scholarly journals Developing palliative care programs in Indigenous communities using participatory action research: a Canadian application of the public health approach to palliative care

2018 ◽  
Vol 7 (S2) ◽  
pp. S52-S72 ◽  
Author(s):  
Mary Lou Kelley ◽  
Holly Prince ◽  
Shevaun Nadin ◽  
Kevin Brazil ◽  
Maxine Crow ◽  
...  
Author(s):  
Made Dewi Susilawati ◽  
Eva Sulistiowati ◽  
Nova Sri Hartati

Abstrak Program Indonesia Sehat dengan Pendekatan Keluarga (PIS-PK) bertujuan untuk meningkatkan akses pelayanan komprehensif dan skrining kesehatan, mencapai standar pelayanan minimal (SPM), mendukung pelaksanaan jaminan kesehatan nasional (JKN) dengan meningkatkan kesadaran menjadi peserta JKN. Peran dinas kesehatan (dinkes) provinsi, kabupaten/kota yaitu pengembangan sumber daya, koordinasi dan bimbingan, serta pemantauan dan pengendalian. Keberhasilan dalam implementasi PIS-PK di puskesmas tidak terlepas dari peran dinkes kabupaten/kota dan provinsi. Penelitian ini bertujuan untuk memberikan gambaran peran dinkes dalam memfasilitasi, mengoordinasi, membimbing, memonitor dan mengevaluasi pelaksanaan PIS-PK di wilayahnya. Metode penelitian ini adalah kualitatif dengan pendekatan Parcipatory Action Research (PAR) melalui wawancara mendalam dan observasi. Informan adalah penanggung jawab PIS-PK di dinkes provinsi dan kabupaten/kota. Lokus penelitian dilakukan di Dinkes Provinsi Lampung, Jawa Tengah, Kalimantan Selatan, Sulawesi Tengah dan Nusa Tenggara Timur tahun 2018. Sementara untuk dinkes kota/kabupaten dilakukan di Kabupaten Lampung Selatan, Kabupaten Banjarnegara, Kabupaten Tanah Bumbu, Kota Palu dan Kabupaten Sumba Barat. Hasil penelitian menunjukkan peran dinkes dalam pengembangan sumber daya, koordinasi, bimbingan dan monev sudah dilaksanakan sesuai dengan Permenkes No 39 Tahun 2016. Beberapa dinkes telah melakukan upaya inovatif untuk mengatasi keterbatasan anggaran, tenaga dan sarana yang terjadi selama implementasi PIS-PK. Namun dapat lebih optimal jika telah ada persamaan persepsi di internal dinas, integrasi lintas program dan lintas sektor yang mengarah pada pencapaian tujuan PIS-PK. Kata kunci: dinas kesehatan, program Indonesia sehat dengan Pendekatan Keluarga (PIS-PK), Parcipatory Action Research (PAR) Abstract The purpose of the Healthy Indonesia Program with the Family Approach (PIS-PK) is to improve access to comprehensive services and health screening, achieve minimum service standards (SPM), support the implementation of national health insurance (JKN) by increasing awareness of being JKN participants. Resource development, coordination, and guidance, monitoring, and control are the roles of provincial and district/city health offices in implementing PIS-PK. The involvement of the regional health offices is one of the success factors of the implementation of PISPK in the public health center. The research method is qualitative with Participatory Action Research (PAR) and was done by in-depth interviews and observation. The informants were pic of PIS-PK in the public health office. The research site was provincial of health office i.e Lampung, Jawa Tengah, Kalimantan Selatan, Sulawesi Tengah dan Nusa Tenggara Timur in 2018. It also was done in district/city of health office i.e Lampung Selatan, Banjarnegara, Tanah Bumbu, Sumba Barat, and Palu city. The result shows that the role of public health offices monthly have been performed thoroughly according to the regulation of health ministry number 3 in 2016. On the other side, several health offices have made an innovative program to overcome the limitations of the budget, personnel, and facilities that occur during the implementation of PIS-PK. However, it could be optimum to reach PISPK objectives if there was the same perception in internal of health office, integration of health program in the internal and external sector. Keywords: health office, Healthy Indonesia Program with the Family Approach, Participatory Action Research (PAR)


2021 ◽  
Author(s):  
Alice Coffey ◽  
Irene Hartigan ◽  
Suzanne Timmons ◽  
Catherine Buckley ◽  
Elaine Lehane ◽  
...  

