scholarly journals Developing and validating measures of self-reported everyday and healthcare discrimination for Aboriginal and Torres Strait Islander adults

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Katherine A. Thurber ◽  
Jennie Walker ◽  
Philip J. Batterham ◽  
Gilbert C. Gee ◽  
Jan Chapman ◽  
...  
Keyword(s):  
Everyday Life ◽  
Torres Strait Islander ◽  
Discriminant Validity ◽  
Face Validity ◽  
National Study ◽  
Baseline Survey ◽  
Indigenous Australian ◽  
High Exposure ◽  
Torres Strait ◽  
Interpersonal Discrimination

Abstract Background It is well established that racism is a fundamental contributor to poor health and inequities. There is consistent evidence of high exposure to discrimination among Aboriginal and Torres Strait Islander (Indigenous Australian) peoples, but impacts have not been fully quantified, in part due to limited measurement tools. We aim to validate instruments developed to measure interpersonal discrimination. Methods Instruments were discussed at five focus groups and with experts, and field tested in developing Mayi Kuwayu: The National Study of Aboriginal and Torres Strait Islander Wellbeing. Data from 7501 baseline survey participants were analysed. Acceptability was assessed according to extent of missingness, construct validity using exploratory and confirmatory factor analysis, and reliability using Cronbach’s alpha. Associations between each instrument and outcomes conceptually understood to be closely (community-level racism) or less closely (family wellbeing) related were quantified to test convergent and discriminant validity. Results An 8-item instrument captures experiences of discrimination in everyday life and a 4-item instrument experiences in healthcare, each followed by a global attribution item. Item missingness was 2.2–3.7%. Half (55.4%) of participants reported experiencing any everyday discrimination, with 65.7% attributing the discrimination to Indigeneity; healthcare discrimination figures were 34.1% and 51.1%. Items were consistent with two distinct instruments, differentiating respondents with varying experiences of discrimination. Scales demonstrated very good reliability and convergent and divergent validity. Conclusion These brief instruments demonstrate face validity and robust psychometric properties in measuring Aboriginal and Torres Strait Islander adults’ experiences of interpersonal discrimination in everyday life and in healthcare. They can be used to quantify population-level experiences of discrimination, and associated wellbeing consequences, and monitor change.

scholarly journals Psychometric properties of the EQ-5D-5L for aboriginal Australians: a multi-method study

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Pedro Henrique Ribeiro Santiago ◽  
Dandara Haag ◽  
Davi Manzini Macedo ◽  
Gail Garvey ◽  
Megan Smith ◽  
...  
Keyword(s):  
Torres Strait Islander ◽  
Discriminant Validity ◽  
Reference Group ◽  
Characteristic Curve ◽  
Well Being ◽  
Two Dimensions ◽  
Future Research ◽  
Partial Credit Model ◽  
Validity And Reliability ◽  
Torres Strait

Abstract Introduction In Australia, health-related quality of life (HRQoL) instruments have been adopted in national population surveys to inform policy decisions that affect the health of Aboriginal and Torres Strait Islanders. However, Western-developed HRQoL instruments should not be assumed to capture Indigenous conceptualization of health and well-being. In our study, following recommendations for cultural adaptation, an Indigenous Reference Group indicated the EQ-5D-5L as a potentially valid instrument to measure aspects of HRQoL and endorsed further psychometric evaluation. Thus, this study aimed to investigate the construct validity and reliability of the EQ-5D-5L in an Aboriginal Australian population. Methods The EQ-5D-5L was applied in a sample of 1012 Aboriginal adults. Dimensionality was evaluated using Exploratory Graph Analysis. The Partial Credit Model was employed to evaluate item performance and adequacy of response categories. Area under the receiver operating characteristic curve (AUROC) was used to investigate discriminant validity regarding chronic pain, general health and experiences of discrimination. Results The EQ-5D-5L comprised two dimensions, Physiological and Psychological, and reliability was adequate. Performance at an item level was excellent and the EQ-5D-5L individual items displayed good discriminant validity. Conclusions The EQ-5D-5L is a suitable instrument to measure five specific aspects (Mobility, Self-Care, Usual activities, Pain/Discomfort, Anxiety/Depression) of Aboriginal and Torres Strait Islander HRQoL. A future research agenda comprises the investigation of other domains of Aboriginal and Torres Strait Islander HRQoL and potential expansions to the instrument.

