scholarly journals Personal well-being networks, social capital and severe mental illness: exploratory study

2018 ◽  
Vol 212 (5) ◽  
pp. 308-317 ◽  
Author(s):  
Daryl Sweet ◽  
Richard Byng ◽  
Martin Webber ◽  
Doyo Gragn Enki ◽  
Ian Porter ◽  
...  

BackgroundConnectedness is a central dimension of personal recovery from severe mental illness (SMI). Research reports that people with SMI have lower social capital and poorer-quality social networks compared to the general population.AimsTo identify personal well-being network (PWN) types and explore additional insights from mapping connections to places and activities alongside social ties.MethodWe carried out 150 interviews with individuals with SMI and mapped social ties, places and activities and their impact on well-being. PWN types were developed using social network analysis and hierarchical k-means clustering of this data.ResultsThree PWN types were identified: formal and sparse; family and stable; and diverse and active. Well-being and social capital varied within and among types. Place and activity data indicated important contextual differences within social connections that were not found by mapping social networks alone.ConclusionsPlace locations and meaningful activities are important aspects of people's social worlds. Mapped alongside social networks, PWNs have important implications for person-centred recovery approaches through providing a broader understanding of individual's lives and resources.Declaration of interestNone.

BMJ Open ◽  
2021 ◽  
Vol 11 (3) ◽  
pp. e045005
Author(s):  
Fadia Gamieldien ◽  
Roshan Galvaan ◽  
Bronwyn Myers ◽  
Zarina Syed ◽  
Katherine Sorsdahl

ObjectiveTo examine the literature on how recovery of people with severe mental illness (SMI) is conceptualised in low/middle-income countries (LMICs), and in particular what factors are thought to facilitate recovery.DesignScoping review.Data sources and eligibilityWe searched 14 electronic databases, hand searched citations and consulted with experts during the period May–December 2019. Eligible studies were independently screened for inclusion and exclusion by two reviewers. Unresolved discrepancies were referred to a third reviewer.Data extraction and synthesisAll bibliographical data and study characteristics were extracted using a data charting form. Selected studies were analysed through a thematic analysis emerging from extracted data.ResultsThe Preferred Reporting Items for Systematic Reviews and Meta-Analyses flow diagram offers a summary of the results: 4201 titles, 1530 abstracts and 109 full-text articles were screened. Ten articles were selected for inclusion: two from Turkey, two from India, and one each from China, Swaziland, Indonesia, Egypt, South Africa and Vietnam. Although most studies used qualitative methods, data collection and sampling methods were heterogeneous. One study reported on service provider perspectives while the rest provided perspectives from a combination of service users and caregivers. Three themes emerged from the data analysis. First, studies frame recovery as a personal journey occurring along a continuum. Second, there was an emphasis on social relationships as a facilitator of recovery. Third, spirituality emerged as both a facilitator and an indicator of recovery. These themes were not mutually exclusive and some overlap exists.ConclusionAlthough there were commonalities with how high-income countries describe recovery, we also found differences in conceptualisation. These differences in how recovery was understood reflect the importance of framing the personal recovery concept in relation to local needs and contextual issues found in LMICs. This review highlighted the current sparse evidence base and the need to better understand recovery from SMI in LMICs.


2006 ◽  
Vol 16 ◽  
pp. S400
Author(s):  
S. Smith ◽  
D. Yeomans ◽  
C.J. Bushe ◽  
C. Eriksson ◽  
T. Harrison ◽  
...  

