An exploration of the relationship between families of deceased organ donors and transplant recipients: A systematic review and qualitative synthesis

Following deceased organ donation and transplantation, the narratives of families of donors and organ recipients become connected. This is acknowledged when parties receive anonymous information from donation agencies and transplant centres, when they exchange correspondence or when they meet in person. This article reviews literature describing the experience from the points of view of donor families, recipients, and other stakeholders to explore the dynamic system that evolves around this relationship. Findings highlight a link between identity development and ongoing adjustment and will assist those supporting donor families and recipients to make decisions that fit meaningfully.

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Impact of Donation Physicians on Deceased Organ Donation: A Systematic Review

10.21203/rs.3.rs-200397/v1 ◽

2021 ◽

Author(s):

Janet E. Squires ◽

Laura D. Aloisio ◽

Wilmer John Santos ◽

Danielle Cho-Young ◽

Monica Taljaard ◽

...

Keyword(s):

Systematic Review ◽

Organ Donation ◽

Interrupted Time Series ◽

Deceased Donor ◽

Organ Donors ◽

Consent Rate ◽

Team Members ◽

Study Selection ◽

Before And After ◽

Deceased Organ Donation

Abstract Background: An emerging strategy to increase deceased organ donation is to use dedicated donation physicians to champion organ donation. We sought to conduct a systematic review of the effectiveness of donation physicians in improving organ donation outcomes.Methods: A systematic review was conducted following Cochrane principles. MEDLINE, Embase, and CINHAL databases were searched from inception to March 26, 2020. Quantitative studies examining the effects of donation physicians on all deceased organ donation outcomes were considered for inclusion. Review articles, editorials and opinion articles, and case studies were excluded. Study selection was completed independently by two team members; all discrepancies were resolved by consensus. Two team members independently extracted data from studies. Results: A total of 1,017 studies were screened, and 12 met inclusion criteria. Included studies were published between 1994 and 2019. Half used an interrupted time series design (n = 6; 50%), three (25%) were cohort studies, and three (25%) used a before-and-after study design. Outcomes (reported in greater than 50% of included articles) included consent/refusal rate (n = 8; 67%), number of potential donors (n = 7; 58%), and number of actual donors (n = 7; 58%). Across studies and design types, there was an increase in potential organ donors ranging from 8 to 143% (Mdn = 33%), an increase in actual organ donors from 15 to 113% (Mdn = 27%), an increase in donor consent rate from -3 to 258% (Mdn = 12%) and an increase in deceased donor transplants from 13 to 24% (Mdn = 19%) following the introduction of donation physicians.Conclusions: Donation physicians have the potential to significantly improve deceased organ donation. Further implementation and evaluation of donation physician programs is warranted. However, implementation should be undertaken with a clear plan for a methodologically rigorous evaluation of outcomes.

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Impact of Donation Physicians on Deceased Organ Donation: A Systematic Review

10.21203/rs.3.rs-125416/v1 ◽

2020 ◽

Author(s):

Janet Squires ◽

Laura D Aloisio ◽

Wilmer John Santos ◽

Danielle Cho-Young ◽

Monica Taljaard ◽

...

Keyword(s):

Systematic Review ◽

Organ Donation ◽

Data Extraction ◽

Interrupted Time Series ◽

Deceased Donor ◽

Organ Donors ◽

Consent Rate ◽

Team Members ◽

Study Selection ◽

Deceased Organ Donation

Abstract Background: An emerging strategy to increase deceased organ donation is to use dedicated donation physicians to champion organ donation. We sought to conduct a systematic review of the effectiveness of donation physicians in improving organ donation outcomes.Data Sources: A systematic review was conducted following Cochrane principles. MEDLINE, Embase, and CINHAL databases were searched from inception to March 26, 2020. Study Selection: Quantitative studies examining the effects of donation physicians on all deceased organ donation outcomes were considered for inclusion. Review articles, editorials and opinion articles, and case studies were excluded. Study selection was completed independently by two team members; all discrepancies were resolved by consensus.Data Extraction: Two team members independently extracted data from studies. Data Synthesis: A total of 1,017 studies were screened, and 12 met inclusion criteria. Included studies were published between 1994 and 2019. Half used an interrupted time series design (n = 6; 50%), three (25%) were cohort studies, and three (25%) used a before-and-after study design. Outcomes (reported in greater than 50% of included articles) included consent/refusal rate (n = 8; 67%), number of potential donors (n = 7; 58%), and number of actual donors (n = 7; 58%). Across studies and design types, there was an increase in potential organ donors ranging from 8 to 143% (Mdn = 33%), an increase in actual organ donors from 15 to 113% (Mdn = 27%), an increase in donor consent rate from -3 to 258% (Mdn = 12%) and an increase in deceased donor transplants from 13 to 24% (Mdn = 19%) following the introduction of donation physicians.Conclusions: Donation physicians have the potential to significantly improve deceased organ donation. Further implementation and evaluation of donation physician programs is warranted. However, implementation should be undertaken with a clear plan for a methodologically rigorous evaluation of outcomes.

