Are National Cancer Institute Cancer Centers (NCI-CC) providing adolescents and young adults (AYA) with cancer focused clinical services? A national survey.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. 1534-1534
Author(s):  
Katherine Daunov ◽  
Michael Daunov ◽  
Kara Noskoff ◽  
Hilary Gan ◽  
Simon Davies ◽  
...  
Keyword(s):  
Sexual Health ◽  
National Survey ◽  
Online Survey ◽  
Response Rate ◽  
The United States ◽  
Self Report ◽  
Child Life ◽  
Supportive Services ◽  
Cancer Centers ◽  
Oncology Care

1534 Background: AYA patients with cancer have inferior outcomes compared to their pediatric and adult counterparts. The NCI recommends they be treated by AYA focused healthcare professionals within an AYA oncology program. This survey captures the current landscape of AYA oncology care in the United States. Methods: An online survey was sent to 272 cancer centers in September 2020, in coordination with Teen Cancer America and included all clinically designated NCI-CC. The survey asked about the presence of an AYA program, types of patients, dedicated resources, clinical space, type of providers, associated support services, educational efforts, importance of AYA oncology care, and how well these services are provided. Results: In total, we received 93 responses, a 34% response rate, including 50 NCI centers, a 72% response rate. Only half (49%) of NCI-CC reported having an AYA program, and 70% were started in the past 5 years. One-third (32%) of centers reported plans to start an AYA program. Most programs included patient ages from ≥15 (56%) to ≤39 (63%) with a variety of cancers – most commonly hematologic (49%) and sarcoma (49%) and least commonly lung (36%), breast (38%), and head and neck cancer (38%). AYA programs are generally embedded in both adult and pediatric oncology services (63%). On average, cancer centers reported seeing 25-50 new AYA patients/month and 100-200 follow-up visits/month. Few programs reported a dedicated inpatient space (4%) or outpatient space (9%). Most NCI-CC have supportive services available for all oncology patients, but fewer of these services were dedicated specifically to AYA patients: navigators (92% vs. 71%), social work (98% vs. 57%), psycho-oncology (96% vs. 54%), dietician (98% vs. 24%), physical therapy (98% vs. 18%), chaplaincy (98% vs. 18%), and child life (83% vs. 26%). Other services available to the AYA population included sexual health (62%), academic support (62%), and career resources (36%). A minority of centers (30%) provided AYA training to their staff. A majority of NCI-CC felt AYA programs were important-very important (60%). They reported providing good-excellent overall AYA care (59%), but this dropped to 22% for sexual health and education of staff, which was relatively consistent across centers (Table). Conclusions: This survey is the first ever national survey to assess AYA oncology programs. Despite greater emphasis on the AYA cancer population, only half of NCI-CC report having a dedicated program, and areas of improvement include education of staff and sexual health services for patients. Self-report of providing good to excellent AYA care in specific areas.[Table: see text]

Shattering the Glass Podium: Successes and Setbacks of Women in Collegiate Choral Conducting

2021 ◽  
pp. 875512332110183
Author(s):  
Melissa Baughman
Keyword(s):  
Gender Discrimination ◽  
Online Survey ◽  
Response Rate ◽  
The United States ◽  
Choral Conducting ◽  
Demographic Information ◽  
Choral Conductors ◽  
The Status ◽  
Study Participants ◽  
Experiences Of Women

The purpose of this study was to explore the status and experiences of women in collegiate choral conducting positions. Out of all collegiate choral conductors ( N = 992) at institutions accredited by the National Association of Schools of Music in the United States, 68.65% ( n = 681) were men and 31.35% ( n = 311) were women at the time of this study; I invited the women collegiate choral conductors to serve as study participants. Ninety-six respondents completed an online survey, resulting in a response rate of 30.86%. I collected data through a researcher-designed survey. First, I asked respondents to provide demographic information and respond to Likert-type and open-ended prompts related to three domains: gaining entry into the profession, navigating the profession, and issues surrounding gender. I analyzed data through descriptive statistics and qualitative methods of assigning codes, combining codes into themes, and displaying the data. I addressed general discrepancies in the self-reported attitudes of respondents. Although women reported an overall attitude of satisfaction as choral conductors in their Likert-type responses, many respondents detailed several instances of gender discrimination and other challenges in their open-ended responses. Implications for the music profession, including specific strategies to help empower women in collegiate choral conducting settings, are discussed.

scholarly journals Pneumocystis jirovecii prophylaxis in patients treated for high-grade gliomas: a survey among neuro-oncologists

