scholarly journals Valuing informal carers’ quality of life using best-worst scaling—Finnish preference weights for the Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer)

2021 ◽  
Author(s):  
Lien Nguyen ◽  
Hanna Jokimäki ◽  
Ismo Linnosmaa ◽  
Eirini-Christina Saloniki ◽  
Laurie Batchelder ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Learning Effect ◽  
Social Care ◽  
Term Care ◽  
Second Best ◽  
Best Worst Scaling ◽  
Care Outcomes ◽  
Mnl Model ◽  
Preference Weights

AbstractThis study developed Finnish preference weights for the seven-attribute Adult Social Care Outcomes Toolkit for carers (ASCOT-Carer) and investigated survey fatigue and learning in best-worst scaling (BWS) experiments. An online survey that included a BWS experiment using the ASCOT-Carer was completed by a sample from the general population in Finland. A block of eight BWS profiles describing different states from the ASCOT-Carer were randomly assigned to each respondent, who consecutively made four choices (best, worst, second best and second worst) per profile. The analysis panel data had 32,160 choices made by 1005 respondents. A scale multinomial logit (S-MNL) model was used to estimate preference weights for 28 ASCOT-Carer attribute levels. Fatigue and learning effects were examined as scale heterogeneity. Several specifications of the generalised MNL model were employed to ensure the stability of the preference estimates. The most and least-valued states were the top and bottom levels of the control over daily life attribute. The preference weights were not on a cardinal scale. We observed the position effect of the attributes on preferences associated with the best or second-best choices. A learning effect was found. The established preference weights can be used in evaluations of the effects of long-term care services and interventions on the quality of life of service users and caregivers. The learning effect implies a need to develop study designs that ensure equal consideration to all profiles (choice tasks) in a sequential choice experiment.

scholarly journals Do You Prefer Safety to Social Participation? Finnish Population-Based Preference Weights for the Adult Social Care Outcomes Toolkit (ASCOT) for Service Users

2021 ◽  
Vol 6 (2) ◽  
pp. 238146832110279
Author(s):  
Lien Nguyen ◽  
Hanna Jokimäki ◽  
Ismo Linnosmaa ◽  
Eirini-Christina Saloniki ◽  
Laurie Batchelder ◽  
...  
Keyword(s):  
Learning Effect ◽  
Online Survey ◽  
Social Care ◽  
Daily Life ◽  
Multinomial Logit Model ◽  
Analysis Data ◽  
Service Users ◽  
Second Best ◽  
Care Outcomes ◽  
Preference Weights

Introduction. The Adult Social Care Outcomes Toolkit (ASCOT) was developed in England to measure people’s social care–related quality of life (SCRQoL). Objectives. The aim of this article is to estimate preference weights for the Finnish ASCOT for service users (ASCOT). In addition, we tested for learning and fatigue effects in the choice experiment used to elicit the preference weights. Methods. The analysis data ( n = 1000 individuals) were obtained from an online survey sample of the Finnish adult general population using gender, age, and region as quotas. The questionnaire included a best-worst scaling (BWS) experiment using ASCOT. Each respondent sequentially selected four alternatives (best, worst; second-best, second-worst) for eight BWS tasks ( n = 32,000 choice observations). A scale multinomial logit model was used to estimate the preference parameters and to test for fatigue and learning. Results. The most and least preferred attribute-levels were “I have as much control over my daily life as I want” and “I have no control over my daily life.” The preference weights were not on a cardinal scale. The ordering effect was related to the second-best choices. Learning effect was in the last four tasks. Conclusions. This study has developed a set of preference weights for the ASCOT instrument in Finland, which can be used for investigating outcomes of social care interventions on adult populations. The learning effect calls for the development of study designs that reduce possible bias relating to preference uncertainty at the beginning of sequential BWS tasks. It also supports the adaptation of a modelling strategy in which the sequence of tasks is explicitly modelled as a scale factor.

scholarly journals Carer Social Care-Related Quality of Life Outcomes: Estimating English Preference Weights for the Adult Social Care Outcomes Toolkit for Carers

2019 ◽  
Vol 22 (12) ◽  
pp. 1427-1440 ◽  
Author(s):  
Laurie Batchelder ◽  
Juliette Malley ◽  
Peter Burge ◽  
Hui Lu ◽  
Eirini-Christina Saloniki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Life Outcomes ◽  
Quality Of Life Outcomes ◽  
Related Quality ◽  
Care Outcomes ◽  
Preference Weights

scholarly journals Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3 L

2019 ◽  
Vol 17 (1) ◽  
Author(s):  
Stacey Rand ◽  
Juliette Malley ◽  
Florin Vadean ◽  
Julien Forder
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Health Related Quality ◽  
Term Care ◽  
Carer Experience Scale ◽  
Related Quality ◽  
Health Related ◽  
Care Support

