Perceived caregiving preparedness and quality of life among Indonesian family caregivers of patients with life-limiting illness

2021 ◽  
Vol 27 (6) ◽  
pp. 293-301
Author(s):  
Erna Rochmawati ◽  
Yuli Prawitasari

Background: Family caregivers play an important role in palliative care. However, family caregivers often report that they felt insufficiently prepared to become a caregiver. This lack of preparedness may lead to a decline in the caregiver's quality of life (QoL), and they may not be able to provide sufficient palliative care to their family member. Aims: To investigate the preparedness of family members to become caregivers alongside their QoL. Method: A correlational cross-sectional study design was used. A sample of 104 family caregivers completed a World Health Organization Quality of Life Brief to assess the QoL of participants. The Caregiving Inventory (CGI) was used to assess how prepared family members felt to become care-givers, and the CGI also included questions related to the patient's socio-demographic status and illness. Correlation analysis was used to address the research questions. Caregivers were caring for a family member with a life-limiting illness in a suburban district of Indonesia. Findings: The 104 family caregivers had a relatively low score for both QoL and caregiving preparedness. A caregiver feeling more prepared was associated with a higher QoL. The study also found a positive correlation (r value, between 0.236–0.481) between perceived caregiving preparedness, including its factors, and domains of QoL. Conclusion: A person's preparedness to become a caregiver is significantly associated with all QoL domains: physical, psychological, social and environmental. Family members can be better prepared to become a caregiver with training and information about personal care and symptom management.

Author(s):  
Marli Luiz Beluci ◽  
Cleide Carolina da Silva Demoro Mondini ◽  
Armando dos Santos Trettene ◽  
Rosana Aparecida Spadoti Dantas

ABSTRACT Objective: To evaluate the correlation between measures of quality of life and burden in family caregivers of infants with cleft lip and palate and to analyze possible associations between quality of life and sociodemographic variables. Method: Exploratory, cross-sectional study conducted in hospital specialized in the treatment of craniofacial anomalies, with caregivers who answered the following data collection instruments: sociodemographic characterization form, World Health Organization Quality of Life - BREF questionnaire and the Burden Interview Scale. The statistical analysis was conducted using the Pearson’s Correlation test, the Student’s t-test and the ANOVA test with a level of significance of 0.05. Results: 77 caregivers participated in the study. There was an inverse correlation between quality of life and burden in the Physical Health, Psychological, Social Relationships and Environment domains. There was a positive correlation between quality of life and family income in the Environment domain. Conclusion: The greater the burden on the caregiver, the lower was their perception of quality of life. Caregivers with higher family income and greater level of education presented a better perception quality of life in the Environment domain.


2017 ◽  
Vol 15 (2) ◽  
pp. 130-135 ◽  
Author(s):  
Walter Fernandes de Azevedo ◽  
Lígia Andrade da Silva Telles Mathias

ABSTRACT Objective To evaluate the quality of life of physicians and investigate to what extent it is affected by work addiction. Methods This is an exploratory, descriptive and cross-sectional study, conducted with 1,110 physicians. For data collection, we used a questionnaire with sociodemographic information, the World Health Organization Quality of Life BREF, and the Work Addiction Scale. Results Most physicians presented high quality of life. Female participants presented lower quality of life in the domains psychologic, environment and general (p<0.05). Quality of life was negatively correlated with the number of shifts (p<0.005). The higher the addiction to work, the lower the quality of life. Conclusion The research allowed understanding the implications of work addiction in the quality of life. Further studies are required to support the development of strategies that improve health conditions and quality of life of medical professionals.


2014 ◽  
Vol 5 (2) ◽  
Author(s):  
Olufunke O. Adeyeye ◽  
Olayinka O. Ogunleye ◽  
Ayodele Coker ◽  
Yetunde Kuyinu ◽  
Raymond T. Bamisile ◽  
...  