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Well-Being and Social Media: A Systematic Review of Bergen Addiction Scales

Future Internet ◽

10.3390/fi12020024 ◽

2020 ◽

Vol 12 (2) ◽

pp. 24 ◽

Cited By ~ 10

Author(s):

Mirko Duradoni ◽

Federico Innocenti ◽

Andrea Guazzini

Keyword(s):

Systematic Review ◽

Social Media ◽

Information And Communication Technologies ◽

Communication Technologies ◽

Well Being ◽

Qualitative Synthesis ◽

Social Media Addiction ◽

Information And Communication ◽

The Relationship ◽

Academic Search

Does social media addiction impair the well-being of non-clinical individuals? Despite the Internet being able to be considered as a promoting factor for individual empowerment, previous literature suggests that the current massive availability of Information and Communication Technologies (ICT) may be dangerous for users’ well-being. This article discusses the relationship between the most used social media addiction measures (i.e., the Bergen Facebook Addiction Scale—BFAS, the Bergen Social Media Addiction Scale—BSMAS) and well-being. A systematic review considering all the publications indexed by PsycInfo, PsycArticles, PubMed, Science Direct, Sociological Abstracts, Academic Search Complete, and Google Scholar databases was performed to collect the data. Ten of 635 studies were included in the qualitative synthesis. Overall, most of the included works captured a negative but small relationship between BFAS/BSMAS and well-being, across multiple definitions and measurement.

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Awareness regarding body and organ donation amongst the population of an urban city in India

Journal of Health and Allied Sciences NU ◽

10.1055/s-0040-1703935 ◽

2015 ◽

Vol 05 (04) ◽

pp. 051-057 ◽

Cited By ~ 1

Author(s):

Vaishaly K. Bharambe ◽

Rathod H. ◽

Paranjape V. M. ◽

Kanaskar N. ◽

Shevade S. ◽

...

Keyword(s):

Organ Donation ◽

Health Care Professionals ◽

The Body ◽

Organ Donors ◽

Urban City ◽

The People ◽

Deceased Organ Donation ◽

Knowledge And Attitude ◽

End Stage ◽

Body Donation

Abstract Purpose : Bodies for purpose of dissection and organs for transplantation surgeries are needed for education of medical students and treatment of cases of end-stage organ failure. However deceased organ donation rate in India is very dismal. In the present study the authors assess the knowledge and attitude of the people living in an urban city in India towards organ and body donation. Materials/Methods : A questionnaire was distributed amongst all willing patients and their relatives attending the out-patient Department at our Hospital. This was followed by an awareness session wherein the researchers discussed body and organ donation and its need in India. Information sheet was handed to all and the willing respondents were given eye and body donation forms, and donor cards. Result: 41/65 people consented to participate. 41.5%, 31.7%, 12.2% and 12.2% had obtained knowledge regarding organ donation from newspaper, television, family members and internet respectively. 26.8% claimed that they were imparted knowledge by health care professionals. 78%, 53.7% and 19.5% were aware about eye, kidney and liver donations respectively. 17.1% were aware of body and lung donation each. Awareness of donation of other organs was found to be in the range between 4.9% to 14.6%. 43.9% were willing to be organ donors and 3 persons filled the body donation forms. Conclusion: Newspapers, healthcare professionals could be utilized to further the awareness regarding body and organ donation. Carrying out awareness programmes will help to reach information to each individual, clarifying any myths and increasing understanding and motivation levels among

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P098: Solid organ donation from the emergency department - a systematic review

CJEM ◽

10.1017/cem.2018.296 ◽

2018 ◽

Vol 20 (S1) ◽

pp. S91-S91

Author(s):