2018 ◽  
Vol 6 (4) ◽  
pp. 321-326
Author(s):  
Nebojša Skorupan ◽  
Surabhi Ranjan ◽  
Seema Mehta ◽  
Olga Yankulina ◽  
Nathan Nenortas ◽  
...  
Keyword(s):  
Online Survey ◽  
Practice Patterns ◽  
The United States ◽  
Pneumocystis Jirovecii ◽  
Pneumocystis Jirovecii Pneumonia ◽  
High Grade ◽  
Cancer Centers ◽  
Medical Oncologists ◽  
High Grade Gliomas ◽  
Cd4 Lymphocyte

Abstract Background Pneumocystis jirovecii pneumonia (PJP) is a known complication in patients with high-grade gliomas (HGGs) who are treated with radiation and chemotherapy. PJP prophylaxis is commonly recommended, but there are currently no clear guidelines regarding duration of treatment and choice of drugs. This study aimed to assess current practice patterns of PJP prophylaxis among neuro-oncologists. Methods An online survey of 14 multiple choice questions was sent to 207 neuro-oncologists and medical oncologists treating brain cancers at all National Cancer Institute-designated cancer centers in the United States. Recipients were identified via a search of the cancer centers’ websites. Results Sixty-one invited experts completed the survey (response rate 29%; of these, 72% were neuro-oncologists, 18% were medical oncologists, and 10% were pediatric neuro- or medical oncologists). Seventy percent of respondents stated that they routinely prescribe PJP prophylaxis, while 7% do not provide prophylaxis. Eighty-one percent of respondents use absolute lymphocyte count (ALC) to assess lymphopenia and 13% also monitor CD4 lymphocyte counts during prophylaxis. The most commonly used first-line agent is trimethoprim-sulfamethoxazole (88% of respondents), followed by pentamidine (6%). Discontinuation of PJP prophylaxis is determined by the following: count recovery (33% by ALC; 18% by CD4 lymphocyte counts), radiation completion (23%), and chemotherapy completion (7%). Glucose-6-phosphate dehydrogenase levels were routinely checked by only 13% of respondents. Conclusions PJP prophylaxis is commonly used in HGG patients, but there are large variations in practice patterns, including the duration of prophylaxis. As consideration for PJP prophylaxis affects all patients with HGG, standardization of prophylaxis should be formally addressed.

scholarly journals Reflex Immunohistochemistry and Microsatellite Instability Testing of Colorectal Tumors for Lynch Syndrome Among US Cancer Programs and Follow-Up of Abnormal Results

2012 ◽  
Vol 30 (10) ◽  
pp. 1058-1063 ◽  
Author(s):  
Laura C. Beamer ◽  
Marcia L. Grant ◽  
Carin R. Espenschied ◽  
Kathleen R. Blazer ◽  
Heather L. Hampel ◽  
...  
Keyword(s):  
United States ◽  
Lynch Syndrome ◽  
Microsatellite Instability ◽  
Community Hospital ◽  
Response Rate ◽  
Standard Of Care ◽  
The United States ◽  
Cancer Centers ◽  
Abnormal Results

Purpose Immunohistochemistry (IHC) for MLH1, MSH2, MSH6, and PMS2 protein expression and microsatellite instability (MSI) are well-established tools to screen for Lynch syndrome (LS). Although many cancer centers have adopted these tools as reflex LS screening after a colorectal cancer diagnosis, the standard of care has not been established, and no formal studies have described this practice in the United States. The purpose of this study was to describe prevalent practices regarding IHC/MSI reflex testing for LS in the United States and the subsequent follow-up of abnormal results. Materials and Methods A 12-item survey was developed after interdisciplinary expert input. A letter of invitation, survey, and online-survey option were sent to a contact at each cancer program. A modified Dillman strategy was used to maximize the response rate. The sample included 39 National Cancer Institute–designated Comprehensive Cancer Centers (NCI-CCCs), 50 randomly selected American College of Surgeons–accredited Community Hospital Comprehensive Cancer Programs (COMPs), and 50 Community Hospital Cancer Programs (CHCPs). Results The overall response rate was 50%. Seventy-one percent of NCI-CCCs, 36% of COMPs, and 15% of CHCPs were conducting reflex IHC/MSI for LS; 48% of the programs used IHC, 14% of the programs used MSI, and 38% of the programs used both IHC and MSI. One program used a presurgical information packet, four programs offered an opt-out option, and none of the programs required written consent. Conclusion Although most NCI-CCCs use reflex IHC/MSI to screen for LS, this practice is not well-adopted by community hospitals. These findings may indicate an emerging standard of care and diffusion from NCI-CCC to community cancer programs. Our findings also described an important trend away from requiring written patient consent for screening.

scholarly journals How do Research Faculty in the Biosciences Evaluate Paper Authorship Criteria?

