scholarly journals FAMILY QUALITY OF LIFE AND THE BUILDING OF SOCIAL CONNECTIONS: PRACTICAL SUGGESTIONS FOR PRACTICE AND POLICY

2018 ◽  
Vol 9 (4) ◽  
pp. 88-106
Author(s):  
Meaghan Edwards ◽  
Trevor Parmenter ◽  
Patricia O'Brien ◽  
Roy Brown
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Connections ◽  
Family Quality Of Life ◽  
Community Inclusion ◽  
Migrant Families ◽  
The Social ◽  
Low Levels ◽  
Personal Community

Family quality of life literature suggests that families with a member with an intellectual/developmental disability frequently face major difficulties in building social connections with others. They experience low levels of social support, face challenges in community inclusion, and are at risk of social isolation. These challenges may also be faced by other types of marginalized families. Families experiencing serious illness, families experiencing intrafamily violence, and migrant families or those seeking political asylum, for example, may also become isolated and find themselves without pathways to connections with others. We present practical suggestions intended for families and professionals interested in action and intervention at the personal, community, program, and policy levels to encourage the growth of social connections and prevent isolation of families experiencing social exclusion. The suggestions will come from families with a member with a disability and the findings of a study examining the social support of families as it relates to quality of life.

scholarly journals Association between social support and quality of life of relative caregivers of elderly dependents

2015 ◽  
Vol 20 (5) ◽  
pp. 1321-1330 ◽  
Author(s):  
Karla Ferraz dos Anjos ◽  
Rita Narriman Silva de Oliveira Boery ◽  
Rafael Pereira ◽  
Larissa Chaves Pedreira ◽  
Alba Benemérita Alves Vilela ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Relationships ◽  
Family Health ◽  
Cross Sectional Study ◽  
Full Time ◽  
Cross Sectional ◽  
Relative Caregivers ◽  
The Social

Objective: to ascertain the association between the social support and the quality of life of relative caregivers of elderly dependents at home.Method: a cross-sectional study conducted with 58 relative caregivers of elderly dependents, registered in the Family Health Strategy. Data were collected from the Katz instrument, sociodemographic, Zarit Burden Interview, WHOQOL-bref, and analyzed using descriptive statistics and multiple linear regression.Results: the majority of caregivers were women, who took care full-time and presented moderate to severe burden. Most caregivers are satisfied with their social relationships and the social support received. It is found that the burden and the time of care correlated with the social relationships domain, which is associated with social support, and consequently, reduced quality of life.Conclusion: social support for caregivers is important to prevent health implications, burden, biopsychosocial stress, and provide favorable conditions for quality of life, by allowing greater freedom to develop their daily activities.

scholarly journals Social support network, mental health and quality of life: a cross-sectional study in primary care

2016 ◽  
Vol 32 (12) ◽  
Author(s):  
Flávia Batista Portugal ◽  
Mônica Rodrigues Campos ◽  
Celina Ragoni Correia ◽  
Daniel Almeida Gonçalves ◽  
Dinarte Ballester ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Relations ◽  
Cross Sectional Study ◽  
Support Network ◽  
Sectional Study ◽  
Social Support Network ◽  
Cross Sectional ◽  
The Social

The objective of this study was to identify the association between emotional distress and social support networks with quality of life in primary care patients. This was a cross-sectional study involving 1,466 patients in the cities of São Paulo and Rio de Janeiro, Brazil, in 2009/2010. The General Health Questionnaire, the Hospital Anxiety and Depression Scale and the brief version of the World Health Organization Quality of Life Instrument were used. The Social Support Network Index classified patients with the highest and lowest index as socially integrated or isolated. A bivariate analysis and four multiple linear regressions were conducted for each quality of life outcome. The means scores for the physical, psychological, social relations, and environment domains were, respectively, 64.7; 64.2; 68.5 and 49.1. In the multivariate analysis, the psychological domain was negatively associated with isolation, whereas the social relations and environment domains were positively associated with integration. Integration and isolation proved to be important factors for those in emotional distress as they minimize or maximize negative effects on quality of life.

scholarly journals Parentification and Grandparents’ Support from the Perspective of Grandchildren from Families of Various Structures

2016 ◽  
Vol 6 (1) ◽  
pp. 9-26 ◽  
Author(s):  
Elżbieta Napora
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Single Mothers ◽  
Satisfaction Scale ◽  
Material Wealth ◽  
The Social ◽  
Social Support Scale ◽  
Original Family ◽  
The Relationship

AbstractThe purpose of this study was to determine the strength of the relationship between a retrospective evaluation of the experienced social support given by grandparents and the material status of the family with the quality of life of the grown-up grandchildren in families of different structures. The formulated expectations have been verified with the Social Support Scale (SSS), Student’s Life Satisfaction Scale (SLSS) and an individual personal survey. The obtained results show that in families of single mothers, the emotional and informative support offered by grandparents was a significant factor improving the quality of the life of the grandchildren. In a complete family, however, the significant forms of support from grandparents were esteem support and its other forms, except for informative support. Moreover, the material wealth of the original family was shown to be an important predictor of the evaluation of the quality of life of the grandchildren; it was judged more negatively by adolescent children of single mothers.

