scholarly journals Knowledge, health beliefs and attitudes towards dementia and dementia risk reduction among descendants of people with dementia: a qualitative study using focus group discussions

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
J. Vrijsen ◽  
E. L. M. Maeckelberghe ◽  
R. Broekstra ◽  
J. J. de Vries ◽  
A. Abu-Hanna ◽  
...  
Keyword(s):  
Focus Group ◽  
Risk Reduction ◽  
Focus Group Discussions ◽  
Topic Guide ◽  
Group Discussions ◽  
People With Dementia ◽  
Dementia Risk ◽  
Increased Risk ◽  
To Receive ◽  
Beliefs And Attitudes

Abstract Background Individuals with a parental family history of dementia have an increased risk of developing dementia because they share their genes as well as their psychosocial behaviour. Due to this increased risk and their experience with dementia, they may be particularly eager to receive information regarding dementia risk reduction (DRR). This study evaluated the knowledge, beliefs and attitudes towards dementia and DRR among descendants of people with dementia. Method Using a semi-structured topic guide, three focus group discussions were conducted consisting of 12 female (80%) and 3 male (20%) descendants of people with dementia with a mean (± SD) age of 48.8 (± 12) years. Focus group discussions were audio recorded and transcribed. Each transcript was analysed thoroughly, and where appropriate, a code was generated and assigned by two researchers independently. Then, similar codes were grouped together and categorized into themes. Results The items in the topic guide could only be addressed after participants had been given the opportunity to share their experiences of having a parent with dementia. Participants were unaware or uncertain about the possibility of reducing the risk of developing dementia and therefore hesitant to assess their dementia risk without treatment options in sight. Moreover, participants indicated that their general practitioner only gave some information on heritability, not on DRR. Although participants identified a large number of modifiable risk factors as a group during the group discussions, they were eager to receive more information on dementia and DRR. In the end, participants adopted a more positive attitude towards a DRR programme and provided suggestions for the development of future DRR programmes. Conclusions Although the research aim was to evaluate the knowledge, beliefs and attitudes towards dementia and DRR, sharing experiences of having a parent with dementia seemed a prerequisite for considering participants’ own risk of developing dementia and participating in a DRR programme. Knowledge of dementia and DRR was limited. Due to unawareness of the possibility of reducing dementia risk, participants were hesitant about assessing their dementia risk. Group discussions positively changed the perception of dementia risk assessment and participants’ willingness to participate in a DRR programme.

Knowledge, Beliefs and Attitudes Towards Dementia and Dementia Risk Reduction Among Descendants of People with Dementia: A Qualitative Study Using Focus Group Discussions

2021 ◽  
Author(s):  
Joyce Vrijsen ◽  
Els Maeckelberghe ◽  
Reinder Broekstra ◽  
Jeroen de Vries ◽  
Ameen Abu-Hanna ◽  
...  
Keyword(s):  
Focus Group ◽  
Risk Reduction ◽  
Focus Group Discussions ◽  
Topic Guide ◽  
Group Discussions ◽  
People With Dementia ◽  
Dementia Risk ◽  
Increased Risk ◽  
To Receive ◽  
Beliefs And Attitudes

Abstract Background Individuals with a parental family history of dementia have an increased risk of developing dementia because they share their genes as well as their psychosocial behaviour. Due to this increased risk and their experience with dementia, they may be particularly eager to receive information regarding dementia risk reduction (DRR). This study evaluated the knowledge, beliefs and attitudes towards dementia and DRR among descendants of people with dementia.Method Using a semi-structured topic guide, three focus group discussions were conducted consisting of 12 female (80%) and 3 male (20%) descendants of people with dementia with a mean age of 48.8 ± 12.0 years. Focus group discussions were audio recorded and transcribed. Each transcript was analysed thoroughly, and where appropriate, a code was generated and assigned by two researchers independently. Then, similar codes were grouped together and categorized into themes.Results The items in the topic guide could only be addressed after participants had been given the opportunity to share their experiences of having a parent with dementia. Participants were unaware or uncertain about the possibility of reducing the risk of developing dementia and therefore hesitant to assess their dementia risk without treatment options in sight. Moreover, participants indicated that their general practitioner only gave some information on heritability, not on DRR. Although participants identified a large number of modifiable risk factors as a group during the group discussions, they were eager to receive more information on dementia and DRR. In the end, participants adopted a more positive attitude towards a DRR program and provided suggestions for the development of future DRR programs.Conclusions Although the research aim was to evaluate the knowledge, beliefs and attitudes towards dementia and DRR, sharing experiences of having a parent with dementia seemed a prerequisite for considering participants’ own risk of developing dementia and participating in a DRR program. Knowledge of dementia and DRR was limited. Due to unawareness of the possibility of reducing dementia risk, participants were hesitant about assessing their dementia risk. Group discussions positively changed the perception of dementia risk assessment and participants’ willingness to participate in a DRR program.

