scholarly journals A roadmap: Social distancing physical activity data collection to protect those with intellectual disabilities

2021 ◽  
pp. 174462952110096
Author(s):  
Whitley J Stone ◽  
Kayla M Baker

The novel coronavirus may impact exercise habits of those with intellectual disabilities. Due to the mandated discontinuation of face-to-face research, investigators must adapt projects to protect all involved while collecting objective physical activity metrics. This brief report outlines a modification process of research methods to adhere to social distancing mandates present during COVID-19. Actions taken included electronic consent and assent forms, an electronic survey, and mailing an accelerometer with included instructions. The amended research methods were implemented without risk for virus transmission or undue burden on the research team, participant, or caregiver. Recruitment was likely impacted by the coronavirus-mediated quarantine, plausibly resulting in bias. Objective physical activity data collection can be sufficiently modified to protect those with intellectual disabilities and investigators. Future research designs may require greater participant incentives and the creation of in-home participation.

2017 ◽  
Author(s):  
Elke Hacker ◽  
Caitlin Horsham ◽  
Martin Allen ◽  
Andrea Nathan ◽  
John Lowe ◽  
...  

BACKGROUND Skin cancer is the most prevalent cancer in Australia. Skin cancer prevention programs aim to reduce sun exposure and increase sun protection behaviors. Effectiveness is usually assessed through self-report. OBJECTIVE It was the aim of this study to test the acceptance and validity of a newly developed ultraviolet radiation (UVR) exposure app, designed to reduce the data collection burden to research participants. Physical activity data was collected because a strong focus on sun avoidance may result in unhealthy reductions in physical activity. This paper provides lessons learned from collecting data from participants using paper diaries, a mobile app, dosimeters, and accelerometers for measuring end-points of UVR exposure and physical activity. METHODS Two participant groups were recruited through social and traditional media campaigns 1) Group A—UVR Diaries and 2) Group B—Physical Activity. In Group A, nineteen participants wore an UVR dosimeter wristwatch (University of Canterbury, New Zealand) when outside for 7 days. They also recorded their sun exposure and physical activity levels using both 1) the UVR diary app and 2) a paper UVR diary. In Group B, 55 participants wore an accelerometer (Actigraph, Pensacola, FL, USA) for 14 days and completed the UVR diary app. Data from the UVR diary app were compared with UVR dosimeter wristwatch, accelerometer, and paper UVR diary data. Cohen kappa coefficient score was used to determine if there was agreement between categorical variables for different UVR data collection methods and Spearman rank correlation coefficient was used to determine agreement between continuous accelerometer data and app-collected self-report physical activity. RESULTS The mean age of participants in Groups A (n=19) and B (n=55) was 29.3 and 25.4 years, and 63% (12/19) and 75% (41/55) were females, respectively. Self-reported sun exposure data in the UVR app correlated highly with UVR dosimetry (κ=0.83, 95% CI 0.64-1.00, P<.001). Correlation between self-reported UVR app and accelerometer-collected moderate to vigorous physical activity data was low (ρ=0.23, P=.10), while agreement for low-intensity physical activity was significantly different (ρ=-0.49, P<.001). Seventy-nine percent of participants preferred the app over the paper diary for daily self-report of UVR exposure and physical activity. CONCLUSIONS This feasibility study highlights self-report using an UVR app can reliably collect personal UVR exposure, but further improvements are required before the app can also be used to collect physical activity data.


Author(s):  
Anna M.J. Iveson ◽  
Malcolm H. Granat ◽  
Brian M. Ellis ◽  
Philippa M. Dall

Objective: Global positioning system (GPS) data can add context to physical activity data and have previously been integrated with epoch-based physical activity data. The current study aimed to develop a framework for integrating GPS data and event-based physical activity data (suitable for assessing patterns of behavior). Methods: A convenience data set of concurrent GPS (AMOD) and physical activity (activPAL) data were collected from 69 adults. The GPS data were (semi)regularly sampled every 5 s. The physical activity data output was presented as walking events, which are continuous periods of walking with a time-stamped start time and duration (to nearest 0.1 s). The GPS outcome measures and the potential correspondence of their timing with walking events were identified and a framework was developed describing data integration for each combination of GPS outcome and walking event correspondence. Results: The GPS outcome measures were categorized as those deriving from a single GPS point (e.g., location) or from the difference between successive GPS points (e.g., distance), and could be categorical, scale, or rate outcomes. Walking events were categorized as having zero (13% of walking events, 3% of walking duration), or one or more (52% of walking events, 75% of walking duration) GPS points occurring during the event. Additionally, some walking events did not have GPS points suitably close to allow calculation of outcome measures (31% of walking events, 22% of walking duration). The framework required different integration approaches for each GPS outcome type, and walking events containing zero or more than one GPS points.


