scholarly journals Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

2021 ◽  
Vol 39 (2) ◽  
Author(s):  
Joice Soares Campos ◽  
Anna Cláudia Yokoyama Dos Anjos ◽  
Sebastião Benício da Costa Neto ◽  
Rodrigo Sanches Peres
Keyword(s):  
Elderly Patients ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Care Process ◽  
Degenerative Diseases ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Data Saturation ◽  
Healthy Family ◽  
Healthy Family Member

Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.  Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context.   Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles.  Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.  

scholarly journals Use of psychotropic medications by caregivers of elderly patients with dementia: is this a sign of caregiver burden?

2012 ◽  
Vol 70 (3) ◽  
pp. 169-174 ◽  
Author(s):  
Einstein Francisco Camargos ◽  
Andrea Brígida Souza ◽  
Aline Silva Nascimento ◽  
Alessandra Cicari Morais-e-Silva ◽  
Juliana Lima Quintas ◽  
...  
Keyword(s):  
Elderly Patients ◽  
Caregiver Burden ◽  
Psychotropic Drugs ◽  
Cross Sectional Study ◽  
Psychotropic Medications ◽  
Sectional Study ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Sleeping Pills

This study evaluated the consumption of psychotropic medications by caregivers of elderly patients with or without dementia. This was a cross-sectional study conducted at all geriatric units in Brasília, Brazil, during a two-month period. Structured interviews were performed with 311 caregivers of people with or without dementia and they completed questionnaires. Among the caregivers, 196 (63%) were caregivers of patients with dementia and 115 (37%) were caregivers of patients without dementia. Forty-four caregivers (14.1%) were taking psychotropic drugs (benzodiazepines or antidepressants), and this usage was more frequent among caregivers of patients with dementia (p<0.01). Twenty-two caregivers of patients with dementia (11.4%) had used sleeping pills after beginning care, compared with only five (4.3%) caregivers of patients without dementia (p<0.01). In conclusion, this study found that caregivers of patients with dementia took psychotropic drugs (benzodiazepines and antidepressants) more frequently than the ones of patients without dementia.

scholarly journals Factors Related to the Burden of Family Caregivers of Elderly Patients with Spinal Tumours in Northwest China

2020 ◽  
Author(s):  
Jing Luo ◽  
yongchun Zhou ◽  
Haiping Liu ◽  
Jing Hu
Keyword(s):  
Social Support ◽  
Elderly Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Self Efficacy ◽  
Rating Scale ◽  
Care Process ◽  
Cancer Site ◽  
Spinal Tumours ◽  
Cross Sectional

Abstract Background: Family caregivers of elderly patients with spinal tumours experience considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in family caregivers of elderly patients with spinal tumours. Methods: A total of 220 elderly patients with spinal tumours (age ≥ 65 years) hospitalized at the spine centre of our hospital from January 2015 to December 2017 and their family caregivers were recruited for this cross-sectional study. All participants completed a sociodemographic questionnaire. Caregiver burden, social support and self-efficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), the Social Support Rating Scale (SSRS) and the General Self-Efficacy Scale (GSE), respectively. The factors related to caregiver burden were analysed by multivariate analysis. P < 0.05 was considered statistically significant. Results: The 216 elderly patients with spinal tumours were 71.59 ± 8.49 years old, and their caregivers were 70.46 ± 9.13 years old. A total of 170 patients were cared for by their spouses, who accounted for 78.7% of all caregivers. The ZBI score for the family caregivers was 35.5 ± 7.5, and most caregivers (84.5%) reported a moderate or heavy burden. The factors related to caregiver burden included patient paralysis, the primary cancer site, chemotherapy and/or radiation, cognitive dysfunction, functional status, monthly income, pain score, caregivers’ SSRS score, and GSE score. Conclusions: Most family caregivers of elderly patients with spinal tumours have a considerable caregiver burden. Interventions based on social support and self-efficacy can help reduce caregiver burden.

