scholarly journals Development, implementation and real-life use assessment of HIBOOT: a smartphone application for safety, self-assessment and medication adherence for patients with inflammatory arthritis. A user-centred step-by-step approach.

2021 ◽  
Author(s):  
Catherine BEAUVAIS ◽  
Thao Pham ◽  
Guillaume Montagu ◽  
Sophie Gleizes ◽  
Francesco Madrisotti ◽  
...  
Keyword(s):  
Medication Adherence ◽  
Quantitative Study ◽  
Inflammatory Arthritis ◽  
Daily Life ◽  
Real Life ◽  
Well Being ◽  
Smartphone Application ◽  
Mobile App ◽  
Self Management ◽  
Self Assessment

Abstract Background Mobile health applications (apps) are increasing in interest for enhancing patient self-management in rheumatology. However, few have been developed with the involvement of patients and health professionals and actually used by patients. Objective To develop and implement a mobile app for safety, self-assessment and medication adherence for patients with inflammatory arthritis treated with disease modifying anti-rheumatic drugs (DMARDs) and assess its real-life use. Methods A mixed qualitative-quantitative study including 42 and 344 patients, respectively, identified patients’ treatment practices and their use of health apps in general and their needs in terms of content and potential use. A multidisciplinary team including 7 rheumatologists, 3 patient association representatives and 4 members of a digital company developed the first version of the app with face-to-face meetings and patient feedback during the process. After the launch of the app, users’ feedback assessment included 7 patients and 3 rheumatologists. The number of app installations, current users, users’ requests and functionalities used were collected. Results Preliminary studies indicated numerous safety issues and needs for counselling, leading to the 6 functionalities of the app HIBOOT (OWL in English): a safety checklist before treatment administration, aid in daily life situations related to self-management and safety, treatment reminders, global well-being self-assessment, periodic counselling messages, and a diary to note comments and appointments. The app is free, with no personal data collection. The presentation is a friendly companion that interacts with the user. The content was based on the French recommendations for DMARD management, drug leaflets and public national health websites. HIBOOT was installed 20,500 times from 2017 to 2020, with 4300 regular current users and still increasing usage curves. The checklist, diary and queries on daily life situations were the most used functionalities. Overall, 18,000 requests were identified for information on safety or other patient matters over a 8-month period in 2020. Scores were 4.4/5 stars at Android and iOS stores. Conclusion HIBOOT is a free app for patients with inflammatory arthritis that was developed with a preliminary qualitative–quantitative study including patients during the process and has scientifically validated content. The number of current users is substantial. Future evaluation of the HIBOOT benefit is needed.

Development and real-life use assessment of a self-management smartphone application for patients with inflammatory arthritis. A user-centred step-by-step approach. (Preprint)

2021 ◽  
Author(s):  
Catherine Beauvais ◽  
Thao Pham ◽  
Guillaume Montagu ◽  
Sophie Gleizes ◽  
Francesco Madrisotti ◽  
...  
Keyword(s):  
Quantitative Study ◽  
Inflammatory Arthritis ◽  
Functional Disability ◽  
Daily Life ◽  
Real Life ◽  
Well Being ◽  
Mobile App ◽  
Self Management ◽  
Health Apps ◽  
The Impact

BACKGROUND Mobile health applications (apps) are increasing in interest for enhancing patient self-management in rheumatology. Inflammatory arthritis (IA) represents painful chronic conditions impairing quality of life, for which disease-modifying anti-rheumatic drugs (DMARDs) are used to control disease activity and reduce functional disability. DMARDs are increasing in availability (>15 DMARDs in France) and have a wide variety of targets and modes of administration, but their use is associated with risk of adverse effects such as infections. Few apps in rheumatology have been developed with the involvement of patients and health professionals (HPs) and are actually used by patients. Patient education, including e-education, is advocated to improve patients’ autonomy over their own health. Apps may be appropriate tools for self-managing medications, problem-solving or care coordination. OBJECTIVE To develop a self-management mobile app for patients with IA by using a user-centred step-by-step approach and assess its real-life use. METHODS The development was promoted by the French Society of Rheumatology. A mixed-method qualitative–quantitative study including 42 and 344 patients, respectively, identified the impact of IA on daily life, patients’ treatments practices, social relationships, use of health apps and potential use needs. A multidisciplinary team including 7 rheumatologists, 3 patient association representatives and 5 members of a digital company developed the first version of the app via face-to-face meetings and patient feedback during the process. After launch, 2 in-depth users’ tests including 13 patients and 3 rheumatologists led to the app’s current version. The number of app installations, current users, and user requests were collected, as were scores and comments at stores. RESULTS The qualitative study revealed needs for information and counselling, development of a HP–patient partnership, development of skills to cope with daily life and risk situations with treatment aids; 86.8% participants in the quantitative study would be ready to use an app primarily on their rheumatologist’s recommendation. Six functionalities were implemented: a safety checklist before treatment administration, aids in daily life situations, treatment reminders, global well-being self-assessment, periodic counselling messages, and a diary. Aids for risk situations were based on the French academic recommendations for DMARD management, drug leaflets and websites of national health authorities. The app is free, with no personal data collection. The presentation is a “companion” called Hiboot (“owl” in English). Hiboot was installed 20,500 times from 2017 to 2020, with 4300 regular current users and still-increasing usage curves. Overall, 18,000 requests on treatment self-management were identified over an 8-month period in 2020. Scores were 4.4/5 stars at Android and iOS stores. CONCLUSIONS Hiboot is a free self-management app for patients with inflammatory arthritis developed by a step-by-step process including patients and HPs. The number of current users is substantial. Further evaluation of the Hiboot benefit is needed.

