scholarly journals “Why them, why me, why us?” The Experiences of Parents of Children with Lysomal Acid Lipase Deficiency: An Interpretative Phenomenological Analysis Study

2021 ◽  
Author(s):  
Sadie Hassell ◽  
Debbie M Smith ◽  
Stewart Rust ◽  
Simon Jones ◽  
Anja Wittkowski
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Clinical Pathways ◽  
Phenomenological Analysis ◽  
Emotional Reactions ◽  
Lysosomal Storage ◽  
Acid Lipase ◽  
Structured Interviews ◽  
Enzyme Replacement ◽  
The United Kingdom

Abstract BackgroundLysosomal acid lipase deficiency (LALD) is an ultra-rare, inherited metabolic disease within the category of lysosomal storage disorders, affecting an infant’s ability to metabolise cholesterol. Developments in treatment, including Enzyme Replacement Therapy, have proven successful, with some children living for a number of years post-diagnosis, although the future still remains unknown. The aim of this study was to explore the lived experiences of parents of children with LALD. Main textParticipants were recruited from across the United Kingdom between 2020-2021. Eight parents (five mothers and three fathers) whose child had a confirmed diagnosis of LALD were interviewed. Data collected from the semi-structured interviews were audio-record, transcribed and analysed using Interpretative Phenomenological Analysis (IPA). Three superordinate and nine subordinate themes emerged from the data: 1) Uncertainty - a double-edged sword (plunged into an uncertain world, living life with worry and walking the tightrope of stability), 2) Powerless against a shared battle (a helpless parent, a joint battle, protection against distress and a vulnerable parent needing to be held) and 3) Accepting a life with LALD - the camouflage of a “normal” child (trying to make sense of ‘why’ and a condition disguised by normality). ConclusionsThe findings of this study highlighted that the diagnosis of LALD proves to be a very vulnerable time in parents’ lives, eliciting strong emotional reactions against an unknown future. This study signified the importance of clinical pathways and service provisions to support parents and their children through this period, raising important issues around diagnosis.

On-Time Maturation in Female Adolescent Ballet Dancers: Learning From Lived Experiences

2021 ◽  
pp. 027243162110367
Author(s):  
Siobhan B. Mitchell ◽  
Anne M. Haase ◽  
Sean P. Cumming
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Female Adolescent ◽  
Structured Interviews ◽  
Ballet Dancers ◽  
The United Kingdom ◽  
Early Maturing ◽  
Fitting In ◽  
Pubertal Transition

This study employed semi-structured interviews and Interpretative Phenomenological Analysis to explore experiences of on-time maturation in nine adolescent ballet dancers from across three vocational ballet schools in the United Kingdom. Two themes were identified as central to their experiences: ‘A right and a wrong way to grow’, and fitting in and moving forward. Instead of perceiving themselves as ‘average’ and experiencing a relatively easy pubertal transition, on-time dancers described unique challenges associated with a fluctuation between fitting in and not fitting in within their social context. The implications of on-time maturation in this context are complex and do not appear to follow the same trajectory as early maturing ballet dancers nor on-time non-dancers.

Exploring the relevancy of random and scheduled alcohol breathalyser testing in high-risk jobs within safety-sensitive work settings

2021 ◽  
Vol 19 ◽  
Author(s):  
Vusi Mthimkhulu ◽  
Hugo D. Van der Walt
Keyword(s):  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Qualitative Method ◽  
Alcohol Intoxication ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Ongoing Debate ◽  
Work Settings ◽  
Value Add ◽  
Viable Method

Orientation: Workplace testing is seen as a viable method in monitoring alcohol intoxication in the workplace. This article explored lived experiences of random and scheduled alcohol breathalyser testing to gain insights into meaning and understanding of the phenomenon under study.Research purpose: Random and scheduled testing are preferred techniques of assessing intoxication in the workplace. This article set to gain insights into whether behaviour can have an influence on the effectiveness of random and scheduled testing. The information can contribute to the ongoing debate on the efficacy of workplace testing and lays groundwork for future studies.Motivation for the study: Emergent data seem to suggest that the success of workplace testing in preventing alcohol and substance use in the workplace is indecisive.Research approach/design and method: A qualitative method was employed to collect data from eight alcohol-consuming individuals who performed jobs considered safety-sensitive through semi-structured interviews. Data were analysed through the application of an interpretative phenomenological analysis (IPA).Main findings: Findings revealed incidents of alcohol intoxication within the workplace in spite of random and scheduled testing in place. There seems to be a disregard for rules that prohibit intoxication in the workplace. Money bribes seem to enable cheating on testing in the workplace. Behaviour undercuts the goal of an alcohol-free workplace.Practical implications: Behaviour stemming from on-site intoxication and cheating on alcohol tests hinders on the goal of attaining an alcohol-free workplace.Contribution/value-add: The analysis of behaviour could contribute to the ongoing debate regarding the efficacy of workplace testing.