scholarly journals Sexual and reproductive health of Syrian refugee adolescent girls: a qualitative study using focus group discussions in an urban setting in Lebanon

2021 ◽  
Vol 18 (1) ◽  
Author(s):  
Rayan Korri ◽  
Sabine Hess ◽  
Guenter Froeschl ◽  
Olena Ivanova
Keyword(s):  
Focus Group ◽  
Reproductive Health ◽  
Sexual Harassment ◽  
Qualitative Study ◽  
Adolescent Girls ◽  
Sexual And Reproductive Health ◽  
Urban Setting ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
To Receive

Abstract Background The war in Syria caused the forced displacement of millions of Syrians to neighboring countries. Lebanon is the host country with the largest overall number of Syrian refugees per capita. Adolescent refugee girls experience a unique level of vulnerability during human emergencies and are at increased risk of suffering from poor sexual and reproductive health (SRH) outcomes. We conducted an exploratory qualitative study to learn about the SRH perceptions and experiences of refugee adolescent girls living in Bourj Hammoud, an urban setting in Lebanon. Methods We employed a qualitative design with eight focus group discussions (FGDs) conducted with 40 Syrian Arab and Syrian Kurdish adolescent girls between January and March 2020. Every FGD consisted of five participants aged 13 to 17 years. A semi-structured guide was used covering multiple themes: menstruation, puberty, SRH awareness, and sexual harassment. FGDs were transcribed and analyzed using thematic analysis. Findings The participants discussed adolescent girls’ health and named six elements of good health, such as healthy activities and self-protection. The majority of the FGD participants reported a lack of awareness about menstruation when they experienced it for the first time and the social stigma associated with menstruation. When defining puberty, they indicated its social link to a girl’s readiness for marriage and her need to become cautious about sexual harassment. Most FGD participants had very poor knowledge of the female reproductive system. Mothers were the most approached persons to receive information on SRH issues; however, the girls indicated a wish to receive advice from specialists in a comfortable and private atmosphere. All the girls reported that either they themselves, or an acquaintance, had experienced some type of sexual harassment. The girls rarely reported those incidents due to fear of being blamed or subjected to mobility restrictions, or forced to drop out of school. Conclusions The findings show the refugee girls need for satisfactory knowledge on SRH issues and interventions to prevent sexual and gender-based violence that take into consideration the complexity of urban settings.

scholarly journals A proposed method to determine fumonisin exposure from maize consumption in a rural South African population using a culturally appropriate FFQ

2012 ◽  
Vol 17 (1) ◽  
pp. 131-138 ◽  
Author(s):  
Martani Lombard ◽  
Nelia Steyn ◽  
Hester-Mari Burger ◽  
Karen Charlton ◽  
Wentzel Gelderblom
Keyword(s):  
Focus Group ◽  
Oesophageal Cancer ◽  
Dietary Assessment ◽  
Assessment Method ◽  
Food Groups ◽  
Snowball Sampling ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Food Items ◽  
Increased Risk