scholarly journals Umanizzazione delle cure: curare con l'arte

2020 ◽  
Vol 32 (1) ◽  
pp. 92-95
Author(s):  
Francesco Burrai ◽  
Giovanni Salis
Keyword(s):  
Personal Identity ◽  
Real World ◽  
Daily Life ◽  
Real Life ◽  
Well Being ◽  
The Unconscious ◽  
The Real

Art can be a way, together with Nature, to intercept that landscape and inner climate characterized by the rhythm of silence. That dimension of iridescent calm imbued with creative and vital energy, which pushes towards a universal, seductive, profound sphere. Man can, with courage, abandon himself in this harmony and melody of thoughts that suggest a vast and visionary possibility. Each person has the inner possibility to be Art, to get out of the continuous distortions of daily life, to produce a metamorphosis of one’s life. Art triggers the unconscious side of seeing, a rhythmic, dynamic principle, on which every gesture of maximum spontaneity depends, not touched by the artificial, by masks of fugacity and by false personalities. Without Art, it seems that part of real life is missing. The deep artistic power is fluid, without space or time, pulsating with new forms and substance and creating a new personal identity, contiguous to the real world, which inspires new desires. Many diseases of today and yesterday are produced by the lack of expressiveness or by the repression of personal creativity. Art produces well-being because it is the transformation of unconscious expressive energies, so life for our health.

Patient perspectives on outcome domains of medication adherence trials in inflammatory arthritis: an international OMERACT focus group study

2021 ◽  
pp. jrheum.201568
Author(s):  
Charlotte L. Bekker ◽  
Sacha Bossina ◽  
Mary A. de Vera ◽  
Susan J. Bartlett ◽  
Maarten de Wit ◽  
...  
Keyword(s):  
Medication Adherence ◽  
Inflammatory Arthritis ◽  
Productivity Loss ◽  
Well Being ◽  
Minimal Risk ◽  
Focus Group Study ◽  
Related Factors ◽  
Medication Knowledge ◽  
Life Impact ◽  
Inductive Thematic Analysis

Objective To describe the perspectives of patients with inflammatory arthritis (IA) on outcome domains of trials evaluating medication adherence interventions. Methods Adult patients (≥18 years) with IA using disease-modifying anti-rheumatic drugs (DMARDs) from centres across Australia, Canada, and the Netherlands participated in six focus groups to discuss outcome domains of medication adherence trials that they consider important. We analysed the transcripts using inductive thematic analysis. Results Of the 38 participants, 23 (61%) had rheumatoid arthritis and 21 (55%) were female. The mean age was 57.3 ± SD [15.0] years. Improved outcome domains that patients wanted from participating in an adherence trial were categorised into five types: medication adherence, adherence-related factors (supporting adherence e.g. medication knowledge), pathophysiology (e.g. physical functioning), life impact (e.g. ability to work), and economic impact (e.g. productivity loss). Three overarching themes reflecting why these outcome domains matters to patients were identified. First, how taking medications could improve patient’s emotional and physical fitness to maintain their social function. Second, how improving knowledge and confidence in self-management increase patient’s trust in and motivation to take medications as agreed with minimal risk of harms. Finally, how respect and reassurance, reflecting healthcare that values patient’s opinions and is sensitive to patient’s individual goals could improve medication taking behaviour. Conclusion Patients value various outcome domains to be evaluated in future adherence trials related to their overall well-being, confidence in medication use and patient-healthcare provider relationships.