2016 ◽  
Author(s):  
Timothy Kassis
Keyword(s):  
Online Survey ◽  
Response Rate ◽  
The United States ◽  
Faculty Members ◽  
Relative Importance ◽  
Journal Articles ◽  
Final Sample ◽  
New Graduate ◽  
Research Faculty

AbstractAuthorship of peer-reviewed journal articles and abstracts has become the primary currency and reward unit in academia. Such a reward is crucial for students and postdocs who are often under-compensated and thus highly value authorship as an incentive. While numerous scientific and publishing organizations have written guidelines for determining author qualifications and author order, there remains much ambiguity when it comes to how these criteria are weighed by research faculty. Here, we sought to provide some initial insight on how faculty view the relative importance of 11 criteria for scientific authorship. We distributed an online survey to 564 biomedical engineering, biology, and bioengineering faculty members at 10 research institutions across the United States. The response rate was approximately 18%, resulting in a final sample of 102 respondents. Results revealed a consensus on some criteria, such as time spent conducting experiments, but there was a lack of agreement regarding the role of funding procurement. This study provides quantitative assessments of how faculty members in the biosciences evaluate authorship criteria. We discuss the implications of these findings for researchers, especially new graduate students, to help navigate the discrepancy between official policies for authorship and the contributions that faculty truly value.

scholarly journals Financial burden and impact of atopic dermatitis out-of-pocket healthcare expenses among black individuals in the United States

2021 ◽  
Author(s):  
Raj Chovatiya ◽  
Wendy Smith Begolka ◽  
Isabelle J. Thibau ◽  
Jonathan I. Silverberg
Keyword(s):  
Atopic Dermatitis ◽  
Online Survey ◽  
Financial Burden ◽  
The United States ◽  
Healthcare Resource Utilization ◽  
Self Report ◽  
Financial Impact ◽  
Black Race ◽  
Targeted Interventions ◽  
Healthcare Expenses

AbstractBlack race is associated with increased atopic dermatitis (AD) severity and healthcare resource utilization. However, the burden of out-of-pocket (OOP) expenses among black individuals with AD is not well understood. We sought to characterize the categories and impact of OOP healthcare expenses associated with AD management among black individuals. A 25-question voluntary online survey was administered to National Eczema Association members (N = 113,502). Inclusion criteria (US residents age ≥ 18 years; self-report of AD or primary caregivers of individuals with AD) was met by 77.3% (1118/1447) of respondents. Black individuals with AD were younger, had lower household income, Medicaid, urban residence, poor AD control and frequent skin infections (P ≤ 0.02). Blacks vs. non-blacks reported more OOP costs for prescription medications covered (74.2% vs. 63.6%, P = 0.04) and not covered (65.1% vs. 46.5%, P = 0.0004) by insurance, emergency room visits (22.1% vs. 11.8%, P = 0.005), and outpatient laboratory testing (33.3% vs. 21.8%, P = 0.01). Black race was associated with increased household financial impact from OOP expenses (P = 0.0009), and predictors of financial impact included minimally controlled AD (adjusted OR [95% CI] 13.88 [1.63–117.96], P = 0.02), systemic therapy (4.34 [1.63–11.54], 0.003), > $200 monthly OOP expenses (14.28 [3.42–59.60], P = 0.0003), and Medicaid (4.02 [1.15–14.07], P = 0.03). Blacks with Medicaid had higher odds of harmful financial impact (3.32 [1.77–6.24], P = 0.0002) than those of black race (1.81 [1.04–3.15], P = 0.04) or with Medicaid (1.39 [1.02–1.88], P = 0.04) alone. Black race is associated with increased OOP costs for AD and significant household financial impact. Targeted interventions are needed to address financial disparities in AD.

scholarly journals Psychological Correlates of News Monitoring, Social Distancing, Disinfecting, and Hoarding Behaviors among US Adolescents during the COVID-19 Pandemic

2020 ◽  
Author(s):  
Benjamin Oosterhoff ◽  
Cara palmer
Keyword(s):  
Social Responsibility ◽  
Online Survey ◽  
Social Trust ◽  
The United States ◽  
Population Based ◽  
Self Report ◽  
Survey Study ◽  
Social Distancing ◽  
Psychological Correlates ◽  
Self Interest

