scholarly journals Palliative care needs of patients with multiple sclerosis in southeast Iran

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Fatemeh Dadsetan ◽  
Parvin Mangolian Shahrbabaki ◽  
Moghadameh Mirzai ◽  
Esmat Nouhi
Keyword(s):  
Multiple Sclerosis ◽  
Palliative Care ◽  
Pearson Correlation ◽  
Well Being ◽  
Teaching Hospitals ◽  
Care Needs ◽  
Cross Sectional ◽  
Significant Difference ◽  
Points Of View ◽  
Palliative Care Needs

Abstract Background Due to the chronic nature of multiple sclerosis, palliative care can play a significant role in improving the quality of life and well-being of the affected patients. An essential step for developing appropriate palliative care for these patients is to determine the types of palliative care necessary, from different points of view. Therefore, this study was conducted to compare the palliative care needs from the nurses’ and patients’ points of view in southeast Iran in 2017. Method This descriptive-analytical cross-sectional study was conducted on 154 nurses working in neurology wards of teaching hospitals associated with Kerman University of Medical Sciences and 132 patients with multiple sclerosis who were referred to these hospitals in southeast Iran. The data were collected using a questionnaire for assessing the palliative care needs of patients with multiple sclerosis. Pearson correlation coefficient, independent t-test, ANOVA, chi-square, and the Mann-Whitney and Kruskal-Wallis tests were used to examine the data. Results Both nurses and patients mentioned the palliative needs of patients with multiple sclerosis in terms of physical, social, spiritual, psychological, and economic dimensions, respectively, but the results showed that there was a significant difference between the two groups in all dimensions of palliative needs (P < 0.0001). Conclusion Given the differences in how patients and nurses prioritize palliative care needs, it is essential to consider the different dimensions of palliative needs of patients with multiple sclerosis.

scholarly journals Examining the Range and Scope of Artists’ Professional Practices With Individuals With Palliative Care Needs: An International, Cross-Sectional Online Survey

2021 ◽  
Vol 12 ◽  
Author(s):  
Jenny Baxley Lee ◽  
Sonja McIlfatrick ◽  
Lisa Fitzpatrick
Keyword(s):  
Palliative Care ◽  
Online Survey ◽  
Research Policy ◽  
Well Being ◽  
Professional Practices ◽  
Future Research ◽  
Care Needs ◽  
Cross Sectional ◽  
Wide Range ◽  
Palliative Care Needs

Background: Internationally, it is recognized that artists facilitate arts engagement with individuals with palliative care needs. There is a gap in the literature describing the range and scope of artists’ professional practices in palliative care. The aim of this study was to examine an international range of professional practices among artists who work in palliative care including key professionals’ perceptions of these practices.Methods: An international, cross-sectional, online survey was conducted with health professionals, artists, and program coordinators with experience with artists working in palliative care. This survey was part of a larger mixed methods study. An instrument was systematically developed to examine artists’ professional practices. Descriptive statistics were reported for the total sample including frequencies, means and standard deviations and open-ended items were analyzed thematically.Results: 101 valid surveys were analyzed. Findings outlined: (1) who delivers the arts; (2) where and with whom; (3) practice descriptors; and (4) perceptions of practice. Themes identified from open-ended items on benefits and risks of practice revealed impacts on patients and artists alike, including: (1) enhanced well-being; (2) vulnerabilities; and (3) facilitators and barriers.Conclusion: Findings demonstrated a wide range of artists’ practices in palliative and end-of-life care, featuring notable consistencies in international practice worth further exploration. Ongoing and international efforts examining artists’ practices in palliative care contribute to the development of future research, policy and practice.

scholarly journals A New Approach to the Identification of Palliative Care Needs and Advanced Chronic Patients among Nursing Home Residents

2021 ◽  
Vol 18 (6) ◽  
pp. 3171
Author(s):  
Ana A. Esteban-Burgos ◽  
María José Lozano-Terrón ◽  
Daniel Puente-Fernandez ◽  
César Hueso-Montoro ◽  
Rafael Montoya-Juárez ◽  
...  
Keyword(s):  
Palliative Care ◽  
Nursing Homes ◽  
Statistical Significance ◽  
Nursing Home Residents ◽  
Cross Sectional Study ◽  
Care Needs ◽  
Chronic Patients ◽  
Cross Sectional ◽  
Surprise Question ◽  
Palliative Care Needs

Background: Proper planning of Palliative Care in nursing homes requires advanced knowledge of the care needs that residents show. The aim of the study was to evaluate Palliative Needs and other conditions such as fragility, complexity, and prognosis and also to suggest new indicators for the establishment of the resident’s advanced chronic condition. Methods: Cross-sectional study conducted in 149 nursing homes Complex Chronic residents evaluated by trained professionals. Palliative Care Needs, assessed by the NECPAL ICO-CCOMS© tool, and fragility, case and palliative complexity and prognosis were evaluate through a comprehensive assessment. Descriptive analyses and association measures were performed setting the statistical significance at 0.05. Results: More than 50% of the residents had positive Surprise Question and other Palliative Needs and were classified as Advanced Chronic Patients. Distress and/or Severe Adaptative Disorder was the most frequent need shown by the residents and significant differences in levels of frailty and other characteristics, were found between the Positive and the Negative Surprise Question Groups. Statistically significant correlations were also found between aspects of both groups. Conclusions: Nursing homes residents show Palliative Needs regardless of the response to the Surprise Question of the NECPAL tool. Other characteristics such as presence of an intermediate level of frailty are suggested as a new perspective to identify advanced chronic patients among nursing homes residents.