scholarly journals Elite Football Coaches Experiences and Sensemaking about Being Fired: An Interpretative Phenomenological Analysis

2020 ◽  
Vol 17 (14) ◽  
pp. 5196 ◽  
Author(s):  
Marte Bentzen ◽  
Göran Kenttä ◽  
Pierre-Nicolas Lemyre
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Job Insecurity ◽  
Phenomenological Analysis ◽  
Emotional Reactions ◽  
Structured Interviews ◽  
Coach Education ◽  
Football Coaches ◽  
Sports Organizations ◽  
Organization And Management ◽  
Performance Expectation

Background: Chronic job insecurity seems to be a prominent feature within elite sport, where coaches work under pressure of dismissals if failing to meet performance expectations of stakeholders. The aim of the current study was to get a deeper understanding of elite football coaches’ experiences of getting fired and how they made sense of that process. Method: A qualitative design using semi-structured interviews was conducted with six elite football coaches who were fired within the same season. Interpretative phenomenological analysis was chosen as framework to analyze the data. Results: The results reflected five emerging themes: Acceptance of having an insecure job, working for an unprofessional organization and management, micro-politics in the organization, unrealistic and changing performance expectation, and emotional responses. Conclusion: All coaches expressed awareness and acceptance regarding the risk of being fired. However, they experienced a lack of transparency and clear feedback regarding the causes of dismissal. This led to negative emotional reactions as the coaches experienced being evaluated by poorly defined expectations and by anonymous stakeholders. Sports organizations as employers should strive to be transparent during dismissal. In addition, job insecurity is a permanent stressor for coaches and should be acknowledged and targeted within coach education.

An Interpretative Phenomenological Analysis exploring how psychiatrists conceptualise conduct disorder and experience making the diagnosis

2020 ◽  
pp. 135910452096451
Author(s):  
Jessica Amy Staniford ◽  
Matthew Lister
Keyword(s):  
Conduct Disorder ◽  
Reflective Practice ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Clinical Implications ◽  
Structured Interviews ◽  
Severe Problem ◽  
The Way

The way professionals conceptualise CD likely impacts the identity of children given the diagnosis, yet how psychiatrists conceptualise CD, and experience making the diagnosis, is under-researched. Interpretative Phenomenological Analysis explored how psychiatrists conceptualise CD and experience making the diagnosis. Semi-structured interviews captured participants’ lived experiences and associated meanings. Four superordinate themes emerged: ‘Parents and professionals are overwhelmed by their struggles with CD’; ‘What is CD? Uncertainty regarding the cause, but clarity that it is a severe problem’; ‘CD as a controversial construct’; and ‘Whose issue is it anyway? Battles with blame and responsibility’. The emerging problem-saturated narrative is discussed. Clinical implications include increased training, reflective practice and using a formulation-based approach.

scholarly journals Caring for a Dying Partner: The Male Experience

2018 ◽  
Vol 34 (1) ◽  
pp. 5-11 ◽  
Author(s):  
Rebecca Judd ◽  
Helen Guy ◽  
Ruth A. Howard
Keyword(s):  
Emotional Support ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Help Seeking ◽  
Terminal Illness ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Conflicting Demands ◽  
Seeking Help ◽  
Male Experience

Objective: Caring for someone close who is dying, such as a spouse, is an emotive experience; however, there is little research examining the phenomenon of caregiving for a spouse at the end of life and of men’s experiences specifically. Existing literature suggests that men who are providing care are less likely to seek help than women, especially psychological and emotional support for themselves. The aim of the current study was to explore the lived experiences of men caring for a dying spouse or partner and their help-seeking for themselves during this time. Methods: Eight semi-structured interviews were conducted with men caring for their partner, who was receiving palliative care. Interviews were transcribed verbatim and analyzed using interpretative phenomenological analysis. Results: Three superordinate themes emerged from the data, “Illness Questions Everything,” “Constructing the Caring Role,” and “Help-Seeking at the Limit.” The arrival of a terminal illness into a partnership is traumatic, and while it can deepen relationships, it can also create distance. The carer role has conflicting demands and carers need to make sense of their experience in order for the carer role to be constructed as a source of purpose or meaning. Finally, the idea of seeking help for oneself as a carer during this time is seen as “incompatible,” unmanageable, and can only be considered if constructed as a “last resort.” Significance of Results: Men care too; however, they can feel confused by this role and unsure as to how this fits with their identity as a man. They make sense of this by identifying as a partner whose “duty” or “responsibility” is to provide care. Although this is an understandable stance, it puts them at risk of further emotional, psychological, and physiological difficulties if their own needs are not met. Men need to be supported during this time and their caring qualities need to be destigmatized and demystified so that they can feel more able to identify with the role and look after themselves while caring for their dying partner.