Importance: As COVID-19 spreads across the globe, it is critical to understand the psychological factors that influence pandemic-related behaviors (i.e., news monitoring, social distancing, hygiene/disinfecting, hoarding). This may be especially important to study among youth, who are less likely to experience severe symptoms but contribute to the spread of the virus.Objective: To examine psychological correlates of adolescents’ behaviors during the COVID-19 pandemic. Design: Self-report survey conducted between March 20th and March 22nd, 2020. Setting: This is an online survey study of youth from the United States.Participants: A population-based sample of adolescents were recruited via social media to complete an anonymous survey. Youth were eligible if they had internet access, lived in the United States, and were between the ages of 13 and 18. Main Outcomes and Measures: Outcomes included COVID-19 news monitoring, social distancing, disinfecting, and hoarding behaviors over the 7 days after the US declared a national emergency. The correlates measured were attitudes about COVID-19 severity, values related to social responsibility, social trust, and self-interest. The a priori hypotheses were that attitudes about the severity of COVID-19, along with greater social responsibility and social trust, would be associated with greater news monitoring, social distancing, and disinfecting, whereas greater self-interest would be associated with more hoarding.Results: The final analytic sample included 770 adolescents (Mage = 16.34, 72% female). The majority of teens reported not engaging in pure social distancing (70%), but were monitoring the news (75%) and engaging in at least one disinfecting behavior multiple times per day (88%). Some teens reported engaging in hoarding behavior (19%). Greater attitudes about the severity of COVID-19 were associated with more social distancing, disinfecting, and news monitoring, but also more hoarding. Greater social responsibility was associated with more disinfecting and news monitoring, and less hoarding. Participants who reported valuing their own self-interest over others reported less social distancing and more hoarding. Greater social trust was associated with less hoarding.Conclusions and Relevance: Emphasizing the severity of COVID-19 and the social implications of pandemic-related behaviors may be important for teens, particularly for those who are not following recommended preventative health behaviors or who are engaging in hoarding.

scholarly journals Lactation Consultants’ Perceptions of Musculoskeletal Disorders Affecting Breastfeeding

2016 ◽  
Vol 7 (1) ◽  
pp. 30-36 ◽  
Author(s):  
Valérie Lavigne
Keyword(s):  
Musculoskeletal Disorders ◽  
Online Survey ◽  
Response Rate ◽  
Hospital Setting ◽  
The United States ◽  
Lactation Consultant ◽  
Manual Treatment ◽  
Lactation Consultants ◽  
Musculoskeletal Problems ◽  
Congenital Torticollis

Objective: The study aimed to investigate IBCLCs’ demographic profile, perceptions of breastfeeding musculoskeletal disorders in infants, and referral patterns.Method: IBCLCs from Canada and the United States (N = 13,017) were invited to participate in an online survey questionnaire emailed by the International Board of Lactation Consultant Examiners.Results: Response rate was 18.9% (N = 2,457). Most IBCLCs had a nursing background (64.8%) and practiced in a hospital setting (57%). Most reported referral of infants for musculoskeletal treatment (73.9%). The first professional referral was made to a pediatrician (47%), followed by craniosacral therapist (16%), and chiropractor (14%). Professional expertise was the chief reason for referral (43%). The most common latch issues referred for were tongue-tie (27%), painful latch (24%), neck problems (18%), and nonlatching (9%). Congenital torticollis (25%) and neck tension (14%) were the main musculoskeletal problems recognized by IBCLCs. Approximately half the respondents (51%) were comfortable recognizing musculoskeletal issues in babies. Most respondents (91%) noticed breastfeeding improvement following manual treatment.Conclusion: IBCLCs refer to musculoskeletal specialists promptly following the first visit. More collaboration between professions may help foster the wide interprofessional support needed to improve breastfeeding rates.

scholarly journals Pharmacogenomics Instruction Depth, Extent, and Perception in US Medical Curricula

2020 ◽  
Vol 7 ◽  
pp. 238212052093077
Author(s):  
Dara Basyouni ◽  
Aymen Shatnawi
Keyword(s):  
United States ◽  
Health Care ◽  
Health Care Professionals ◽  
Online Survey ◽  
Response Rate ◽  
Medical Schools ◽  
The United States ◽  
Medical Curricula ◽  
Electronic Survey ◽  
Depth Extent

