scholarly journals A primer Sjögren-szindróma pszichológiai vonatkozásai

2021 ◽  
Vol 162 (39) ◽  
pp. 1558-1566
Author(s):  
László V. Módis ◽  
Antónia Szántó ◽  
Antal Bugán
Keyword(s):  
Quality Of Life ◽  
Cognitive Functions ◽  
Autoimmune Disorder ◽  
Body Image Disturbance ◽  
Personality Factor ◽  
Related Data ◽  
Primary Sjögren Syndrome ◽  
Oral Dryness ◽  
Psychological Features

Összefoglaló. A primer Sjögren-szindróma (pSS) krónikus autoimmun betegség, melynek elsődleges tünetei az exokrin mirigyeket érintő autoimmun folyamat következtében létrejövő szem- és szájszárazság, szisztémás manifesztációi között pedig a leggyakoribbak a szellemi és fizikai fáradtság és az ízületi fájdalmak. A betegség lélektani vonatkozásait nagy érdeklődés övezi; közleményünk a vonatkozó kutatási eredményeket foglalja össze a hátterükben húzódó pszichoneuroimmunmodulációs háttér rövid bemutatásával. A pSS pszichológiai tényezői közt a legrégebben vizsgáltak a depresszió és a szorongás. Ezek jelentős hatással vannak a betegek életminőségére, jóllétére, kognitív funkcióira, sőt a betegség aktivitására is. Bemutatjuk továbbá a stressz és a megküzdési stratégiák jellegzetes mintázatait pSS-ben, amelyek közt a betegségre jellemző maladaptív stratégiák a legjelentősebbek a patogenezis megértése és a kezelés szempontjából. Ilyenek a tagadás, a hasítás és a helyettesítés. Kitérünk a Sjögren-szindrómát kísérő személyiségjellemzőkre is, amely ígéretes terület, de kevés adat áll rendelkezésünkre; az eddigi vizsgálatok alapján a neuroticismus a leginkább pSS-re jellemző tényező. A kognitív funkciók érintettségének összefoglalása és az egyéb pszichológiai tényezők (szellemi fáradtság, szexualitás, testképzavar, életminőség) összegzése után egyértelműen levonható a következtetés, hogy a Sjögren-szindróma nemcsak biológiai, hanem pszichés, pszichoszociális és szociális jelenségszinteken is okoz zavarokat, tüneteket. Ezért rendkívül fontos a betegség biopszichoszociális szemléletű kezelése, a betegek aktív, intencionális részvétele a pSS-sel való megküzdésben. Orv Hetil. 2021; 162(39): 1558–1566. Summary. Primary Sjögren syndrome (pSS) is a chronic, autoimmune disorder. Primary symptoms are ocular and oral dryness as a of an autoimmune process affecting the exocrine glands. The most common systemic manifestations of the disease are mental and physical fatigue and arthralgia. Psychological features of pSS are studied with great interest; the present publication reviews the results of the related investigations alongside with the possible psychoneuroimmunomodulatory background. Among psychological factors in pSS, depression and anxiety have been studied the longest. These impact significantly the quality of life, wellbeing, cognitive functions and disease activity of the patients. Afterwards, we introduce the characteristic patterns of stress and coping mechanisms in pSS, among which maladaptive strategies, typical for the disorder are the most important regarding the pathogenesis and the therapy. These pSS-linked maladaptive strategies are denial, disengagement and focus and venting of emotions. As next, we give a summary about personality characteristics in pSS, which is a promising field to study, and yet very few related data are available; based on them, neuroticism seems to be the most common personality factor in Sjögren’s. After summarizing briefly cognitive functions and other psychological features (mental fatigue, sexuality, body image disturbance and quality of life), it is evident that pSS is determined not only by biological but also by psychological, psychosocial and social disturbances. Hence, treating pSS patients with a biopsychosocial perspective is crucial and so is the active and intentional participation of patients in their recovery. Orv Hetil. 2021; 162(39): 1558–1566.

Features and methods of assessing health-related quality of life and cognitive functions in patients with glial tumors

2020 ◽  
pp. 47-56
Author(s):  
Vera Arsenyeva ◽  
Boris Martynov ◽  
Gennadiy Bulyshchenko ◽  
Dmitriy Svistov ◽  
Boris Gaydar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Functions ◽  
Well Being ◽  
Health Related Quality ◽  
Number Of Patients ◽  
Related Quality ◽  
Health Related ◽  
Eortc Qlq ◽  
Patients With Epilepsy

