scholarly journals Do You Prefer Safety to Social Participation? Finnish Population-Based Preference Weights for the Adult Social Care Outcomes Toolkit (ASCOT) for Service Users

2021 ◽  
Vol 6 (2) ◽  
pp. 238146832110279
Author(s):  
Lien Nguyen ◽  
Hanna Jokimäki ◽  
Ismo Linnosmaa ◽  
Eirini-Christina Saloniki ◽  
Laurie Batchelder ◽  
...  
Keyword(s):  
Learning Effect ◽  
Online Survey ◽  
Social Care ◽  
Daily Life ◽  
Multinomial Logit Model ◽  
Analysis Data ◽  
Service Users ◽  
Second Best ◽  
Care Outcomes ◽  
Preference Weights

Introduction. The Adult Social Care Outcomes Toolkit (ASCOT) was developed in England to measure people’s social care–related quality of life (SCRQoL). Objectives. The aim of this article is to estimate preference weights for the Finnish ASCOT for service users (ASCOT). In addition, we tested for learning and fatigue effects in the choice experiment used to elicit the preference weights. Methods. The analysis data ( n = 1000 individuals) were obtained from an online survey sample of the Finnish adult general population using gender, age, and region as quotas. The questionnaire included a best-worst scaling (BWS) experiment using ASCOT. Each respondent sequentially selected four alternatives (best, worst; second-best, second-worst) for eight BWS tasks ( n = 32,000 choice observations). A scale multinomial logit model was used to estimate the preference parameters and to test for fatigue and learning. Results. The most and least preferred attribute-levels were “I have as much control over my daily life as I want” and “I have no control over my daily life.” The preference weights were not on a cardinal scale. The ordering effect was related to the second-best choices. Learning effect was in the last four tasks. Conclusions. This study has developed a set of preference weights for the ASCOT instrument in Finland, which can be used for investigating outcomes of social care interventions on adult populations. The learning effect calls for the development of study designs that reduce possible bias relating to preference uncertainty at the beginning of sequential BWS tasks. It also supports the adaptation of a modelling strategy in which the sequence of tasks is explicitly modelled as a scale factor.

scholarly journals Valuing informal carers’ quality of life using best-worst scaling—Finnish preference weights for the Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer)

2021 ◽  
Author(s):  
Lien Nguyen ◽  
Hanna Jokimäki ◽  
Ismo Linnosmaa ◽  
Eirini-Christina Saloniki ◽  
Laurie Batchelder ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Learning Effect ◽  
Social Care ◽  
Term Care ◽  
Second Best ◽  
Best Worst Scaling ◽  
Care Outcomes ◽  
Mnl Model ◽  
Preference Weights

AbstractThis study developed Finnish preference weights for the seven-attribute Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer) and investigated survey fatigue and learning in best-worst scaling (BWS) experiments. An online survey that included a BWS experiment using the ASCOT-Carer was completed by a sample from the general population in Finland. A block of eight BWS profiles describing different states from the ASCOT-Carer were randomly assigned to each respondent, who consecutively made four choices (best, worst, second best and second worst) per profile. The analysis panel data had 32,160 choices made by 1005 respondents. A scale multinomial logit (S-MNL) model was used to estimate preference weights for 28 ASCOT-Carer attribute levels. Fatigue and learning effects were examined as scale heterogeneity. Several specifications of the generalised MNL model were employed to ensure the stability of the preference estimates. The most and least-valued states were the top and bottom levels of the control over daily life attribute. The preference weights were not on a cardinal scale. We observed the position effect of the attributes on preferences associated with the best or second-best choices. A learning effect was found. The established preference weights can be used in evaluations of the effects of long-term care services and interventions on the quality of life of service users and caregivers. The learning effect implies a need to develop study designs that ensure equal consideration to all profiles (choice tasks) in a sequential choice experiment.

scholarly journals Population-based preference weights for the Adult Social Care Outcomes Toolkit (ASCOT) for service users for Austria: Findings from a best-worst experiment

2020 ◽  
Vol 250 ◽  
pp. 112792
Author(s):  
Assma Hajji ◽  
Birgit Trukeschitz ◽  
Juliette Malley ◽  
Laurie Batchelder ◽  
Eirini Saloniki ◽  
...  
Keyword(s):  
Social Care ◽  
Population Based ◽  
Service Users ◽  
Care Outcomes ◽  
Preference Weights

scholarly journals What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria

2021 ◽  
Author(s):  
Birgit Trukeschitz ◽  
Assma Hajji ◽  
Laurie Batchelder ◽  
Eirini Saloniki ◽  
Ismo Linnosmaa ◽  
...  
Keyword(s):  
Online Survey ◽  
Social Care ◽  
Population Based ◽  
German Version ◽  
Term Care ◽  
Loved One ◽  
Care Outcomes ◽  
The Difference ◽  
Informal Carers ◽  
Preference Weights