Abstract Background The ASCOT-Carer and Carer Experience Scale are instruments designed to capture aspects of quality of life ‘beyond health’ for family carers. The aim of this study was to compare and validate these two carer care-related measures, with a secondary aim to compare both instruments to the three-level EQ-5D (EQ-5D-3 L) measure of health-related quality of life. Methods An interview survey was conducted with 387 carers of adults who used long-term care (also known as social care) support in England. Construct validity by hypothesis testing was assessed using Pearson correlation coefficient. Exploratory factor analysis was also applied to investigate the dimensionality of the combined items from the ASCOT-Carer and CES (as measures of carer quality of life ‘beyond health’) and the EQ-5D (as a measure of health-related quality of life). Results In the construct validity analysis, hypothesised differences in correlations were observed with two exceptions. The exploratory factor analysis indicated that the ASCOT-Carer, CES and EQ-5D-3 L items loaded onto three separate factors. The first factor comprised the seven ASCOT-Carer items plus two CES items (activities outside caring, support from friends and family). The second factor comprised three of the six CES items (fulfilment from caring, control over caring and getting on with the person you care for). The third factor included four of the five EQ-5D-3 L items. Conclusion The findings indicate that the ASCOT-Carer, CES and EQ-5D-3 L capture separate constructs of social care-related quality of life (ASCOT-Carer) and carer experience (CES), which partially overlap in relation to activities outside caring and social support, and health-related quality of life (EQ-5D-3 L). The ASCOT-Carer and CES are both promising measures for the evaluation of social care support for carers that capture aspects of quality of life ‘beyond health’. The choice of whether to use the ASCOT-Carer or CES depends on the study objectives.

scholarly journals Burnout, Compassion Satisfaction, and Personality Among Nursing Assistants: Who is at Risk?

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 853-853
Author(s):  
Mallory Richert
Keyword(s):  
Quality Of Life ◽  
Compassion Satisfaction ◽  
The United States ◽  
Nursing Assistants ◽  
Term Care ◽  
Resident Care ◽  
Increased Risk ◽  
Quality Of Life Scale ◽  
Care Outcomes

Abstract Nursing assistants often experience high rates of turnover and burnout, which may lead to poor resident care outcomes and quality of life, as well as continued staff shortages and increased workload for nursing assistants. This study examined personality correlates of burnout and compassion satisfaction among 100 nursing assistants employed as nursing assistants in long-term care (LTC) and hospitals throughout the United States. Participants completed the Professional Quality of Life Scale 5 (ProQOL 5) and the Big Five Inventory – 2 Short (BFI-2-S). There was a significant positive correlation between compassion satisfaction and agreeableness, and extraversion, and between burnout and neuroticism. Additionally, there were significant negative correlations between compassion satisfaction and neuroticism, and between burnout and agreeableness, and extraversion. These results indicate which nursing assistants may be more likely to experience burnout and may be at an increased risk of turnover. Specific interventions may be developed for such individuals to increase compassion satisfaction, reduce burnout, and reduce staff turnover. Furthermore, information regarding personality types of individuals at greater or lesser risk for burnout may be helpful for LTC administrators in the recruitment and hiring of nursing assistants, and thus may reduce rates of turnover. Resident care outcomes may also improve as nursing assistant hiring efforts are focused more on individuals who are less likely to experience burnout. Future researchers might investigate potential risk and protective factors for burnout and compassion satisfaction in nursing assistants.

scholarly journals The impact of social care services on carers’ quality of life

2020 ◽  
Vol 4 (2) ◽  
pp. 235-259 ◽  
Author(s):  
Stacey Rand ◽  
Florin Vadean ◽  
Julien Forder
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Well Being ◽  
Care Recipient ◽  
Community Based ◽  
Term Care ◽  
Care Services ◽  
The Impact ◽  
Health And Well Being

Unpaid care is an important part of long-term care systems. It is increasingly recognised that carers have their own health and well-being needs. Carer-specific interventions, as well as support for the care-recipient, may enable carers to maintain their own health and well-being alongside caring. This study seeks to establish whether and how community-based care services affect carers’ quality of life. The Adult Social Care Outcomes Toolkit for Carers was used to capture carers’ social care-related quality of life through qualitative interviews and a survey of carers in England in order to provide insights into the impact of community-based care services on carers’ quality of life outcomes.