There is paucity of information on the quality of life of patients with pulmonary tuberculosis in Nigeria. This study assessed the factors influencing their quality of life and the independent predictors of low quality of life scores. Two hundred and sixty consecutive patients with pulmonary tuberculosis seen at the Lagos University Teaching Hospital were evaluated for health related quality of life using the World Health Organization Quality of life instrument (WHOQoL-BREF). Sociodemographic characteristics of the patients were related to the various domains of quality of life and a multivariate logistic regression analysis was performed to identify the independent predictors of low quality of life scores in the patients. The mean age of the patients was 36.7±12 years. Sex, age and marital status of patients were found to influence quality of life scores. The independent predictors of low quality of life scores were low monthly income, duration of the illness, concomitant illnesses, unemployment, advancing age and male gender. Several socio demographic and economic factors influenced the quality of life of patients with tuberculosis and are predictive of poor scores. It is important to consider these factors when treating patients with tuberculosis to optimise outcome of care.


2020 ◽  
Author(s):  
Mohammad Farris Iman Leong Bin Abdullah ◽  
Nor Shuhada Murad ◽  
Soo Huat Teoh ◽  
Mohd Afifuddin Mohamad

Abstract Purpose: Despite the significant impact of COVID-19 on mental health among university students, data on the related quality of life (QoL) are lacking in this group of the population. This study aimed to evaluate quality of life (QoL) and determine its association with various factors and social support among university students during the COVID-19 pandemic after the end of movement lockdown. Methods: This was an online, cross-sectional study recruited a total of 316 participants. Participants were administered a self-reported questionnaire to gather data on demographic, personal, clinical and psychological characteristics; the 21-item depression, anxiety and stress scale (DASS-21) to assess the severity of their depressive, anxiety and stress symptoms; the multidimensional scale of perceived social support (MSPSS) to assess the degree of social support; and the World Health Organization quality of life-BREF (WHOQoL-BREF) to assess QoL. Results: The psychological and social QoL scores were lower than the non-pandemic norms of the general population, while the physical health and environmental QoL scores were comparable. After adjusting for relevant demographic, personal, and clinical variables, religious coping; greater number of hours of online classes attended; and greater social support from family, friends and significant others were found to be significantly associated with higher QoL among the participants. Frustration because of study disruption, living in areas with a high prevalence of COVID-19 cases, and a higher severity of depressive and stress symptoms were significantly associated with lower QoL. Conclusion: COVID-19 impaired the QoL of university students even after the movement lockdown was lifted.


2020 ◽  
Vol 4 (2) ◽  
pp. 84
Author(s):  
Muhammad Cholilurrohman Hadi ◽  
Tantut Susanto ◽  
Kholid Rosyidi Muhammad Nur

The family with special need children experience children’s dependency behavior. This situations related to parenting stress which affected parental quality of life. The objective of this study was to examine the correlation characteristic of parents and parenting stress and parental quality of life among special need children’s parents. A cross sectional study design conducted among 52 parents with special need children in School of Disabled Children in Badean Bondowoso. A self-administered questionnaire including the Alabama Parenting Questionnaire and the World Health Organization Quality of Life-BREF Indonesian version were used to assess parenting stress; and parental quality of life, respectively. Pearson Product Moment and Spearman Rank was performed to answer the objective of this study. The results showed that, there were no correlation between parenting stress and parental quality of life of special need children’s parents (p >0.05). However, length of disability correlated with parenting stress (r = 0.339; p = 0.014). Meanwhile; parent’s gender (Z = -2.089; p = 0.037), special need children’s gender (Z = -2.102; p = 0.036), and number of childrens (r = -0.297; p = 0.033) were correlated with parental quality of life. This study concluded that characteristic of parents and children with special needs correlated with parental quality of life. Therefore, adaptive parenting environment should implement to reduce parenting stress.  


