Factors Influencing Palliative Care Utilization Among Patients With Cancer: A Cross-Sectional Study
Abstract Background: Cancer remains a public health challenge in low-and-middle income countries (LMICs). Over 30% of those in need of palliative care (PC) worldwide suffer from cancer and 80% of patients with cancer in LMICs are diagnosed at advanced stages, by which time they can only benefit from PC services. The aim of this study was to determine factors influencing PC utilization among patients with cancer in KZN.Methods: A cross-sectional descriptive study was used among patients who had been diagnosed with different cancers and attending Inkosi Albert Luthuli Central Hospital (IALCH), Addington Hospital, Pietermaritzburg Grey’s hospital, Msunduzi and Chatsworth Hospices. A systematic random sampling technique was used to select participants. Structured questionnaires were administered to a total of 394 patients. The questionnaire included two open-ended questions and the generated data was analysed and presented into two formats; firstly, the textual data was entered into REDcap (v.8.11.7) and then exported to IBM SPSS Statistics (v.25) and recoded for emerging themes which were later presented in a graph format. Secondly, the thematic analysis was presented in textual format and supported with verbatims quotes. Results: The mean (+SD) age of the 394 participants was 51.89 (+14.67) years and about 22.9% were within the age-group 41–50 years. Majority of participants were females (77.7%) and were unmarried (60.6%). Most of the participants’ racial classification was black (81.5%) and 64.5% had primary education. More than four-fifths (82.7%) were unemployed, 55.8% lived in urban areas and 24.6% had cervical cancer. The analysis of the two open-ended questions incorporated into the questionnaire revealed five themes as major barriers preventing cancer patients from seeking PC services.Conclusion: Lack of knowledge and awareness about cancer symptoms and PC services could be addressed by better education of the public. Hence, utilization of PC could be maximized, thereby providing a better quality of life for the sufferers and their families until the end of life’s journey. The study also provides information that can be used to strengthen and/or to develop PC guidelines addressing PC issues. Keywords: Cancer, Palliative care, barriers, utilization, KwaZulu-Natal