J. McCallum ◽

B. Ellis ◽

I. G. Stiell

Keyword(s):

Systematic Review ◽

Emergency Department ◽

Organ Donation ◽

Cardiopulmonary Arrest ◽

Meta Analysis ◽

Organ Transplant ◽

Donation After Cardiac Death ◽

Solid Organ ◽

Organ Donors ◽

Human Adults

Introduction: There is a significant gap between the number of organ donors and people awaiting an organ transplant; therefore it is essential that all potential donors are identified. Given the nature of Emergency Medicine it is a potential source of organ donors. The purpose of this study is to determine what percent of successful donors come from the Emergency Department (ED) and whether there are any missed potential donors. Methods: Electronic searches of EMBASE, MEDLINE, and CINAHL were performed July 7, 2017 using PRISMA guidelines. Primary literature in human adults were included if they described identification of patients in the ED who went on to become successful solid organ donors, or described missed potential donors in the ED. Data on the total population of actual or missed donors was required to allow calculation of a percentage. Studies describing non-solid organ donation, consent, ethics, survey of attitudes, teaching curricula, procurement techniques, donation outside the ED, and recipient factors were excluded. 2 authors independently screened articles for inclusion and discrepancies were resolved through consensus. Quality was assessed using STROBE for observational studies. Heterogeneity of patient populations precluded pooling of the data to conduct a meta-analysis. Results: 1058 articles were identified, 17 duplicates were removed, 800 articles were excluded based on title and abstract, and 217 full text articles were excluded, yielding 24 articles for the systematic review. For neurologic determination of death (NDD), ED patients comprised 4 44% of successful donors. ED death reviews revealed 0 84% of patients dying in the ED are missed as potential donors and hospital-wide death reviews revealed 13 80.9% of missed donors die in the ED. For donation after cardiac death (DCD), 4 20% of successful donors came from the ED and studies investigating potential donors suggest 2 36% of patients dying the in the ED could be potential DCD donors. The most common population of successful DCD organ donors was in traumatic cardiopulmonary arrest (TCPA), with 3.6 8.9% of TCPA patients presenting to the ED becoming successful donors. Conclusion: Patients dying in the Emergency Department are a significant source of both successful organ donors and missed potential donors. Emergency physicians should be familiar with their local organ donation protocol to ensure potential organ donors are not missed.

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Effect of corticosteroid administration on neurologically deceased organ donors and transplant recipients: a systematic review and meta-analysis

BMJ Open ◽

10.1136/bmjopen-2016-014436 ◽

2017 ◽

Vol 7 (6) ◽

pp. e014436 ◽

Cited By ~ 8

Author(s):

Frédérick D'Aragon ◽

Emilie Belley-Cote ◽

Arnav Agarwal ◽

Anne-Julie Frenette ◽

Francois Lamontagne ◽

...

Keyword(s):

Systematic Review ◽

Meta Analysis ◽

Organ Donors ◽

Transplant Recipients ◽

Corticosteroid Administration

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Solid organ donation from the emergency department – A systematic review

CJEM ◽

10.1017/cem.2019.365 ◽

2019 ◽

Vol 21 (5) ◽

pp. 626-637 ◽

Cited By ~ 4

Author(s):

Jessica McCallum ◽

Brittany Ellis ◽

Sonny Dhanani ◽

Ian G. Stiell

Keyword(s):

Systematic Review ◽

Emergency Department ◽

Organ Donation ◽

Meta Analysis ◽

Healthcare Team ◽

Solid Organ ◽

Organ Donors ◽

Determination Of Death ◽

Eligibility Criteria

ABSTRACTObjectivesA significant gap exists between people awaiting an organ transplant and organ donors. The purpose of this study was to determine what percent of successful donors come from the emergency department (ED), whether there are any missed donors, and to identify factors associated with successful and missed donation.MethodsThis systematic review used electronic searches of EMBASE, MEDLINE, and CINAHL according to PRISMA guidelines on July 7, 2017. We included primary literature in adults describing successful and missed organ donation. Two authors independently screened articles, and discrepancies were resolved through consensus. Quality was assessed using the STROBE checklist.ResultsThis systematic review identified 1,058 articles, and 25 articles were included. For neurologic determination of death, ED patients comprised 4%–50% of successful donors and 3.6%–8.9% of successful donors for donation after circulatory determination of death. ED death reviews revealed up to 84% of missed neurologic determination of death, and 46.2% of missed circulatory determination of death donors who died in the ED are missed due to a failure to refer for consideration of organ donation. Clinical heterogeneity precluded pooling of the data to conduct a meta-analysis.ConclusionsThe ED is a source of actual and missed donors. Potential donors are often missed due to incorrect assumptions regarding eligibility criteria and failure of the healthcare team to refer for consideration of donation. ED healthcare professionals should be aware of organ donation referral protocols at their institution to ensure that no organ donors are missed.

