THE PARENTS' REACTION TO THE BIRTH AND EARLY CARE OF CHILDREN WITH CLEFT PALATE

PEDIATRICS ◽  
1962 ◽  
Vol 30 (1) ◽  
pp. 86-90
Author(s):  
Veronica B. Tisza ◽  
Elizabeth Gumpertz

From the beginning the life experiences of the baby born with cleft palate and cleft lip are different from those of normal infants. Following a discussion of the nature of the initial feeding difficulties, some parental anxieties related to the babies' malformation are enumerated. The birth of a congenitally damaged baby is experienced as a grievous loss by the mother. The length, depth, and nature of the resolution of her mourning reaction influences significantly the mother-child relationship. The key position of the medical doctor in relieving parental anxieties and alleviating grief is emphasized. His emotional understanding and continued support play an important part in the development of a relaxed and accepting parent-child relationship.

2021 ◽  
Vol 17 (1) ◽  
Author(s):  
Yasir S. Jamal ◽  
Sabah S. Moshref ◽  
Abeer M. Baamir ◽  
Mazin O. Kurdi ◽  
Doaa Y. Jamal

Abstract Background Submucous cleft palate (SMCP) is a congenital abnormality with various clinical and anatomical features. Submucous cleft pathologies may be unrecognized during routine examinations. Current diagnostic techniques are constrained and unrevealing in presurgical patients. This prospective study aimed to evaluate transnasal palatal transillumination technique in diagnosis of SMCP at our institute hospital, during period from 2005-2020. Patients and methods Twenty-one cases with SMCP were recruited with age range from 2-60 months. Transnasal palatal transillumination with controllable light intensity endoscope used to evaluate SMCP and cases were photo and video recorded. Results In this study, 21 cases (13 males and 8 females) with SMCP were detected or confirmed by intranasal transnasal palatal transillumination. Frequency of SMCP patients at our institute was 3.39%. All patients presented with symptomatic complaints at diagnosis time, apart from 5 patients (23.8%) were diagnosed during cleft lip repair operations. Presenting symptoms were hypernasality (23.8%), delayed speech (23.8%), perforated palate with nasal escape of milk and food (14.3%), feeding difficulties (14.3%), and otitis media (4.8%). During intra-oral examination, all cases had a bifid uvula accompanied SMCP. Submucous cleft palate appeared as thin palate with central lucency. According to operative findings, operations done for repair were mostly two long palatal flaps (n = 13, 61.9%), von Langenbeck (n = 5, 23.8%), simple repair with lateral release incisions (n = 2, 9.6%), and simple repair without lateral release incision (n = 1, 4.8%). Conclusions Intraoperative assessment of submucous cleft palate with transnasal palatal transillumination is easy and cheap method to avoid missing cases of SMCP.


2021 ◽  
pp. 105566562110512
Author(s):  
Cameron Penny ◽  
Connor McGuire ◽  
Michael Bezuhly

Objective Various devices and techniques have been proposed to reduce feeding difficulties experienced by infants with cleft palate. The aim of this review is to identify and assess the scope and quality of evidence for these interventions. Methods A systematic review of published literature evaluating feeding interventions for infants with cleft palate (with or without cleft lip) from database inception to 2021 was conducted using Preferred Reporting Items for Systematic Reviews guidelines. Quality appraisal of included studies was conducted using a methodological index for nonrandomized studies, Cochrane, or a measurement tool to assess systematic reviews 2 instruments, according to study type. Results Fourteen studies met inclusion criteria, with the majority (71%) of studies consisting of second-level evidence. Included interventions were specialty bottles (21%), alternative feeding delivery systems (14%), obturators (14%), and educational programs (14%). Specialty bottles and palatal obturators did not appear to offer any substantial growth advantages compared to traditional bottles or no intervention, respectively. Designated education programs for the mothers of infants with clefts had a positive impact on infant growth. Conclusions Overall evidence evaluating feeding interventions for infants with cleft palate was moderate to low. While it does not appear that specialized feeding delivery systems or palatal obturators significantly improve growth in infants with clefts compared to children without cleft conditions, education programs do appear to be beneficial.


2016 ◽  
Vol 39 (1) ◽  
pp. 209-229 ◽  
Author(s):  
Esther S. Chang

The current study is based on the responses of 153 married Korean mothers accompanying their youth in the United States or in New Zealand while their spouses remained in Korea. Kirogi means “wild geese” in Korean and has come to refer to split-family transnational living for the sake of children’s education. Spillover, or a positive correlation, between indicators assessing marital and parent–child relationship quality was tested within the transnational family context. It was also hypothesized that mother–child relationship quality and youth’s educational progress would be positively and uniquely predictive of indicators of maternal well-being when compared with marital quality due to education-focused Confucian values among Koreans. Results indicated positive correlations between indicators of marital and parent–child relationship quality; and only measures of marital quality had unique associations with maternal well-being.