2019 ◽  
Vol 1 ◽  
pp. 1-2
Author(s):  
Clio Andris ◽  
Dipto Sarkar

<p><strong>Abstract.</strong> Interpersonal relationships are an important part of social and personal health. Studies of social capital show that individuals and communities with stronger ties are have an economic and health advantage. Yet, loneliness and isolation are becoming major public health issues. There is a pressing need to measure where relationships are strong and how accessible one’s social ties are, in order to learn how to better support face-to-face meetings and promote social health in society. However, the datasets we use to study people and human behaviour are most often mobility data and census data &amp;ndash; which tell us little about personal relationships. These data can be augmented with information about where people have ties, and how their relationships unfold over geographic space. The data we use to study the built environment include building footprints and infrastructure, and we can annotate these data by how (well) infrastructure supports different kinds of relationships, in order to ask new questions about how the landscape encourages relationships.</p><p> We suggest a list of methods for representing interpersonal relationships and social life at various socio-spatial levels of aggregation. We give an example of each, with an effort to span various use cases and spatial scales of data modelling.</p><p> <strong>Dyads (line) and Ego-based (star):</strong> This geometric model represents a relationship between two individuals (Figure 1A). The individuals can be geolocated to households, administrative units, real-time locations, etc. The tie can be given a nominal category such as family or co-worker, and edge weights that signify reported relationship strength, frequency of contact, frequency of face-to-face meeting, et cetera. Star models represent a central individual and his/her geolocated ties (that radiate from the centre). The star illustrates the theoretical concept of personal extensibility.</p><p> <strong>Points of Interest (points):</strong> Points of interest provide a place-based perspective (note that these entities can also be represented as polygons such as building footprints, or lines such as gradients of interaction on a subway). Certain places are better suited for fostering relationships than others (Figure 1B), and each can be annotated with their ability to foster: new ties (a nightclub), gender-bonding ties (bowling leagues), romantic ties (romantic restaurants), inter-generational ties (a religious facility), professional ties (conferences), et cetera.</p><p> <strong>Polygons/Administrative Units (polygons):</strong> These data are attached to administrative areal units (Census boundaries, provinces, zones, etc.). The data represent surveyed data on relationship-related variables in censuses, social surveys and social capital surveys. These surveys ask about trust, friendliness with neighbours, social life, belongingness to institutions, and more (Figure 1C), illustrating the social health of an area.</p><p> <strong>Aggregate Flows and Social Networks (lies and networks):</strong> This model illustrates the geolocated, social ties within a spatial extent, i.e. the social networks of a group of many people over a large extent (Figure 1D). Data can be sourced from social media, telecommunications patterns, and other declarations of relationships.</p><p> <strong>Regions (polygons):</strong> Regions, that may describe neighbourhoods within one city, or an agglomeration of cities, can be defined by social ties. Instead of commuting or economic ties, regions are defined by a preponderance of social ties within a given polygon, and a lack of ties between polygons (or between the polygon and any external area). Social regions represent a likeness and strong ties between the people that live within the region (Figure 1E).</p><p> Given these methods for representing social life and interpersonal relationships as GIS data, new questions may arise. At the <strong>dyadic level</strong>: how can we map the presence of a relationship between two people? At the <strong>ego-based level</strong>: how far and with what kind of diversity do people have ties? At the <strong>point of interest level</strong>: what kinds of mapable data can describe places’ ability to create new relationships and foster existing relationships? At the <strong>polygonal level</strong>: what kinds of mapable data can show where relationships are strong or weak? At the <strong>levels of flows and networks</strong>: what kinds of mapable data can describe systems of diffusion? At the <strong>regional level</strong>: what physical and administrative boundaries guide social ties?</p><p> For cartographers and geographic modellers looking to study social life, data acquisition, analysis, and mapping are challenges. The point of this extended abstract is to inventory the possibilities of mapping these data, open a dialog for experimenting with what kinds of symbologies, associated variables, classification schemes, visualization techniques and data collection opportunities are available for this purpose. We also hope to create spaces for comparative studies that describe the implications of these choices. In our search, we find that the major research challenges are the following: 1) privacy 2) geolocatable data 3) qualitative vs. quantitative data and 4) assurance statistically-significant samples sizes 5) analysis and modelling 6) visualization. Nevertheless, our goal is to make these indicators and data more GIS-friendly and available to geospatial analysts, modellers and cartographers.</p>