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Chaplain “DOs and DON’Ts” on Organ Donation

Ethics & Medics ◽

10.5840/em201843711 ◽

2018 ◽

Vol 43 (7) ◽

pp. 1-2

Author(s):

Jozef Zalot ◽

Keyword(s):

Organ Donation ◽

Organ Procurement ◽

Family Members ◽

Organ Donor ◽

Organ Donors ◽

Vital Organ ◽

Course Of Action ◽

Donation Process ◽

Organ Procurement Organizations ◽

The Relationship

This guide was developed in collaboration with LifeCenter Organ Donor Network (Cincinnati, OH) to offer chaplains a framework for the best possible course of action when they provide spiritual care to family members of patients who are potential vital organ donors. Some organ procurement organizations (OPOs) may want to control the donation process. They are thus hesitant to invite in—let alone collaborate with—any “outsiders” who they believe might undermine the likelihood of procuring vital organs. So how should a chaplain respond when ministering to potential vital organ donors and their families? Should they speak with family members about donation? What should they say? Do OPOs want chaplains to speak with family members? Should there be limits to these conversations? This can be a touchy area, because vital organ donation necessarily entails the death of the patient. This makes the relationship between chaplains and OPOs sometimes strained.

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Adolescent classroom education on knowledge and attitudes about deceased organ donation: A systematic review

Pediatric Transplantation ◽

10.1111/petr.12045 ◽

2013 ◽

Vol 17 (2) ◽

pp. 119-128 ◽

Cited By ~ 25

Author(s):

Alvin Ho-Ting Li ◽

Amanda M. Rosenblum ◽

Immaculate F. Nevis ◽

Amit X. Garg

Keyword(s):

Systematic Review ◽

Organ Donation ◽

Knowledge And Attitudes ◽

Deceased Organ Donation ◽

Classroom Education

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Patient-centred and family-centred care of critically ill patients who are potential organ donors: a qualitative study protocol of family member perspectives

BMJ Open ◽

10.1136/bmjopen-2020-037527 ◽

2020 ◽

Vol 10 (6) ◽

pp. e037527

Author(s):

Katina Zheng ◽

Stephanie Sutherland ◽

Pierre Cardinal ◽

Maureen Meade ◽

Angele Landriault ◽

...

Keyword(s):

Data Collection ◽

Qualitative Study ◽

Organ Donation ◽

Critically Ill ◽

Critically Ill Patients ◽

Family Members ◽

Health Science ◽

Organ Donors ◽

Deceased Organ Donation ◽

Inductive Methods

IntroductionIn a patient-centred and family-centred approach to organ donation, compassion is paramount. Recent guidelines have called for more research, interventions and approaches aimed at improving and supporting the families of critically ill patients. The objective of this study is to help translate patient-centred and family-centred care into practice in deceased organ donation.Methods and analysisThis will be a national, qualitative study of family members of deceased organ donors in Canada. We will include family members who had been approached regarding an organ donation decision, including those who agreed and declined, at least 2 months and no later than 3 years after the patients’ death. Data collection and analysis is ongoing and will continue until September 2020 to include approximately 250 participants. Family members will be identified and recruited from provincial organ donation organisation databases. Four experienced qualitative researchers will conduct telephone interviews in English or French with audio-recording for subsequent transcription. The research team will develop a codebook iteratively through this process using inductive methods, thus generating themes directly from the dataset.Ethics and disseminationLocal research ethics boards (REB) at all participating sites across Canada have approved this protocol. The main REB involved is the Ottawa Health Science Network REB. Data collection began in August 2018. Publication of results is anticipated in 2021. Study findings will help improve healthcare provider competency in caring for potential organ donors and their families and improve organ donation consent rates. Findings will also help with the development of educational materials for a competency-based curriculum for critical care residents.

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