Factors Related to the Burden of Family Caregivers of Elderly Patients with Spinal Tumours in Northwest China

Abstract Background: Family caregivers of elderly patients with spinal tumours experience considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in family caregivers of elderly patients with spinal tumours. Methods: A total of 220 elderly patients with spinal tumours (age ≥ 65 years) hospitalized at the spine centre of our hospital from January 2015 to December 2017 and their family caregivers were recruited for this cross-sectional study. All participants completed a sociodemographic questionnaire. Caregiver burden, social support and self-efficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), the Social Support Rating Scale (SSRS) and the General Self-Efficacy Scale (GSE), respectively. The factors related to caregiver burden were analysed by multivariate analysis. P < 0.05 was considered statistically significant. Results: The 216 elderly patients with spinal tumours were 71.59 ± 8.49 years old, and their caregivers were 70.46 ± 9.13 years old. A total of 170 patients were cared for by their spouses, who accounted for 78.7% of all caregivers. The ZBI score for the family caregivers was 35.5 ± 7.5, and most caregivers (84.5%) reported a moderate or heavy burden. The factors related to caregiver burden included patient paralysis, the primary cancer site, chemotherapy and/or radiation, cognitive dysfunction, functional status, monthly income, pain score, caregivers’ SSRS score, and GSE score. Conclusions: Most family caregivers of elderly patients with spinal tumours have a considerable caregiver burden. Interventions based on social support and self-efficacy can help reduce caregiver burden.

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Factors Related to the Burden of Family Caregivers of Elderly Patients with Spinal Tumours in Northwest China

10.21203/rs.2.11622/v3 ◽

2020 ◽

Author(s):

Jing Luo ◽

yongchun Zhou ◽

Haiping Liu ◽

Jing Hu

Keyword(s):

Social Support ◽

Elderly Patients ◽

Family Caregivers ◽

Caregiver Burden ◽

Self Efficacy ◽

Rating Scale ◽

Care Process ◽

Cancer Site ◽

Spinal Tumours ◽

Cross Sectional

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Analysis on Factors Related to Family Caregivers Burden for Elderly Patients with Spinal Tumors in Northwest China

10.21203/rs.2.11622/v1 ◽

2019 ◽

Author(s):

Jing Luo ◽

Haiping Liu ◽

Jing Hu

Keyword(s):

Social Support ◽

Elderly Patients ◽

Caregiver Burden ◽

Self Efficacy ◽

Rating Scale ◽

Primary Caregivers ◽

Care Process ◽

Spinal Tumors ◽

Related Factors ◽

Cross Sectional

Abstract Background Primary caregivers of elderly patients with spinal tumors suffer considerable pain and burden during the care process. This study aims to investigate the factors associated with caregiver burden in elderly patients with spinal tumors. Methods A total of 220 elderly patients with spinal tumors (age, ≥ 65 years) hospitalized in the spine center of our hospital from January 2015 to December 2017 and their primary caregivers were selected in this cross-sectional study. Patients and their primary caregivers were all investigated through the sociodemographic questionnaire. The caregiver burden, social support and self-efficacy were assessed by the Chinese version of the Zarit Burden Interview (ZBI), Social Support Rating Scale (SSRS) and General Self-Efficacy Scale (GSE), respectively. The related factors of caregiver burden were analyzed by multivariate analysis. P < 0.05 was considered as statistically significant. Results The 216 elderly patients with spinal tumors aged (71.59 ± 8.49) years, and their caregivers aged (70.46 ± 9.13) years. 170 patients were cared for by spouses, accounting for 78.7% of all caregivers. ZBI score of primary caregivers was 35.5 ± 7.5, and most caregivers (84.5%) showed moderate or heavy burden. The factors related to caregiver burden included patients’ paralysis and pain scores and caregivers’ SSRS scores, GSE scores and monthly income. Conclusions Most primary caregivers of elderly patients with spinal tumors have considerable caregiver burden. The intervention of social support and self-efficacy is helpful to reduce caregiver burden.

