Leadership in Community-Based Participatory Research: Individual to Collective

2017 ◽  
Vol 2 (2) ◽  
pp. 11-24
Author(s):  
Maria Mayan ◽  
Sanchia Lo ◽  
Merin Oleschuk ◽  
Anna Paucholo ◽  
Daley Laing
Keyword(s):  
Participatory Research ◽  
Social Issues ◽  
Research Question ◽  
Community Based Participatory Research ◽  
Individual Characteristics ◽  
Collaborative Partnerships ◽  
Community Based ◽  
Collaborative Process ◽  
Formation Stage ◽  
The Impact

 Multi-sector collaborative partnerships hold much promise in tackling seemingly intractable and complex social issues. However, they often encounter many challenges in achieving their goals. Leadership can play an important role in reducing the impact of factors that threaten a multi-sector partnership’s success. Community-based participatory research (CBPR) partnerships are collaborative and, in many cases, multi-sectored. While there is a developing literature and practice on multi-sector, collaborative partnerships, leadership in CBPR is relatively unexplored, especially at various partnership stages (i.e., formation, implementation, maintenance, and accomplishment of goal). Through the method of focused ethnography, we explored the research question “How is leadership exercised during the formation stage of a CBPR partnership?” Eighteen partners (government, community, and university sectors) were interviewed about the leadership during the formation stage of their partnership, and data were qualitatively content-analyzed. Partners explained that leadership was exercised during the formation stage through (1) individual characteristics, (2) actions, and (3) as a collective. Our findings illustrate that CBPR leadership shares many of the characteristics of traditional leadership and adapts them to support the collaborative process of CBPR, leading to a collective form of leadership. These findings have implications for the study and practice of CBPR leadership.

scholarly journals A scoping review on the key elements and effects of cardiovascular disease management programmes based on community-based participatory research

2021 ◽  
Author(s):  
Bohyun Park ◽  
Juhyeon Yang
Keyword(s):  
Participatory Research ◽  
Scoping Review ◽  
Research Question ◽  
Community Based Participatory Research ◽  
Management Programme ◽  
Community Based ◽  
High Quality Research ◽  
Positive Effects ◽  
Leading Role ◽  
Cardio Vascular

Abstract Background. This scoping review aims to analyse the literature on community based participatory research (CBPR) -based cardio vascular disease (CVD) management programmes, examining the key elements of their development and implementation and exploring their effectiveness. Methods. This study is based on the scoping review methodology, consisted of six stages: 1) identifying the research question; 2) identifying relevant studies—search strategy; 3) study selection; 4) charting the data; 5) collating, summarising, and reporting the results; and 6) consultation exercise. The electronic databases used for the literature search were PubMed, Cochrane, and CINAHL. The search period was from 4 March to 3 April 2020. We selected studies that: 1) were published after 2000; 2) targeted community residents over the age of 18; and 3) proposed a CBPR-based CVD management programme, described its development process, or evaluated its effects based on its application. The data were extracted independently by two researchers according to the standardised form. Results. Among the key elements of such programmes, there were many cases in which community organisations played the leading role in establishing partnerships and cases in which a decision-making committee was formed. Regarding the application of the CBPR principles, community partners participated only in executing the research and not in the process of analyzing and interpreting research results. In addition, In all six RCT studies, the experimental groups showed significantly positive effects compared to the control groups. Conclusion. It is necessary to develop strategies to improve the criteria based on which CBPR principles cannot be implemented during the development and implementation of a CBPR-based CVD management programme. In addition, more attempts to verify the effectiveness of high-quality research methodology should be made when evaluating the effectiveness of programmes.

scholarly journals Community-Based Participatory Intervention Research with American Indian Communities: What is the State of the Science?

2019 ◽  
Vol 3 (Supplement_2) ◽  
pp. 39-52 ◽  
Author(s):  
Jordan B Hearod ◽  
Marianna S Wetherill ◽  
Alicia L Salvatore ◽  
Valarie Blue Bird Jernigan
Keyword(s):  
Health Outcomes ◽  
Community Participation ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Observational Study Design ◽  
Study Characteristics ◽  
Community Outcomes ◽  
State Of The Science ◽  
The Impact

ABSTRACT We conducted a 2-phase systematic review of the literature to examine the nature and outcomes of health research using a community-based participatory research (CBPR) approach with AI communities to assess both the value and the impact of CBPR, identify gaps in knowledge, and guide recommendations for AI research agendas. Using PRISMA guidelines, we searched the peer-reviewed literature published from 1995 to 2016 and identified and reviewed 42 unique intervention studies. We identified and catalogued key study characteristics, and using the Reliability-Tested Guidelines for Assessing Participatory Research Projects, we quantified adherence to participatory research principles across its four domains. Finally, we examined any association between community participation score and health outcomes. The majority of studies (76.7%) used an observational study design with diabetes, cancer, substance abuse, and tobacco being the most common topics. Half of the articles reported an increase in knowledge as the primary outcome. Our findings suggest that a CBPR orientation yields improved community outcomes. However, we could not conclude that community participation was directly associated with an improvement in health outcomes.

