scholarly journals Dental care course and oral quality of life in patients with X-linked hypophosphatemia: a qualitative exploration

2021 ◽  
Author(s):  
Lisa Friedlander ◽  
Caroline Nguyen ◽  
Elisabeth Celestin ◽  
Delphine Chambolle ◽  
Agnès Linglart ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Health Professionals ◽  
Care Pathway ◽  
Oral Care ◽  
Clinical Signs ◽  
Structured Interviews ◽  
Fgf 23 ◽  
Qualitative Exploration

Abstract Background. X-linked hypophosphatemia (XLH) is a rare, hereditary, progressive, and lifelong phosphate wasting disorder characterized by pathological elevations in fibroblast growth factor (FGF) 23 serum concentration and activity. In the oral cavity, spontaneous abscesses can occur often without any clinical signs of alteration of the causal tooth. The objective of our study was to evaluate the readability of the oral care pathway and the oral quality of life of patients followed in an expert oral medicine department located within a Parisian hospital and working in close collaboration with an endocrinology department expert in this pathology. Methods. This study employed a qualitative descriptive design including semi-structured interviews using guiding themes. Results. Twenty-one patients were included in the study, with an average age of 28 years. The topics discussed exceeded the initial objectives as the patients largely addressed the alteration of their oral and general quality of life, a very chaotic oral health care pathway with oral health professionals not aware of their pathology, consequences on their social, professional, and school integration and access to care complicated by financial factors. Patients reported the importance of having a multidisciplinary team around them, including medical and dental professionals.Conclusions. The variety of manifestations in patients with XLH necessitates a high coordination of multidisciplinary patient care to optimize quality of life and reduce disease burden. Education of oral health professionals on this disease is essential to enable patients to receive the best possible care as early as possible.

scholarly journals Oral health-related quality of life in patients with X-linked hypophosphatemia: a qualitative exploration

2021 ◽  
Author(s):  
Caroline Nguyen ◽  
Elisabeth Celestin ◽  
Delphine Chambolle ◽  
Agnès Linglart ◽  
Martin Biosse Duplan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Oral Health ◽  
Care Pathway ◽  
Clinical Signs ◽  
Oral Health Care ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Background. X-linked hypophosphatemia (XLH) is a rare, hereditary, and lifelong phosphate wasting disorder characterized by rickets in childhood and impaired teeth mineralization. In the oral cavity, spontaneous abscesses can often occur without any clinical signs of alteration of the causal tooth. The objective of our study was to evaluate the oral care pathway and the oral health-related quality of life (OHRQoL) of patients followed in an expert oral medicine department located within a Parisian hospital and working in close collaboration with an endocrinology department expert in this pathology. Methods. This study employed a qualitative descriptive design including semi-structured interviews using guiding themes. Results. Twenty-one patients were included in the study. The topics brought up exceeded the initial objectives as the patients mostly addressed the alteration of their oral and general quality of life; a very chaotic oral health care pathway with oral health professionals not aware of their pathology; consequences on their social, professional, and school integration; access to care complicated by financial factors. Patients declared the importance of having a multidisciplinary team around them, including medical and dental professionals.Conclusions. The variety of manifestations in patients with XLH necessitates a high coordination of multidisciplinary patient care to optimize quality of life and reduce disease burden. Oral health care pathways are very chaotic for patients who have difficulty finding professionals with sufficient knowledge of the disease. OHRQoL is therefore diminished. This situation improves when patients enter a coordinated care network.

scholarly journals Oral Health-Related quality of life in patients with X-linked hypophosphatemia: a qualitative exploration

2021 ◽  
Author(s):  
Caroline Nguyen ◽  
Elisabeth Celestin ◽  
Delphine Chambolle ◽  
Agnès Linglart ◽  
Martin Biosse Duplan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Oral Health ◽  
Care Pathway ◽  
Clinical Signs ◽  
Oral Health Care ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Introduction. X-linked hypophosphatemia (XLH) is a rare, hereditary, and lifelong phosphate wasting disorder characterized by rickets in childhood and impaired teeth mineralization. In the oral cavity, spontaneous abscesses can often occur without any clinical signs of alteration of the causal tooth. The objective of our study was to evaluate the oral care pathway and the oral health-related quality of life (OHRQoL) of patients followed in an expert oral medicine department located within a Parisian hospital and working in close collaboration with an endocrinology department expert in this pathology. Methods. This study employed a qualitative descriptive design including semi-structured interviews using guiding themes. Results. Twenty-one patients were included in the study. The topics brought up exceeded the initial objectives as the patients mostly addressed the alteration of their oral health-related and general quality of life; a very chaotic oral health care pathway with oral health professionals not aware of their pathology; consequences on their social, professional, and school integration. Patients declared the importance of having a multidisciplinary team around them, including medical and dental professionals. Conclusions. The variety of manifestations in patients with XLH necessitates a high coordination of multidisciplinary patient care to optimize quality of life and reduce disease burden. Oral health care pathways are very chaotic for patients who have difficulty finding professionals with sufficient knowledge of the disease. OHRQoL is therefore diminished. This situation improves when patients enter a coordinated care network.