Abstract Purpose The Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) can be used to assess long-term care-related quality of life (LTC-QoL) of adult informal carers of persons using LTC services. The ASCOT-Carer instrument has been translated into several languages, but preference weights reflecting the relative importance of different outcome states are only available for England so far. In this paper, we estimated preference weights for the German version of the ASCOT-Carer for Austria and investigated the value people place on different QoL-outcome states. Methods We used data from a best–worst scaling (BWS) experiment and estimated a scale-adjusted multinomial logit (S-MNL) model to elicit preference weights for the ASCOT-Carer domain-levels. Data were collected using an online survey of the Austrian general population (n = 1001). Results Top levels in the domains of ‘Space and time to be yourself’, ‘Occupation’ and ‘Control over daily life’ were perceived as providing the highest utility, and states with high needs in the same domains seen as particularly undesirable. ‘Personal safety’ was the only domain where levels were roughly equidistant. In all other domains, the difference between the top two levels (‘ideal state’ and ‘no needs’) was very small. Conclusion The paper provides preference weights for the German version of ASCOT-Carer to be used in Austrian populations. Furthermore, the results give insight into which LTC-QoL-outcomes are seen as particularly (un)desirable, and may therefore help to better tailor services directed at informal carers and the persons they care for.

scholarly journals Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users

2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Hiromi Nakamura-Thomas ◽  
Mie Morikawa ◽  
Yoko Moriyama ◽  
Takeru Shiroiwa ◽  
Makoto Kyougoku ◽  
...  
Keyword(s):  
Social Service ◽  
Social Care ◽  
Cross Cultural ◽  
Service Users ◽  
Care Outcomes ◽  
Japanese Translation ◽  
Cultural Validation

scholarly journals Can individual budgets have an impact on carers and the caring role?

2012 ◽  
Vol 34 (1) ◽  
pp. 157-175 ◽  
Author(s):  
K. JONES ◽  
A. NETTEN ◽  
P. RABIEE ◽  
C. GLENDINNING ◽  
H. ARKSEY ◽  
...  
Keyword(s):  
Service User ◽  
Social Care ◽  
Cost Effective ◽  
Service Users ◽  
The Public ◽  
Department Of Health ◽  
Independent Evaluation ◽  
Care Outcomes ◽  
Set Up ◽  
The Impact

ABSTRACTThe introduction of cash-for-care schemes such as individual or personal budgets in England has been seen as central to the personalisation agenda for reforming the delivery of adult social care. However, despite there being 5.2 million carers in England and Wales, the initiative concentrates predominantly on the needs of the service user. The implementation of individual budgets (IBs) was piloted within 13 local authorities during 2005–2007 and the Department of Health commissioned an independent evaluation of this pilot (IBSEN). The focus was only on the service user in the evaluation and therefore a separate but linked study was set up to evaluate the impact and outcomes of IBs on carers. Carers of service users who had consented to take part in the main IBSEN study were identified and invited to participate in a follow-up study aimed at exploring how IBs impacted on carers and the caring role. The study found that the receipt of the budget was significantly associated with positive impacts on carers' reported quality of life and, when other factors were taken into account, with social care outcomes. These outcome gains were achieved despite no higher costs being incurred to the public purse, thus suggesting that IBs for service users are cost-effective for carers.

scholarly journals Cross-cultural adaptation and construct validity of the German version of the Adult Social Care Outcomes Toolkit for service users (German ASCOT)

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Birgit Trukeschitz ◽  
Judith Litschauer ◽  
Assma Hajji ◽  
Judith Kieninger ◽  
Adiam Schoch ◽  
...  
Keyword(s):  
Construct Validity ◽  
Cultural Adaptation ◽  
Service Provision ◽  
Service User ◽  
Social Care ◽  
Cross Cultural ◽  
Service Users ◽  
German Version ◽  
Cross Cultural Adaptation ◽  
Care Outcomes

Abstract Background There has been considerable interest in using the Adult Social Care Outcomes Toolkit (ASCOT), developed in England, to measure quality-of-life outcomes of long-term care (LTC-QoL) service provision in national and cross-national studies. Objectives The aim of this study was to translate and culturally adapt the original ASCOT service user measure into German and to evaluate its content and construct validity in Austrian home care service users. Methods The translation and cultural adaptation process followed the ISPOR TCA guidelines. We used qualitative data from six cognitive debriefing interviews with Austrian recipients of home care services to assess linguistic and content validity. In addition, cross-sectional survey data (n = 633) were used to evaluate construct validity by testing hypothesized associations established in a previous study for the original English ASCOT service user instrument. Results Cognitive debriefing interviews confirmed that the German adaptation of the ASCOT service user instrument was understood as intended, although two domains (‘Control over daily life’ and ‘Dignity’) and selected phrases of the response options were challenging to translate into German. All ASCOT domains were statistically significantly associated with related constructs and sensitive to service user sub-group differences. Conclusions We found good evidence for a valid cross-cultural adaptation of the German version of ASCOT for service users. The analysis also supports the construct validity of the translated instrument and its use in evaluations of QoL-effects of LTC service provision in German-speaking countries. Further research on the reliability and feasibility in different care settings is encouraged.