scholarly journals The Role of Palliative Care in Oncology

2017 ◽  
Vol 34 (04) ◽  
pp. 307-312 ◽  
Author(s):  
Rajiv Agarwal ◽  
Andrew Epstein
Keyword(s):  
Palliative Care ◽  
Symptom Burden ◽  
Well Being ◽  
Care Needs ◽  
Patients With Cancer ◽  
Living With Cancer ◽  
Palliative Care Needs ◽  
Shed Light

AbstractPalliative care is a powerful adjunct to oncology that adds distinct value to the physical, mental, and psychosocial well-being of patients living with cancer. Its expanding role and integration with standard oncologic care has proven clinical benefit, as the practice of palliative care can help alleviate symptom burden, enhance illness and prognostic understanding, and improve both the quality of life and overall survival for patients. The primary aim of this review article is to highlight the significant interplay between palliative care and oncology and, in doing so, shed light on the areas for improvement and modern challenges that exist to meet the complex palliative care needs of patients with cancer.

Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review

2018 ◽  
Vol 33 (2) ◽  
pp. 250-256 ◽  
Author(s):  
Anita Chung ◽  
Aileen Collier ◽  
Merryn Gott
Keyword(s):  
Palliative Care ◽  
Grey Literature ◽  
Well Being ◽  
Research Literature ◽  
Integrative Review ◽  
Empirical Literature ◽  
Family Carers ◽  
Care Needs ◽  
Palliative Care Needs ◽  
Support Family

Background: Public health approaches to palliative care prioritise community-focused initiatives to support people with palliative care needs and their families. The nature and extent of these initiatives have not previously been reported. Aim: To identify community-led and/or focused initiatives that have been developed to support family carers of people with palliative care needs and for which evaluation information is reported in the empirical literature. Design: An integrative study design was undertaken using systematic methods. Data sources: CINAHL, Medline, PsycINFO, Embase, Cochrane, Sociological Abstracts, Proquest Social Science Database, and grey literature were searched using standardised search terms. Results: Two quantitative, two qualitative and two mixed method studies were identified ( n = 6). All community initiatives identified were professionally led, although three had consumer input. Most aimed to improve carer psychosocial well-being and all were reported to have been beneficial. Conclusions: This integrative review identified only six community-focused and evaluated initiatives supporting family carers in the international palliative care research literature. Further evaluation is needed. However, appropriate evaluation methods and reporting require further discussion and debate between all stakeholders. Service users and communities themselves must be central to this process.

scholarly journals Work environment, job satisfaction and burnout among Spanish dentists: a cross-sectional study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Javier Molina-Hernández ◽  
Lucía Fernández-Estevan ◽  
Javier Montero ◽  
Lorena González-García
Keyword(s):  
Job Satisfaction ◽  
Work Environment ◽  
Pearson Correlation ◽  
Maslach Burnout Inventory ◽  
Well Being ◽  
Professional Experience ◽  
Satisfaction Scale ◽  
Cross Sectional ◽  
Sociodemographic Variables ◽  
Significant Difference

Abstract Background The main aim of the present study was to examine the relationships among work environment, job satisfaction and burnout in dentists and to analyse the way in which certain sociodemographic variables, such as gender, professional experience and weekly working hours, predict the perception of the work environment. Methods A battery of online questionnaires was sent to 3876 dentists officially registered in the triple-province region of Valencia; the battery included the Survey of Organizational Attributes for Dental Care, the Warr–Cook–Wall Overall Job Satisfaction Scale, the Maslach Burnout Inventory and a series of sociodemographic questions formulated for the specific purpose of this study. To assess the relations with the independent variables, we calculated the Pearson correlation coefficient, the Z-scores were calculated to make effect sizes comparable, and the associations between the scales and the sociodemographic variables were investigated by adjusted multiple regression analysis. Results A total of 336 participants (9.4%) correctly completed the survey in this study. The mean (M) age was 37.6 years old (standard deviation (SD) = 9.6, median (Me) = 34). Participants reported high scores on the work environment and job satisfaction scales, with only limited experiences of burnout (3.8%). Work environment and burnout were significantly and positively predicted by years of professional experience (β = .078; p = .000 and β = .107; p = .004, respectively), and job satisfaction was significantly and positively predicted by weekly hours of work (β = .022; p = .001), without significant differences according to gender. Conclusions Dentists who work over 20 hours a week and have more years of professional experience report having better perceptions of well-being at work, with no significant difference according to gender. It is important to highlight the aspects that improve well-being in dentistry to reduce burnout, which would lead to greater work engagement and better attention to patients.

scholarly journals Assessment of health-promoting lifestyle profile and its relation with well-being of medical students: A cross sectional.