PLoS ONE ◽  
2021 ◽  
Vol 16 (7) ◽  
pp. e0254351
Author(s):  
Aisha Hamed Alyafei ◽  
Taghrid Alqunaibet ◽  
Hassan Mansour ◽  
Afia Ali ◽  
Jo Billings

Background There is a wealth of literature exploring the experiences of family caregivers of people with severe mental illness (SMI) in western countries, however, this topic has been neglected in the Middle East, despite families being the main source of caregiving in this context. The purpose of this review was to conduct a systematic review and qualitative meta-synthesis to explore the experiences of family caregivers living in countries in the Middle East caring for a relative with severe mental illness. Methods A systematic review and meta-synthesis were conducted, to comprehensively gain a thorough and detailed overview of what is known about family caregivers’ experiences from published qualitative research in the Middle East geographical area from inception to May 2021. The review protocol was pre-registered with PROSPERO (Ref: CRD42020165519). Results The review identified twelve qualitative studies that explored caregivers’ experiences of caring for relatives with SMI in Middle East countries. Family caregivers’ experiences were captured under seven overarching themes. The participants across all studies reported negative consequences of providing care, increased burden and emotional distress. Many experienced issues with family/marital relationships and stigmatizing attitudes and behaviours from their communities. Caregivers expressed the need for increased support which was perceived to have a critical role in improving family caregivers’ experiences. Conclusions The meta-synthesis revealed many challenges and issues that affect caregivers of people with SMI in the Middle East. Family caregivers experienced distress and burden, and reported significant impact on their psychological well-being. Their experiences highlight the urgent need to provide more support for family caregivers in Middle East countries.


2015 ◽  
Vol 3 (5) ◽  
pp. 1-234 ◽  
Author(s):  
Vanessa Pinfold ◽  
Daryl Sweet ◽  
Ian Porter ◽  
Cath Quinn ◽  
Richard Byng ◽  
...  

IntroductionPolicy drivers in mental health to address personal recovery, stigma and poor physical health indicate that new service solutions are required. This study aimed to understand how connections to people, places and activities were utilised by individuals with severe mental illness (SMI) to benefit health and wellbeing.MethodsA five-module mixed-methods design was undertaken in two study sites. Data were collected from 150 network-mapping interviews and 41 in-depth follow-up interviews with people with SMI; in-depth interviews with 30 organisation stakeholders and 12 organisation leaders; and 44 telephone interviews with practitioners. We undertook a three-stage synthesis process including independent lived experience feedback, and a patient and public involvement team participated in tool design, data collection, analysis and write-up.ResultsThree personal network types were found in our study using the community health network approach: diverse and active; family and stable; formal and sparse. Controlled for other factors we found only four variables significantly associated with which network type a participant had: living alone or not; housing status; formal education; long-term sickness or disability. Diagnosis was not a factor. These variables are challenging to address but they do point to potential for network change. The qualitative interviews with people with SMI provided further understanding of connection-building and resource utilisation. We explored individual agency across each network type, and identified recognition of the importance and value of social support and active connection management alongside the risks of isolation, even for those most affected by mental illness. We identified tensions in personal networks, be that relationships with practitioners or families, dealing with the impact of stigma, or frustrations of not being in employment, which all impact on network resources and well-being. The value of connectedness within personal networks of people, place and activity for supporting recovery was evident in shaping identity, providing meaning to life and sense of belonging, gaining access to new resources, structuring routines and helping individuals ‘move on’ in their recovery journey.Health-care practitioners recognised that social factors were important in recovery but reported system-level barriers (workload, administrative bureaucracy, limited contact time with clients) in addressing these issues fully. Even practitioners working in third-sector services whose remit involved increasing clients’ social connection faced restrictions due to being evaluated by outcome criteria that limited holistic recovery-focused practices. Service providers were keen to promote recovery-focused approaches. We found contrasts between recovery ideology within mental health policy and recovery practice on the ground. In particular, the social aspects of supporting people with SMI are often underprioritised in the health-care system. In a demanding and changing context, strategic multiagency working was seen as crucial but we found few examples of embedded multisector organisation partnerships.ConclusionWhile our exploratory study has limitations, findings suggest potential for people with SMI to be supported to become more active managers of their personal networks to support well-being regardless of current network type. The health and social care system does not currently deliver multiagency integrated solutions to support SMI and social recovery.FundingThe National Institute for Health Research Health Services and Delivery Research programme.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S175-S175
Author(s):  
Danielle Oleskiewicz ◽  
Karen Rook