scholarly journals Developing an Asthma Self-management Intervention Through a Web-Based Design Workshop for People With Limited Health Literacy: User-Centered Design Approach

10.2196/26434 ◽  
2021 ◽  
Vol 23 (9) ◽  
pp. e26434
Author(s):  
Hani Salim ◽  
Ping Yein Lee ◽  
Sazlina Sharif-Ghazali ◽  
Ai Theng Cheong ◽  
Jasmine Wong ◽  
...  
Keyword(s):  
Health Literacy ◽  
Action Plan ◽  
Real Life ◽  
Mobile App ◽  
Self Management ◽  
Primary Care Center ◽  
Long Term Conditions ◽  
Web Based ◽  
Limited Health Literacy ◽  
Limited Health

Background Technology, including mobile apps, has the potential to support self-management of long-term conditions and can be tailored to enhance adoption. We developed an app to support asthma self-management among people with limited health literacy in a web-based workshop (to ensure physical distancing during the COVID-19 pandemic). Objective The aim of this study is to develop and test a prototype asthma self-management mobile app tailored to the needs of people with limited health literacy through a web-based workshop. Methods We recruited participants from a primary care center in Malaysia. We adapted a design sprint methodology to a web-based workshop in five stages over 1 week. Patients with asthma and limited health literacy provided insights into real-life self-management issues in stage 1, which informed mobile app development in stages 2-4. We recruited additional patients to test the prototype in stage 5 using a qualitative research design. Participants gave feedback through a concurrent thinking-aloud process moderated by a researcher. Each interview lasted approximately 1 hour. Screen recordings of app browsing activities were performed. Interviews were audio-recorded and analyzed using a thematic approach to identify utility and usability issues. Results The stakeholder discussion identified four themes: individual, family, friends, and society and system levels. Five patients tested the prototype. Participants described 4 ways in which the app influenced or supported self-management (utility): offering information, providing access to an asthma action plan, motivating control of asthma through support for medication adherence, and supporting behavior change through a reward system. Specific usability issues addressed navigation, comprehension, and layout. Conclusions This study proved that it was possible to adapt the design sprint workshop to a web-based format with the added advantage that it allowed the development and the testing process to be done efficiently through various programs. The resultant app incorporated advice from stakeholders, including sources for information about asthma, medication and appointment reminders, accessible asthma action plans, and sources for social support. The app is now ready to move to feasibility testing.

scholarly journals SELF-ASSESSMENT CRITERIA OF TEACHER’S WELL-BEING

2012 ◽  
Vol 48 (1) ◽  
pp. 81-90
Author(s):  
Diana Liepa ◽  
Aija Dudkina ◽  
Maruta Sile
Keyword(s):  
Professional Development ◽  
Job Performance ◽  
Professional Growth ◽  
Teaching Effectiveness ◽  
Professional Competence ◽  
Daily Life ◽  
Personality Development ◽  
Well Being ◽  
Educational Process ◽  
Self Assessment

Our dynamic life brings changes not only into our daily life, but in thinking and the way to work and to learn as well. We have to be faster and more flexible in order to develop our professional, social and civic competencies. Education helps to develop the attitudes, skills and knowledge necessary to make informed decisions for the benefit of themselves and others, now and in the future, and to act upon these decisions. That is why teachers have to find the best ways in acquiring professional competencies and in developing their individual qualities. The teacher’s role in the educational process has always been vital. Especial significance is being attached to the teacher’s personality and professional growth, the teacher’s satisfaction with the life in general and their abilities’ conformity to the demands of the profession. The teacher’s satisfaction serves as a motivation factor in order to advance the educator’s professional competence (high mastery). The teacher’s as a professional’s advancement is closely connected with his personality development. The human’s personality in general influences positively the professional adaptation, promotes professional creativity, safeguards from professional obsoleteness. The teacher’s personality maintains the professional expertise, promotes professional competences’ advancement. There are relationships between aspects of teacher’s well-being and student’s learning, job performance or other aspects of teaching effectiveness. The teacher’s well-being influences the effectiveness of student’s learning. Key words: compensation, dissatisfaction, professional development, satisfaction with work.

scholarly journals TWIICE One powered exoskeleton: Effect of design improvements on usability in daily-life as measured by Cybathlon race performance

2021 ◽  
Author(s):  
Tristan Vouga ◽  
Jemina Fasola ◽  
Romain Baud ◽  
Ali Reza Manzoori ◽  
Julien Pache ◽  
...  
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Positive Impact ◽  
Daily Life ◽  
Real Life ◽  
Well Being ◽  
Training Time ◽  
Thoracic Level ◽  
Cord Injury ◽  
Complete Spinal Cord Injury