Evalueren van kwaliteit van leven bij thuiswonende ouderen

2021 ◽  
Keyword(s):  
Quality Of Life ◽  
Social Care ◽  
Kwaliteit Van Leven ◽  
Life Tool ◽  
Onderzoek Naar ◽  
Care Outcomes

De groeiende groep thuiswonende ouderen in Nederland vraagt om een goede ondersteuning door inzet van de juiste diensten, zoals huishoudelijke hulp of dagbesteding. Het bepalen van belangrijke uitkomsten is daarin cruciaal en hiervoor zijn brede uitkomsten in termen van kwaliteit van leven (KvL) relevant, waarbij gekeken wordt naar de invloed van diensten op iemands mogelijkheden of capabilities. In dit artikel worden de ontwikkeling en inhoud van de Adult Social Care Outcomes Toolkit (Nederlandstalige versie, ASCOT-NL) en de Extended Quality of Life Tool (EQLT) beschreven en de toepassingsmogelijkheden in de evaluatie van zorg belicht. Beide instrumenten beogen effecten van zorg op KvL van thuiswonende ouderen te meten op meerdere relevante domeinen. De ASCOT-NL kent acht domeinen; de EQLT bevat deze acht domeinen en voegt daar zes domeinen aan toe, hetgeen resulteert in totaal veertien domeinen. De domeinen van de ASCOT-NL zijn gebaseerd op de doelen van sociale ondersteuning en zorg; de aanvullende domeinen van de EQLT zijn gebaseerd op empirisch onderzoek naar KvL vanuit het perspectief van thuiswonende ouderen en de manier waarop zorg kan bijdragen aan KvL.

scholarly journals Measuring Carer Outcomes in an Economic Evaluation: A Content Comparison of the Adult Social Care Outcomes Toolkit for Carers, Carer Experience Scale, and Care-Related Quality of Life Using Exploratory Factor Analysis

2020 ◽  
Vol 40 (7) ◽  
pp. 885-896 ◽  
Author(s):  
Lidia Engel ◽  
Stacey Rand ◽  
Renske Hoefman ◽  
Jessica Bucholc ◽  
Cathrine Mihalopoulos ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Economic Evaluation ◽  
Exploratory Factor Analysis ◽  
Social Care ◽  
Spillover Effects ◽  
Carer Experience Scale ◽  
Related Quality ◽  
Care Outcomes

Background. To incorporate the spillover effects experienced by carers providing informal care in health policy decisions, new carer-related preference-based measures have been developed for use in economic evaluation, which include the Adult Social Care Outcomes Toolkit for Carers (ASCOT-Carer), Carer Experience Scale (CES), and Care-Related Quality of Life (CarerQoL). The aim of this study was to investigate the extent to which these 3 instruments measure complementary or overlapping constructs. Methods. Data were derived from an online survey undertaken with carers residing in Australia. An exploratory factor analysis was conducted to ascertain the underlying latent constructs of the 3 measures. Results. Data from 351 informal carers yielded a 5-factor model describing general quality of life outside caring, problems due to caring, fulfilment from caring, social support with caring, and relationship with the care recipient. Most of the ASCOT-Carer and the CarerQol items loaded onto the first and second factors, respectively. The greatest overlap was observed between CarerQol and CES items loading onto the other 3 shared common factors. Limitations. Online data collection resulted in inconsistent responses, which had to be removed to yield logical data. A convenience sampling approach may have compromised the generalizability of study findings. Conclusion. Although some overlap was observed, the 3 carer-related preference-based measures seem to tap into different constructs of carer-related quality of life and caring experiences and cannot be used interchangeably.

scholarly journals Systematic review of 29 self-report instruments for assessing quality of life in older adults receiving aged care services

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e050892
Author(s):  
Joyce Siette ◽  
Gilbert Thomas Knaggs ◽  
Yvonne Zurynski ◽  
Julie Ratcliffe ◽  
Laura Dodds ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Older Adults ◽  
Social Care ◽  
Aged Care ◽  
Care Quality ◽  
Cochrane Library ◽  
Term Care ◽  
Care Services

