scholarly journals The Feasibility of a Home Care Management Model Based Coaching Intervention on Indonesian Caregivers' Outcomes of Relatives with Schizophrenia

2018 ◽  
Vol 13 (2) ◽  
pp. 84
Author(s):  
Jenny Marlindawani Purba ◽  
R H Simamora ◽  
E D Ginting
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Family Caregivers ◽  
Care Management ◽  
Management Model ◽  
Life Questionnaire ◽  
Model Base ◽  
Coaching Intervention ◽  
Persons With Schizophrenia

<p><strong>Background.</strong> Caring for schizophrenia is a challenge and a burden for caregiver. In fact, family caregivers did not know how to care schizophrenia at home. A home management care base coaching is urgently needed. It can be used as a basis for nurses to assist caregivers in caring for persons with schizophrenia. <strong>Aims and Objectives.</strong> The study aimed to determine the feasibility of a home care management model base coaching for family caregivers of persons with schizophrenia.</p><p><strong>Methods.</strong> The study was two groups pre-test post-test quasi-experimental design. Thirty family caregivers were assigned into experimental and control group with each group 15 persons. Data were collected using the Chiang Mai Psychiatric Caregiving Scale, the Zarit Caregiver Burden Scale and the Schizophrenia Caregiver Quality of Life questionnaire. It was six weeks activities with several methods, such as discussion, watching videos, providing information, training, and home visit.</p><p><strong>Results:</strong>The participants who receive interventions reported significantly more improved in caregiving skills (p&lt;0.05), increased quality of life (p &lt; 0.05)and decreased the level of burden care (p&lt;0.05) than those receiving the routine care.</p><p><strong>Conclusions:</strong>The study revealed that home care management model base coaching intervention was effective to improve caregivers’ outcomes in caring for relatives with schizophrenia.</p>

Mobile Health in Supporting the Elderly Caregivers: A Non-Randomized Controlled Pilot Study (Preprint)

2019 ◽  
Author(s):  
Tzu-Ning Wen ◽  
Tzu-Hui Hsia ◽  
Po-Liang Cheng ◽  
Qi-Guang Chen ◽  
Hsiu-Yen Huang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Family Caregivers ◽  
Mobile Health ◽  
Physiological Data ◽  
Control Group ◽  
Life Questionnaire ◽  
Middle Aged ◽  
Significant Difference

BACKGROUND As the population of Taiwan continues to age rapidly, middle-aged and elderly people will increasingly begin to care for their older relatives. Therefore, the responsibility and complexity of care required from family caregivers will increase. The mobile health technology (mHealth) model has been successfully applied to numerous care services. OBJECTIVE To develop a mobile health app that supports family caregivers of various ages by meeting their home care needs, thus improving their quality of life, decreasing their severity of depression, and making them more empowered. METHODS This study applied a nonrandomized control-group pretest–posttest design. Purposive sampling was employed to recruit 30 family caregivers—16 middle-aged and 14 old family caregivers—from the home care cases of a regional hospital in Taipei. The developed home care mHealth app was used for management and monitoring of patient health. The outcomes measured were quality of life, level of depression, and sense of empowerment. RESULTS The results indicated that use of the mHealth app improved the technology acceptance, quality of life, depression level, and empowerment of the family caregivers. The old caregivers obtained quality of life scores that were 2.23 points higher, on average, than those obtained by the middle-aged caregivers P = .01, a significant difference. On the quality of life questionnaire, the old caregivers’ obtained scores for the health and family factors that were 2.75 P = .01 and 2.49 P = .01 points higher, respectively, than those obtained by the middle-aged caregivers, indicating significant differences. Regarding empowerment and depression, the scores obtained at different time points indicated that both groups became more empowered and less depressed over time, but no significant differences were discovered between the two groups. CONCLUSIONS According to our results, using the home care mHealth app had a positive influence the app is concluded to be a favorable tool for care education and management. Old caregivers found the software useful for managing patients’ physiological data, and they wished that other assistive methods were available to help them understand the internal functions. The software contributes to quality of life improvement, a decrease in depression severity, and empowerment enhancement and can be used by family caregivers as a reference for home care management in the future.

scholarly journals Higher levels of unmet support needs in spouses are associated with poorer quality of life – a descriptive cross-sectional study in the context of palliative home care

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Maria Norinder ◽  
Kristofer Årestedt ◽  
Susanne Lind ◽  
Lena Axelsson ◽  
Gunn Grande ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Family Caregivers ◽  
Emotional Health ◽  
Support Needs ◽  
Cross Sectional ◽  
Palliative Home Care ◽  
Life Threatening Illness ◽  
Life Threatening

