scholarly journals Group for family/caregivers of elderly with Alzheimer’s: experience of teachers based on the complexity

Rev Rene ◽  
2015 ◽  
Vol 16 (4) ◽  
pp. 603 ◽  
Author(s):  
Silomar Ilha ◽  
Dirce Stein Backes ◽  
Silvana Sidney Costa Santos ◽  
Daiane Porto Gautério-Abreu ◽  
Claudia Zamberlan ◽  
...  

Objective: to understand the relationships experienced by a group of health care teachers directed to family members/caregivers of older people with Alzheimer’s disease. Methods: qualitative research, conducted with five teachers participating in a support group developed in a university. Data collected by the technique of focus group submitted to Focal Strategic Analysis. Results: six categories were identified: Difficulty in raising awareness of the participants about Alzheimer’s disease; The interdisciplinary in the guidelines; Exchange of knowledge; Acquire/search for more knowledge; Expansion/socialization of knowledge about Alzheimer’s disease: an even existing challenge; Absence attendance: a threat to the existence of the group. Conclusion: the disorder is a reality experienced by teachers in the group, which is (re)organize constantly seeking the best way to guide and foster care.

2017 ◽  
Vol 2017 ◽  
pp. 1-15 ◽  
Author(s):  
Maria Gabriella Melchiorre ◽  
Mirko Di Rosa ◽  
Francesco Barbabella ◽  
Norma Barbini ◽  
Fabrizia Lattanzio ◽  
...  

Introduction. Elder abuse is often a hidden phenomenon and, in many cases, screening practices are difficult to implement among older people with dementia. The Caregiver Abuse Screen (CASE) is a useful tool which is administered to family caregivers for detecting their potential abusive behavior.Objectives. To validate the Italian version of the CASE tool in the context of family caregiving of older people with Alzheimer’s disease (AD) and to identify risk factors for elder abuse in Italy.Methods. The CASE test was administered to 438 caregivers, recruited in the Up-Tech study. Validity and reliability were evaluated using Spearman’s correlation coefficients, principal-component analysis, and Cronbach’s alphas. The association between the CASE and other variables potentially associated with elder abuse was also analyzed.Results. The factor analysis suggested the presence of a single factor, with a strong internal consistency (Cronbach’s alpha = 0.86). CASE score was strongly correlated with well-known risk factors of abuse. At multivariate level, main factors associated with CASE total score were caregiver burden and AD-related behavioral disturbances.Conclusions. The Italian version of the CASE is a reliable and consistent screening tool for tackling the risk of being or becoming perpetrators of abuse by family caregivers of people with AD.


2019 ◽  
Vol 39 (11) ◽  
pp. 1184-1194 ◽  
Author(s):  
Joan M. Griffin ◽  
Catherine Riffin ◽  
Rachel D. Havyer ◽  
Virginia S. Biggar ◽  
Meryl Comer ◽  
...  

Family caregiver engagement in clinical encounters can promote relationship-centered care and optimize outcomes for people with Alzheimer’s disease and related dementias (ADRD). Little is known, however, about effective ways for health care providers to engage family caregivers in clinical appointments to provide the highest quality care. We describe what caregivers of people with ADRD and people with mild cognitive impairment (MCI) consider potential best practices for engaging caregivers as partners in clinical appointments. Seven online focus groups were convened. Three groups included spousal caregivers ( n = 42), three included non-spousal caregivers ( n = 36), and one included people with MCI ( n = 15). Seven potential best practices were identified, including the following: “acknowledge caregivers’ role and assess unmet needs and capacity to care” and “communicate directly with person with ADRD yet provide opportunities for caregivers to have separate interactions with providers.” Participants outlined concrete steps for providers and health care systems to improve care delivery quality for people with ADRD.


2010 ◽  
Vol 15 (1) ◽  
pp. 4-11 ◽  
Author(s):  
Sridhar Krishnamurti

Alzheimer's disease is neurodegenerative disorder which affects a growing number of older adults every year. With an understanding of auditory dysfunction in Alzheimer's disease, the speech-language pathologist working in the health care setting can provide better service to these individuals. The pathophysiology of the disease process in Alzheimer's disease increases the likelihood of specific types of auditory deficits as opposed to others. This article will discuss the auditory deficits in Alzheimer's disease, their implications, and the value of clinical protocols for individuals with this disease.


2020 ◽  
pp. 073346482097924
Author(s):  
Molly A. Mather ◽  
Holly B. Laws ◽  
Jasmine S. Dixon ◽  
Rebecca E. Ready ◽  
Anna M. Akerstedt

Poor sleep in persons with Alzheimer’s disease (AD) is a common stressor for family caregivers. Retrospective reports support associations between sleep disturbance in persons with AD and worse caregiver mood; however, prospective associations between sleep in persons with AD and caregiver outcomes have not been studied. The current study determined associations between affect and sleep of persons with AD and their caregivers using daily diary data. Multilevel mediation models indicated that sleep in persons with AD is linked to caregiver affect; furthermore, these associations are mediated by sleep characteristics in caregivers and affect in persons with AD. Daily fluctuations in sleep behaviors in persons with AD—rather than average values—were most strongly associated with caregiver outcomes. Interventions to improve sleep in persons with AD may decrease their negative affect and improve caregiver mood.


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