BackgroundQuality of life (QoL) outcomes are used to monitor quality of care for older adults accessing aged care services, yet it remains unclear which QoL instruments best meet older adults’, providers’ and policymakers’ needs. This review aimed to (1) identify QoL instruments used in aged care and describe them in terms of QoL domains measured and logistical details; (2) summarise in which aged care settings the instruments have been used and (3) discuss factors to consider in deciding on the suitability of QoL instruments for use in aged care services.DesignSystematic review.Data sourcesMEDLINE, EMBASE, PsycINFO, Cochrane Library and CINAHL from inception to 2021.Eligibility criteriaInstruments were included if they were designed for adults (>18 years), available in English, been applied in a peer-reviewed research study examining QoL outcomes in adults >65 years accessing aged care (including home/social care, residential/long-term care) and had reported psychometrics.Data extraction and synthesisTwo researchers independently reviewed the measures and extracted the data. Data synthesis was performed via narrative review of eligible instruments.Results292 articles reporting on 29 QoL instruments were included. Eight domains of QoL were addressed: physical health, mental health, emotional state, social connection, environment, autonomy and overall QoL. The period between 1990 and 2000 produced the greatest number of newly developed instruments. The EuroQoL-5 Dimensions (EQ-5D) and Short Form-series were used across multiple aged care contexts including home and residential care. More recent instruments (eg, ICEpop CAPability measure for Older people (ICECAP-O) and Adult Social Care Outcomes Toolkit (ASCOT)) tend to capture emotional sentiment towards personal circumstances and higher order care needs, in comparison with more established instruments (eg, EQ-5D) which are largely focused on health status.ConclusionsA comprehensive list of QoL instruments and their characteristics is provided to inform instrument choice for use in research or for care quality assurance in aged care settings, depending on needs and interests of users.

scholarly journals What’s important when caring for a loved one? Population-based preference weights for the Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) for Austria

2021 ◽  
Author(s):  
Birgit Trukeschitz ◽  
Assma Hajji ◽  
Laurie Batchelder ◽  
Eirini Saloniki ◽  
Ismo Linnosmaa ◽  
...  
Keyword(s):  
Online Survey ◽  
Social Care ◽  
Population Based ◽  
German Version ◽  
Term Care ◽  
Loved One ◽  
Care Outcomes ◽  
The Difference ◽  
Informal Carers ◽  
Preference Weights

Abstract Purpose The Adult Social Care Outcomes Toolkit for informal carers (ASCOT-Carer) can be used to assess long-term care-related quality of life (LTC-QoL) of adult informal carers of persons using LTC services. The ASCOT-Carer instrument has been translated into several languages, but preference weights reflecting the relative importance of different outcome states are only available for England so far. In this paper, we estimated preference weights for the German version of the ASCOT-Carer for Austria and investigated the value people place on different QoL-outcome states. Methods We used data from a best–worst scaling (BWS) experiment and estimated a scale-adjusted multinomial logit (S-MNL) model to elicit preference weights for the ASCOT-Carer domain-levels. Data were collected using an online survey of the Austrian general population (n = 1001). Results Top levels in the domains of ‘Space and time to be yourself’, ‘Occupation’ and ‘Control over daily life’ were perceived as providing the highest utility, and states with high needs in the same domains seen as particularly undesirable. ‘Personal safety’ was the only domain where levels were roughly equidistant. In all other domains, the difference between the top two levels (‘ideal state’ and ‘no needs’) was very small. Conclusion The paper provides preference weights for the German version of ASCOT-Carer to be used in Austrian populations. Furthermore, the results give insight into which LTC-QoL-outcomes are seen as particularly (un)desirable, and may therefore help to better tailor services directed at informal carers and the persons they care for.

scholarly journals Advancing Long-Term Care Science Through Using Common Data Elements: Candidate Measures for Care Outcomes of Personhood, Well-Being, and Quality of Life

2019 ◽  
Vol 5 ◽  
pp. 233372141984267 ◽  
Author(s):  
David Edvardsson ◽  
Rebecca Baxter ◽  
Laura Corneliusson ◽  
Ruth A. Anderson ◽  
Anna Beeber ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Organizational Context ◽  
Long Term Care ◽  
Well Being ◽  
Term Care ◽  
Common Data Elements ◽  
Care Outcomes ◽  
Data Elements

To support the development of internationally comparable common data elements (CDEs) that can be used to measure essential aspects of long-term care (LTC) across low-, middle-, and high-income countries, a group of researchers in medicine, nursing, behavioral, and social sciences from 21 different countries have joined forces and launched the Worldwide Elements to Harmonize Research in LTC Living Environments (WE-THRIVE) initiative. This initiative aims to develop a common data infrastructure for international use across the domains of organizational context, workforce and staffing, person-centered care, and care outcomes, as these are critical to LTC quality, experiences, and outcomes. This article reports measurement recommendations for the care outcomes domain, focusing on previously prioritized care outcomes concepts of well-being, quality of life (QoL), and personhood for residents in LTC. Through literature review and expert ranking, we recommend nine measures of well-being, QoL, and personhood, as a basis for developing CDEs for long-term care outcomes across countries. Data in LTC have often included deficit-oriented measures; while important, reductions do not necessarily mean that residents are concurrently experiencing well-being. Enhancing measurement efforts with the inclusion of these positive LTC outcomes across countries would facilitate international LTC research and align with global shifts toward healthy aging and person-centered LTC models.

Sign in / Sign up

Export Citation Format

Share Document