lived experiences throughout the research process. We need to acknowledge that indeed it is impossible to remain “outside of” one's study topic while conducting research.

scholarly journals Rigorous Phenomenography: A Conceptual Model

2021 ◽  
Vol 11 (2) ◽  
pp. 71
Author(s):  
Jennifer M. Straub ◽  
Nancy Maynes
Keyword(s):  
Qualitative Research ◽  
Teacher Education ◽  
Conceptual Model ◽  
Research Study ◽  
Research Process ◽  
Research Approach ◽  
Pre Service Teacher Education ◽  
Pre Service Teacher

This paper presents a visual conceptual model for the qualitative research approach referred to as phenomenography. The static and recursive stages of a rigorous phenonemographical approach to research are outlined in detail. Using the example of a research study situated in pre-service teacher education, the authors explain how the fifteen distinct steps of phenomenographic research should be addressed with attention to the sequencing of these steps to support reliability and rigor of the research process and validity and generalizability of the outcome spaces that may result from the use of phenomenography.

Research process. Conducting the research project

1990 ◽  
Vol 80 (12) ◽  
pp. 662-664 ◽  
Author(s):  
LL Gabel
Keyword(s):  
Research Study ◽  
Planning Process ◽  
Research Process ◽  
Work Schedules ◽  
Research Project ◽  
Record Keeping ◽  
Detailed Work ◽  
Monitoring Progress

Conducting the research study should be a methodical process in which the details of the planning process are executed. This fourth article in a series of six on the research process presents guidelines with supporting recommendations to increase the likelihood that the study indeed will be conducted as planned. The guidelines emphasize the importance of 1) record-keeping systems, 2) detailed work schedules, 3) communications, and 4) monitoring progress.

scholarly journals Caring for a violent relative with severe mental illness: a qualitative study

2020 ◽  
Vol 25 (8) ◽  
pp. 664-676
Author(s):  
Etienne Paradis-Gagné ◽  
Dave Holmes ◽  
Jean Daniel Jacob
Keyword(s):  
Qualitative Research ◽  
Mental Illness ◽  
Qualitative Study ◽  
Severe Mental Illness ◽  
Mentally Ill ◽  
Research Study ◽  
Central Theme ◽  
Qualitative Research Study ◽  
The Government ◽  
Victims Of Violence

Background: According to the literature reviewed, although families living with a mentally ill relative often face violence, this issue has been little studied in nursing. Methods: We conducted a qualitative research study to explore the experience of families dealing with this complex reality. We adopted Jacques Donzelot’s theory of the government of family as our theoretical framework and used grounded theory as our research methodology. In total, 14 participants who had been victims of violence perpetrated by relatives with severe mental illness were interviewed. Findings: Qualitative analysis led to the identification of five themes: (a) medico-legal apparatus; (b) experience of violence; (c) the family’s responsibility toward the violent relative; (d) exclusion and stigmatisation; and (e) suffering and resilience. The present paper focuses on the study’s central theme: the family’s responsibility toward the violent relative.

I Need You to Tell My Story: Qualitative Inquiry for/With Transnational Black Women

2018 ◽  
Vol 19 (3) ◽  
pp. 184-192
Author(s):  
Tanja Burkhard
Keyword(s):  
Qualitative Research ◽  
Black Women ◽  
Feminist Theory ◽  
Research Process ◽  
Qualitative Inquiry ◽  
Black Feminist Theory ◽  
Black Feminist ◽  
Research Project ◽  
Marginalized Communities ◽  
Dominant Ideologies

Drawing on a yearlong qualitative research project with seven Black transnational women, this article employs a transnational Black feminist approach. It is guided by the following questions: What does it look like to conduct qualitative research rooted in a transnational Black feminist framework? What implications related to storytelling, reciprocity, and the relationships with participants emerge from this work? In exploring these questions, I consider some of the ways transnational Black feminist theory can be operationalized to counter re-inscriptions of dominant ideologies onto the research process with marginalized communities, particularly under consideration of contemporary national and transnational processes and discourses.

scholarly journals Experience of Being an Insider and an Outsider during a Qualitative Study with Men Who Have Experienced Significant Weight Loss

2015 ◽  
Author(s):  
Darren Moore
Keyword(s):  
Weight Loss ◽  
Qualitative Study ◽  
Narrative Inquiry ◽  
Research Study ◽  
Research Process ◽  
Significant Weight Loss ◽  
Specific Population ◽  
Major Question ◽  
Self Disclosure ◽  
Level Of Importance

The major question being answered in the study is, “What is the experience of being an insider/outsider in a study regarding men and significant weight loss?” The purpose of the paper is to explore the experience of being both an insider and an outsider, and specifically to discuss how researcher status and self-disclosure emerged and impacted the research process. The methodology used in the research study is narrative inquiry, specifically self-narrative. In the study, membership role status was found to be difficult to define, inherently complex, and arbitrary at times. Additional research on the topic of membership role status is needed and the level of importance should be further explored for the specific population.

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