scholarly journals Barriers and facilitators for transitioning of young people from adolescent clinics to adult ART clinics in Uganda: unintended consequences of successful adolescent ART clinics

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Scovia Nalugo Mbalinda ◽  
Sabrina Bakeera-Kitaka ◽  
Derrick Amooti Lusota ◽  
Eleanor Namusoke Magongo ◽  
Philippa Musoke ◽  
...  
2020 ◽  
Author(s):  
Scovia Nalugo Mbalinda ◽  
Sabrina Bakeera-Kitaka ◽  
Derrick Lusota Amooti ◽  
Eleanor Namusoke Magongo ◽  
Philippa Musoke ◽  
...  

Abstract BackgroundThere is a growing number of adolescents and young adults with HIV who require transfer of care from pediatric/ adolescent clinics to adult ART clinic. Currently, adolescents are largely in the care of pediatricians; but as they grow, they transition to adult HIV clinics. The purpose of this study was to explore the facilitators and barriers of transitioning among adolescents from adolescent clinics to adult ART clinics.MethodAn explorative qualitative approach was utilised for this study. Eighteen focus group discussions were held in nine health facility with (191) adolescents and young people in order to capture their experiences, barriers and facilitators regarding transitioning to adult clinics. The focus group discussions were audio recorded and transcribed. The Silences Framework using thematic approach guided the analysis.Results The key emerging issues were: Care provided in the adolescent clinics, Unfriendly adults, stigma and discrimination, Congestion and long waiting time, health providers in adult clinics were barriers to transitioning. Moving as a cohort, Transition preparation, care in clinics, positive living, support from the guardian and Young adolescent program Support (YAPS) could facilitate readiness and transitioning.ConclusionAdolescents and young people expressed fear to transition to adult clinics mainly because of the perceived better care provided in adolescent clinic, thus constituting a barrier to smooth transition A range of individual, social and health system and services-related factors hindered transitioning. Expectation of transitioning as a group, assurance of similar care as in the adolescent clinic, and guarantees of confidentiality, privacy and autonomy in decision-making for care were perceived as facilitators. There is need to strengthen implementation of age-appropriate care and individualized case management during care transition at all health facilities. Furthermore, the findings suggest the need to create supportive family, peer, and healthcare environments for adolescent transition.


Author(s):  
Abirami Kirubarajan ◽  
Shannon Leung ◽  
Xinglin Li ◽  
Matthew Yau ◽  
Mara Sobel

Background Though cervical cancer is one of the leading causes of death globally, its incidence is nearly entirely preventable. Young people have been an international priority for screening. However, in both high-income and low-income countries, young people have not been screened appropriately according to country-specific guidelines and in many countries, screening rates for this age-group have even dropped. Objectives The aim of this systematic review was to systematically characterize the existing literature on barriers and facilitators for cervical cancer screening among young people globally. Search Strategy We conducted a systematic review following PRISMA guidelines of four databases: Medline-OVID, EMBASE, CINAHL, and ClinicalTrials.Gov. Selection Criteria We only examined original, peer-reviewed literature. Databases were examined from inception until the date of our literature searches (12/03/2020). Articles were excluded if they did not specifically discuss cervical cancer screening, were not specific to young people, or did not report outcomes or evaluation. Data Collection and Analysis All screening and extraction was completed in duplicate with two independent reviewers. Main Results Of the 2177 original database citations, we included 36 studies that met inclusion criteria. Our systematic review found that there are three large categories of barriers for young people: lack of knowledge/awareness, negative perceptions of the test, and practical barriers to testing. Facilitators included stronger relationships with healthcare providers, social norms, support from family, and self-efficacy. Conclusions Health systems worldwide should address the barriers and facilitators to increase cervical cancer screening rates in young people. Further research is required to understand this age group.


2021 ◽  
Author(s):  
Alexandra Burton ◽  
Alison McKinlay ◽  
Joanna Dawes ◽  
Anna Roberts ◽  
Wendy Fynn ◽  
...  

ObjectivesWhen followed, there is evidence that social distancing measures play a major role in reducing the transmission of viruses such as COVID-19. However, not all individuals follow the guidance. This study aimed to explore barriers and facilitators to compliance with United Kingdom social distancing guidelines during the COVID-19 pandemic.MethodSemi-structured interviews with 116 adults. Data were analysed using reflexive thematic analysis and themes mapped to domains of the Capability, Opportunity and Motivation Model of Behaviour (COM-B).Main Outcome MeasuresWe identified 12 themes affecting compliance to UK social distancing guidelines.ResultsBarriers to compliance included inconsistent rules, caring responsibilities, fatigue, unintended consequences of control measures, and the need for emotional support. Facilitators were informational support and social responsibility. Six themes acted both as a barrier or facilitator: lived environment and shared spaces, beliefs about consequences of non-compliance, influence of others, practical social support, and trust in government. Conclusions Participants experienced a range of barriers and facilitators to compliance, often dependent on individual circumstances. Reflective motivation, psychological capability and social opportunity were important drivers for compliance. Measures that enable social support alongside strategies that help maintain motivation to comply, provide clear guidance and optimise social cohesion should be promoted.