2021 ◽  
Vol 28 (06) ◽  
pp. 921-927
Author(s):  
Subhan Ullah ◽  
Mubarak Ali Anjum ◽  
Khalid Parvez ◽  
Uzma Sagheer ◽  
Ghulam Abbas Sheikh ◽  
...  
Keyword(s):  
Medical Students ◽  
Pearson Correlation ◽  
Well Being ◽  
P Value ◽  
Cross Sectional ◽  
Study Results ◽  
Significant Difference ◽  
Health Promoting ◽  
The Mean ◽  
Health Promoting Lifestyle

Objectives: The aim of our study was to determine the importance and assessment of a health-promoting lifestyle and its possible association with well-being of medical students. Study Design: Cross Sectional Study. Setting: Aziz Fatima Medical and Dental College Faisalabad. Period: June to July 2020. Material & Methods: The English version of Health-Promoting Lifestyle Profile, and WHO-5 Well-Being Index were used in our study. Results: The research was conducted with 205 medical students. From which 102(49.8%) belongs from 4-year class and 103(50.2%) from 5-year class. Based on the table, the mean age of the total participants was 22.45(±1.03) years. Among the participants, the mean score of a health-promoting lifestyle was 133.36 ±18.90, which is interpreted as moderate. Lifestyle mean score is greater in 5th-year class as compare to 4th-year class but no significant difference was found because p value is greater than 0.05 there was a significant relationship between well-being and health-promoting lifestyle. Age and gender, were associated with students lifestyles. Independent t test is used to compare the mean difference in gender and MBBS class. Chi square test is used to find the significant association between well-being categories with gender and MBBS class. Pearson correlation coefficient method is used to measure the correlation between well being and healthy lifestyles. Conclusion: A health-promoting lifestyle of students in this study was moderate and they did not have an acceptable level of physical activity. The medical students’ curriculums need to be improved to enhance health promoting lifestyles.

scholarly journals Comparison of Bladder Dysfunction and Urinary Symptoms Between Multiple Sclerosis and Neuromyelitis Optica Spectrum Disorder

2019 ◽  
Vol 5 (3) ◽  
pp. 105-110
Author(s):  
Farid Nasr Esfahani ◽  
◽  
Navid Manouchehri ◽  
Nasim Nehzat ◽  
Omid Mirmosayyeb ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Neuromyelitis Optica ◽  
Pearson Correlation ◽  
Cross Sectional Study ◽  
Urinary Symptoms ◽  
Cross Sectional ◽  
Urogenital Distress Inventory ◽  
Significant Difference ◽  
The Mean ◽  
Demyelinating Disorders

Background: Neuromyelitis optica (NMO) and multiple sclerosis (MS) are auto immune demyelinating disorders. Both MS and NMO patients suffer from urinary dysfunction. Objectives: Investigation of frequency and severity of urinary symptoms in two groups of MS and NMO patients. Materials & Methods: 56 MS patients and 20 NMO patients were enrolled in this cross sectional study conducted in Isfahan Kashani hospital from March 2018 to September 2018. Frequency and severity of urinary symptoms were assessed using the urogenital distress inventory (UDI-6) and international prostate symptom score (IPSS) questionnaire. Data were analyzed using independent t-test, Mann Whitney U test and Pearson correlation coefficient with the SPSS V. 18. Results: The Mean±SD of age was 40.2±11.45 and 34.1±9.09 in NMO and MS group respectively. There was a significant difference between MS and NMO patients regarding their overall IPSS score (9.8±7.9 and 14.6±11.3 respectively). The frequency of mild, moderate and severe urinary symptoms was 25%, 50 % and 25% among NMO patients and 48.2%, 35.7% and 16.1% among MS patients respectively. Based on UDI-6 questionnaire the most frequent symptoms in MS and NMO patients were frequency and urgency respectively and they are more frequent among NMO patients rather than MS patients. Conclusion: Our results showed a significant difference in frequency and severity of urinary symptoms between NMO and MS patients and NMO patients tend to experience more severe urinary symptoms.

Psychiatric symptoms in palliative care

2019 ◽  
pp. 637-656
Keyword(s):  
Palliative Care ◽  
Psychiatric Symptoms ◽  
Emotional Health ◽  
Well Being ◽  
Emotional Reactions ◽  
Care Needs ◽  
The Common ◽  
Palliative Care Needs ◽  
Health And Well Being

This chapter covers the common psychiatric symptoms experienced in people with palliative care needs. It covers the challenges of diagnosis in this particular population and the need to take account of both the patients’ own coping mechanisms and the health challenges that they are facing as they approach the end of life. Palliative care is the provision of holisitic management to individuals and their carers/families who are facing issues associated with life-limiting illness. It embraces a biopsychosociocultural and spiritual approach with emphasis on quality of life. Consequently, the maintenance of psychological and emotional health and well-being is an essential component in the provision of comprehensive care. Initial diagnosis—and the circumstances surrounding this—is a time of great challenge for most patients, and the potential for strong emotional reactions and intense feelings of distress is heightened.

Sign in / Sign up

Export Citation Format

Share Document