2019 ◽  
Author(s):  
Ian R Kleckner ◽  
Mallory Feldman ◽  
Matthew Goodwin ◽  
Karen S. Quigley

Commercially available consumer electronics (smartwatches and wearable biosensors) are increasingly enabling acquisition of peripheral physiological and physical activity data inside and outside of laboratory settings. However, there is scant literature available for selecting and assessing the suitability of these novel devices for scientific use. To overcome this limitation, the current paper offers a framework to aid researchers in choosing and evaluating wearable technologies for use in empirical research. Our seven-step framework includes: (1) identifying signals of interest; (2) characterizing intended use cases; (3) identifying study-specific pragmatic needs; (4) selecting devices for evaluation; (5) establishing an assessment procedure; (6) performing qualitative and quantitative analyses on resulting data; and, if desired, (7) conducting power analyses to determine sample size needed to more rigorously compare performance across devices. We illustrate the application of the framework by comparing electrodermal, cardiovascular, and accelerometry data from a variety of commercial wireless sensors (Affectiva Q, Empatica E3, Empatica E4, Actiwave Cardio, Shimmer) relative to a well-validated, wired Mindware laboratory system. Our evaluations are performed in two studies (N=10, N=11) involving psychometrically sound, standardized tasks that include physical activity and affect induction. After applying our framework to this data, we conclude that only some commercially available consumer devices for physiological measurement are capable of wirelessly measuring peripheral physiological and physical activity data of sufficient quality for scientific use cases. Thus, the framework appears to be beneficial at suggesting steps for conducting more systematic, transparent, and rigorous evaluations of mobile physiological devices prior to deployment in studies.


2021 ◽  
Vol 10 (4) ◽  
pp. 880
Author(s):  
Fery AM Mendrofa ◽  
Umi Hani ◽  
Yuni Nurhidayat

A pandemic of a novel coronavirus-infected disease is currently ongoing in the world. Most patients have to be isolated due to the treatments. This study aimed to make sense of how patients with coronavirus-infected disease understand and experience infectious isolation. The research used a qualitative design with a phenomenological approach. Data collection was conducted with in-depth interviews of nine patients with coronavirus disease-2019 (COVID-19) confirmed who had been in the isolation room. The analysis was conducted on interview transcripts by organizing keywords found into categories, sub-themes, and themes based on Colaizzi's approach. The results indicated that the participants experienced fright due to the isolation and attempted to integrate their isolation experiences. Isolation highlighted a sense of threat posed by cross-infection, a threat that participants experienced as originating from others and from themselves to others. Participants described feeling changes experienced after several days of treatment. Participants reported various symptoms of the disease and received careful care while in isolation. They still communicate with family. Isolated patients are able to deal with the treatment by improving their coping strategies. Participants reported the most support from their families, even from a distance. Future research could explore experiences of isolation from family and staff perspectives and identify the psychological aspect in caring for the COVID-19 patients.


10.2196/18491 ◽  
2020 ◽  
Vol 8 (9) ◽  
pp. e18491
Author(s):  
Tracy E Crane ◽  
Meghan B Skiba ◽  
Austin Miller ◽  
David O Garcia ◽  
Cynthia A Thomson

Background The collection of self-reported physical activity using validated questionnaires has known bias and measurement error. Objective Accelerometry, an objective measure of daily activity, increases the rigor and accuracy of physical activity measurements. Here, we describe the methodology and related protocols for accelerometry data collection and quality assurance using the Actigraph GT9X accelerometer data collection in a convenience sample of ovarian cancer survivors enrolled in GOG/NRG 0225, a 24-month randomized controlled trial of diet and physical activity intervention versus attention control. Methods From July 2015 to December 2019, accelerometers were mailed on 1337 separate occasions to 580 study participants to wear at 4 time points (baseline, 6, 12, and 24 months) for 7 consecutive days. Study staff contacted participants via telephone to confirm their availability to wear the accelerometers and reviewed instructions and procedures regarding the return of the accelerometers and assisted with any technology concerns. Results We evaluated factors associated with wear compliance, including activity tracking, use of a mobile app, and demographic characteristics with chi-square tests and logistic regression. Compliant data, defined as ≥4 consecutive days with ≥10 hours daily wear time, exceeded 90% at all study time points. Activity tracking, but no other characteristics, was significantly associated with compliant data at all time points (P<.001). This implementation of data collection through accelerometry provided highly compliant and usable activity data in women who recently completed treatment for ovarian cancer. Conclusions The high compliance and data quality associated with this protocol suggest that it could be disseminated to support researchers who seek to collect robust objective activity data in cancer survivors residing in a wide geographic area.


Sign in / Sign up

Export Citation Format

Share Document