Abstract Background Spinal cord injury leading to paraplegia affects the mobility and physiological well-being of nearly one in a thousand people. Powered exoskeletons can temporarily restore the ability to walk. Their relevance in daily life is still limited because of low performance beyond even ground. Cybathlon is an international competition promoting improvements in assistive technology. In this article we present the latest design and results of testing of TWIICE One 2018, one of the competing devices in the 2020 race. Methods A person with a motor-complete spinal cord injury at thoracic level T10 participated as race pilot. Training ahead of the race took place over one week at a rate of 2-5 hours per week. Time to perform each of the 7 tasks of the competition was recorded together with the number of repetitions. Performance is compared over training time and against 2016 race results. Results Progression was observed in all tasks and accounted for by both user training and technology improvements. Final competition rank was second out of 7 participating teams, with a record time of 4'40" min. This represents an average of 40 % improvement with respect to comparable obstacles of the 2016 race, explaining the two ranks of improvement since then. Conclusion These results help understand which features had a positive impact on real life performance of the device. Understanding how design affects performance is a key information to create devices that really improve the life of people living with paraplegia.

Emotional Intelligence Self-Assesment – Study Among Teachers

2020 ◽  
Vol 8 (1) ◽  
pp. 3-11
Author(s):  
Veneta Uzunova ◽  
Doncho Donev
Keyword(s):  
Emotional Intelligence ◽  
Well Being ◽  
Emotional Awareness ◽  
Self Esteem ◽  
Self Management ◽  
Modern World ◽  
Personal Construct ◽  
Personal Distress ◽  
Social Emotional ◽  
Self Assessment

The digitalization of the modern world makes the topic of emotional intelligence more relevant. Emotional intelligence is becoming a basic characteristic of the modern man, and therefore the need to study, research and develop it in the educational environment is of utmost importance. There is still little talk about the emotional intelligence of teachers. This study is oriented towards them and their self-esteem in relation to this personal construct. Through self-assessment questionnaires, teachers determine their level of personal emotional awareness, emotional self-management, social emotional awareness and relationship management - the main markers of emotional intelligence. The results are linked to the sense of well-being and the problem of personal distress in teachers.

scholarly journals Developing an Asthma Self-management Intervention Through a Web-Based Design Workshop for People With Limited Health Literacy: User-Centered Design Approach (Preprint)

2020 ◽  
Author(s):  
Hani Salim ◽  
Ping Yein Lee ◽  
Sazlina Sharif-Ghazali ◽  
Ai Theng Cheong ◽  
Jasmine Wong ◽  
...  
Keyword(s):  
Health Literacy ◽  
Action Plan ◽  
Real Life ◽  
Mobile App ◽  
Self Management ◽  
Primary Care Center ◽  
Long Term Conditions ◽  
Web Based ◽  
Limited Health Literacy ◽  
Limited Health

BACKGROUND Technology, including mobile apps, has the potential to support self-management of long-term conditions and can be tailored to enhance adoption. We developed an app to support asthma self-management among people with limited health literacy in a web-based workshop (to ensure physical distancing during the COVID-19 pandemic). OBJECTIVE The aim of this study is to develop and test a prototype asthma self-management mobile app tailored to the needs of people with limited health literacy through a web-based workshop. METHODS We recruited participants from a primary care center in Malaysia. We adapted a design sprint methodology to a web-based workshop in five stages over 1 week. Patients with asthma and limited health literacy provided insights into real-life self-management issues in stage 1, which informed mobile app development in stages 2-4. We recruited additional patients to test the prototype in stage 5 using a qualitative research design. Participants gave feedback through a concurrent thinking-aloud process moderated by a researcher. Each interview lasted approximately 1 hour. Screen recordings of app browsing activities were performed. Interviews were audio-recorded and analyzed using a thematic approach to identify utility and usability issues. RESULTS The stakeholder discussion identified four themes: individual, family, friends, and society and system levels. Five patients tested the prototype. Participants described 4 ways in which the app influenced or supported self-management (utility): offering information, providing access to an asthma action plan, motivating control of asthma through support for medication adherence, and supporting behavior change through a reward system. Specific usability issues addressed navigation, comprehension, and layout. CONCLUSIONS This study proved that it was possible to adapt the design sprint workshop to a web-based format with the added advantage that it allowed the development and the testing process to be done efficiently through various programs. The resultant app incorporated advice from stakeholders, including sources for information about asthma, medication and appointment reminders, accessible asthma action plans, and sources for social support. The app is now ready to move to feasibility testing.