Abstract Background Family caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected quality of life. This study aims to explore associations between family caregivers’ support needs and quality of life when caring for a spouse receiving specialized palliative home care. Methods A descriptive cross-sectional design was used: 114 family caregivers completed the Carer Support Needs Assessment Tool (CSNAT) and the Quality of Life in Life-Threatening Illness – Family caregiver version (QOLLTI-F) and 43 of them also answered one open-ended question on thoughts about their situation. Descriptive statistics, multiple linear regression analyses, and qualitative content analysis, were used for analyses. Results Higher levels of unmet support needs were significantly associated with poorer quality of life. All CSNAT support domains were significantly associated with one or more quality of life domains in QOLLTI-F, with the exception of the QoL domain related to distress about the patient condition. However, family caregivers described in the open-ended question that their life was disrupted by the patient’s life-threatening illness and its consequences. Family caregivers reported most the need of more support concerning knowing what to expect in the future, which they also described as worries and concerns about what the illness would mean for them and the patient further on. Lowest QoL was reported in relation to the patient’s condition, and the family caregiver’s own physical and emotional health. Conclusion With a deeper understanding of the complexities of supporting family caregivers in palliative care, healthcare professionals might help to increase family caregivers’ QoL by revealing their problems and concerns. Thus, tailored support is needed.

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

2016 ◽  
Vol 27 (2) ◽  
pp. e12606 ◽  
Author(s):  
H. Götze ◽  
E. Brähler ◽  
L. Gansera ◽  
A. Schnabel ◽  
A. Gottschalk-Fleischer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Anxiety Depression

scholarly journals Optimizing nutrition and oral health for caregivers—intervention protocol

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Irma Nykänen ◽  
Tarja Välimäki ◽  
Liisa Suominen ◽  
Ursula Schwab
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Oral Health ◽  
Nutritional Status ◽  
Home Care ◽  
Family Caregivers ◽  
Institutional Care ◽  
Oral Health Status ◽  
Care Recipients

Abstract Background The focus of care has shifted from institutional care to home care. Family caregivers provide the majority of home care that allows an opportunity for their care recipients to live at home and avoid costly institutional care. The aim of this study is to describe the nutritional status, oral health, and quality of life of family caregivers over the age of 65 and their care recipients, and to evaluate the impact of individually tailored diet and oral health advice to their nutritional status and oral health. Methods/design Altogether, 250 family caregivers aged 65 or over, and their care recipients are studied in this prospective randomized population-based multidisciplinary 6-month intervention study. Participants are randomly allocated to the intervention groups or the control group. Data collection is performed at three time-points: at baseline and 6 months and after a 6-month follow-up at 12 months. Caregivers’ and their care recipients’ nutritional and oral health status as a primary outcome, and functional ability, cognitive status, quality of life, depression symptoms, sense of coherence, morbidity, and medication of family caregivers as secondary outcomes will be measured using validated self-administered questionnaires and clinical examinations. Discussion To our knowledge, this is the first experiment to determine whether caregivers and their care recipients benefit from individual nutritional intervention and oral health intervention in terms of nutrition status, oral health status, and quality of life. Trial registration ClinicalTrials.gov NCT04003493. Registered on June 28, 2019

scholarly journals The Effectiveness of Group Hope Therapy Training on the Quality of Life and Meaning of Life in Patients with Multiple Sclerosis and Their Family Caregivers

2021 ◽  
Author(s):  
Mojtaba Azimian ◽  
Moslem Arian ◽  
Seyedeh Fahimeh Shojaei ◽  
Younes Doostian ◽  
Banafsheh Ebrahimi Barmi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Family Caregivers ◽  
Meaning Of Life ◽  
Life Questionnaire ◽  
Control Groups ◽  
Therapy Training ◽  
Hope Therapy ◽  
And Control

Objective: Multiple sclerosis is a chronic, progressive neurological disease that, due to its special nature, has various physical and mental influences on the patients and their family's lives, decreasing the quality of life and threatening the meaning of life. The purpose of the present study was to evaluate the effectiveness of the group hope therapy training on the quality and the meaning of life in patients with multiple sclerosis and their family caregivers. Method: This quasi-experimental study was performed using pretest-posttest and control group. Thirty patients with multiple sclerosis along with 30 family caregivers who got low to medium scores on the Meaning in Life questionnaire by Steger (MLQ), Multiple Sclerosis Impact Scale (MSIS-29), and the Iranian Quality of Life questionnaire (IRQOL) for the caregivers were selected purposively. Then, the patients were randomly divided into two groups of 15 individuals in experimental and 15 individuals in control groups. The caregivers were grouped in the same manner. The protocol of group hope therapy training was carried out through eight two-hour sessions in two weeks separately on two experimental groups (the patients and the caregivers), and finally the posttest was given to four experimental and control groups. Results: The results of the data showed that the meaning of life in both the patient and the caregiver experimental groups increased significantly (P < 0.001), but there was no significant change in the patient and the caregiver control groups. Conclusion: Group hope therapy training is an effective intervention for improving the meaning of life and the quality of life in patients with multiple sclerosis. Also, any psychological intervention that aims to improve the quality of life in patients in an advanced stage of the disease requires attention to both the physical and the mental issues at the same time. Although group hope therapy training has improved the meaning of life in such patients, it did not have a significant impact on the quality of life. Therefore, paying attention to the stages of multiple sclerosis and the physical condition of the patients during the therapeutic intervention and adopting necessary complementary interventions seems to be essential.

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