AbstractObjectiveTo develop an FFQ for estimating culture-specific maize intake that can distinguish between home-grown and commercial maize. Home-grown maize is more likely to be contaminated with fumonisins, mycotoxins that are associated with increased risk of oesophageal cancer.DesignAn existing FFQ developed for use in urban Xhosa populations was used as the initial framework for the maize-specific FFQ (M-FFQ). The existing questionnaire contained 126 food items divided into ten food groups (bread, cereals, vegetables, fruit, meat, dairy, snacks, condiments, beverages and fat). The M-FFQ was developed based on additional data obtained from a literature search, 24 h recalls (n159), in-depth interviews (n4), focus group discussions (n56) and expert consultation. Food items available in local shops (n3) were compared with information obtained from focus group discussions.SettingFive villages in two rural isiXhosa-speaking areas of the Eastern Cape Province, known to have a high incidence of oesophageal cancer, were randomly selected.SubjectsWomen aged 18–55 years were recruited by snowball sampling and invited to participate.ResultsThe final M-FFQ comprised twenty-one maize-based food items, including traditional Xhosa dishes and beverages. The questionnaire focused on maize-specific dishes and distinguished between home-grown maize and commercial maize consumption.ConclusionsA culturally specific dietary assessment method was designed to determine maize consumption and therefore fumonisin exposure. The questionnaire will be tested against 24 h recalls and other methods to determine its validity, after which it will be used in various epidemiological studies to determine fumonisin exposure.

scholarly journals Community perceptions about dementia in southwestern Uganda

2020 ◽  
Author(s):  
Judith Owokuhaisa ◽  
Godfrey Zari Rukundo ◽  
Edith Wakida ◽  
Celestino Obua ◽  
Stephanie S. Buss
Keyword(s):  
Content Analysis ◽  
Focus Group ◽  
Older Age ◽  
Health Concern ◽  
Community Perceptions ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Social And Emotional ◽  
People With Dementia ◽  
Southwestern Uganda

Abstract Background With the increasing number of people surviving into older age in Africa, dementia is becoming a public health concern. Understanding the social dynamics of dementia in resource-limited settings is critical for developing effective interventions. We explored community perceptions about people with dementia in southwestern Uganda. Methods Fifty-nine individuals (aged 19-85 years, 56% female) participated in seven focus group discussions. In addition, 22 individual in-depth interviews were conducted among individuals (aged 22-84 years, 36% female). Both interviews and focus group discussions were audio recorded, transcribed verbatim, and evaluated using a quantitative content analysis approach. Results Five themes were generated during content analysis: i) Labeling of the illness, ii) Presentation of the person with dementia, iii) Causation, iv) Impact of the disease on people with dementia and their caregivers and v) Views on how to address unmet needs in dementia care. Dementia was commonly referred to as “ okuhuga ” or “okwebwayebwa” (also, oruhuzyo/ empugye / akahuriko) which translates as “mental disorientation”. The participants reported that most people with dementia presented with forgetfulness, defecating and urinating on themselves, wandering away from home, going out naked, and picking up garbage. Some participants perceived memory problems as a normal part of the aging process, while others attributed the cause of dementia to syphilis, cancer, allergy, old age, satanic powers, witchcraft, poor nutrition, or life stress. Participants reported multiple sources of stress for caregivers of people with dementia, including financial, social, and emotional burdens. Finally, participants suggested that community and governmental organizations should be involved in meeting the needs of people with dementia and their caregivers. Conclusions Community members in southwestern Uganda largely identified dementia as a problem that comes with older age, and can identify key features of dementia presentation. Participants identified significant stressors affecting people with dementia and their caregivers, and reported that families and caregivers would benefit from education on the management of symptoms of dementia, and assistance in overcoming associated financial, social, and emotional burdens related to caretaking.

scholarly journals Community perceptions about dementia in southwestern Uganda

2020 ◽  
Author(s):  
Judith Owokuhaisa ◽  
Godfrey Zari Rukundo ◽  
Edith Wakida ◽  
Celestino Obua ◽  
Stephanie S. Buss
Keyword(s):  
Content Analysis ◽  
Focus Group ◽  
Older Age ◽  
Health Concern ◽  
Community Perceptions ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Social And Emotional ◽  
People With Dementia ◽  
Southwestern Uganda