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Factors associated with the burden of family caregivers of elderly patients with femoral neck fracture: a cross-sectional study

10.21203/rs.3.rs-18001/v2 ◽

2020 ◽

Author(s):

Peifen Xiao ◽

Yongchun Zhou

Keyword(s):

Social Support ◽

Femoral Neck ◽

Elderly Patients ◽

Femoral Neck Fracture ◽

Family Caregivers ◽

Caregiver Burden ◽

Self Efficacy ◽

Cross Sectional Study ◽

Cross Sectional ◽

Neck Fracture

Abstract Background: This study aimed to study the factors associated with caregiver burden among caregivers of elderly patients with femoral neck fracture. Methods: This cross-sectional study was based on a non-probabilistic sampling of 183 elderly postoperative patients (aged 65 years or older) with femoral neck fracture who were hospitalized in the orthopaedic centre in our hospital and their family caregivers. Data were collected from January 2016 to June 2019. Patients and family caregivers completed the sociodemographic questionnaire. The Social Support Rating Scale (SSRS), the General Self-Efficacy Scale (GSE) and the Chinese version of the Zarit Burden Interview (ZBI) were used to evaluate social support, self-efficacy and caregiver burden, respectively. By analysing the clinical data of patients and family caregivers and combining the factors that affect the caregiver burden in parallel studies, we selected the factors that affected the caregiver burden in this study and conducted a multivariate analysis of these factors. P <0.05 was considered statistically significant. Results: We observed 176 caregivers aged 69.28 ± 7.19 years old, among whom 52.3% were male, 58.0% lived in the city, 84.0% were spouses of the patients, and 67.0% had a primary school educational background. The ZBI score of the family caregivers was 37.8 ± 8.9, and 82.7% of the caregivers were under a moderate to severe burden. The patient’s functional status, Harris score, and pain score and the caregiver’s SSRS scores, GSE scores, and the ratio of medical expenses to monthly income per capita were factors that affected the caregiver burden. Conclusions: Most family caregivers of elderly patients with femoral neck fracture are subject to a considerable care burden, and social support and self-efficacy intervention are conducive to reducing the caregiver burden.

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Factors associated with the burden of family caregivers of elderly patients with femoral neck fracture: a cross-sectional study

10.21203/rs.3.rs-18001/v1 ◽

2020 ◽

Author(s):

Peifeng Xiao ◽

Yongchun Zhou

Keyword(s):

Social Support ◽

Femoral Neck ◽

Elderly Patients ◽

Femoral Neck Fracture ◽

Caregiver Burden ◽

Self Efficacy ◽

Primary Caregivers ◽

Cross Sectional Study ◽

Cross Sectional ◽

Neck Fracture

Abstract Background This study aimed to study the factors associated with caregiver burden among caregivers of elderly patients with femoral neck fracture. Methods This cross-sectional study was based on a non-probabilistic sampling of 183 elderly postoperative patients (aged 65 years or older) with femoral neck fracture who were hospitalized in the orthopaedic centre in our hospital and their primary caregivers. Data were collected from January 2016 to June 2019. Patients and primary caregivers completed the sociodemographic questionnaire. The Social Support Rating Scale (SSRS), the General Self-Efficacy Scale (GSE) and the Chinese version of the Zarit Burden Interview (ZBI) were used to evaluate social support, self-efficacy and caregiver burden, respectively. By analysing the clinical data of patients and primary caregivers and combining the factors that affect the caregiver burden in parallel studies, we selected the factors that affected the caregiver burden in this study and conducted a multivariate analysis of these factors. P <0.05 was considered statistically significant. Results We observed 176 caregivers aged 69.28 ± 7.19 years old, among whom 52.3% were male, 58.0% lived in the city, 84.0% were spouses of the patients, and 67.0% had a primary school educational background. The ZBI score of the primary caregivers was 37.8 ± 8.9, and 82.7% of the caregivers were under a moderate to severe burden. The patient’s functional status, Harris score, and pain score and the caregiver’s SSRS scores, GSE scores, and monthly income were factors that affected the caregiver burden. Conclusions Most primary caregivers of elderly patients with femoral neck fracture are subject to a considerable care burden, and social support and self-efficacy intervention are conducive to reducing the caregiver burden.

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Predictors of Depressive Symptoms among Family Caregivers of Patients with Dementia in Java, Indonesia

Siriraj Medical Journal ◽

10.33192/smj.2021.71 ◽

2021 ◽

Vol 73 (8) ◽

pp. 549-558

Author(s):

Yossie Susanti Eka Putri ◽

Yajai Sitthimongkol ◽

Virapun Wirojratana ◽

Natkamol Chansatitporn

Keyword(s):