Burden, quality of life, anxiety, and depressive symptoms among caregivers of hemodialysis patients: The role of social support

2020 ◽  
Vol 55 (6) ◽  
pp. 397-407
Author(s):  
Madihah Shukri ◽  
Mohd Azman Mustofai ◽  
Md Aris Safree Md Yasin ◽  
Tuan Sharipah Tuan Hadi
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Depressive Symptoms ◽  
Cross Sectional Study ◽  
Hemodialysis Patients ◽  
Cross Sectional ◽  
Caregiving Burden ◽  
Low Levels

Objective The purpose of this study was to determine how burden and quality of life predict anxiety and depressive symptoms among caregivers of hemodialysis patients. Social support was included in the model as a proposed moderator in the above relationships. Methods This cross-sectional study involved 340 caregivers of chronic kidney patients undergoing hemodialysis. The setting was in Terengganu, Malaysia. The caregivers completed the measures of caregiving burden, quality of life, social support, and symptoms of anxiety and depression. Results About 28.8% and 52.4% of caregivers showed clinically moderate levels of anxiety and depressive symptoms, respectively. Furthermore, 35.9% and 3.8% of them showed clinically high levels of anxiety and depressive symptoms, respectively. Analyses showed that general quality of life was a significant predictor of both anxiety and depressive symptoms. Burden and psychological domains of quality of life significantly predicted anxiety. In addition, a lack of social support was a determinant of depressive symptoms. Evidence suggested that social support moderated the burden–anxiety relationship. Specifically, caregivers with low levels of social support showed more elevated levels of anxiety symptoms when their burden was higher. Conclusion There is an urgent need for early detection to initiate prompt treatment in this population. The study provides some important insights into offering comprehensive intervention to help caregivers cope more effectively through the provision of sufficient social support to buffer the effects of caregiving burden and improve mental health.

scholarly journals Some characteristics of social support for patients with depressive disorders

2021 ◽  
Vol 25 (2) ◽  
pp. 325-328
Author(s):  
O. O. Belov ◽  
N. G. Pshuk
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Depressive Disorders ◽  
Significant Others ◽  
Psychosocial Adaptation ◽  
Prevention Measures ◽  
Reactive Anxiety ◽  
Low Levels ◽  
Integral Indicator

Annotation. In order to study the features of social support, a survey of 245 patients with depressive disorders was conducted using a multidimensional scale of perception of social support (MSPSS) D. Zimet as modified by V.M. Yaltonsky and N.A. Sirota. Statistical analysis of the data was carried out using the licensed software package Statistica 13 (StatSoft Inc., USA). The Shapiro-Wilk test, the Mann-Whitney test, the nonparametric method of Spearmen’s rank correlations was used at p<0.05. Low levels of social support for patients with depression in general, and from family, friends and significant others, with the highest level of social support patients associate with friends, slightly lower – with family, and the lowest – with significant others. There is a decrease in the level of social support with increasing age of patients, most pronounced in the age group of 45 years and older. Sex-related differences were found: lower levels of social support for men than for women, and greater importance for women from family support, and for men from friends and significant others. The presence of inverse correlations of mostly moderate strength between the level of social support and the severity of psychopathological symptoms, with the closest correlations for hostility (rS=-0.551), depression (rS=-0.541) and reactive anxiety (rS=-0.478), and a direct correlation of mostly moderate strength between the level of social support and the state of psychosocial adaptation (rS=0.441), emotional comfort (rS=0.406), internality (rS=0.378), self-acceptance (rS=0.354), acceptance of others (rS=0.343), indicators of quality of life in areas of subjective wellbeing / satisfaction (rS=0.413), fulfillment of social roles (rS=0.405), external living conditions (rS=0.401) and integral indicator of quality of life (rS=0.443), indicators of hardiness (rS=0.516), including commitment (rS=0.515), control (rS=0.444) and challenge (rS=0.332). The identified patterns should be taken into account in the development of treatment, rehabilitation and prevention measures for patients with depressive disorders.

scholarly journals The Influence of Social Support to the Quality of Life of Tuberculosis Patients in Depok, West Java Province, Indonesia