scholarly journals “My work? Well, I live it and breathe it”: The seamless connect between the professional and personal/community self in the Aboriginal and Torres Strait Islander health sector

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Michelle Dickson
Keyword(s):  
Health Worker ◽  
Health Professionals ◽  
Torres Strait Islander ◽  
Health Workers ◽  
Health Sector ◽  
Indigenous Research ◽  
Indigenous Australian ◽  
Team Members ◽  
Torres Strait ◽  
Torres Strait Islander Health

Abstract Background Australian Aboriginal and Torres Strait Islander health professionals often juggle the challenges of working and living in the same community in ways that are positive for both themselves and their clients. This study specifically examines the strategies Aboriginal and Torres Strait Islander health professionals have developed to enable them to feel empowered by the sense of being always visible or perceived as being always available. Findings provide examples of how participants (Team Members) established a seamless working self, including how they often held different perspectives to many work colleagues, how Team Members were always visible to community and how Team Members were comfortable to be seen as working when not at work. Methods This qualitative study engages an Indigenous research methodology and uses an Indigenous method, PhotoYarning, to explore lived experiences of a group (n = 15) of Aboriginal and Torres Strait Islander health workers as they worked in the Australian health sector. Results The analysis presented here comes from data generated through PhotoYarning sessions. Team Members in this study all work in health care settings in the communities in which they also live, they manage an extremely complex network of interactions and relationships in their daily working lives. They occupy an ambivalent, and sometimes ambiguous, position as representing both their health profession and their community. This article explores examples of what working with seamlessness involved, with findings citing four main themes: (1) Being fellow members of their cultural community, (2) the feeling of always being visible to community as a health worker, (3) the feeling of always being available as a health worker to community even when not at work and (4) the need to set an example. Conclusions While creating the seamlessness of working and living in the same community was not easy, Team Members considered it an important feature of the work they did and vital if they were to be able to provide quality health service to their community. However, they reported that the seamless working self was at odds with the way many of their non-Indigenous Australian colleagues worked and it was not well understood.

scholarly journals Listening to and learning from the experiences of Aboriginal and Torres Strait Islander students to facilitate success

2016 ◽  
Vol 7 (1) ◽  
pp. 1-11 ◽  
Author(s):  
Katelyn Barney
Keyword(s):  
Undergraduate Students ◽  
Torres Strait Islander ◽  
Success Factors ◽  
Indigenous Australian ◽  
Indigenous Students ◽  
Future Developments ◽  
Torres Strait ◽  
The University ◽  
Tertiary Study

Drawing on interviews with current and past Indigenous undergraduate students at the University of Queensland (UQ), this paper reports on findings from a project that explored the experiences of Indigenous Australian students and identified inhibitors and success factors for students. It also discusses one of the outcomes of the project and planned future developments that aim to provide better support for Indigenous Australian students at UQ. By knowing and acting upon the kinds of mechanisms that can assist Indigenous students, their experiences of tertiary study can be enhanced, leading to more students enrolling in and completing university study.

scholarly journals Cancer survival for Aboriginal and Torres Strait Islander Australians: a national study of survival rates and excess mortality

2014 ◽  
Vol 12 (1) ◽  
Author(s):  
John R Condon ◽  
Xiaohua Zhang ◽  
Peter Baade ◽  
Kalinda Griffiths ◽  
Joan Cunningham ◽  
...  
Keyword(s):  
Torres Strait Islander ◽  
Excess Mortality ◽  
Cancer Survival ◽  
Survival Rates ◽  
National Study ◽  
Torres Strait

Grounded Theory and Focus Groups: Reconciling Methodologies in Indigenous Australian Education Research