2012 ◽  
Vol 24 (1) ◽  
pp. 79-92 ◽  
Author(s):  
Susan G. Timmer ◽  
Dianne Thompson ◽  
Michelle A. Culver ◽  
Anthony J. Urquiza ◽  
Shannon Altenhofen

AbstractThe purpose of this study was to investigate the effects of mothers' physical abusiveness on the quality of the mother–child relationship, and note how it further varied by their exposure to interparental violence (IPV). The sample consisted of 232 clinic-referred children, aged 2 to 7 years, and their biological mothers. Slightly more than a quarter of the children (N = 63, 27.2%) had been physically abused by their mothers; approximately half of these children also had a history of exposure to IPV (N = 34, 54%). Investigating effects of physical abuse in the context of IPV history on mothers' and children's emotional availability, we found that physically abused children with no IPV exposure appeared less optimally emotionally available than physically abused children with an IPV exposure. However, subsequent analyses showed that although dyads with dual-violence exposure showed emotional availability levels similar those of nonabusive dyads, they were more overresponsive and overinvolving, a kind of caregiving controllingness charasteric of children with disorganized attachment styles. These findings lend some support to the notion that the effects of abuse on the parent–child relationship are influenced by the context of family violence, although the effects appear to be complex.


2021 ◽  
pp. 027623662110174
Author(s):  
Michael Schredl ◽  
Naiara Cadiñanos Echevarria ◽  
Louise Saint Macary ◽  
Alexandra Francesca Weiss

Social interactions with close persons are very important and one would expect – according to the continuity hypothesis of dreaming – that the dreamer's own children would show up in dreams quite frequently. So far the extent to which dreams include the dreamer’s own children has not been studied systematically. Overall, 1695 persons (960 women, 735 men; age mean: 53.84 ± 13.99 years) completed an online survey that included questions about dreams and waking-life experiences with their children. The findings indicate parents dream about their children in 17% of the remembered dreams, whereas participants without children only dream about having fictive children in the dream in less than 3% of all their recalled dreams. Results indicate that average emotional tone of the dreams with their own children was positive, but dreams might also focus on conflicts and worries as the mean emotional tone within dreams was less positive that the mean estimates of the emotional tone of the waking-life relationship. This first study on the frequency with which a dreamer’s own children appear in their dreams is a starting point to take a closer look at the way the parent-child relationship is reflected in dreams.


2017 ◽  
Vol 41 (S1) ◽  
pp. S685-S685
Author(s):  
V. Guerriero ◽  
A. Gnazzo ◽  
G. de Campora ◽  
E. Vegni ◽  
G.C. Zavattini

IntroductionLiterature on parents of children affected from cleft lip and/or palate has described the risk of higher levels of stress and anxiety during the pre-surgery period. To the best of our knowledge, just one study has empirically investigated the differences in the psychosocial adjustment of both mothers and fathers, but information on the pre-surgery period were not given. Given that, the aim of the current study is to evaluate the psychological functioning of both parents waiting for the child operation.MethodData from 34 Italian parents (F = 18; M = 16; Mean age = 36.62, SD = 6.07) of children affected by cleft lip and/or palate (Mean age = 12 months; SD. = 13.75 months) were collected during the pre-hospitalization visits. The following questionnaires were administered, respectively to mothers and fathers: PSI-SF, MSPSS, PACQ, DAS and FACES-IV.ResultsData shows no significant differences between fathers and mothers on the total score of each variable taken into account. Differently, significant differences emerge on the “Self Blame” PACQ subscales.ConclusionsMothers and fathers seem to share the same psychological experience during their child pre-surgery period. To note, our preliminary data highlight the maternal perception as featured by a greater sense of guilty for the child's disease. The feeling of guilt may be a risk factor for the parental ability to cope with the experiences of the child's illness, influencing parental care giving and parent-child relationship.Disclosure of interestThe authors have not supplied their declaration of competing interest.


2019 ◽  
pp. 088626051987015
Author(s):  
Zhaona Cai ◽  
Meifang Wang ◽  
Fang Wang

Based on the actor–partner interdependence model (APIM), this study examined the actor and partner effects of parental harsh discipline on the parent–child relationship in a sample of Chinese children. A total of 1,149 Chinese middle-school-aged children who were recruited to participate in this survey completed measures of their fathers’ and mothers’ psychological aggression (PA) and corporal punishment (CP) toward them and their affinitive and conflicting relationship with the father and mother. Results from the APIM analysis showed that both fathers’ and mothers’ harsh discipline were negatively associated with parent–child affinity and positively associated with parent–child conflict (βs < .33, ps < .001). Furthermore, results also showed that mothers’ CP was negatively related to father–child affinity (βs = −.10, ps < .01) and mothers’ CP and PA were positively related to father–child conflict (βs < .13, ps < .01), whereas fathers’ harsh discipline was not related to mother–child relationship (βs > .04, ps > .05). Findings indicated that a parent’s harsh discipline affected not only their own relationship with children but also their spouse’s relationship with children. Findings in the present study highlighted the importance of decreasing both fathers’ and mothers’ use of harsh discipline when conducting appropriate prevention intervention to improve the parent–child relationship, especially the father–child relationship.