2020 ◽  
Vol 12 (12) ◽  
pp. 112
Author(s):  
Siti Nur Anisah ◽  
Ratna Djuwita ◽  
Mondastri K. Sudaryo
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Emotional Support ◽  
Perceived Social Support ◽  
Positive Impact ◽  
Repeated Measurements ◽  
Tuberculosis Patients ◽  
The Social ◽  
General Estimation

The quality of life of Tuberculosis (TB) patients is very important to be considered due to infectious disease is chronic that it can affect quality of life. In order to improve quality of life is by providing social support to TB patients. This study aims to discuss the influence of social support to the quality of life of TB patients. This was a longitudinal study (repeated measurements). Data collection with interviews to respondents using the WHOQOL-BREF and Multidimensional Scale of Perceived Social Support (MSPSS). Data analysis using General Estimation of Equotion. The results showed that social support has a strong influence to the quality of life of TB patients (OR = 7.9); An influential source of social support to improve the quality of life of TB patients were family, friends and significant others. Family support provides the highest contribution with an OR of 19.7; An influential type of social support to improve the quality of life of TB patients were emotional, informational and companionship support. Emotional support provides the highest contribution with an OR of 7.4. Social support to TB patients given at the 5th month of treatment have a positive impact on the quality of life with PAR% was 70%. This study recommends improving the social support to TB patients to increase quality of life of TB patients.

scholarly journals Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy

2019 ◽  
Vol 18 ◽  
pp. e019002
Author(s):  
Katarína Molnárová Letovancová ◽  
Miriam Slaná ◽  
Michaela Hromková
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cerebral Palsy ◽  
Well Being ◽  
Average Score ◽  
Family Quality Of Life ◽  
Life Questionnaire ◽  
Quality Of Life Scale ◽  
Children With Cerebral Palsy

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.

scholarly journals Analysis of Factors that Influence the Quality of Life of People Life with HIV/AIDS (PLWHA) in Dr. R. Sosodoro Djatikoesoemo Bojonegoro Hospitals

2020 ◽  
Vol 4 (1) ◽  
pp. 254-257
Author(s):  
Ahmad Maftukhin ◽  
Nurwijayanti Nurwijayanti ◽  
Siti Farida Noor Layla ◽  
Byba Melda Suhita
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Sampling Technique ◽  
Cross Sectional ◽  
Systematic Random Sampling ◽  
The Social ◽  
Need Support ◽  
Regression Test ◽  
Hiv Aids

Background : People with HIV / AIDS need support from the surrounding community, but in reality the opposite is the community's stigma of people with HIV / AIDS is still negative, this has the effect of being isolated from the surrounding community so that the quality of life of people with HIV / AIDS is not optimal. Purpose : The purpose of this study is to analyze the factors that affect the quality of life of people with HIV / AIDS. Methodhs : The design of this study was analytic with cross sectional approach, the population was 427 respondents, the sample size was calculated using the Slovin formula as many as 78 respondents, the type of sampling used was side probabilities with systematic random sampling technique. Results : The results of this study were tested using an ordinal regression test, and the results showed that the significance value of the effect of adherence to ARV consumption on the quality of life of PLWHA was 0.223, nutritional status significance value 0.498 and social support significance value 0.000. So of the three independent variables studied, the effect was only the social support variable because the significance value was below 0.05. Conclusion : factors that affect the quality of life of PLWHA are social support factors

Social Support In Relation To Quality Of Life among Caregivers of Drug Addicted People

2016 ◽  
Vol 3 (4) ◽  
Author(s):  
Tabeer Ahmad ◽  
Aqueleem Un Nabi ◽  
Mohd Ilyas Khan
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Leisure Activities ◽  
Well Being ◽  
Social Changes ◽  
Family Routines ◽  
Care Givers ◽  
The Social ◽  
Social Support Scale

Taking care of a dependent relative entails different physical, psychological and social changes for caregivers. One of the most affected aspects is the social network and support, due to the lack of opportunities for leisure activities, impossibility to go out to work and changes in family routines. Social support also could act as a moderator when it affects caregiver’s quality of life by altering the direction and/or strength of the relation between the caregiver and his/her quality of life. Thus, social support to caregivers helps them to deal with their quality of life in a positive manner. Quality of life is a person’s perceived assessment of his/her own well-being. This includes emotional, social, and physical aspects of the individual’s life.. The social support scale and WHO quality of life brief questionnaire was administered on care givers of drug addicted people to collect data. T-test and Pearson product moment co-efficient of correlation were used for data analysis. The obtained result revealed significance difference between male and female caregivers of drug addicted people on social support and quality of life and the relationship between social support and quality of life was found significantly positive.

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