Abstract Background: With the increasing number of people surviving into older age in Africa, dementia is becoming a public health concern. Understanding the social dynamics of dementia in resource-limited settings is critical for developing effective interventions. We explored community perceptions about people with dementia in southwestern Uganda.Methods: Fifty-nine individuals (aged 19-85 years, 56% female) participated in seven focus group discussions. In addition, 22 individual in-depth interviews were conducted among individuals (aged 22-84 years, 36% female). Both interviews and focus group discussions were audio recorded, transcribed verbatim, and evaluated using a quantitative content analysis approach.Results: Five themes were generated during content analysis: i) Labeling of the illness, ii) Presentation of the person with dementia, iii) Causation, iv) Impact of the disease on people with dementia and their caregivers and v) Views on how to address unmet needs in dementia care. Dementia was commonly referred to as “okuhuga” or “okwebwayebwa” (also, oruhuzyo/ empugye / akahuriko) which translates as “mental disorientation”. The participants reported that most people with dementia presented with forgetfulness, defecating and urinating on themselves, wandering away from home, going out naked, and picking up garbage. Some participants perceived memory problems as a normal part of the aging process, while others attributed the cause of dementia to syphilis, cancer, allergy, old age, satanic powers, witchcraft, poor nutrition, or life stress. Participants reported multiple sources of stress for caregivers of people with dementia, including financial, social, and emotional burdens. Finally, participants suggested that community and governmental organizations should be involved in meeting the needs of people with dementia and their caregivers.Conclusions: Community members in southwestern Uganda largely identified dementia as a problem that comes with older age, and can identify key features of dementia presentation. Participants identified significant stressors affecting people with dementia and their caregivers, and reported that families and caregivers would benefit from education on the management of symptoms of dementia, and assistance in overcoming associated financial, social, and emotional burdens related to caretaking.

Identification and Evaluation of Ecosystem-based Approaches for Flood Risk Reduction in the Transboundary Lower Mono River Catchment in Benin and Togo

2021 ◽  
Author(s):  
Lorina Schudel ◽  
Yvonne Walz ◽  
Kokouvi Gbétey Akpamou
Keyword(s):  
Focus Group ◽  
Risk Reduction ◽  
River Basin ◽  
Flood Risk ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Qualitative And Quantitative ◽  
Trade Offs ◽  
Suitability Maps ◽  
Flood Risk Reduction

<p>Floods in West Africa repeatedly cause devastating impacts on human life and livelihoods, infrastructure and the environment and they are expected to increase in frequency and severity under a changing climate. Ecosystem-based approaches can be a cost-effective, efficient way to reduce flood risk while at the same time providing co-benefits. However, qualitative and quantitative assessments of ecosystem-based approaches that are suitable for the climatic conditions and socio-ecological system of the region are scarse. This study therefore identifies and evaluates climate-sensitive ecosystem-based approaches for the transboundary Lower Mono River Basin in Benin and Togo. The identification of ecosystem-based approaches has been done based on a review of scientific literature and complemented by a participatory approach with experts from the catchment. During focus group discussions, national stakeholders and policy makers identified, prioritized and mapped existing measures and provided their perspectives on prospective measures to reduce flood risk in the transboundary catchment. They include measures to reduce flow velocity, increase soil infiltration and improve water management. In a next step, we used a multi-criteria analysis considering ecological, climatic and flood hazard data to create suitability maps for different clusters of identified ecosystem-based approaches. This study is part of the CLIMAFRI project, which aims at creating a river basin information system for the Lower Mono Basin as well as creating a flood risk management plan. Through the integration of the suitability maps into the flood risk assessment tool, which has been created in the scope of this project, the ecosystem-based approaches are evaluated quantitatively. In a second round of focus group discussions with representatives from the local communities, feasibility of selected ecosystem-based approaches, co-benefits and trade-offs of the measures are discussed. Through the combination of qualitative and quantitative data, a holistic evaluation of ecosystem-based approaches and their contribution to hazard mitigation, increase of coping capacity, ecosystem resilience and overall flood risk reduction can be achieved.</p>

scholarly journals Knowledge, beliefs and attitudes of community health workers about hypertension in the Cape Peninsula, South Africa

Curationis ◽  
2004 ◽  
Vol 27 (1) ◽  
Author(s):  
M.J. Sengwana ◽  
T. Puoane
Keyword(s):  
Risk Factors ◽  
South Africa ◽  
Health Promotion ◽  
Focus Group ◽  
Community Health ◽  
Health Workers ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Cape Peninsula ◽  
Beliefs And Attitudes