Gliomas make up about 8 cases per 100,000 population and the number of patients with this disease is only increasing. There can be not only various types of neurological deficits among the symptoms, but also personal and emotional changes, that seriously affects the quality of life. The modern model of health care includes not only recovery of the patient’s physical functions, but also his or her psychosocial well-being. In particular, the assessment and study of the characteristics of health-related quality of life, as well as cognitive functions in patients with gliomas, is increasingly recognized as an important criterion when considering the effectiveness of treatment. To date, the features of health related quality of life and cognitive functions of patients with epilepsy and acute cerebral circulation disorders have been studied sufficiently, and, as a result, techniques have been developed that accurately assess the QOL and CF in patients with these diseases. These are QOLIE-31 and QOLIE-AD-48 questionnaires for patients with epilepsy. This is the National Institutes of Health Stroke Scale (NIHSS), Orgogozo stroke scale (OSS), World Federation of Neurological Surgeons (WFNS) scale for the clinical assessment of subarachnoid hemorrhage (SAH) for patients with acute cerebrovascular accident. At the same time, there are no generally accepted methods for assessing quality of life and neurocognitive functions that are sensitive to changes in the condition of patients with gliomas in the early postoperative period by the time of discharge from the hospital. As a result, there is no systematic information on the dynamics of the quality of life of such patients, their neurocognitive functioning. The purpose of this article was to study the literature on QOL and CF in patients affected by neurological and neurosurgical disorders for the further selection of optimal methods for assessing dynamics of the condition of patients with glial brain tumors before and after surgery. At the moment, such requirements are only partially met by the EORTC QLQ-C30 questionnaire and its application EORTC QLQ-BN20.

P.2.092 Quality of life and cognitive functions in schizophrenia

2003 ◽  
Vol 13 ◽  
pp. S320 ◽  
Author(s):  
Y. Akvardai ◽  
B.B. Kivircik ◽  
K. Alptekin ◽  
K. Dumlu ◽  
D. Isik ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cognitive Functions

Role of Panchakarma in Amavata W.S.R. Systemic Lupus Erythmatosus A Case Study

2020 ◽  
Vol 8 (02) ◽  
Author(s):  
Dr Kailas Sonmankar
Keyword(s):  
Quality Of Life ◽  
Drug Resistance ◽  
Autoimmune Disorder ◽  
Systemic Lupus

Abstract: SLE an autoimmune disorder where mulitisystem is involved.Its management is done by analgesics and cortiocosteriods . Drug resistance ,increasing doses of haepatotoxic drugs and imunosupressants steroids are hazards of the management .Here the patient suffering from SLE  was unable to do her day today work. Panchakarma treatment is found very effective in this case to improve her quality of life and to live with her own.

Clinical and psychological features of acne women with infertility

2017 ◽  
pp. 118-122
Author(s):  
O.I. Zadnipryanaya ◽  
Keyword(s):  
Quality Of Life ◽  
Emotional Disorders ◽  
Social Effect ◽  
Sexually Transmitted ◽  
History Of ◽  
Atrophic Scars ◽  
Infertility Patients ◽  
Psychological Features ◽  
Infertile Patients

The objective: the study of clinical and psychological features of acne and quality of life in women with infertility. Patients and methods. 151 patients were included in the study: 111 with acne and infertility, 40 fertile women with acne entered the comparison group. An anamnesis, a dermatological and gynecological status, a hormonal background, an assessment of the psycho-emotional state and quality of life of patients (a Dermatological Index of Quality of Life – DIQL, the Hospital Scale of Anxiety and Depression – HADS), and the psychological and social effect of acne (APSEA questionnaire) were evaluated. Results. Infertile women with acne reliably recorded open and closed comedones, more often papules, stagnant spots, hyperpigmentation, enlarged pores, as well as atrophic scars were more often detected. They are characterized by a later menarche, an early onset of sexual activity. In 56.8% of infertile patients in the history of the disease, sexually transmitted diseases, abortions (8.1%), miscarriages and stagnant pregnancies (12.6%), ectopic pregnancy (4.5%). It was found that infertility lasts on average 4.9±3.6 years, with primary infertility diagnosed in 69.4% of cases. The endocrine nature of infertility was confirmed in 48 (43.2%) patients, tubo-peritoneal – in 63 (56.8%) of the women. It was found that the disease has a very strong effect on the quality of their life (13.3±6.2 points), causes a strong psychological and social effect (87.8±28.1 points), clinically expressed anxiety (11.8±4.4 points) and depressiveness (11.6±3.8 points). Conclusion. Acne in infertile patients in addition to clinical features is accompanied by significant violations of the psycho-emotional sphere and a decrease in the quality of life. Key words: women with acne and infertility, quality of life, psycho-emotional disorders, psychological and social effect of acne.