Social Support ◽

Depressive Symptoms ◽

Family Caregivers ◽

Caregiver Burden ◽

Mental Health Problems ◽

Psychological Symptoms ◽

Healthcare Services ◽

Cross Sectional ◽

The Family ◽

The Relationship

Objective: Depressive symptoms are common mental health problems among the family caregivers of patients with dementia. However, little is known about the prevalence of depressive symptoms among the family caregivers of patients with dementia in Indonesia. This study aimed to examine: 1) the factors predicting depressive symptoms, 2) the mediating role of social support in the relationship between burden and depressive symptoms, and 3) the association between depressive symptoms and healthcare utilization among family caregivers.Materials and Methods: This was a cross-sectional study involving 250 family caregivers of patients with dementia recruited from four hospitals in Java, Indonesia. Data were collected by Zarit Burden Interview (ZBI); the Neuropsychiatric Inventory Questionnaire (NPI-Q), the Mastery scale, the Multidimensional Scale of Perceived Social Support, and the Center for Epidemiologic Studies Depression (CES-D) Scale. Descriptive statistics, chi-square test, hierarchical multiple linear regression, and Baron and Kenny's regression method were used to analyze the data.Results: The results revealed that about a quarter of the participants (24.8%) experienced depressive symptoms. Caregiver burden, mastery, behavioral and psychological symptoms of dementia, and social support explained 45.5% of the variance in the prevalence of depressive symptoms among family caregivers (R2=0.455). Social support also partially mediated the association between caregiver burden and depressive symptoms. There was no association between depressive symptoms and the use of healthcare services among the family caregivers.Conclusion: The findings revealed that social support is a mediating factor affecting the relationship between caregiver burden and depressive symptoms. Interventions targeting social support to help alleviate caregiver burden would be effective in helping reduce depressive symptoms in the family caregivers of patients with dementia.

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Self-efficacy moderation and mediation roles on BPSD and social support influences on subjective caregiver burden in Chinese spouse caregivers of dementia patients

International Psychogeriatrics ◽

10.1017/s1041610214000994 ◽

2014 ◽

Vol 26 (9) ◽

pp. 1465-1473 ◽

Cited By ~ 15

Author(s):

Shuying Zhang ◽

Qihao Guo ◽

Helen Edwards ◽

Patsy Yates ◽

Chunbo Li

Keyword(s):

Social Support ◽

Caregiver Burden ◽

Self Efficacy ◽

Mediation Effect ◽

Subjective Burden ◽

Cross Sectional ◽

Dementia Patients ◽

Spouse Caregivers ◽

Subjective Caregiver Burden ◽

The Impact

ABSTRACTBackground:This study aims to explore moderation and mediation roles of caregiver self-efficacy between subjective caregiver burden and (a) behavioral and psychological symptoms (BPSD) of dementia; and (b) social support.Methods:A cross-sectional study with 137 spouse caregivers of dementia patients was conducted in Shanghai. We collected demographic information for the caregiver–patient dyads, as well as information associated with dementia-related impairments, caregiver social support, caregiver self-efficacy, and SF-36.Results:Multiple regression analysis showed that caregiver self-efficacy was a moderator both between BPSD and subjective caregiver burden, and social support and subjective caregiver burden. Results also showed a partial mediation effect of caregiver self-efficacy on the impact of BPSD on subjective caregiver burden, and a mediation effect of social support on subjective caregiver burden. Caregiver self-efficacy and subjective burden significantly influenced BPSD and social support.Conclusion:Caregiver self-efficacy played an important role in the paths by which the two factors influenced subjective burden. Enhancing caregiver self-efficacy for symptom management (particularly BPSD) can be an essential strategy for determining interventions to support dementia caregivers in China, and possibly in other countries.

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Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases

Investigación y Educación en Enfermería ◽

10.17533/udea.iee.v39n2e09 ◽

2021 ◽

Vol 39 (2) ◽

Author(s):

Joice Soares Campos ◽

Anna Cláudia Yokoyama Dos Anjos ◽

Sebastião Benício da Costa Neto ◽

Rodrigo Sanches Peres

Keyword(s):

Elderly Patients ◽

Family Caregivers ◽

Cross Sectional Study ◽

Care Process ◽

Degenerative Diseases ◽

Structured Interviews ◽

Cross Sectional ◽

Data Saturation ◽

Healthy Family ◽

Healthy Family Member

Objective. To understand grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases. Methods. This cross-sectional study was developed following the guidelines of the clinical-qualitative method. The sample was composed of 10 female family caregivers of bedridden elderly patients affected by chronic degenerative diseases in a city in the interior of Minas Gerais, Brazil. The sample size was determined by data saturation. The instruments used included semi-structured interviews and a field diary. The audio-recorded interviews were transcribed verbatim and submitted to content analysis. The field diary provided contributions to the organization of categories, conferring a more accurate context. Results. The participants experienced two types of grief, one for the loss of a “healthy family member” and the other for the “announced death” of this person. Additionally, the participants faced two main struggles: overcoming (objective and subjective) fatigue and becoming fully capable of performing their roles. Conclusion. The family caregivers of bedridden elderly patients affected by chronic degenerative diseases experience grieves and struggles that should be taken into account from the beginning of the care process through mental health actions intended to meet their needs.