This article explores the perceptions and attitudes of community health workers (CHWs) about hypertension. The level of knowledge of hypertension, as well as their personal attitude towards this is crucial in the style and quality of their interventions. CHWs, whose role in health promotion is being increasingly recognised, can help contain or reduce the prevalence of hypertension by influencing the community to adopt healthy lifestyles. Forty-three CHWs employed by Zanempilo in two study areas, Sites B and C in Khayelitsha in the Cape Peninsula, South Africa, were included in the study. Firstly, focus group discussions were conducted with 17 purposively selected CHWs to explore attitudes, beliefs and perceptions of hypertension. Secondly, interviews were conducted to assess their basic knowledge about causes, prevention and control of hypertension. The focus group discussions revealed that CHWs were uncertain about the causes of hypertension. They also found it difficult to grasp the fact that people without risk factors, such as overweight or a family history of hypertension, could be hypertensive. Many CHWs believe in traditional medicines and home-brewed beer as the best treatment for hypertension. They believe that people who take medical treatment become sicker and that their health deteriorates rapidly. Risk factors of hypertension mentioned during the structured interviews include inheritance, lack of physical activity, consuming lots of salty and fatty food. Conclusions drawn from the findings of the CHWs’ responses highlighted their insufficient knowledge about hypertension as a chronic disease of lifestyle. Meanwhile they are expected to play a role in stimulating community residents’ interest in the broad principle of preventive health maintenance and follow-up. Data obtained from this research can be used for the planning of health-promotion programmes. These should include preventing hypertension and improving primary management of individual sufferers. Because of their working relations and close link with CHWs, community nurses in primary health-care facilities need to recognise these beliefs and attitudes since these may differ from their own.

scholarly journals Community perceptions about dementia in southwestern Uganda

2020 ◽  
Author(s):  
Judith Owokuhaisa ◽  
Godfrey Zari Rukundo ◽  
Edith Wakida ◽  
Celestino Obua ◽  
Stephanie S. Buss
Keyword(s):  
Content Analysis ◽  
Focus Group ◽  
Older Age ◽  
Health Concern ◽  
Community Perceptions ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Social And Emotional ◽  
People With Dementia ◽  
Southwestern Uganda

Abstract Background With the increasing number of people surviving into older age in Africa, dementia is becoming a public health concern. Understanding the social dynamics of dementia in resource-limited settings is critical for developing effective interventions. We explored community perceptions about people with dementia in southwestern Uganda. Methods Fifty-nine individuals (aged 19-85 years, 56% female) participated in seven focus group discussions. In addition, 22 individual in-depth interviews were conducted among individuals (aged 22-84 years, 36% female). Both interviews and focus group discussions were audio recorded, transcribed verbatim, and evaluated using a quantitative content analysis approach. Results Five themes were generated during content analysis: i) Labeling of the illness, ii) Presentation of the person with dementia, iii) Causation, iv) Impact of the disease on people with dementia and their caregivers and v) Views on how to address unmet needs in dementia care. Dementia was commonly referred to as “ okuhuga ” or “okwebwayebwa” (also, oruhuzyo/ empugye / akahuriko) which translates as “mental disorientation”. The participants reported that most people with dementia presented with forgetfulness, defecating and urinating on themselves, wandering away from home, going out naked, and picking up garbage. Some participants perceived memory problems as a normal part of the aging process, while others attributed the cause of dementia to syphilis, cancer, allergy, old age, satanic powers, witchcraft, poor nutrition, or life stress. Participants reported multiple sources of stress for caregivers of people with dementia, including financial, social, and emotional burdens. Finally, participants suggested that community and governmental organizations should be involved in meeting the needs of people with dementia and their caregivers. Conclusions Community members in southwestern Uganda largely identified dementia as a problem that comes with older age, and can identify key features of dementia presentation. Participants identified significant stressors affecting people with dementia and their caregivers, and reported that families and caregivers would benefit from education on the management of symptoms of dementia, and assistance in overcoming associated financial, social, and emotional burdens related to caretaking.