scholarly journals Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers

2019 ◽  
Vol 22 (12) ◽  
pp. 1427-1440 ◽  
Author(s):  
Laurie Batchelder ◽  
Juliette Malley ◽  
Peter Burge ◽  
Hui Lu ◽  
Eirini-Christina Saloniki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Life Outcomes ◽  
Quality Of Life Outcomes ◽  
Related Quality ◽  
Care Outcomes ◽  
Preference Weights

Appropriate Targets for Search Advertising as Part of Online Gatekeeping for Suicide Prevention

Crisis ◽  
2018 ◽  
Vol 39 (3) ◽  
pp. 197-204 ◽  
Author(s):  
Hajime Sueki ◽  
Jiro Ito
Keyword(s):  
Suicide Prevention ◽  
Daily Life ◽  
Web Pages ◽  
Service Users ◽  
Online Questionnaire ◽  
Consultation Service ◽  
Self Disclosure ◽  
Search Advertising ◽  
Consultation Services ◽  
Age Range

Abstract. Background: Gatekeeper training is an effective suicide prevention strategy. However, the appropriate targets of online gatekeeping have not yet been clarified. Aim: We examined the association between the outcomes of online gatekeeping using the Internet and the characteristics of consultation service users. Method: An advertisement to encourage the use of e-mail-based psychological consultation services among viewers was placed on web pages that showed the results of searches using suicide-related keywords. All e-mails received between October 2014 and December 2015 were replied to as part of gatekeeping, and the obtained data (responses to an online questionnaire and the content of the received e-mails) were analyzed. Results: A total of 154 consultation service users were analyzed, 35.7% of whom were male. The median age range was 20–29 years. Online gatekeeping was significantly more likely to be successful when such users faced financial/daily life or workplace problems, or revealed their names (including online names). By contrast, the activity was more likely to be unsuccessful when it was impossible to assess the problems faced by consultation service users. Conclusion: It may be possible to increase the success rate of online gatekeeping by targeting individuals facing financial/daily life or workplace problems with marked tendencies for self-disclosure.

scholarly journals Impact of dementia education and training on health and social care staff knowledge, attitudes and confidence: a cross-sectional study

BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e039939
Author(s):  
Sahdia Parveen ◽  
Sarah Jane Smith ◽  
Cara Sass ◽  
Jan R Oyebode ◽  
Andrea Capstick ◽  
...  
Keyword(s):  
Online Survey ◽  
Social Care ◽  
Education And Training ◽  
Care Staff ◽  
Cross Sectional ◽  
Health And Social Care ◽  
Training Content ◽  
The Impact ◽  
And Training ◽  
Dementia Education

ObjectivesThe aim of this study was to establish the impact of dementia education and training on the knowledge, attitudes and confidence of health and social care staff. The study also aimed to identify the most effective features (content and pedagogical) of dementia education and training.DesignCross-sectional survey study. Data collection occurred in 2017.SettingsHealth and social care staff in the UK including acute care, mental health community care trusts, primary care and care homes.ParticipantsAll health and social care staff who had completed dementia education and training meeting the minimal standards as set by Health Education England, within the past 5 years were invited to participate in an online survey. A total of 668 health and social care staff provided informed consent and completed an online survey, and responses from 553 participants were included in this study. The majority of the respondents were of white British ethnicity (94.4%) and identified as women (88.4%).OutcomesKnowledge, attitude and confidence of health and social care staff.ResultsHierarchical multiple regression analysis was conducted. Staff characteristics, education and training content variables and pedagogical factors were found to account for 29% of variance in staff confidence (F=4.13, p<0.001), 22% of variance in attitude (knowledge) (F=3.80, p<001), 18% of the variance in staff knowledge (F=2.77, p<0.01) and 14% of variance in staff comfort (attitude) (F=2.11, p<0.01).ConclusionThe results suggest that dementia education and training has limited impact on health and social care staff learning outcomes. While training content variables were important when attempting to improve staff knowledge, more consideration should be given to pedagogical factors when training is aiming to improve staff attitude and confidence.

PRO55 Impact of Cold Agglutinin Disease and Its Related Fatigue on Patients' Daily Life: An Online Survey Among 50 US Patients

2021 ◽  
Vol 24 ◽  
pp. S207
Author(s):  
F. Joly ◽  
L.A. Schmitt ◽  
P.A. McGee Watson ◽  
E. Pain ◽  
D. Testa
Keyword(s):  
Online Survey ◽  
Daily Life ◽  
Cold Agglutinin ◽  
Cold Agglutinin Disease
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