2013 ◽  
Vol 25 (1) ◽  
pp. 105-118 ◽  
Author(s):  
Ashlea M. Klahr ◽  
Katherine M. Thomas ◽  
Christopher J. Hopwood ◽  
Kelly L. Klump ◽  
S. Alexandra Burt

AbstractThe behavior genetic literature suggests that genetically influenced characteristics of the child elicit specific behaviors from the parent. However, little is known about the processes by which genetically influenced child characteristics evoke parental responses. Interpersonal theory provides a useful framework for identifying reciprocal behavioral processes between children and mothers. The theory posits that, at any given moment, interpersonal behavior varies along the orthogonal dimensions of warmth and control and that the interpersonal behavior of one individual tends to elicit corresponding or contrasting behavior from the other (i.e., warmth elicits warmth, whereas control elicits submission). The current study thus examined these dimensions of interpersonal behavior as they relate to the parent–child relationship in 546 twin families. A computer joystick was used to rate videos of mother–child interactions in real time, yielding information on mother and child levels of warmth and control throughout the interaction. Analyses indicated that maternal control, but not maternal warmth, was influenced by evocative gene–environment correlational processes, such that genetic influences on maternal control and child control were largely overlapping. Moreover, these common genetic influences were present both cross-sectionally and over the course of the interaction. Such findings not only confirm the presence of evocative gene–environment correlational processes in the mother–child relationship but also illuminate at least one of the specific interpersonal behaviors that underlie this evocative process.


2016 ◽  
Vol 4 (1) ◽  
Author(s):  
Dr. Manju Pandey

Girl education is emerging as one of the top priorities of Indian society “educating girls is not an option it is necessity”, we all want to eliminate gender disparities in education. As woman is the central figure of family and she is the first and ideal teacher of children.  All personality theorists point out the significant role of mother in child development. As child is the future of nation. The hope of all around development, peace and prosperity of the society, nation and even world was rest upon the tender shoulders of the child. But how far it is possible if mother is not educated? Numerous studies have highlighted the strong correlation between mother’s education and child health or survival probability. Good parent-child relationship is essential for all around (physical, mental, social, emotional, psychological, educational or even spiritual) development of child, the future of nation. Educating girls brings many benefits to society. As educated mother gives importance to education and they invest more in their children’s schooling and this improves society’s development prospect. They give equal importance to education, health and increase the productivity of future generation. And if they are not educated then the productivity and capacity of future generation will be low. Keeping this fact in mind the researcher makes an effort to investigate the effect of mothers education on mother child relationship or significance of mother’s education on development and up bring of their children. For the present study 40 educated mothers (EM) and 40 uneducated mothers (UM) aged 25 to 40 were taken from Srinagar Garhwal, Uttrakhand. The Parent Child Relationship Scale was developed by Dr H.C. Sharma & Dr N.S. Chauhan and Personal Data sheet were used for collecting data. The X2 was used for the statistical analysis of data. The above results manifests that educated mothers are significantly differ on six dimensions out of eight dimension of Parent Child Relationship Scale, from uneducated mothers. It projects that mother’s education play very crucial role in proper all around development of children and healthy parent children relationship.


2021 ◽  
Vol 4 (1) ◽  
pp. 20-28
Author(s):  
B Pathak ◽  
KR Joshi ◽  
S Bhattarai ◽  
H Joshi

Introduction: Cleft lip and cleft palate (CLCP) affects several systems and functions of the child and result in social and psychological problems.Therefore early repair of CLCP is imperative. Every cleft center follows its own surgical treatment protocol. Before closure of palatal defects, babies with cleft palate have great difficulty in feeding. To overcome this feeding difficulties, use of special bottles, nipples, initial palatal obturator therapy are used. The first exposure of those children are primarily the medical doctors including pediatricians from where they are generally referred to the concerned speciality for repair of CLCP. The aim of this study was to assess the knowledge and practice of orofacial clefts and feeding plate obturator among medical doctors working in Kanti Children’s Hospital (KCH). Method: This was a questionnaire based survey among medical doctors working in KCH. The pretested questionnaire with 7 questions each on the knowledge and practice of feeding plate obturator was distributed among the medical doctors and data was collected. The data collected were subjected to statistical analysis using frequency of responses and percentages. Results: Of the total 57 study participants, 32 (56.1%) were males and 25 (43.9%) were females. Majority i.e. 61.4% belonged to 31-40 years age group. 91.2% study participants faced the cleft lip/ palate related feeding difficulties 0-5 times/month while 5 (8.8%) faced this condition 6-10 times/ month. Majority of the infants who were less than 28 days (43.9%) attended the OPD due to difficultyin feeding/ swallowing (57.9%) followed by regurgitation/ aspiration (22.8%). 49.1% of the participants thought feeding plate oburator as the best way to feed a cleft patient on discharge from hospital. In their clinical practice, three fourth of paticipants (70.2%) had never seen a patient with feeding plate obturator, half of the participants (50.9%) didn’t advise for feeding plate obturator for patients withcleft palate and 89.5% were not aware of the replacement of feeding plate obturator. Conclusion: There is low exposure regarding the feeding plate obturator among medical doctors in KCH which needs to be reinforced through meaningful continuing education and training programs.


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