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Understanding the Burden Experienced by Caregivers of Older Adults Who Use a Powered Wheelchair: A Cross-Sectional Study

Gerontology and Geriatric Medicine ◽

10.1177/2333721417703736 ◽

2017 ◽

Vol 3 ◽

pp. 233372141770373 ◽

Cited By ~ 3

Author(s):

Paula W. Rushton ◽

Delphine Labbé ◽

Louise Demers ◽

William C. Miller ◽

William B. Mortenson ◽

...

Keyword(s):

Social Support ◽

Family Caregivers ◽

Caregiver Burden ◽

Depression Scale ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Psychological Burden ◽

Powered Wheelchair ◽

Anxiety Depression

Objective: In this study, we aimed to describe the burden of family caregivers providing powered wheelchair-related and overall assistance and test the hypotheses that caregiver burden correlates with participation, wheelchair skills capacity, anxiety, depression, and social support. Methods: Cross-sectional study. Participants included 35 family caregivers of powered wheelchair users. Caregivers were assessed using the Power Mobility Caregiver Assistive Technology Outcome Measure, Late Life Disability Instrument, Wheelchair Skills Test Questionnaire for caregivers, Hospital Anxiety and Depression Scale, and Interpersonal Support Evaluation List–12. Results: The most burdensome powered wheelchair assistance items were providing verbal hints/directions, needing to be nearby, anxiety, and fear that user may be harmed. The most burdensome overall assistance item was feeling limited in recreational/leisure activities. Caregiver burden was significantly correlated with participation limitations, anxiety, depression, and social support. Discussion: Caregivers experience burden for wheelchair-related and overall help, especially psychological burden. Such results have implications for the type of resources required to support family caregivers.

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Spiritual care needs and their associated influencing factors among elderly patients with moderate-to-severe chronic heart failure in China: A cross-sectional study

Palliative & Supportive Care ◽

10.1017/s1478951521001279 ◽

2021 ◽

pp. 1-11

Author(s):

ZhangYi Wang ◽

Zhao Wang ◽

Yue Wang ◽

LuWei Xiao ◽

HaoMei Zhao ◽

...

Keyword(s):

Social Support ◽

Elderly Patients ◽

Spiritual Care ◽

Self Efficacy ◽

Symptom Management ◽

Perceived Social Support ◽

The Self ◽

Care Needs ◽

Cross Sectional ◽

Perceived Burden

Abstract Background The significance of spiritual care needs among chronic diseases patients has been emphasized across countries and cultures in many studies. However, there were few studies on spiritual care needs among elderly patients with moderate-to-severe chronic heart failure (CHF) in China. Objective To investigate spiritual care needs and associated influencing factors among elderly patients with moderate-to-severe CHF, and to examine the relationships among spiritual care needs, self-perceived burden, symptom management self-efficacy, and perceived social support. Methods A cross-sectional design was implemented, and the STROBE Checklist was used to report the study. A convenience sample of 474 elderly patients with moderate-to-severe CHF were selected from seven hospitals in Tianjin, China. The sociodemographic characteristics questionnaire, the Spiritual Needs Questionnaire Scale, the Self-Perceived Burden Scale, the Self-efficacy for Symptom Management Scale, and the Perceived Social Support Scale were used. Descriptive statistics, univariate, multiple linear regression, and Pearson's correlation analysis were used to analyze data. Results The total score of spiritual care needs among 474 elderly patients with moderate-to-severe CHF was 37.95 ± 14.71, which was moderate. Religious belief, educational background, self-perceived burden, symptom management self-efficacy, and perceived social support were the main factors affecting spiritual care needs, and spiritual care needs were negatively correlated with self-perceived burden (r = −0.637, p < 0.01) and positively correlated with symptom management self-efficacy (r = 0.802, p < 0.01) and social support (r = 0.717, p < 0.01). Significance of results The spiritual care needs of elderly patients with moderate-to-severe CHF were moderate, which were influenced by five factors. It is suggested that clinical nurses, families, and society should take targeted spiritual care measures to improve patients’ symptom management self-efficacy and perceived social support from many aspects, and reduce self-perceived burden to meet their spiritual care needs and improve the quality and satisfaction of spiritual care in nursing practice.

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