scholarly journals Quality of life as part of the diagnostic and treatment process in patients with uveal melanoma

2013 ◽  
Vol 94 (4) ◽  
pp. 566-568
Author(s):  
I E Panova ◽  
A S Mochalova ◽  
O S Vlasova
Keyword(s):  
Quality Of Life ◽  
Choroidal Melanoma ◽  
Well Being ◽  
Total Quality ◽  
Life Score ◽  
Long Term Follow Up ◽  
Organ Sparing ◽  
The Impact

Aim. To study of individual components of quality of life and the impact of various factors on quality of life in patients with choroidal melanoma after treatments. Methods. 122 patients (80 women, 42 men, mean age 59.89±11.95 years) were questioned. The first group included 48 patients who underwent an organ-sparing procedure (eye enucleation); the second group included 72 patients with choroidal melanoma who underwent an organ-saving procedure (brachytherapy, transpupillary thermotherapy, or combination of both methods). To investigate the quality of life, Functional Assessment of Cancer Therapy-General (FACT-G) questionnaire was used. Evaluation was carried out during the first three months after treatment, up to 1 year, 1 to 3 years, as well as 3 years or more after hospital discharge. Results. Quality of life parameters as the evaluation of the total well-being in patients following enucleation, and after brachytherapy, laser treatment and combinations of those at different terms after treatment, were defined. Total quality of life score in patients who underwent an organ-sparing procedure at the late terms after the surgery (more than 3 years) was significantly higher compared to patients who underwent an organ-saving procedure (FACT-G scores 78.79±14.28 and 67.93±13.92), with no significant differences in quality of life at earlier terms. Conclusion. An organ-saving treatment is associated with a significant total quality of life score reduction, and performing enucleation in patients with choroidal melanoma is characterized by significantly higher quality of life levels at long-term follow-up. The decline in the quality of life in patients with choroidal melanoma after enucleation is directly related to the visual acuity of the second eye.

Impact of type I Boston keratoprosthesis implantation on vision-related quality of life

2017 ◽  
Vol 102 (7) ◽  
pp. 878-881 ◽  
Author(s):  
Marcus Ang ◽  
Ryan Man ◽  
Eva Fenwick ◽  
Ecosse Lamoureux ◽  
Mark Wilkins
Keyword(s):  
Quality Of Life ◽  
Effect Size ◽  
Retention Rate ◽  
Well Being ◽  
Type I ◽  
Boston Keratoprosthesis ◽  
Related Quality ◽  
The Impact

AimTo determine the impact of type I Boston keratoprosthesis (KPro) implantation on vision-related quality of life (VRQoL).MethodsProspective study in 33 patients (mean age 56±12 years, 67% male) with bilateral corneal blindness, who underwent a KPro implantation at a single tertiary eye hospital (June 2011–July 2015). VRQoL was evaluated using the Impact of Vision Impairment Questionnaire (IVI) at baseline and at 3–6 months postsurgery, after stabilisation of best-corrected visual acuity (BCVA). Rasch analysis was used to transform the IVI responses into interval-level measures comprising the ‘reading’, ‘mobility’ and ‘emotional’ subscales with effect sizes calculated for pre-post VRQoL scores.ResultsMean preoperative BCVA was counting-fingers at 2 feet in the operated eye (20/240 fellow eye). Preoperative VRQoL scores: −2.27, –2.91 and −3.06 logits for the reading, mobility and emotional subscales, respectively. Device retention rate was 90% over the follow-up period (mean 26±12 months). We observed large gains for reading and mobility of 1.92 logits (effect size 0.88), and 2.64 logits (effect size 0.89) respectively, with a moderate gain in the emotional subscale of 2.11 logits (effect size 0.59). These improvements did not vary significantly with BCVA on multivariate analysis (all p>0.05).ConclusionWe observed a differential short-term improvement to VRQoL after KPro implantation with a significant impact on emotional well-being, which may not be fully explained by visual improvement alone. Further studies are required to confirm if these improvements in VRQoL are sustained in the long-term and are generalisable to other populations.