scholarly journals PARE0023 ORAL HEALTH IN RHEUMATOID ARTHRITIS: LISTENING TO PATIENTS

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1297.2-1297
Author(s):  
J. Protudjer ◽  
C. Billedeau ◽  
C. Stavropoulou ◽  
A. Cholakis ◽  
R. Schroth ◽  
...  
Keyword(s):  
Rheumatoid Arthritis ◽  
Oral Health ◽  
Periodontal Disease ◽  
Oral Care ◽  
Structured Interviews ◽  
Face To Face ◽  
Oral Health Education ◽  
To Receive ◽  
Latent Content

Background:Rates of periodontal disease and tooth loss are increased in rheumatoid arthritis (RA). Periodontal disease may exacerbate RA inflammation and complicate RA care. Understanding factors that contribute to the increased burden of periodontal disease in RA is critical to improving oral health and possibly arthritis outcomes. People with RA may have unique needs and/or barriers to maintain oral health.Objectives:To determine from people with RA what are their experiences and perceptions about their oral health, their most important questions relating to oral health, and how they wish to receive oral health information.Methods:Semi-structured interviews were conducted with RA patients. Recorded interview transcripts underwent iterative content analysis. Transcripts were initially reviewed to develop a coding guide. Latent content, or larger themes, were then applied to the transcripts. Constructs were considered saturated when no new themes were identified with subsequent interviews. We report identified themes with representative quotes.Results:Interviews with 11 RA (10[91%] female; all on RA medication) averaged 19 minutes (range 8-31 minutes) and were mostly conducted face-to-face. Many believed RA medication contributed to dry mouth. Most participants had not previously considered other links between oral health and RA. Themes identified included the need for complicated oral health routines, barriers of cost and access to dental care, and shame relating to oral health (Table 1). Participants preferred to receive oral health education from their rheumatologists or dentists over printed or online resources.Conclusion:RA patients have unique needs relating to oral health and report poor oral quality of life. Strategies to optimize oral health in RA may include educational tools for optimizing oral self-care appropriate for RA, and improved access to oral care professionals who are aware of the needs of arthritis patients.Disclosure of Interests:Jennifer Protudjer: None declared, Corrie Billedeau: None declared, Chrysi Stavropoulou: None declared, Anastasia Cholakis: None declared, Robert Schroth: None declared, Carol Hitchon Grant/research support from: UCB Canada; Pfizer Canada

scholarly journals Impact of Periodontal Disease on the Quality of Life of Older People in Indonesia: A Qualitative Study

2021 ◽  
pp. 238008442110419
Author(s):  
M. Hijryana ◽  
M. MacDougall ◽  
N. Ariani ◽  
L.S. Kusdhany ◽  
A.W.G. Walls
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Environmental Factors ◽  
Periodontal Disease ◽  
Older People ◽  
Structured Interviews ◽  
Research Perspective ◽  
The Impact ◽  
People’S Perceptions