scholarly journals Immigrants’ Experiences on Integration While Attempting to Access the Labour Market: Implications for Social Work Practice

2021 ◽  
Vol 10 (4) ◽  
pp. 121
Author(s):  
Reidun Ims ◽  
Lennart Lorås ◽  
Ottar Ness ◽  
Linda Finlay
Keyword(s):  
Social Work ◽  
Labour Market ◽  
Social Exclusion ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Work Practice ◽  
Social Work Practice ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Gainful Employment

(1) Background: The challenge of immigrants and their integration into adopted countries is a key topic for the global field of social work. However, there is a paucity of research on immigrants’ lived experiences in gaining access to the labour market. Thus, this study examines how immigrants in Norway experience integration while in the process of gaining access to the labour market. The prevalent notion of integration achieved through gainful employment narrows the concept of integration and disguises the underlying marginalization and inequalities that are derived from majority- minority dividing lines. (2) Methods: Data were collected via nine qualitative semi-structured interviews with ten immigrants (one interview was with a couple) living in Norway. Data was analysed by using Interpretative Phenomenological Analysis. (3) Results: The results showed that the participants experienced social exclusion but accepted this as an inevitable part of being an immigrant. The participants regarded the learning of Norwegian language as the key aspect to understanding social customs and forming informal relationships with native Norwegians and important for achieving integration. Freedom and equality were also regarded as issues of great importance. (4) Conclusions: The results provide the field of social work with important insights towards informing social work practices and challenging current paradigms.

scholarly journals Exploring Buddhism as a ‘Tool’ to Support Well-Being: An Interpretative Phenomenological Analysis of Western Adopters’ Experiences

2021 ◽  
Author(s):  
Li Laurent ◽  
David Sheffield ◽  
Fiona Holland
Keyword(s):  
Interpretative Phenomenological Analysis ◽  
Well Being ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Future Studies ◽  
The United Kingdom ◽  
Buddhist Practice ◽  
Ancient Religion ◽  
Complete Form ◽  
Health And Well Being

AbstractBuddhism is an ancient religion and philosophy of living that is practised worldwide. More recent interest in mindfulness as a practice and intervention in the West has highlighted Buddhist-derived concepts as useful in supporting health and well-being. As a result, the desire to understand Buddhism in its more complete form has strengthened. Although research into mindfulness and compassion is growing, there is a new interest in second-generation mindfulness, i.e. interventions that draw upon a more holistic use of Buddhist practices. To date, little research has explored this in Western contexts. For the current study, Nichiren Buddhists from the United Kingdom who had been practising for at least three years were recruited. Semi-structured interviews were conducted to explore their experience of this practice and how it informed their approach to daily life and, in particular, their health and well-being. Interpretive phenomenological analysis was employed as a method to understand the participants’ experiences. Three themes were generated using an inductive approach: (1) finding meaning—“All experiences have got so much value now”— which reflected the participants’ determination to seek purpose and value in all aspects of their life; (2) Buddhism as a needed ‘tool’—“I use it all the time”—which revealed their practice as an important method to help them manage their lives; and (3) agency—“I’m in control of my destiny”—which highlighted the participants’ engagement (supported by their Buddhist practice) in taking responsibility for their actions and responses. Findings indicate the need for future studies to further explore Buddhism as a mechanism for enhancing and sustaining well-being.

scholarly journals Exploring the Lived Experience of People with Dementia Through Interpretative Phenomenological Analysis

2016 ◽  
Author(s):  
Helen Johnson
Keyword(s):  
Lived Experience ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Small Body ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
People With Dementia ◽  
Analytic Process ◽  
Moderate Dementia ◽  
Negative Perceptions

Dementia is arguably one of the biggest challenges facing society today, impacting millions of people worldwide. Nonetheless, there is only a relatively small body of research exploring what it is like to live with dementia from the perspectives of people who have this condition. This is partly because of the (implicit or explicit) belief that people with dementia lack insight into their condition and cannot talk about their experiences clearly. In this article, I argue that such beliefs are typically both erroneous and unhelpful, and that there is great value in seeking to illuminate the lived experiences of people with dementia. I present an interpretative phenomenological analysis of data from semi-structured interviews with six participants who had moderate dementia. I elicit five themes from this analytic process, and discuss the three most prominent here: awareness and understanding of dementia, clarity and confusion, and social support and relationships. I mobilise these themes to narrate the lived experiences of people with dementia, demonstrating their awareness both of the difficulties presented by dementia and of the negative perceptions of others.