Author(s):  
Helena Patricia ◽  
Khatijah Lim Abdullah ◽  
Ira Erwina

Background: The process of caring for a schizophrenic client creates a stressful situation; caregiver's unpreparedness in dealing with this problem has an impact on the deterioration of the quality of life. The decline in quality of life of caregiver is influenced by several factors such as caregiver’s burden and characteristic of caregiver include age, gender, sex, marital status, education, income, and relationship with client. This study aimed to determine the relationship of burden and characteristic with the quality of life on the caregiver.Methods: The design of this study was descriptive analytic with cross sectional study approach on 186 caregiver with convenient technique sampling. Data were collected by the Zarit Burden Interview questionnaire and the World Health Organization Quality of Life (WHOQOL-BREF).Results: The results showed 99 (53.2%) caregivers had a low quality of life, 92 (49.5%) caregivers felt heavy burden. Chi-square statistical test proved a significant relationship between burden (0.001) and all characteristics caregiver include age (0.033), gender (0.033), sex (0.000) marital status (0.001), education (0.001), income (0.002), and relationship with client (0.000) with quality of life.Conclusions: The result showed that test proved a significant relationship between burden and characteristics caregiver with quality of life of multivariate analysis showed that marital status was the most correlated with quality of life of caregiver. Suggestions for Tampan Psychiatric Hospital Pekanbaru are to improve mental nursing service comprehensively to client and family like health education program about how to improve quality of life.


2019 ◽  
Vol 36 (2) ◽  
Author(s):  
Yasir Aziz ◽  
Ahmad Yar Khan ◽  
Iqra Shahid ◽  
Muhammad Athar Majeed Khan ◽  
Aisha Aisha

Objective: To determine the quality of life of students of a private medical college in Karachi in Pakistan. Methods: This cross sectional study was conducted among 217 medical students of Liaquat College of Medicine and Dentistry, Karachi from June 2017 to March 2018. Students were selected by a stratified sampling method and the World Health Organization Quality of Life BREF Instruments (WHO QOL-BREF) was used for the above-mentioned study. Statistical analysis was performed using SPSS (Statistical Package for Social Sciences) version 21 and Analysis of variance (ANOVA). Independent t-test was used as p <0.05 significant. Results: A total of 250 questionnaires were distributed among 2nd year, 3rd year, 4th year and final year students and the response rate was 86.8%. Among them 48.5% (n=105) students were male and 51.5% (n=112) students were female, while 9.2% (n=20) students were currently ill and the other 90.8% (n=197) were healthy. Conclusion: Medical education influences the quality of life (QOL) of students adversely. Social relationships and environmental domain were satisfactory in private medical institutes whereas physical and psychological progress was low due to academic load which requires improvement either by physical activities such as fitness classes or other extra-curricular activities. doi: https://doi.org/10.12669/pjms.36.2.668 How to cite this:Aziz Y, Khan AY, Shahid I, Khan MA, Aisha. Quality of life of students of a private medical college. Pak J Med Sci. 2020;36(2):---------. doi: https://doi.org/10.12669/pjms.36.2.668 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.


2019 ◽  
Vol 2 (1) ◽  
pp. 128-140
Author(s):  
Indah Pratiwi ◽  
Haniarti ◽  
Herlina Muin