The concept of restraint in nursing home practice: a mixed-method study in nursing homes for people with dementia

2011 ◽  
Vol 23 (5) ◽  
pp. 826-834 ◽  
Author(s):  
Sandra A. Zwijsen ◽  
Marja F. I. A. Depla ◽  
Alistair R. Niemeijer ◽  
Anneke L. Francke ◽  
Cees M. P. M. Hertogh
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Focus Group ◽  
Nursing Home Residents ◽  
Developed Countries ◽  
Nursing Home Care ◽  
Care Practice ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
People With Dementia

ABSTRACTIntroduction: Although in most developed countries the use of restraints is regulated and restricted by law, the concept of restraint in nursing home care remains ambiguous. This study aims to explore how care professionals and family members of nursing home residents with dementia in the Netherlands experience and define the concept of restraint.Methods: Individual interviews were held with relatives (n = 7) and key persons (n = 9) in seven nursing homes. We also conducted eight focus group discussions with nursing home staff. In addition, a structured questionnaire was administered to the nurses of participating nursing homes.Results: In the questionnaire, over 80% of the respondents indicated considering “fixation” (e.g. use of belts) as a restraint and 50 to 70% of the respondents regarded other physical interventions, such as geriatric chairs and bedrails, as restraints. The interviews and focus group discussions show that the residents' perception of the intervention, the staff's intention behind the intervention and concerns of privacy are the criteria used by the respondents in defining an intervention as a restraint.Conclusions: When trying to diminish restraint use, it is important to be aware of the “local logic” of care practice and to take into account the fact that, for staff and relatives, an intervention is only regarded as a restraint when it is bothering a resident or when an intervention is used for the sole purpose of restricting freedom and/or when interventions invade the privacy of a resident.

scholarly journals Perceived Risk and Severity of the Uptake of Safe Male Circumcision Services among Young Men Aged 15-24 Years in Rhino Camp Refugees Settlement, Arua District- Uganda

2021 ◽  
Author(s):  
Blate M. David ◽  
Juliet M. Bandaru ◽  
Khawa E. Namajja ◽  
David Kajoba ◽  
Shallon Atuhaire
Keyword(s):  
Focus Group ◽  
Male Circumcision ◽  
Perceived Risk ◽  
Univariate Analysis ◽  
Young Men ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Qualitative Approaches ◽  
Increased Risk ◽  
Safe Male Circumcision

Abstract Background Safe male circumcision is a proven cost-effective intervention in reducing the risk of sexual transmission of Human Immunodeficiency Virus /Acquired Immune Deficiency Syndrome among heterosexual individuals by 60%. This study aimed at exploring the perceived risk and severity to the uptake of safe male circumcision among young men aged 15–24 years in Rhino Camp Refugees Settlement, Arua District, Uganda. Methods This was a cross-sectional study among 378 respondents, which utilized both quantitative and qualitative approaches with a semi-structured and three focus group discussions conducted among young men aged 15–24 years. Univariate analysis was used to determine the uptake of safe male circumcision. Chi-square test and binary regression model were used to determine the odds ratio at 95% confidence levels of safe male circumcision uptake and other exposure variables. Results from the focus group discussions were analysed thematically. Results The prevalence of safe male circumcision uptake was 42.1%. The major factor associated with increased likelihood of safe male circumcision uptake was the perceived benefit of cervical cancer prevention in my partner (AOR = 2.455, 95% CI = 1.278–3.627). Factors associated with reduced likelihood safe male circumcision uptake included: fear of perceived increased risk of meatitis (AOR = 0.726, 95% CI = 0.338- .959), fear that undergoing safe male circumcision is very painful and uncomfortable (AOR = 0.742, 95%, CI = 0.279–1.973). Also, the perception that safe make circumcision is not affordable at most private health facilities (AOR = 0.167, 95%, CI = 0.058–0.478). Conclusions Safe make circumcision uptake in Rhino Refugees Settlement is lower than Uganda’s national target of 80%. This is attributed to the perceived risks such as perceived risk of infection, pain, irritability, and costs involved. Awareness creation on myths and misconceptions is key to increasing up take of safe make circumcision.

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