Abstract Background The importance of providing evidence-based palliative care for people with dementia is increasingly acknowledged. In Ireland, evidence-based guidance has been developed in order to address key features of dementia palliative care, including the management of pain, medications and hydration and nutrition. The aim of this study was to identify and explore the factors affecting the implementation of evidence-based guidance on dementia palliative care. Methods The Consolidated Framework for Implementation (CFIR) guided a mixed-method pre-post study. One guidance document pertaining to the management of pain, medication or hydration and nutrition was implemented in three long-term care facilities. Participatory Action Research in the form of work-based learning groups was used to implement the guidance, drawing on a situational analysis (pre-implementation). Staff questionnaires and audits were conducted pre and post-implementation while champion interviews were also conducted post-implementation. Results Features of the guidance (innovation), the inner setting, and the process of implementation were most frequently identified as impacting implementation. Components of the outer setting and individual characteristics featured less commonly. The guidance was perceived as advantageous or complimentary to previous care provided. Within the inner setting, leadership and support from other colleagues facilitated implementation. However, limited availability of other healthcare professionals to assist with carrying out guidance actions presented a barrier in some facilities. The external facilitators of the work-based learning groups (WBLGs) were perceived as experienced and encouraged active participation and reflection on practices. Despite the challenge of releasing staff to attend the WBLGs, a trend toward reduced staff de-motivation among those who did attend was noted post-implementation. Conclusions A situational analysis informed by the CFIR framework in conjunction with a participatory action research approach helped to advance implementation of the guidance. The progress of implementation depended on the extent to which evidence-based care was previously being implemented at each site. Post-implementation analysis using CFIR, identified challenges to address in future projects such as staff cover on the ward and timing of training to facilitate attendance for staff with different working hours. Facilitators included multidisciplinary engagement with the intervention and champions at each site to support the implementation process.


2020 ◽  
Vol 1 (2) ◽  
pp. 38
Author(s):  
Ernaning Setiyowati ◽  
Nunik Junara ◽  
Prima Kurniawaty

Malang City has an annual program of activities for villages namely Kampung Bersinar (Clean, Healthy, Beautiful, Beautiful and Neat). One of the areas that have greening problems is RW 04, Gadang, Malang City on the banks of the Brantas river. Lack of greening in this area causes this area to be prone to landslides because the area is very contoured. That's why the focus of community service is to educate the public in the field of greening to improve the quality of the environment in the area. The method used is Participatory Action Research (PAR) which involves community action in its activities. The activity carried out was to train the creation of ornamental plants in the form of spheres growing to PKK women in RW 04, Gadang, Malang. The results of this activity are PKK mothers who have new knowledge by making ornamental plant creations that can be applied in the area so that it will improve the quality of the green environment in the area..


2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Trish Van Katwyk ◽  
Denise Soueidan Oleary

While the rural youth identity is an intersectional experience that creates a heterogeneous group of young people, a close exploration of a specific rural location can illuminate an experience that is both unique and shared. In this participatory action research study, a group of youth participated in one-on-one interviews and focus group discussions to describe their experience of their rural location. Reports, statistics, and youth counsellors also provided information about the local youth experience. What emerged was a consideration of the unique divide between public and private social realms that can create a dilemma for youth who are simultaneously encouraged to succeed in public life while provided with limited access to opportunities in that public life. The research project culminated in a sculpture created by a team of youth artists that incorporated the final analysis about the public/private divide. The sculpture is now a permanent display in the region.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  