Abstract Older adults often winnow their social ties to focus on emotionally rewarding ties (Charles & Carstensen, 2010). Some older adults, however, have small social networks that preclude much winnowing or aversive social ties from which disengagement is difficult. These individuals might be motivated to expand, rather than contract, their social ties. The current study sought to extend knowledge regarding potential links between social network characteristics and older adults’ interest, effort, and success in creating new social ties. We expected that small social networks and negative social ties might motivate interest and effort directed toward forming new social ties but that positive social ties might foster success in efforts to form new ties. In-person interviews were conducted with participants (N = 351, Mean age = 74.16) in a larger study of older adults’ social networks and well-being. The interviews assessed participants’ social networks, as well as their interest, effort, and success in making new social ties. Participants’ social network composition, rather than size, was associated with greater motivation to establish new social ties. Negative social ties were associated with greater interest and effort directed toward forming new social ties. Positive social ties were related to greater success (due, in part, to their support provision) and, unexpectedly, were also related to greater interest and effort directed toward forming new ties. Older adults sometimes seek to expand, rather than contract, their social ties, and characteristics of their social networks appear to play a role in fueling and influencing the success of such efforts.


2020 ◽  
Vol 21 (6) ◽  
pp. 1153-1183 ◽  
Author(s):  
Sarra Berraies ◽  
Rym Lajili ◽  
Rached Chtioui

PurposeThe objective of this research is to examine the mediating role of employees' well-being in the workplace in the relationship between the dimensions of social capital, namely structural, relational and cognitive social capital and knowledge sharing, as well as the moderating role of enterprise social networks between knowledge sharing and employees' well-being.Design/methodology/approachA quantitative approach was performed within a sample of 168 middle managers working in knowledge-intensive firms in Tunisia. The Partial Least Squares method was used to analyze the data collected.FindingsResults highlight the importance of the dimensions of social capital as a lever for boosting knowledge sharing. It also reveals that employees' well-being plays a mediating role in the link between structural and relational social capital and knowledge sharing. Moreover, findings show that while enterprise social networks use does not moderate the relationship between employees' well-being and knowledge sharing, it has a positive and significant effect on knowledge sharing.Originality/valueOn the basis of a socio-technical perspective of knowledge management, this research pioneers the examination of the mediating effect of employees' well-being in the link between dimensions of social capital and knowledge sharing and the moderating role of enterprise social networks use within knowledge-intensive firms. Findings of this study may help managers of knowledge-intensive firms in boosting knowledge sharing within organizations, in improving knowledge workers' well-being and thus in motivating and retaining these talented employees.


2017 ◽  
Vol 53 (2) ◽  
pp. 382-397 ◽  
Author(s):  
John G Scott ◽  
Jodie Grigg ◽  
Monica Barratt ◽  
Simon Lenton

The distribution of cannabis in Australia is examined with reference to motivations for supplying drugs. We argue that the distribution of cannabis in Australia is best understood with reference to the concept of social supply, where a supplier, not considered to be a ‘drug dealer proper’, brokers, facilitates or sells drugs, for little or no financial gain to friends and acquaintances. The article draws on data from surveys and interviews with 200 young Australian cannabis users, almost all of whom had also supplied cannabis at some point in their lifetime. We further theorise the concept of social supply with reference to social capital. We argue that a sociological understanding of drug distribution should focus on drug communities, as opposed to markets, describing the features of social organisation that exist between people within social networks and related implications that such features might have in terms of social harm and well-being.


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