scholarly journals Could Caregivers’ Stressful Care Experiences Be Related to Their Attitudes towards Advance Care Planning? A Cross-Sectional Descriptive Study

2021 ◽  
Vol 18 (17) ◽  
pp. 9038
Author(s):  
Pei-Yu Tsai ◽  
Wen-Han Huang ◽  
Yu-Jun Chang
Keyword(s):  
Family Caregivers ◽  
Advance Care Planning ◽  
Cross Sectional Study ◽  
Care Process ◽  
Care Planning ◽  
Related Factors ◽  
Cross Sectional ◽  
Care Recipients ◽  
Positive Attitudes ◽  
Advance Care

Previous research has shown that care experiences influence the willingness for advance care planning (ACP). Family caregivers have increased contact with medical providers and procedures in the process of caring, and they have also witnessed the disability and suffering of patients. However, few studies have focused on family caregivers to understand their attitudes towards ACP. The aim of this cross-sectional study was to acknowledge family caregivers’ attitudes towards ACP and the related factors, especially care stress and experiences during the care process. We interviewed 291 family caregivers, and the demographics of the caregivers and care recipients, the clinical condition of care recipients, and the caregivers’ stress and care experiences were collected via anonymous questionnaires. Multiple logistic regression was performed to determine the factors associated with the attitudes towards ACP. We found that the caregiver having private health insurance (p < 0.001) and a completed DNR (p < 0.001) and the experience of recipients admitted to the ICU (p = 0.019) are associated with caregiver’s positive attitudes towards ACP. The greater the stress of conflict within a family over care decisions, the more participants think that ACP is important (p = 0.011). It is suggested that (1) in a family-centered culture, a public strategy for promoting ACP could be to emphasize the benefits of ACP in reducing family conflicts, and (2) when people make financial plans, they should also be provided with information about ACP to enable them to form a more integral plan for their future.

scholarly journals Factors associated with the burden of family caregivers  of elderly patients with femoral neck fracture: a cross-sectional study

2020 ◽  
Author(s):  
Peifen Xiao ◽  
Yongchun Zhou
Keyword(s):  
Social Support ◽  
Femoral Neck ◽  
Elderly Patients ◽  
Femoral Neck Fracture ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Self Efficacy ◽  
Cross Sectional Study ◽  
Cross Sectional ◽  
Neck Fracture

Abstract Background: This study aimed to study the factors associated with caregiver burden among caregivers of elderly patients with femoral neck fracture. Methods: This cross-sectional study was based on a non-probabilistic sampling of 183 elderly postoperative patients (aged 65 years or older) with femoral neck fracture who were hospitalized in the orthopaedic centre in our hospital and their family caregivers. Data were collected from January 2016 to June 2019. Patients and family caregivers completed the sociodemographic questionnaire. The Social Support Rating Scale (SSRS), the General Self-Efficacy Scale (GSE) and the Chinese version of the Zarit Burden Interview (ZBI) were used to evaluate social support, self-efficacy and caregiver burden, respectively. By analysing the clinical data of patients and family caregivers and combining the factors that affect the caregiver burden in parallel studies, we selected the factors that affected the caregiver burden in this study and conducted a multivariate analysis of these factors. P <0.05 was considered statistically significant. Results: We observed 176 caregivers aged 69.28 ± 7.19 years old, among whom 52.3% were male, 58.0% lived in the city, 84.0% were spouses of the patients, and 67.0% had a primary school educational background. The ZBI score of the family caregivers was 37.8 ± 8.9, and 82.7% of the caregivers were under a moderate to severe burden. The patient’s functional status, Harris score, and pain score and the caregiver’s SSRS scores, GSE scores, and the ratio of medical expenses to monthly income per capita were factors that affected the caregiver burden. Conclusions: Most family caregivers of elderly patients with femoral neck fracture are subject to a considerable care burden, and social support and self-efficacy intervention are conducive to reducing the caregiver burden.