scholarly journals Reflections on Researcher Identity and Power: The Impact of Positionality on Community Based Participatory Research (CBPR) Processes and Outcomes

2014 ◽  
Vol 41 (7-8) ◽  
pp. 1045-1063 ◽  
Author(s):  
Michael Muhammad ◽  
Nina Wallerstein ◽  
Andrew L. Sussman ◽  
Magdalena Avila ◽  
Lorenda Belone ◽  
...  
Keyword(s):  
Participatory Research ◽  
Community Based Participatory Research ◽  
Community Based ◽  
The Impact ◽  
Researcher Identity

scholarly journals Impact of Participatory Health Research: A Test of the Community-Based Participatory Research Conceptual Model

2018 ◽  
Vol 2018 ◽  
pp. 1-12 ◽  
Author(s):  
John G. Oetzel ◽  
Nina Wallerstein ◽  
Bonnie Duran ◽  
Shannon Sanchez-Youngman ◽  
Tung Nguyen ◽  
...  
Keyword(s):  
Conceptual Model ◽  
Health Equity ◽  
Participatory Research ◽  
Structural Equation ◽  
Empirical Test ◽  
Community Based Participatory Research ◽  
Community Based ◽  
Principal Investigators ◽  
Participatory Health Research ◽  
The Impact

Objectives. A key challenge in evaluating the impact of community-based participatory research (CBPR) is identifying what mechanisms and pathways are critical for health equity outcomes. Our purpose is to provide an empirical test of the CBPR conceptual model to address this challenge. Methods. A three-stage quantitative survey was completed: (1) 294 US CBPR projects with US federal funding were identified; (2) 200 principal investigators completed a questionnaire about project-level details; and (3) 450 community or academic partners and principal investigators completed a questionnaire about perceived contextual, process, and outcome variables. Seven in-depth qualitative case studies were conducted to explore elements of the model not captured in the survey; one is presented due to space limitations. Results. We demonstrated support for multiple mechanisms illustrated by the conceptual model using a latent structural equation model. Significant pathways were identified, showing the positive association of context with partnership structures and dynamics. Partnership structures and dynamics showed similar associations with partnership synergy and community involvement in research; both of these had positive associations with intermediate community changes and distal health outcomes. The case study complemented and extended understandings of the mechanisms of how partnerships can improve community conditions. Conclusions. The CBPR conceptual model is well suited to explain key relational and structural pathways for impact on health equity outcomes.

scholarly journals Power Dynamics in Community-Based Participatory Research: A Multiple–Case Study Analysis of Partnering Contexts, Histories, and Practices

2019 ◽  
Vol 46 (1_suppl) ◽  
pp. 19S-32S ◽  
Author(s):  
Nina Wallerstein ◽  
Michael Muhammad ◽  
Shannon Sanchez-Youngman ◽  
Patricia Rodriguez Espinosa ◽  
Magdalena Avila ◽  
...  
Keyword(s):  
Case Studies ◽  
Participatory Research ◽  
Rural Areas ◽  
Community Based Participatory Research ◽  
Power Sharing ◽  
Added Value ◽  
Health Study ◽  
Community Members ◽  
Community Based ◽  
The Impact

Community-based participatory research has a long-term commitment to principles of equity and justice with decades of research showcasing the added value of power-sharing and participatory involvement of community members for achieving health, community capacity, policy, and social justice outcomes. Missing, however, has been a clear articulation of how power operates within partnership practices and the impact of these practices on outcomes. The National Institutes of Health–funded Research for Improved Health study (2009-2013), having surveyed 200 partnerships, then conducted seven in-depth case studies to better understand which partnership practices can best build from community histories of organizing to address inequities. The diverse case studies represented multiple ethnic–racial and other marginalized populations, health issues, and urban and rural areas and regions. Cross-cutting analyses of the qualitative results focus on how oppressive and emancipatory forms of power operate within partnerships in response to oppressive conditions or emancipatory histories of advocacy within communities. The analysis of power was conducted within each of the four domains of the community-based participatory research conceptual model, starting from how contexts shape partnering processes to impact short-term intervention and research outputs, and contribute to outcomes. Similarities and differences in how partnerships leveraged and addressed their unique contexts and histories are presented, with both structural and relational practices that intentionally addressed power relations. These results demonstrate how community members draw from their resilience and strengths to combat histories of injustice and oppression, using partnership principles and practices toward multilevel outcomes that honor community knowledge and leadership, and seek shared power, policy, and community transformation changes, thereby advancing health equity.