2020 ◽  
Author(s):  
Rachel Snodgrass ◽  
Vera Araújo-Soares ◽  
Bronia Arnott ◽  
Kay-Anne Rooney

Rationale The present scoping review seeks to gain insight into what is known regarding the transition of treatment responsibility, specifically for individuals with haemophilia. A focus will be placed on the barriers and facilitators experienced towards the treatment transition process for families and young people engaged in prophylaxis therapy. A scoping review affords an opportunity to map out and provide an overview of the emerging literature given the newly emerging enquiry into treatment transition in haemophilia.Objective The current scoping review will aim to address the following research question: “What barriers and facilitators are experienced by young people, caregivers and healthcare professionals towards treatment transition in haemophilia?”The subsequent objectives were identified to address the research question: • To provide a detailed representation of the range of available literature for barriers and facilitators experienced by the array of actors involved, towards treatment transition and successful self-management in haemophilia. • To visually map the existing evidence (in diagrammatic form) in alignment with the objective of the review.• To consider clear recommendations for future directions of research based on the identified knowledge gaps. Recommendations will ultimately seek to support optimal transition from family-orientated to self-management, and paediatric to adult services. Method: Articles published in peer-reviewed journals are eligible for inclusion. Both primary research studies and secondary data analysis will be accepted. No restrictions are placed upon study design. Articles which explored treatment transition independently or alongside other related concepts such as quality of life, self-care and treatment adherence will be eligible. The current review aims to include articles sampling children and/or adults with haemophilia, their caregivers and/or healthcare professionals involved in haemophilia care. Articles sampling individuals living with haemophilia can have a diagnosis of haemophilia A or B. Articles can define “treatment” as regular prophylaxis therapy or on-demand administration following a bleeding episode. Information Sources The following four databases will be searched: •Medline•Scopus•PsycINFO •CINAHLAt this stage, no date or language restrictions have been implemented in the electronic searches for studies to allow an accurate estimate of the variety of literature available. Additionally, no exclusions regarding the publication status have been applied. Data charting aims to include: • Study aim•Healthcare professional group •Barriers to treatment transition•Facilitators to treatment transition•Future actions for supporting treatment transition


2019 ◽  
Author(s):  
Elizabeth Victoria Eikey

BACKGROUND Diet and fitness apps are intended to improve people's health. However, they can have adverse effects on some populations, such as young people. Young people, particularly college women are heavy users of mobile health applications (apps) for diet, physical activity, and weight loss (also known as diet and fitness apps). These apps are often promoted in university and college settings and touted as a means to improve health with little attention given to their actual impact and potential unanticipated negative effects, especially among those at risk for or with eating disorders. OBJECTIVE Few researchers have studied how diet and fitness apps affect college women with eating disorder behaviors. Thus, this research investigates the unintended negative consequences of engaging with these tools to inform how these types of apps may trigger and exacerbate unhealthy app engagement as well as eating disorder-related behaviors. METHODS This study used a qualitative approach to better understand the consequences of using diet and fitness apps among college women. This approach allowed for emergent themes unlikely to be discovered using quantitative approaches. Data collection sessions consisted of three components conducted with 24 college women with eating disorder-related behaviors who have experience with diet and fitness apps: survey (demographic and eating disorder symptoms), think-aloud exercises, and semi-structured interviews. RESULTS Findings reveal that diet and fitness apps trigger and exacerbate symptoms through focusing heavily on quantification, promoting over-use, and providing certain types of feedback. A taxonomy of eight negative consequences was developed based on these findings. The types of unintended consequences include: 1) fixation on numbers, 2) rigid diet, 3) obsession, 4) app dependency, 5) high sense of achievement, 6) extreme negative emotions, 7) motivation from negative messages, and 8)excess competition. Although these themes were very common when users' focus was to lose weight or eat less, these adverse effects were also prevalent when users wanted to gain weight, eat more, or focus explicitly on eating disorder recovery. CONCLUSIONS Unintended negative consequences are linked to the quantified self movement, conception of appropriate usage, and visual cues and feedback. Thus, this paper critically examines the design of diet and fitness apps and offers suggestions for improvement and then discusses implications for educators and clinicians. Ultimately, this research emphasizes the need for a fundamental shift in how diet and fitness apps promote health. This work also showcases how focusing on specific subpopulations can shed light on problematic aspects of design that if addressed may have a positive impact on the broader user base. CLINICALTRIAL N/A


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