scholarly journals Factors Related to the Burden of Family Caregivers of Elderly Patients with Spinal Tumours in Northwest China

2020 ◽  
Author(s):  
Jing Luo ◽  
yongchun Zhou ◽  
Haiping Liu ◽  
Jing Hu
Keyword(s):  
Social Support ◽  
Elderly Patients ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Self Efficacy ◽  
Rating Scale ◽  
Care Process ◽  
Cancer Site ◽  
Spinal Tumours ◽  
Cross Sectional

Abstract Background: Family caregivers of elderly patients with spinal tumours experience considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in family caregivers of elderly patients with spinal tumours. Methods: A total of 220 elderly patients with spinal tumours (age ≥ 65 years) hospitalized at the spine centre of our hospital from January 2015 to December 2017 and their family caregivers were recruited for this cross-sectional study. All participants completed a sociodemographic questionnaire. Caregiver burden, social support and self-efficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), the Social Support Rating Scale (SSRS) and the General Self-Efficacy Scale (GSE), respectively. The factors related to caregiver burden were analysed by multivariate analysis. P < 0.05 was considered statistically significant. Results: The 216 elderly patients with spinal tumours were 71.59 ± 8.49 years old, and their caregivers were 70.46 ± 9.13 years old. A total of 170 patients were cared for by their spouses, who accounted for 78.7% of all caregivers. The ZBI score for the family caregivers was 35.5 ± 7.5, and most caregivers (84.5%) reported a moderate or heavy burden. The factors related to caregiver burden included patient paralysis, the primary cancer site, chemotherapy and/or radiation, cognitive dysfunction, functional status, monthly income, pain score, caregivers’ SSRS score, and GSE score. Conclusions: Most family caregivers of elderly patients with spinal tumours have a considerable caregiver burden. Interventions based on social support and self-efficacy can help reduce caregiver burden.

scholarly journals Family functionality and burden of family caregivers of users with mental disorders

2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Jaciquely José da Costa Andrade ◽  
Andrea Cristina Oliveira Silva ◽  
Iracema da Silva Frazão ◽  
Jaqueline Galdino Albuquerque Perrelli ◽  
Thassia Thame de Moura Silva ◽  
...  
Keyword(s):  
Mental Disorders ◽  
Family Caregivers ◽  
Care Center ◽  
Psychosocial Care ◽  
Cross Sectional Study ◽  
Care Process ◽  
Subjective Burden ◽  
Cross Sectional ◽  
The Difference ◽  
Family Functionality

ABSTRACT Objective: to verify the difference of mean or median in the scores of family functionality and burden of family caregivers of people with mental disorders. Methods: cross-sectional study carried out in a Psychosocial Care Center with 61 family caregivers. Instruments were used for sociodemographic characterization, care process, Family Apgar Index and Family Burden Interview Schedule. Mean/median difference tests were adopted. Results: women with mental disorders and the presence of children in the home decreased the median of the family Apgar score. Difficulty in the relationship between caregiver/user, nervousness/tension, physical aggression and agitation of patients increased the global average of subjective burden. Conclusions: nursing interventions to reduce burden and promote family functionality should prioritize caregivers of women with mental disorders, assist them in managing troublesome behaviors and raising awareness of family nucleus to co-responsibility for caring for sick people, especially in families with children who demand daily care.

scholarly journals Zellweger spectrum disorder: A cross-sectional study of symptom prevalence using input from family caregivers

2020 ◽  
Vol 25 ◽  
pp. 100694
Author(s):  
Mousumi Bose ◽  
David D. Cuthbertson ◽  
Marsha A. Fraser ◽  
Jean-Baptiste Roullet ◽  
K. Michael Gibson ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Cross Sectional Study ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptom Prevalence ◽  
Zellweger Spectrum Disorder
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