2007 ◽  
Vol 36 (S1) ◽  
pp. 32-37 ◽  
Author(s):  
Jan Stewart
Keyword(s):  
Grounded Theory ◽  
Focus Groups ◽  
Torres Strait Islander ◽  
Methodological Approach ◽  
Theory Development ◽  
Indigenous Australian ◽  
Generative Process ◽  
Dialogic Relationships ◽  
Group Identities ◽  
Torres Strait

AbstractThis paper captures an ideological moment in time in which I contemplated the methodological approach I was embarking upon. In my search for a more appropriate approach for conducting research with Aboriginal and Torres Strait Islander tertiary students at the University of Queensland, I chose focus groups set within the qualitative process of grounded theory. This paper explores the meaning, usefulness and persistence of grounded theory, how it juxtaposes with focus groups, and the implications for the reciprocal integrity of the research for the Aboriginal and Torres Strait Islander students and me. Within this context and the tenets of grounded theory I ask questions such as, “For how long in the process can your research texts (linking data and theory) about field texts (participants’ narratives) remain purely inductive?” And, “How does the movement between inductive theory development and deductive assumptions fit widi issues of power and authority in an Australian Indigenous context?”I see possibility in the complementary use of grounded theory and focus groups that creates dialogic relationships between the students as both narrators and audience. Through the interaction of retelling, reliving and recreating life experiences in conversations, Aboriginal and Torres Strait Islander tertiary students conceptualise their individual subjectivities in a process of self-construction. How perceptive I am in “seeing” developing concepts within the students’ testimonies, and how I interpret those concepts in relation to existing theoretical content, may lead to new theory that influences the ongoing deconstruction of grand narratives often assigned to group identities. Co-research among the participants can provide the opportunity for monitoring the generative process.

scholarly journals Reliability, validity, and clinical utility of a culturally modified Kessler scale (MK-K5) in the Aboriginal and Torres Strait Islander population

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Makayla-May Brinckley ◽  
Bianca Calabria ◽  
Jennie Walker ◽  
Katherine A. Thurber ◽  
Raymond Lovett
Keyword(s):  
Psychological Distress ◽  
Construct Validity ◽  
Internal Consistency ◽  
Clinical Utility ◽  
Torres Strait Islander ◽  
Internal Consistency Reliability ◽  
Face Validity ◽  
Divergent Validity ◽  
Convergent And Divergent Validity ◽  
Torres Strait

Abstract Background Aboriginal and Torres Strait Islander peoples are the first people of Australia. Consequences of historic and contemporary settler-colonialism including racism, trauma, grief and loss (of land, culture, spirituality, and freedoms) have led to substantial negative health and wellbeing impacts. The Kessler Psychological Distress Scales are population and individual-level tools designed to measure general psychological health status. There has been limited assessment of the psychometric properties and validity of the Kessler Psychological Distress Scale for use with the Aboriginal and Torres Strait Islander population in Australia, despite its widespread use. Methods A national sample of Aboriginal and Torres Strait Islander adults (n = 6988 ≥ 16 years) was used in the psychometric assessment of the MK-K5, which involved face validity, acceptability, internal consistency/reliability, construct validity, and convergent and divergent validity testing. Receiver Operator Characteristics (ROC) curves were produced to assess clinical utility for depression and anxiety screening. Results The MK-K5 demonstrated face validity for psychological distress in two focus groups, and had good acceptability, good internal consistency/reliability (α = 0.89), good construct validity (uni-dimensional; one underlying component explaining 70.1% of variance), and demonstrated convergent and divergent validity in the sample. The MK-K5 had good clinical utility at a cut-off score of 11 for detecting ever being diagnosed with depression or anxiety. Conclusions The MK-K5 is a valid measure of psychological distress and has clinical utility in the Aboriginal and Torres Strait Islander population.

scholarly journals Who responds? An examination of response rates to a national postal survey of Aboriginal and Torres Strait Islander adults, 2018-2019