Status gizi dikatakan baik bila pola makan kita seimbang. Artinya, asupan, frekuensi dan jenis makanan yang dikomsumsi harus sesuai dengan kebutuhan tubuh. Menurut World Health Organization Quality of Life (WHOQOL), Kualitas Hidup adalah kondisi fungsional lansia yang meliputi Kesehatan fisik, kesehatan psikologis, hubungan sosial, dan hubungan lingkungan.Tujuan penelitian ini untuk menunjukkan adakah hubungan status gizi dengan kualitas hidup lansia di tinjau dari kesehatan fisik, kesehatan psikologis, kondisi sosial, kondisi lingkungan di Wilayah Kerja Puskesmas Madising Na Mario Kota Pare – Pare. Metode yang digunakan dalam penelitian ini adalah metode analitik dengan pendekatan cross sectional study. Peneliti mengidentifikasi melalui obeservasional dengan menggunakan kuesioner pada sampel, dimana sampel dalam penelitian ini sebanyak 89 orang. Data dianalisis secara univariat dan bivariat menggunakan uji chi square melalui SPSS Versi 24.Hasil penelitian menunjukkan bahwa ada hubungan kesehatan fisik (0,009<0,05), tidak ada hubungan kesehatan psikologis (0,450>0,05), ada hubungan kondisi sosial (0,014<0,05), tidak hubungan kondisi lingkungan (0,241>0,05) dengan status gizi lansia di Wilayah Kerja Puskesmas Madising Na Mario Kota Parepare


2015 ◽  
Vol 12 (2) ◽  
pp. 12-18
Author(s):  
Prashwas Thapa ◽  
Namrata Rawal ◽  
Yadav Bista

Introduction: Cancer is associated with signiÞ cant psychosocial morbidity and has impact on quality of life.An appropriate psychiatric management of cancer patient may improve the ultimate quality of living.Methods: The objective of this study was to see the outcome of treatment of depression and anxiety and itseffect in quality of life in cancer patients. A cross sectional study was used. A total of eighteen (18) cancerpatients with depression, anxiety; and both depression and anxiety were assessed for quality of life and providedtreatment. The tools used were General Health Questionnaire (GHQ), Hospital Anxiety and Depression Scale(HADS) and World Health Organization Quality of Life (WHOQOL) scale.Results: The study concluded that 43.75% of depressed and 41.66% of anxiety cancer patients improved ontreatment and there also was a signiÞ cant improvement in quality of life, specially in psychological and physicaldomain.Conclusions: Oncology centres should work in close liaison with psychiatrists which can improve the qualityof life of cancer patients.doi: http://dx.doi.org/10.3126/mjsbh.v12i2.12918  


2020 ◽  
Vol 16 (2) ◽  
Author(s):  
Janaki V ◽  
Suzaily W ◽  
Abdul Hamid AR ◽  
Hazli Z ◽  
Azmawati MN

Introduction: Auditory hallucination (AH) is often unexplored in depth in clinical practice. This study sought to ascertain the relationship between AH, depressive symptoms and quality of life (QOL) and its association with socio-demographic and clinical variables. Methods: This was a cross sectional study done in a psychiatry unit involving 60 schizophrenic patients between 18 to 60 years old. Psychotic Symptom Rating Scale – Auditory Hallucination subscale (PSYRATS-AH), Calgary Depression Scale for Schizophrenia (CDSS) and World Health Organization Quality of Life-Brief scale (WHOQOL-BREF) were used as instruments. Results: Alcohol intake was found to be significantly associated with the severity of AH. A significant moderate positive correlation was found between AH total score and CDSS (r=0.53, p<0.001) and moderately high correlation between emotional characteristics subscale with CDSS (r=0.651, p<0.005). The PSYRATS-AH dimensions; amount of distress (r=0.721, p<0.001) and intensity of distress (r=0.757, p<0.001) showed significant high correlation with CDSS. As for QOL, frequency of AH (r=-0.419, p<0.01) and CDSS (r=0.435, p<0.01) showed significant moderate negative correlation, while duration, loudness, amount and intensity of distress, disruption to life and controllability of voices had significant fair correlation with QOL. Multiple regression analysis revealed that the frequency of AH (p=0.047), controllability of AH (p=0.027) and depressive symptoms (p=0.001) significantly predict QOL. Conclusion: Our results demonstrated that each dimension of AH had different contributions towards depressive symptoms and the QOL in patients with schizophrenia. Therefore, appropriate treatment focusing on the specific dimension of AH not only may reduce depressive symptoms, but may also improve QOL of these patients.


Sign in / Sign up

Export Citation Format

Share Document