Introduction: This descriptive study aimed to evaluate the depth, extent, and perception of pharmacogenomics instruction in schools and colleges of medicine in the United States. Changes in medical pharmacogenomics instruction over the past decade were also assessed by comparing our results with those of a previous study. Methods: An electronic survey was emailed to all accredited allopathic and osteopathic medical schools across the US using Qualtrics online survey software. Multiple email reminders were sent to increase the response rate. Results: Of 151 targeted eligible medical schools across the United States, 22 responded to the survey. One invalid response was excluded, resulting in a response rate of 13.9%. Of responding schools, 85.7% cover pharmacogenomics in their curriculum, mainly in the second year, however, none teach pharmacogenomics as a stand-alone course. The depth and the extent of pharmacogenomics coverage varied among responding programs. Although 66.7% of respondents believe that neither physicians nor other health care professionals possess appropriate knowledge in pharmacogenomics, only 23.8% plan to increase pharmacogenomics instruction in their curricula in the near future. Conclusions: Most medical schools surveyed include some pharmacogenomics instruction in their curricula, although the depth and the extent of the instruction varies. Most respondents believe that physicians and other health care professionals today do not possess an appropriate level of knowledge in pharmacogenomics; however, few institutions report short-term plans to increase pharmacogenomics instruction. Pharmacogenomics plays a significant role in personalized medicine; greater efforts by medical school decision-makers are needed to improve the level of pharmacogenomics instruction in medical curricula.

ASHP national survey of pharmacy practice in hospital settings: Prescribing and transcribing—2019

2020 ◽  
Vol 77 (13) ◽  
pp. 1026-1050 ◽  
Author(s):  
Craig A Pedersen ◽  
Philip J Schneider ◽  
Michael C Ganio ◽  
Douglas J Scheckelhoff
Keyword(s):  
Decision Support ◽  
National Survey ◽  
Online Survey ◽  
Pharmacy Practice ◽  
Mail Survey ◽  
Clinical Decision ◽  
The United States ◽  
Leading Role ◽  
Mode Method ◽  
Survey Sample

Abstract Purpose Results of the 2019 ASHP national survey of pharmacy practice in hospital settings are presented. Methods Pharmacy directors at 4,863 general and children’s medical/surgical hospitals in the United States were surveyed using a mixed-mode method of contact by email and mail. Survey completion was online, using an online survey application. IQVIA supplied data on hospital characteristics; the survey sample was drawn from the IMS Health hospital database. Results The response rate was 10.8%. Pharmacists are increasingly managing medication use in the areas of vancomycin therapy, antibiotic selection and dosing, and anticoagulation. Electronic health record (EHR) decision support is guiding prescribing, and nearly 50% of hospitals are customizing drug warnings. Adoption of compounding technology continues, with 43.6% of hospitals using technology in their sterile compounding processes. Nearly half of hospitals have active opioid stewardship programs, and pharmacists are leading these efforts. Specialty pharmacy operations are growing in health systems. Human resource commitments to support new services are increasing; however, vacancy rates for technicians are challenging. Staff credentialing continues to expand for pharmacist and technicians. Conclusion Pharmacists continue to assume greater responsibility for writing medication orders, dosing, ordering laboratory tests, and monitoring outcomes. Health-system pharmacists are taking a leading role in addressing the opioid crisis, advancing safety in compounded sterile preparations through adoption of intravenous workflow technologies, and optimizing EHR applications to leverage clinical decision support tools to improve the safe prescribing and use of medications.

Household Food and Water Emergency Preparedness Practices Across the United States

2021 ◽  
pp. 1-9
Author(s):  
Erin Hiatt ◽  
Carla Belliard ◽  
Michelle A. Lloyd Call ◽  
Laura K. Jefferies ◽  
Madalyn Kener ◽  
...  
Keyword(s):  
United States ◽  
Emergency Preparedness ◽  
Large Scale ◽  
Online Survey ◽  
Water Storage ◽  
The United States ◽  
Survey Development ◽  
Self Report ◽  
Emergency Situations ◽  
Household Food

Abstract Objective: To evaluate food and water storage practices in the United States, including the extent that government emergency preparedness guidelines were followed. Methods: Qualtrics panelists (n = 572) completed a 142-item online survey in August 2014. Cognitive interviews (n = 5) and pilot data (n = 14) informed survey development. Descriptive statistics were used to analyze quantitative data. Open-ended responses related to water storage preparation were classified into 5 categories. Results: Many respondents reported being somewhat or well prepared to provide food and water for their households during a large-scale disaster or emergency. Only 53% met Federal Emergency Management Agency (FEMA) guidelines to have water last at least 3 days. Based on respondents’ self-report, it appeared that those who prepared personally-filled containers for water did not carefully follow FEMA instructions. Most respondents had non-perishable foods available, with 96% meeting the FEMA guidelines of at least 3 days of storage. Conclusion: Households were generally prepared to provide food and, to a lesser extent, water in emergency situations, but were not consistently following FEMA guidelines. Additional easy-to-follow, evidence-based information may better help citizens accurately implement food and water storage emergency preparedness guidelines.

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