QUALITY-OF-LIFE STUDY IN PATIENTS WITH METABOLIC SYNDROME AND COGNITIVE DISORDERS

2021 ◽  
pp. 13-22
Author(s):  
Zueva I.B. ◽  
Yushkova I.D. ◽  
Makarenko S.V. ◽  
Kim Y.V.
Keyword(s):  
Quality Of Life ◽  
Metabolic Syndrome ◽  
Physical Functioning ◽  
Cognitive Functions ◽  
Test Score ◽  
Neuropsychological Testing ◽  
Strong Association ◽  
Cognitive Disorders ◽  
Aged Patients

Nowadays, there is a tendency for an increasing prevalence of metabolic syndrome (MS) among middle-aged patients. It seems relevant to determine the quality of life in patients with MS and cognitive impairment (CI) in this age group. Aim of the study. Studying the quality of life in patients with MS and CI. Material and methods. In total, 208 people were examined. Out of a total number, 178 patients were divided into 2 groups: some were diagnosed with MS and CI, and some patients had MS but no cognitive deficit. The comparison group consisted of 30 healthy individuals of comparable age. All patients underwent neuropsychological testing. The method of cognitive evoked potential (P300) with the use of EMG/VP Nicolet Viking Select was chosen to quantitatively assess cognitive functions of the patients. Quality of life was assessed by the use of SF 36. Results and discussion. In the group with MS and CI, compared with patients who have MS but no cognitive disorders, the indicators of general health were lower (52.30±13.90 and 58.22±10.96 points, respectively, p<0.05), physical functioning (69.23±19.79 and 77.13±15.46 points, respectively, p<0.05), emotional role functioning (42.17±21.79 and 56.93±19.84 points, respectively, p<0.05), self-assessment of mental state (53.68±11.84 and 58.39±12.4 points, respectively, p<0.05). In patients with MS and cognitive disorders, a strong association was found between the results of the MMSE test (r=0.39; p=0.015), the Wechsler memory test score (r=0.29; p=0.014), the FAB test score (r=0.43; p=0.018), and physical functioning scores. Mental health scores were associated with the results of the Wexler test (r=0.27; p=0.014). In the group with MS and CI, there was a positive correlation between the amplitude of P300 and indicators of physical functioning (r=0.40; p=0.016). Findings. In the group of patients with MS and CI, compared with patients without cognitive disorders, there is a decrease in the quality of life, especially in indicators of physical functioning. The quality-of-life parameters of patients with MS are associated with cognitive functions determined both by neuropsychological testing and by P300.

scholarly journals B.05 The importance of mental health in improving quality of life in transition-aged patients with epilepsy

2019 ◽  
Vol 46 (s1) ◽  
pp. S11
Author(s):  
KC Mabilangan ◽  
S Healy ◽  
T Fantaneanu ◽  
S Whiting
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Health Issues ◽  
Aged Patients ◽  
Related Data ◽  
Mental Health Issues ◽  
Transition Clinic ◽  
Elevated Rate ◽  
The Individual

Background: Growing evidence has that a suggested that mental health strongly influences quality of life (QoL) in adolescents with epilepsy. In addition, research has suggested that these mental health issues are associated with increased seizure burden and worsened health outcomes. Despite this, and the elevated rate of mental health issues in this population, seizure control tends to be the dominant or sole concern for treating physicians. Methods: In order to look at potential predictors of QoL in adolescents we looked at seizure related data, demographic variables, and comorbid conditions in 70 adolescents with epilepsy aged 14 to 18 (M= 16.3l; 37 males, 33 females) enrolled into an epilepsy transition clinic. Results: Regression analysis found that mental health remained a significant and independent predictor of QoL even when other significant seizure related variables were accounted for (t(58)= -3.44, p= .001). Furthermore, when looking at the individual subscales of patient QoL (e.g., memory, social support, stigma), mental health was consistently found to be the strongest correlate. Conclusions: These results demonstrate that in order to ensure the best outcomes for transition-aged adolescents with epilepsy, it is important to not only manage and treat seizures, but also to assess and treat mental health issues.

scholarly journals Effects of Occupation-Based Intervention for Older People with Mild Dementia in the Institution

2021 ◽  
Vol 6 (16) ◽  
pp. 119-125
Author(s):  
Syamsul Anwar Sultan Ibrahim ◽  
Akehsan Dahlan ◽  
Ahmad Zamir Che Daud
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Cognitive Functions ◽  
Social Relationship ◽  
Publishing House ◽  
Control Group ◽  
Mild Dementia ◽  
People With Dementia ◽  
Significant Difference

Older people with dementia always experience the cognitive difficulties that are believed to impact their daily life significantly. However, information regarding occupation-based intervention toward older people with mild dementia in the institution is inconclusive. The results of this randomized controlled trial indicate a significant difference in cognitive functions, social relationship, and the quality of life. Participants in the experimental group improved significantly compared to the participants in the control group. Engagement in occupational activities should be encouraged to older people with mild dementia in institution to facilitate the cognitive functions, social relationship, and quality of life. Keywords: older people; mild dementia; occupation-based; quality of life eISSN: 2398-4287© 2021. The Authors. Published for AMER ABRA cE-Bs by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians/Africans/Arabians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia. DOI: https://doi.org/10.21834/ebpj.v6i16.2727

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