scholarly journals Reporting Guidelines for Community-Based Participatory Research Did Not Improve the Reporting Quality of Published Studies: A Systematic Review of Studies on Smoking Cessation

2020 ◽  
Vol 17 (11) ◽  
pp. 3898
Author(s):  
Daisuke Kato ◽  
Yuki Kataoka ◽  
Erfen Gustiawan Suwangto ◽  
Makoto Kaneko ◽  
Hideki Wakabayashi ◽  
...  
Keyword(s):  
Smoking Cessation ◽  
Participatory Research ◽  
Community Based Participatory Research ◽  
Reporting Quality ◽  
Reporting Guideline ◽  
Cochrane Central Register ◽  
Quality Of Reporting ◽  
Community Based ◽  
The Impact

The objective of this study was to assess the impact of a 2010 community-based participatory research (CBPR) reporting guideline on the quality of reporting a CBPR on smoking cessation. We searched the MEDLINE, Embase, the Cochrane Central Register for Controlled Trials (CENTRAL), PsycINFO, and Cumulative Index to Nursing and Allied Health Literature (CINAHL) databases and included articles published up to December 2019 (PROSPERO: CRD42019111668). We assessed reporting quality using the 13-item checklist. Of the 80 articles identified, 42 (53%) were published after 2010. The overall reporting quality before and after 2010 was poor and did not differ significantly (mean difference: 0.66, 95% confidence interval [CI]: −0.21 to 1.53). The total reporting scores of the studies did not differ significantly according to the effect size of the intervention (beta coefficient: −2.86, 95% CI: −5.77 to 0.04). This study demonstrates the need to improve the quality of reporting CBPRs. We recommend that journal editors endorse the CBPR reporting guideline to encourage its use by more researchers.

scholarly journals Calorie Labeling in a Rural Middle School Influences Food Selection: Findings from Community-Based Participatory Research

2015 ◽  
Vol 2015 ◽  
pp. 1-7 ◽  
Author(s):  
Monica Hunsberger ◽  
Paul McGinnis ◽  
Jamie Smith ◽  
Beth Ann Beamer ◽  
Jean O’Malley
Keyword(s):  
Middle School ◽  
Participatory Research ◽  
Food Selection ◽  
Community Based Participatory Research ◽  
School Age Children ◽  
Community Based ◽  
Calorie Labeling ◽  
Point Of Purchase ◽  
Rural Middle School ◽  
The Impact

Background.Calorie labeling at the point-of-purchase in chain restaurants has been shown to reduce energy intake.Objective.To investigate the impact of point-of-purchase calorie information at one rural middle school.Methods.With a community-based participatory research framework a mixed method approach was used to evaluate the impact of point-of-purchase calorie information. Students in grades 6–8, dining at the school cafeteria January and February 2010, participated for 17 school days each month; in January a menu was offered in the usual manner without calorie labels; the same menu was prepared in February with the addition of calorie labels at point-of-purchase. Gross calories served per student were measured each day allowing for matched comparison by menu. In March/April of 2010, 32 students who ate in the cafeteria 3 or more times per week were interviewed regarding their views on menu labeling.Results.Calorie consumption decreased by an average of 47 calories/day; fat intake reduced by 2.1 grams/day. Five main themes were consistent throughout the interviews.Conclusion.Point-of-purchase calorie labels can play a role in reducing the number of calories consumed by middle school age children at the lunch. The majority of students interviewed found the calorie labels helped them choose healthier food.

scholarly journals Needs and readiness assessments: Tools for promoting community-university engagement with Aboriginal communities

2013 ◽  
Vol 6 ◽  
Author(s):  
Fay Fletcher ◽  
Alicia Hibbert ◽  
Fiona Robertson ◽  
Jodie Asselin
Keyword(s):  
Participatory Research ◽  
Social Issues ◽  
Community Based Participatory Research ◽  
Community Members ◽  
Community Based ◽  
Readiness Assessment ◽  
University Partnerships ◽  
Program Content ◽  
Important Means ◽  
University Engagement

Community-based participatory research (CBPR) is an important means of connecting the perspectives of community members with critical social issues, such as health and wellness. As beneficial as CBPR can be, effective engagement with community members remains a difficult goal to achieve. In this article, we draw on the international literature around needs and readiness assessments to explore their potential for establishing solid foundations for engaged research. We examine the stages and dimensions identified in the literature, and use these as a framework for a needs and readiness assessment project undertaken with a Métis Settlement community in Alberta, Canada. We share how the needs and readiness assessments helped to foster the emergence of community priorities, informing the next steps in research design, program content and evaluation methods, and heightening community-university engagement. It is our hope that our example of engagement, which focuses on the role of needs and readiness assessments in strengthening community-university partnerships, will better inform engagement approaches so that they become relevant, culturally appropriate and community specific. Keywords: Métis, Aboriginal, community-based participatory research, needs assessment, readiness assessment, community-university partnership

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