Assessment quality of life as a factor for the improvement of patient-focused therapy of the preschool children with type 1 diabetes

2021 ◽  
Author(s):  
И.Л. Никитина ◽  
А.О. Плаксина ◽  
А.В. Павлов ◽  
И.А. Кельмансон
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Preschool Children ◽  
Well Being ◽  
Self Report ◽  
Total Quality ◽  
Everyday Functioning ◽  
The Impact

Оценка качества жизни с точки зрения ребенка, больного сахарным диабетом 1 типа, и его родителей имеет важность для планирования терапии, но может существенно различаться. Целью работы было оценить качество жизни детей дошкольного возраста и их матерей для оптимизации пациент-ориентированных схем лечения и улучшения метаболического контроля диабета. Обследованы 35 детей в возрасте 4-6 лет (19 мальчиков и 16 девочек), больных сахарным диабетом 1 типа, находящихся на лечении в клинике Центра. Для оценки качества жизни использовали русифицированную версию опросника KINDL для детей дошкольного возраста и их матерей. Оценка проводилась по шкалам физического и эмоционального благополучия, самооценки, семейных отношений, взаимоотношения с друзьями, ежедневного функционирования, влияния заболевания, а также суммарных показателей качества жизни по 100-балльной шкале. Статистическая обработка данных проведена с использованием прикладной программы JAMOVI 1.6. Статистически значимые различия были выявлены по шкале суммарной оценки качества жизни, а также по шкалам влияния заболевания и эмоционального благополучия на качество жизни. Установлены более низкие оценки суммарного качества жизни, а также влияния на него заболевания, по мнению матерей по сравнению с детьми с сахарным диабетом 1 типа. Напротив, оценка влияния эмоционального благополучия на качество жизни при сахарном диабете 1 типа была более высокой со стороны матерей по сравнению с их детьми. Наиболее значимое модифицирующее влияние на исследуемые показатели было установлено по факторам образования матери, семейного положения, способа введения инсулина и улучшения контроля диабета. Оценка качества жизни может различаться по мнению детей с сахарным диабетом 1 типа и их матерей. Выявленные особенности рекомендуется использовать в планировании пациент-ориентированных программ лечения диабета и в работе школ сахарного диабета. Assessment of Health Related Quality of Life (HRQoL) features frequently assesses both the child and their mothers perspectives in preschool children with diabetes mellitus type 1 (T1DM), but parent-proxy and child self-reports may differ, and knowledge of these differences are not enough. The aim was to investigate HRQoL assessed by preschool children with T1DM and by their mothers, potential differences in the children-maternal estimates and the factors influencing these discrepancies. 35 preschool children (16 girls from 4-to-6-year-old ) with T1DM underwent the self-report KINDL questionnaire for children aged 4-6 years (Kiddy-KINDL for children). Their mothers underwent the parental version (Kiddy-KINDL for parents). Both versions enable measuring child HRQoL in physical, emotional wellbeing, self-esteem, family, friends, everyday functioning, and the disease dimensions, as well as KINDL total on a 0-100 scale. Statistically significant differences were found on the scale of the total assessment of the quality of life, as well as on the scales of the impact of disease and emotional well-being on the quality of life. Lower estimates of the total quality of life, as well as the effect of the disease on it, in the opinion of mothers, compared with children with type 1 diabetes, were established. In contrast, the assessment of the impact of emotional well-being on the quality of life in type 1 diabetes was higher on the part of mothers compared to their children. The most significant modifying effect on the studied parameters was found for the factors of mother's education, marital status, method of insulin administration, and improved diabetes control. The assessment of the quality of life may differ according to the opinion of children with type 1 diabetes and their mothers. The identified features are recommended for use in planning patient-oriented diabetes treatment programs and in the work of «diabetes schools».

scholarly journals Long-term Outcomes in Adolescents and Adults with a Cleft Lip and/or palate: Esthetics, Employment and Functioning

2021 ◽  
Author(s):  
Cassandra Alighieri ◽  
Evelien D'haeseleer ◽  
Kim Bettens ◽  
Katrien Bonte ◽  
Hubert Vermeersch ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Self Report ◽  
Control Group ◽  
Older Individuals ◽  
Significant Difference ◽  
Adolescents And Adults ◽  
The Impact