Abstract This skills building seminar addresses the use of Participatory Action Research (PAR) as strategy to involve professionals and practitioners from (non-academic) health organizations in public health research. These so-called stakeholders possess external -experiential practice-based- knowledge important for a successful realization of a public health research project. After a short introduction on the why and when of PAR as a suitable strategy in public health research, and the why and when in a project's life cycle stakeholders can or must join, levels of participatory practices will be discussed, as well as consequences of transfer of power from academic researchers to professionals and practitioners in the field. The first part of the seminar will be followed by two real life examples from two projects in Germany: 1) a psycho-oncological care project -hospital-based-, where alarm bells went off during the external prospective evaluation of the new care programme. In the development phase of this new programme,key stakeholders had not been involved yet; and 2) the optimization, by inserting PAR cycles, of a stroke family caregiver support programme before implementation in a public health care system. The audience is invited to discuss research dilemmas, as well as pros and cons of the PAR strategy Key messages Participatory action research is about active collaboration between academics and health professionals to bring transformative change through the process of taking action and doing research. Sharing power between academics and health professionals is vital to improve public health research.


2021 ◽  
Vol 2 (1) ◽  
Author(s):  
Alice Coffey ◽  
Irene Hartigan ◽  
Suzanne Timmons ◽  
Catherine Buckley ◽  
Elaine Lehane ◽  
...  

Abstract Background The importance of providing evidence-based palliative care for people with dementia is increasingly acknowledged as important for patient outcomes. In Ireland, evidence-based guidance has been developed in order to address key features of dementia palliative care, including the management of pain, medications and hydration and nutrition. The aim of this study was to identify and explore the factors affecting the implementation of evidence-based guidance on dementia palliative care. Methods The Consolidated Framework for Implementation (CFIR) guided a mixed-method pre-post study. One guidance document pertaining to the management of pain, medication or hydration and nutrition was implemented in three long-term care facilities. Participatory action research in the form of work-based learning groups was used to implement the guidance, drawing on a situational analysis (pre-implementation). Staff questionnaires and audits were conducted pre- and post-implementation while champion interviews were also conducted post-implementation. Results Features of the guidance, the inner setting components such as readiness to change, and the process of implementation were most frequently identified as impacting implementation. Components of the outer setting, such as external policy incentives and individual characteristics, featured less commonly. Data from qualitative interviews revealed that the guidance was perceived as advantageous or complimentary to previous care provided. Within the inner setting, leadership and support from other colleagues facilitated implementation. However, limited availability of other healthcare professionals to assist with carrying out guidance actions presented a barrier in some facilities. The external facilitators of the work-based learning groups (WBLGs) were perceived as experienced and encouraged active participation and reflection on practices. Despite the challenge of releasing staff to attend the WBLGs, quantitative data demonstrated reduced staff de-motivation amongst those who did attend was noted post-implementation (pre-Mdn = 19.50 versus post-Mdn = 22.00, U = 497.00, p = 0.07). Conclusions A situational analysis informed by the CFIR framework in conjunction with a participatory action research approach helped to advance the implementation of the guidance. The progress of implementation depended on the extent to which evidence-based care was previously being implemented at each site. Post-implementation analysis using CFIR identified challenges to address in future projects such as staff cover and timing of training to facilitate attendance for staff with different working hours. Facilitators included multidisciplinary engagement with the intervention and champions at each site to support the implementation process.


Author(s):  
Genevieve Thompson ◽  
Carla Ens ◽  
Harvey Chochinov

Chapter 14 expands on the role of palliative care within the framework of cancer control. In addition, the public health approach outlined by the WHO, including appropriate policy, adequate drug availability, education, and palliative care delivery at all levels of health care, will be discussed. Finally, the challenges in adapting these principles into high and low resource settings will be described.