Introduction: The impact of periodontal disease on oral health–related quality of life (OHRQoL) has often been investigated from a quantitative research perspective, which is based on clinical findings and an OHRQoL questionnaire. Very few studies have examined the issue from the view of qualitative research. To our knowledge, there have been no previous qualitative studies focusing the effect of periodontal disease on OHRQoL in Indonesian older people. Objectives: To explore and understand the impact of periodontal disease on the OHRQoL of older people as a subjective reflection in relation to periodontal disease experiences. Methods: Semi-structured interviews were conducted in a sample of 31 older people with generalized chronic periodontitis. Thematic analysis was used to identify the key issues in participants’ accounts. The analysis was undertaken by 2 independent coders to ensure reliability. To achieve thematic saturation, successive interviews were undertaken until 5 sequential interviews did not bring new themes. Results: Participants reported the negative effects likely related to periodontal disease. The impacts of periodontal disease were described by these older people as affecting more than pain, physical discomfort, and physical function restrictions. Periodontal disease also affected their psychological and social aspects of daily living. In addition, this study identified themes related to individual and environmental factors that may modify and personalize periodontal disease experiences. Furthermore, this study identified a misleading belief that problems related to periodontal disease were a normal part of aging, which might influence individuals’ expectations toward oral health. Relatedly, participants frequently reported that the progression of tooth mobility to tooth loss was an inevitable part of the aging process. Conclusions: Periodontal disease negatively affected participants’ OHRQoL. It is fundamental to understand older people’s perceptions toward their periodontal disease as well as individual and environmental factors that may have an influence on their periodontal disease experiences. Knowledge Transfer Statement: This study is a reflection of Indonesian older people’s subjective periodontal disease experiences. Therefore, the present study can be used to understand older people’s perceptions, attitudes, behaviors, and experiences toward periodontal disease and how this disease may affect their quality of life. This study also highlights a widespread and misleading belief that oral problems related to periodontal disease are an inevitable part of aging in this study population.

scholarly journals Factors Related to Oral Health-Related Quality of Life of Independent Brazilian Elderly

2013 ◽  
Vol 2013 ◽  
pp. 1-8 ◽  
Author(s):  
Karla Giovana Bavaresco Ulinski ◽  
Mariele Andrade do Nascimento ◽  
Arinilson Moreira Chaves Lima ◽  
Ana Raquel Benetti ◽  
Regina Célia Poli-Frederico ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Negative Impact ◽  
Female Gender ◽  
Lower Class ◽  
Structured Interviews ◽  
Cross Sectional ◽  
Posterior Teeth ◽  
The Impact

The aim of this cross-sectional study was to assess the factors associated with the impact of oral health on the quality of life in a sample of 504 Brazilian independent elderly. Data collection included oral examinations and structured interviews. The simplified form of the Oral Health Impact Profile (OHIP-14) was used to measure OHRQoL. Information on sociodemographic characteristics, use of dental services, and subjective measures of health was collected. Poisson regression within a hierarchical model was used to data analyses. The following variables were associated with a negative impact on OHRQoL: female gender (PR = 1.40; CI 95%: 1.11–1.77); lower class (PR = 1.58; CI 95%: 1.13–2.20); up to 3 occluding pairs of posterior teeth (PR = 1.88; CI 95%: 1.13–3.14); at least one untreated caries (PR = 1.28; CI 95%: 1.06–1.54); curative reasons for the last dental appointment (PR = 1.52; CI 95%: 1.15–2.00); poor self-perception of oral health (PR = 2.49; CI 95%: 1.92–3.24); and poor perception of dental care provided (PR = 1.34; CI 95%: 1.12–1.59). The younger elderly also noticed this negative impact. These findings showed that the clinical, sociodemographic, and subjective factors evaluated exerted a negative impact on OHRQoL in elderly people. Health authorities must address all these factors when planning interventions on oral health for this population.

scholarly journals Socioeconomic Characteristics, Oral Care Habits and Oral Health-Related Quality of Life among the Parents of Pre-School Children in Klaipėda

2016 ◽  
Vol 13 (1) ◽  
pp. 27-39
Author(s):  
Jurgita Andruškienė ◽  
Šarūnė Barsevičienė ◽  
Lijana Dvarionaitė ◽  
Jūratė Grubliauskienė ◽  
Asta Mažionienė
Keyword(s):  
Quality Of Life ◽  
Socioeconomic Status ◽  
Oral Health ◽  
School Children ◽  
Oral Care ◽  
Health Related Quality ◽  
Major Work ◽  
Related Quality ◽  
Health Related