Abstract Background. To date, there seems to be no consensus on the long-term quality of life outcomes in patients living with a cleft of the lip and/or palate (CL/P) with regard to well-being and functioning. Some studies report a substantial influence of having a cleft while other studies report no influence of living with a cleft. The purpose of this study was to investigate the impact of living with a CL/P on esthetics, employment and functioning in Dutch-speaking adolescents and adults with a CL/P. Methods. 30 Patients with a CL/P (19 men and 11 women) were included in the study. The mean age of the participants was 26.93 years (SD = 11.688 years, range = 15 – 66 years). An age and gender matched control group was included consisting of 30 participants (19 men and 11 women) without a CL/P with a mean age of 26.87 years (SD = 11.729 years, range = 16-67 years). Esthetics, employment and functioning were assessed using different standardized self-report questionnaires. Results. No statistically significant difference in educational level, employment, monthly net income, marital status and having children was found between participants with and without a CL/P. In addition, the quality of life scores did not differ between the two groups. Within the group of individuals with a CL/P, the findings revealed that the proportion of participants who reported an influence of the CL/P on daily functioning, general well-being, social contacts, family life, applying for a job, work, education and leisure time differed by age. Older individuals experienced more influence of their CL/P compared to younger individuals. With regard to esthetics, the findings revealed that participants without a CL/P were less satisfied with the appearance of their jaws compared to participants with a CL/P. Conclusion. In general, the findings of our study revealed no significant differences between adolescents and adults with and without a CL/P with regard to employment and functioning. Considering age within the group of participants with a CL/P, however, the results demonstrated that older individuals were more likely to experience a negative impact of their cleft on well-being and functioning. These findings suggest that older individuals with a CL/P might benefit from additional socio-emotional support, for example peer contacts and support groups or psychological guidance. Longitudinal research on this topic is highly needed to determine possible fluctuations in the impact of living with a CL/P.

The Impact of Severe Sepsis on Health-Related Quality of Life: A Long-Term Follow-Up Study

2008 ◽  
Vol 107 (6) ◽  
pp. 1957-1964 ◽  
Author(s):  
José G. M. Hofhuis ◽  
Peter E. Spronk ◽  
Henk F. van Stel ◽  
Augustinus J. P. Schrijvers ◽  
Johannes H. Rommes ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Follow Up Study ◽  
Related Quality ◽  
Long Term Follow Up ◽  
Health Related ◽  
The Impact

scholarly journals Indirect costs of depression and other mental and behavioural disorders for Australia from 2015 to 2030

BJPsych Open ◽  
2019 ◽  
Vol 5 (3) ◽  
Author(s):  
Deborah Schofield ◽  
Michelle Cunich ◽  
Rupendra Shrestha ◽  
Robert Tanton ◽  
Lennert Veerman ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Disorders ◽  
Indirect Costs ◽  
Well Being ◽  
Life Years ◽  
The Government ◽  
Disease Study ◽  
The Impact

BackgroundThe impact of mental disorders has been assessed in relation to longevity and quality of life; however, mental disorders also have an impact on productive life-years (PLYs).AimsTo quantify the long-term costs of Australians aged 45–64 having lost PLYs because of mental disorders.MethodThe Survey of Disability, Ageing and Carers 2003, 2009 formed the base population of Health&WealthMOD2030 – a microsimulation model integrating output from the Static Incomes Model, the Australian Population and Policy Simulation Model, the Treasury and the Australian Burden of Disease Study.ResultsFor depression, individuals incurred a loss of AU$1062 million in income in 2015, projected to increase to AU$1539 million in 2030 (45% increase). The government is projected to incur costs comprising a 22% increase in social security payments and a 45% increase in lost taxes as a result of depression through its impact on PLYs.ConclusionsEffectiveness of mental health programmes should be judged not only in terms of healthcare use but also quality of life and economic well-being.Declaration of interestNone.

Health-related quality of life and emotional well-being after epilepsy surgery: A prospective, controlled, long-term follow-up

Epilepsia ◽  
2017 ◽  
Vol 58 (10) ◽  
pp. 1706-1715 ◽  
Author(s):  
Anna Edelvik ◽  
Charles Taft ◽  
Gerd Ekstedt ◽  
Kristina Malmgren
Keyword(s):  
Quality Of Life ◽  
Epilepsy Surgery ◽  
Well Being ◽  
Health Related Quality ◽  
Related Quality ◽  
Long Term Follow Up ◽  
Health Related

Long term follow-up in quality of life after mitral valve surgery

2012 ◽  
Vol 60 (S 01) ◽  
Author(s):  
I Kammerer ◽  
M Höhn ◽  
AH Kiessling ◽  
S Becker ◽  
FU Sack
Keyword(s):  
Quality Of Life ◽  
Mitral Valve ◽  
Mitral Valve Surgery ◽  
Valve Surgery ◽  
Long Term Follow Up
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