Al-Khidmat ◽  
2020 ◽  
Vol 3 (1) ◽  
pp. 44-58
Author(s):  
Etika Rahmawati ◽  
Surianto Surianto

AbstrakPraktik wakaf yang terjadi saat ini belum berjalan tertib dan efisien. Hal ini dikarenakan adanya permasalahan yang muncul seperti: belum disertipikatkannya tanah wakaf yang dijadikan objek wakaf, atau seorang wakif yang telah melakukan ikrar wakaf secara lisan dihadapan ahli waris dan perangkat desa, tetapi belum melakukan ikrar wakaf kepada Pejabat Pembuat Akta Ikrar Wakaf (PPAIW) di Kantor Urusan Agama setempat. Inilah yang terjadi di Kecamatan Rasau Jaya, Kabupaten Kubu Raya. Terdapat ± 11 (sebelas) masjid dari total 36 (tiga puluh enam) masjid yang belum memiliki Akta Ikrar Wakaf. Kurangnya pemahaman dan ketidaktahuan serta kesadaran masyarakat mengenai Akta Ikrar Wakaf yang menjadi alasan untuk dilakukannya pendampingan secara langsung. Pendekatan dalam penelitian ini menggunakan metode PAR (Participatory Action Research). Tujuan pendampingan ini adalah untuk memberikan pemahaman tentang pentingnya Akta Autentik seperti Akta Ikrar Wakaf dan sertipikat tanah wakaf khususnya bagi masjid-masjid di Kecamatan Rasau Jaya. Kegiatan pendampingan ini juga memberikan solusi atau penyelesaian terhadap konflik yang berkaitan dengan Sertifikasi Tanah Wakaf di Kecamatan Rasau Jaya. Hasil pendampingan dapat dijadikan acuan teoritis dan praktis dalam pembuatan Akta Ikrar wakaf dan sertifikasi tanah wakaf, seperti: memberikan kepastian hukum tanah wakaf yang ada di Kecamatan Rasau Jaya sehingga digunakan dengan aman tanpa adanya sengketa di kemudian hari, munculnya kesadaran masyarakat akan pentingnya wakaf, Akta Ikrar Wakaf (AIW) dan sertifikat tanah wakaf, serta sosialisasi dan pelayanan yang optimal dapat diberikan kepada masyarakat melalui peran dan jabatan masing-masing Pejabat Pembuat Akta Ikrar Wakaf (PPAIW), Kantor Urusan Agama (KUA) serta Badan Pertanahan Nasional (BPN) Kabupaten Kubu Raya.AbstractThe practice of waqf that has not occurred in an orderly and efficient manner. This is due to problems that arise such as: the non-certification of waqf land which is used as the object of waqf, or a waqif who has made a pledge of waqf verbally before the heirs and village officials, but has not made a pledge of waqf to the Deed of Pledge Endowcement Officer (PPAIW) in The Local Religious Affairs Office. This is happened in Rasau Jaya District, Kubu Raya Regency. There are ± 11 (eleven) mosques out of a total of 36 (thirty-six) mosques that do not yet have the Endowment Pledge Deed. Lack of understanding and ignorance and public awareness about the Deed of Pledge of Waqf which is the reason for direct assistance. The approach in this study uses the PAR method (Participatory Action Research). The purpose of this assistance is to provide an understanding of the importance of authentic deeds such as the Pledge of Endowments and certificates of waqf land especially for mosques in Rasau Jaya District. This assistance activity also provides a solution or resolution to conflicts related to the Endowment Land Certification in Rasau Jaya District. The results of the assistance can be used as a theoretical and practical reference in making the Deed of Waqf Pledge and endowment land certification, such as: providing legal certainty of the waqf land in Rasau Jaya District so that it is used safely without any dispute in the future, the emergence of community awareness of the importance of waqf, Deed of Pledge Endowment (AIW) and endowment land certificates, as well as optimal socialization and services can be provided to the public through the roles and positions of each of the Acting Officials of Endowment Pledge Acts (PPAIW), The Religious Affairs Office (KUA) and The District National Land Agency (BPN) Kubu Raya.


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