AbstractThere is a lack of data about oral health-related quality of life (OHRQoL) among the parents of pre-school children, especially in Lithuania and the relationships among socio-economic status, oral care habits and OHRQoL. Research questions: is OHRQoL influenced by socioeconomic status or oral care habits? Research focus – oral health-related quality of life among the parents of pre-school children. The aim of this study was to analyze the relationships among socioeconomic status, oral care habits and oral helath-related quality of life among the parents of pre-school children in Klaipeda. The study sample consisted of 375 parents (mother or father) of pre-school children. The questionnaire survey was conducted at randomly selected 23 kindergartens in Klaipeda city. The questionnaire consisted of sociodemographic and oral care habits questions. All the participants were examined by self-administered OIDP questionnaire, which measured oral impacts on physical, psychological and social aspects of daily performances. The highest overall impact on OHRQoL among the parents of pre-school children was observed in the domain of Carrying out major work or role (73.0), the lowest one in the Eating and enjoying food (25.74) domain. Mean OIDP score was significantly higher among the parents whose socioeconomic status was low (35.44), reflecting poorer OHRQoL, as compared with high (8.07) socioeconomic status. Parents with poor oral care habits significantly more frequently were affected (79.2%) in Smiling, laughing domain, as compared to the parents whose oral care habits were good (20.8%). Lower socioeconomic status and poorer oral care habits were related with worsened oral health-related quality of life, especially in the area of psychological performances.

scholarly journals Oral health and quality of life of the elderly.

2020 ◽  
Vol 2 (6) ◽  
pp. 04-11
Author(s):  
Gabriela Furst Vaccarezza ◽  
Raissa Lopes Fuga ◽  
Stephanie Regiane Prata Ferreira
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Data Collection ◽  
Elderly People ◽  
Health Professionals ◽  
Tooth Loss ◽  
The Elderly ◽  
Health Conditions ◽  
Negative Impacts

Introduction: The Brazilian population has been aging rapidly since the early 1960s, when the age structure of the population began to change. In 1996, only 5% of the population was 60 years old or more, while today they are 9% of the population. Objective: The objective of this study is to assess oral health conditions of the elderly who live in Vila dos Idosos, collecting information about their condition of life, and trying to correlate how much oral health can compromise the quality of life and autonomy of these elderly people. Methods: Data collection was carried out through questionnaires and clinical examination; elderly people over 60 years old, of both sexes, were interviewed. All interviews were conducted in the Vila dos Idosos itself. Results: The results show that tooth loss or the use of inadequate prostheses has negative impacts on quality of life, especially with regard to worry, stress resulting from problems in the mouth and shame. It was obtained in the research that, in general, oral health in the elderly is fragile, requiring greater attention from health professionals; however, when self-perceived oral health is analyzed, the vast majority assess it as very good or good. Conclusion: The most important finding of the study was that, although the data obtained indicate a fragile oral health that reveals a commitment to quality of life, the vast majority of the elderly evaluated their own health positively. This may indicate that, for this population, health oral health is dissociated from health.

scholarly journals What are the needs of infertile Moroccan couples in Assisted Reproductive Technology?: Exploratory qualitative study in the first fertility public center in Morocco

2020 ◽  
Vol 19 (4) ◽  
pp. 697-704
Author(s):  
Asmaa Zaidouni ◽  
Fatima Ouasmani ◽  
Amal Benbella ◽  
Fouad Ktiri ◽  
Zakaria Abidli ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Assisted Reproductive Technology ◽  
Health Professionals ◽  
Negative Impact ◽  
Medical Science ◽  
Reproductive Technology ◽  
Spiritual Support ◽  
Structured Interviews ◽  
Infertile Couples

Context: Infertility is one of the most painful experiences that can have a negative impact in many areas of an individual’s life. Providing quality care to infertile couples requires health professionals to explore their experiences and needs to plan effective supportive interventions. Objectives: To explore the experiences and needs of Moroccan infertile couples in Assisted Reproductive Technology. Material and Methods: This is a qualitative exploratory study. It involves 40 infertile couples (men and women) and 5 health professionals as key informants. Infertile couples were selected among those attending the first public center for Assisted Reproductive Technology in Morocco located in Rabat during the period 2017-2018. In-depth unstructured interviews, field notes were used with couples and semi-structured interviews with health professionals. The analysis of the interview data was based on a conventional content analysis method. Results: Five types of needs were identified among infertile Moroccan couples, namely: i. Infertility and social support; ii. Infertility and financial support; iii. Infertility and spiritual support; iv. Infertility and informational support; v. Infertility and emotional support. Conclusion: Infertile moroccan couples experienced many emotional, psychosocial and economic difficulties that can negatively affect their quality of life. Thus, to meet the needs and expectations of these couples alongside their medical treatment, it’s necessary to develop couple-centered approaches, which can improve their quality of life, treatment outcomes and mitigate negative psychosocial consequences. Bangladesh Journal of Medical Science Vol.19(4) 2020 p.697-704

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