scholarly journals Theoretically-Based Emotion Regulation Strategies Using a Mobile App and Wearable Sensor Among Homeless Adolescent Mothers: Acceptability and Feasibility Study (Preprint)

2017 ◽  
Author(s):  
Noelle R Leonard ◽  
Bethany Casarjian ◽  
Richard R Fletcher ◽  
Cathleen Prata ◽  
Dawa Sherpa ◽  
...  
Keyword(s):  
Emotion Regulation ◽  
Technology Acceptance ◽  
Adolescent Mothers ◽  
Daily Life ◽  
Real Life ◽  
Mobile App ◽  
Emotion Regulation Strategies ◽  
Physiological Measurement ◽  
Regulation Strategies ◽  
Mhealth Technology

BACKGROUND Many adolescent mothers are parenting young children under highly stressful conditions as they are managing first-time parenthood, poverty, lack of housing, school and work, and challenging peer and familial relationships. Mobile health (mHealth) technology has the potential to intervene at various points in the emotion regulation process of adolescent mothers to provide them support for more adaptive emotional and behavioral regulation in the course of their daily life. OBJECTIVE The goal of this study was to examine the acceptability, feasibility, use patterns, and mechanisms by which a mobile technology used as an adjunct to in-person, provider-delivered sessions fostered adolescent mothers’ adaptive emotion regulation strategies under real-life conditions. METHODS Participants (N=49) were enrolled in the intervention condition of a larger pilot study of homeless adolescent mothers living in group-based shelters. The mHealth technology, Calm Mom, consisted of a mobile app and a wrist-worn sensorband for the ambulatory measurement and alerting of increased electrodermal activity (EDA), a physiological measurement of stress. We examined logs of mobile app activity and conducted semistructured qualitative interviews with a subsample (N=10) of participants. Qualitative data analysis was guided by the theoretical frames of the intervention and a technology acceptance model and included an analysis of emerging themes and concepts. RESULTS Overall, participants indicated that one or more of the elements of Calm Mom supported their ability to effectively regulate their emotions in the course of their daily life in ways that were consonant with the intervention’s theoretical model. For many adolescent mothers, the app became an integral tool for managing stress. Due to technical challenges, fewer participants received sensorband alerts; however, those who received alerts reported high levels of acceptability as the technology helped them to identify their emotions and supported them in engaging in more adaptive behaviors during real-life stressful situations with their children, peers, and family members. CONCLUSIONS Calm Mom is a promising technology for providing theoretically driven behavioral intervention strategies during real-life stressful moments among a highly vulnerable population. Future research efforts will involve addressing technology challenges and refining tailoring algorithms for implementation in larger-scale studies.

scholarly journals Effects of a multifaceted treatment program for executive dysfunction after acquired brain injury on indications of executive functioning in daily life

2009 ◽  
Vol 16 (1) ◽  
pp. 118-129 ◽  
Author(s):  
JACOBA M. SPIKMAN ◽  
DANIELLE H.E. BOELEN ◽  
KIRSTEN F. LAMBERTS ◽  
WIEBO H. BROUWER ◽  
LUCIANO FASOTTI
Keyword(s):  
Brain Injury ◽  
Executive Functioning ◽  
Daily Life ◽  
Real Life ◽  
Acquired Brain Injury ◽  
Executive Dysfunction ◽  
Well Being ◽  
Post Treatment ◽  
Strategy Training ◽  
Experimental Group

AbstractA multicenter randomized control trial (RCT) was conducted to evaluate the effects of a treatment for dysexecutive problems after acquired brain injury (ABI) on daily life functioning. Seventy-five ABI patients were randomly allocated to either the experimental treatment, multifaceted strategy training for executive dysfunction, or a control treatment, computerized cognitive function training. Assessment took place before, directly after, and 6 months post-treatment. The primary outcome measure, the Role Resumption List (RRL), and two other follow-up measures, the Treatment Goal Attainment (TGA) and the Executive Secretarial Task (EST), were indications of daily life executive functioning. The experimental group improved significantly more over time than the controls on the RRL and attained significantly higher scores on the TGA and EST. We conclude that our treatment has resulted in significant improvements of executive functioning in daily life, lasting at least 6 months post-treatment. Although control patients’ satisfaction and subjective well-being were at the same level, the experimental group had better abilities to set and accomplish realistic goals, to plan, initiate, and regulate a series of real-life tasks, and to resume previous roles with respect to work, social relations, leisure activities, and mobility. (JINS, 2010, 16, 118–129.)

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