scholarly journals Songs of A Caged Bird: A Glimpse into the Being of Youth Inside the Prison System

2021 ◽  
Vol 24 (3) ◽  
pp. 173-180
Author(s):  
John Emmanuel Mendoza ◽  
Edward Daniel Mortalla ◽  
Laurence Lascuna Garcia
Keyword(s):  
Young Adults ◽  
Social Exclusion ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Prison System ◽  
Structured Interviews ◽  
Phenomenological Inquiry ◽  
One Year ◽  
The Impact

Understanding young inmates’ experiences are essential since their lives have been shaped by the impact of social exclusion. This study aimed to explore the meaning of the lived experiences of young adults inside the prison system. The phenomenological inquiry was utilized, which is grounded in Martin Heidegger’s philosophy. Semi-structured interviews were conducted with 18 to 29-year-old inmates incarcerated for at least one year. Through interpretative phenomenological analysis, four themes emerged: An Unfamiliar Melody (with two subthemes: Humming with Frustrations and Tunes of Solitude); The Eyes Outside the Cage; Turning Over a New Feather; and If My Wings Unclipped. The “songs” of the caged bird tell about the “meanings” of restricted freedom--from being able to dip its wings in the orange sun rays down to being tied in chains. Being held inside a prison limits a person from experiencing life as they should. Opportunities to soar high were taken away. The consequences caused them the fragility of emotions: frustration, loneliness, and humiliation; yet, they still have a speck of hope. AbstrakNyanyian Burung dalam Sangkar: Sebuah Pandangan terhadap Kehidupan Remaja dalam Sistem Penjara. Memahami pengalaman narapidana berusia muda sangat penting karena kehidupan mereka yang terdampak oleh pengucilan sosial. Tujuan penelitian ini untuk mengeksplorasi makna dari pengalaman hidup orang berusia dewasa muda di dalam sistem penjara. Penelitian menggunakan pendekatan fenomenologis yang didasarkan pada filosofi Martin Heidegger. Pengumpulan data menggunakan metode wawancara semi-berstruktur dengan narapidana berusia 18 hingga 29 tahun yang sudah dipenjara setidaknya selama satu tahun. Berdasarkan analisis fenomenologi interpretatif, muncul empat tema, yaitu: An Unfamiliar Melody (dengan dua subtema: Humming with Frustrations dan Tunes of Solitude); The Eyes Outside the Cage; Turning Over a New Feather; dan If My Wings Unclipped. “Nyanyian” burung dalam sangkar yang menceritakan tentang “makna” kebebasan yang terbatas—mulai dari mencelupkan sayapnya di bawah sinar matahari jingga hingga diikat dengan rantai. Kondisi dipenjara membatasi seseorang untuk menjalankan kehidupan sebagaimana mestinya. Peluang mereka untuk terbang melambung tinggi dirampas. Hal ini menyebabkan emosi mereka rapuh: frustrasi, kesepian, dan penghinaan; tetapi, mereka masih memiliki setitik harapan. Kata Kunci: fenomenologi, frustasi, narapidana dewasa muda, sistem penjara

scholarly journals Exploring the Role of Mental Imagery in the Experience of Self-injury: An Interpretative Phenomenological Analysis

2015 ◽  
Vol 44 (1) ◽  
pp. 92-103 ◽  
Author(s):  
Peter Dargan ◽  
Graeme Reid ◽  
Suzanne Hodge
Keyword(s):  
Psychological Distress ◽  
Mental Imagery ◽  
Lived Experiences ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Structured Interviews ◽  
Qualitative Design ◽  
North West ◽  
Self Injury

Background: Research has implicated causal, mediating and meaningful roles for mental imagery in the experience of psychological distress, including self-injury. Aims: The present study aimed to further the understanding of this relationship through exploring the lived experiences of mental imagery from the perspective of those who self-injure. Method: This study employed an inductive qualitative design using semi-structured interviews and Interpretative Phenomenological Analysis (IPA). Ten participants were recruited from universities in North West England. Results: Three main themes were identified from the analysis: (i) The origins and precipitants of self-injurious imagery; (ii) What it is like to experience self-injurious imagery; and (iii) The meaning and interpretation of self-injurious imagery. Conclusions: The study findings indicate that mental imagery is an important experience for those who self-injure. Clinical and research implications of the findings are discussed.

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