2020 ◽  
Author(s):  
Alyson Jane Wright ◽  
Katherine Anne Thurber ◽  
Mandy Yap ◽  
Wei Du ◽  
Emily Banks ◽  
...  
Keyword(s):  
Torres Strait Islander ◽  
Response Rate ◽  
Age Groups ◽  
Sampling Strategy ◽  
Response Rates ◽  
Postal Survey ◽  
National Study ◽  
Recruitment Methods ◽  
Younger Age ◽  
Torres Strait

Abstract Background: Evidence on the effectiveness of postal recruitment methods for Indigenous peoples is lacking. Mayi Kuwayu, the National Study of Aboriginal and Torres Strait Islander Wellbeing, uses multi-staged sampling. We aimed to test postal surveys as a primary recruitment method, analysing preliminary response rate data to inform the Study’s ongoing sampling approach. Methods: 20,000 adults aged ≥16 years were sampled from Aboriginal and Torres Strait Islander people enrolled in the Medicare Australia Enrolment Database. We calculated response rates at 4 and 15 weeks, overall and by age group, gender, state/territory and remoteness. Results: The overall response rate was 2.3% (n=456/20000). Highest response rates were observed among males and females ≥50 years from major cities (6.0%, 95%CI 4.4–7.9 and 5.5%, 4.1–7.2, respectively) and regional areas (6.0%, 4.6–7.6 and 6.2%, 4.9–7.7, respectively). Younger age groups and remote areas had lower response rates; all remote age groups <50 years had a response rate ≤0.6%. While most participants responded on the paper surveys, online responses were more common among younger age groups and, respondents with higher education levels and whose first language was not English.Conclusion: Using a postal survey, we observed response rates of ≥5.5% among older Aboriginal and Torres Strait Islander adults in major cities and regional areas; response rates were lower in other groups. A two-stage postal distribution approach provided an opportunity to adapt sampling approaches to different demographic groups. Based on initial response rates, the sampling strategy was revised to send postal surveys to groups with higher response rates groups and focus field recruitment strategies on low response groups.

scholarly journals Yarning about oral health: perceptions of urban Australian Aboriginal and Torres Strait Islander Women

2020 ◽  
Author(s):  
Kaley Butten ◽  
Newell W. Johnson ◽  
Kerry K. Hall ◽  
Maree Toombs ◽  
Neil King ◽  
...  
Keyword(s):  
Oral Health ◽  
Life Course ◽  
Torres Strait Islander ◽  
Personal Narratives ◽  
Health Behaviours ◽  
Indigenous Australian ◽  
Oral Health Behaviours ◽  
Torres Strait ◽  
Important Time ◽  
The Impact

Abstract Background: Many factors influence how a person experiences oral health and how such experiences may facilitate supportive oral health behaviours. Women in particular face different challenges due to their environment, responsibilities and physiological differences to men. Within Australia, Aboriginal and Torres Strait Islander women are reported to have poorer oral health and are faced with additional barriers to supporting their oral health compared with non-Indigenous women. The objective of this paper is to report the experiences and perceptions of oral health from the perspective of urban, Aboriginal and Torres Strait Islander women. Methods: The present data derive from a descriptive study that used yarning circles and face-to-face interviews with women who were mothers/carers of urban, Aboriginal and/or Torres Strait Islander children. This was a qualitative study to investigate the impact of child oral health on families. Participants used the opportunity to share their own personal experiences of oral health as women, thus providing data for the present analyses. Information collected was transcribed and analysed thematically Results: 20 women shared their personal narratives on the topic of oral health which were reflective of different time points in their life: growing up, as an adult and as a mother/carer. Although women are trying to support their oral health across their life-course, they face a number of barriers, including a lack of information and the costs of accessing dental care. The teenage years and pregnancy were reported as important time periods for oral health support. Conclusions: To improve the oral health of Indigenous Australian women, policymakers must consider the barriers reported by women and critically review current oral health information and services. Current oral health services are financially out of reach for Indigenous Australian women and there is not sufficient or appropriate, oral information across the life-course.

Sign in / Sign up

Export Citation Format

Share Document