Care without sufficient knowledge of people with home enteral tube feeding: a qualitative study

2021 ◽  
Vol 19 (10) ◽  
pp. 26-34
Author(s):  
Mehri Doosti-Irani ◽  
Farangis Heidari Goojani ◽  
Leila Rafiee Vardanjani ◽  
Kobra Noorian
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Health Professionals ◽  
Tube Feeding ◽  
Interview Data ◽  
Negative Consequences ◽  
Correct Position ◽  
Face To Face ◽  
Enteral Tube Feeding ◽  
The Family

Aim: This study aimed to explore family caregivers' experiences with tube feeding at home in Iran. Methods: This qualitative study was conducted with purposefully selected family caregivers who participated in an in-depth, semi-structured, face-to-face interview. Data analysis was performed through content analysis and rigor was investigated. Results: In total, 20 caregivers were interviewed. Two main categories were found in the interview data: ‘abandoned training’ and ‘lack of knowledge of nutrition’. Participants felt abandoned and unsupported by health professionals. Participants also reported feeling that health professionals passed the training responsibility to other health professionals who did not give training. This resulted in participants feeling obligated to learn from their peers. Participants lacked knowledge about nutrition, as well as how to prepare home-made formula for feeding, the correct position for feeding and feeding times. Conclusion: Despite having a heavy and vital responsibility, participants felt that they had not been adequately trained and thus faced making errors, resulting in negative consequences for the patient and the family. Therefore, appropriate plans must be made to promote preparation for home care.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

scholarly journals Lived Experiences of Hospitalized COVID-19 Patients: A Qualitative Study

2021 ◽  
Vol 18 (20) ◽  
pp. 10958
Author(s):  
Montserrat Venturas ◽  
Judith Prats ◽  
Elena Querol ◽  
Adelaida Zabalegui ◽  
Núria Fabrellas ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Latin American ◽  
Health Professionals ◽  
Lived Experiences ◽  
Qualitative Approach ◽  
Hospitalized Patients ◽  
The Family ◽  
The Mean ◽  
Depth Interviews ◽  
Latin American Countries

The COVID-19 pandemic has resulted in many hospitalized patients and deaths worldwide. Coronavirus patients were isolated from their relatives and visits were banned to prevent contagion. This has brought about a significant change in deeply rooted care habits in Mediterranean and Latin American countries where the family normally accompanies vulnerable hospitalized patients. The aim of this qualitative study was to examine the hospitalization experience of COVID-19 patients and their family members. A phenomenological qualitative approach was used. Data collection included inductive, in-depth interviews with 11 COVID-19 hospitalized patients. The mean age of patients was 55.4 years and 45% were female. Nearly 50% required Intensive Care Unit (ICU) admission. Ten meaningful statements were identified and grouped in three themes: Positive and negative aspects of the care provided, the patient’s perspective, and perception of the experience of the disease. In conclusion, COVID-19 patients, aware of the severity of the pandemic, were very adaptable to the situation and had full confidence in health professionals. Patient isolation was perceived as necessary. Technology has helped to maintain communication between patients and relatives.

scholarly journals A qualitative study on the working experiences of clinical pharmacists in fighting against COVID-19

2022 ◽  
Vol 22 (1) ◽  
Author(s):  
Xiaojuan Wang ◽  
Xiali Yao ◽  
Xuedong Jia ◽  
Xiangfen Shi ◽  
Jie Hao ◽  
...  
Keyword(s):  
Public Health ◽  
Qualitative Study ◽  
Interview Data ◽  
Work Experiences ◽  
Descriptive Phenomenology ◽  
Career Expectations ◽  
Health Crisis ◽  
Face To Face ◽  
The Public ◽  
Clinical Pharmacists

Abstract Background The spread of coronavirus disease 2019 (COVID-19) has overwhelmed healthcare systems across the world. Along with the medical team, clinical pharmacists played a significant role during the public health emergency of COVID-19. This study aimed to explore the working experience of clinical pharmacists and provide reference for first-line clinical pharmacists to prepare for fighting against COVID-19. Methods A qualitative study based on descriptive phenomenology was employed with face-to-face and audio-recorded interviews to study the working experience of 13 clinical pharmacists (including two clinical nutritional pharmacists). All interviews were transcribed verbatim, and the interview data were analyzed thematically using NVivo software. Results Four themes emerged from interview data, including roles of clinical pharmacists, working experiences of clinical pharmacists, psychological feelings of clinical pharmacists, and career expectations of clinical pharmacists. Conclusions The results contributed to a deeper understanding of the clinical pharmacists’ work experiences in COVID-19 and offered guidance to better prepare clinical pharmacists in participating in a public health crisis.

scholarly journals The family caregiver’s discourse on the hospitalization of the elderly with Alzheimer’s disease O discurso do cuidador familiar sobre a hospitalização do idoso com doença de Alzheimer

2017 ◽  
Vol 9 (4) ◽  
pp. 1068
Author(s):  
Gabriela Pizelli Mocco Grillo ◽  
Aline Miranda Da Fonseca Marins ◽  
Rosâne Mello
Keyword(s):  
Data Analysis ◽  
Alzheimer Disease ◽  
Family Caregivers ◽  
Health Professionals ◽  
The Elderly ◽  
Descriptive Study ◽  
Structured Interview ◽  
Health Staff ◽  
Social Unit ◽  
The Family

ResumoObjetivo: Conhecer a percepção do cuidador sobre a hospitalização do idoso com Doença de Alzheimer. Método: Trata-se de um estudo descritivo, exploratório, de natureza qualitativa, realizado com onze cuidadores familiares de idosos com doença de Alzheimer. Os dados foram coletados no período de Abril a Junho de 2013 por meio de entrevista semiestruturada. A análise dos dados foi pautada no Discurso do Sujeito Coletivo. Resultados: Emergiram duas ideias centrais síntese: piora da função cognitiva do idoso com doença de Alzheimer durante o processo de hospitalização e o despreparo da equipe de saúde para cuidar de um idoso com demência.Conclusão: De acordo com os resultados obtidos, urge a necessidade de capacitação e/ou especialização dos profissionais de saúde para atender o idoso com demência e sua família. A família é parte integrante do cuidado a esse idoso, sendo fundamental compreendê-la e assisti-la como uma unidade social complexa.Descritores: Cuidadores, Doença de Alzheimer, Idoso, Hospitalização. AbstractObjective: To investigate the perception of the caregiver about the hospitalization of the elderly with Alzheimer disease. Method: This is a descriptive study, exploratory and qualitative in nature, performed with 11 family caregivers of elderly with Alzheimer disease. The data were collected during the period from April to June 2013 through semi-structured interview. The data analysis was based on the Collective Discourse of the Subjects. Results: Two summary central ideas emerged: worsening of cognitive function in the elderly with Alzheimer disease during the process of hospitalization and the lack of health staff to take care of an elderly with dementia. Conclusion: According to the results obtained, there is urgent need for training and/or specialization of health professionals to meet the elderly with dementia and their families. The family is an integral part of the care that elderly, being critical to understand it and watched it as a social unit complex.Descriptors: Caregivers, Alzheimer Disease, Elderly, Hospitalization. ResumenObjetivo: Investigar la percepción del cuidador acerca de la hospitalización de las personas mayores con la enfermedad de Alzheimer. Método: Este es un estudio descriptivo, exploratorio y de naturaleza cualitativa, realizado con 11 cuidadores familiares de ancianos con enfermedad de Alzheimer. Los datos fueron recolectados durante el periodo de abril a junio de 2013 a través de la entrevista semi-estructurada. El análisis de los datos se basa en el discurso de los sujetos colectivos. Resultados: Surgieron dos ideas centrales resumen: empeoramiento de la función cognoscitiva en los ancianos con enfermedad de Alzheimer durante el proceso de hospitalización y la Falta de personal sanitario a cuidar de un anciano con demencia. Conclusión: De acuerdo a los resultados obtenidos, existe la urgente necesidad de formación y/o especialización de los profesionales de la salud para atender a los ancianos con demencia y sus familias. La familia es una parte integral de la atención que los ancianos, siendo fundamental para entenderla y verla como una unidad social compleja.Descriptores: Cuidadores, Enfermedad de Alzheimer, Ancianos, Hospitalización.

Patients’ experiences of home enteral tube feeding (HETF) – a qualitative study

2015 ◽  
Vol 20 (7) ◽  
pp. 552-565 ◽  
Author(s):  
Kaisa Bjuresäter ◽  
Maria Larsson ◽  
Elsy Athlin
Keyword(s):  
Qualitative Study ◽  
Tube Feeding ◽  
Enteral Tube Feeding

scholarly journals The parental experience and perceptions of blenderized tube feeding for children with medical complexity

2021 ◽  
Author(s):  
Joanna Soscia ◽  
Sherri Adams ◽  
Eyal Cohen ◽  
Clara Moore ◽  
Jeremy N Friedman ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Tertiary Care ◽  
Tube Feeding ◽  
Structured Interviews ◽  
Children With Medical Complexity ◽  
Entire Family ◽  
Parental Experience ◽  
Enteral Tube Feeding ◽  
Medical Complexity ◽  
Psychosocial Implications

Abstract Objectives Parents of children with medical complexity are often expected to implement complicated plans of care, such as enteral tube feeding, to support the health of their child. Enteral feeding can have psychosocial implications for the parent, child, and family. Blenderized tube feeding (BTF) refers to the administration of pureed food and drinks through a feeding tube. Little is known regarding parents’ experiences with BTF. Therefore, the purpose of this qualitative study was to understand the lived experience of BTF from the parent’s perspective. Methods This qualitative study was a grounded theory analysis utilizing semi-structured interviews of parents who provided at least 50% of their child’s diet through BTF. Participants were recruited using purposive sampling from the Complex Care Program at a tertiary care paediatric centre. Interviews were conducted until thematic saturation was achieved. Themes were identified using constant comparative analysis of transcribed interviews. Results Parents (n=10) felt that BTF positively affected the experience of tube feeding and enhanced their child’s health and wellbeing. Parents described BTF as a means of self-empowerment and a mechanism to normalize feeding and care for the entire family. Despite reporting BTF as more time consuming than formula feeding, all parents were satisfied with having made the change, and planned on continuing the diet. Conclusion BTFs can improve the experience of tube feeding and positively address some of the negative psychosocial implications of enteral tube feeding, providing a sense of normalcy and control for parents caring for a child with medical complexity.

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