I Know What I Should Do and Shouldn't Do Because I Tried: The Role of Children's Lay Knowledge of Juvenile Idiopathic Arthritis in Treatment Adherence. Results of the RUMAJI Study

2019 ◽  
Author(s):  
Jean-David Cohen ◽  
Guillaume Montagu ◽  
Ellie Mevel ◽  
Linda Rossi Semerano ◽  
William Fahy ◽  
...  
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Treatment Adherence ◽  
Lay Knowledge

scholarly journals The role of HLA typing in rheumatic diseases

2020 ◽  
Vol 3 (1) ◽  
pp. 1-8
Author(s):  
Luca Mascaretti ◽  
Elena Bevilacqua
Keyword(s):  
Rheumatoid Arthritis ◽  
Juvenile Idiopathic Arthritis ◽  
Amino Acid ◽  
Ankylosing Spondylitis ◽  
Hla Class I ◽  
Acid Sites ◽  
Hla Typing ◽  
Erosive Disease ◽  
Complex Cases

Association between HLA-DR4 and rheumatoid arthritis (RA) has been known for 4 decades, and amino acid sites within HLA-DRB1 (11/13, 71, 74) are highly associated with RA. HLA is not useful for diagnosis or prognosis, but it may help predict severe and erosive disease. Since 90% of patients with ankylosing spondylitis (AS) and 50-70% of other spondyloarthritis (SpA) patients are HLA-B*27 positive, HLA is a stronghold of diagnostic algorithms. Genetic predisposition to juvenile idiopathic arthritis (JIA) is mainly due to HLA class II, and to a lesser extent to HLA class I. Although HLA plays a role in rheumatic disorders, its clinical relevance is not homogeneous. When classical biomarkers are lacking or in complex cases, HLA typing may provide support for the management of patients.

The role of lay knowledge in HIA

2004 ◽  
pp. 81-90 ◽  
Author(s):  
John Kemm ◽  
Jayne Parry ◽  
Stephen Palmer
Keyword(s):  
Lay Knowledge

Family involvement in first-episode psychosis

2019 ◽  
pp. 117-130
Author(s):  
Greeshma Mohan ◽  
R. Padmavati ◽  
R. Thara
Keyword(s):  
Treatment Adherence ◽  
Family Involvement ◽  
First Episode Psychosis ◽  
First Episode ◽  
Rapid Urbanization ◽  
Episode Psychosis ◽  
The Family ◽  
Expanding Population

In the Indian secular, pluralistic, and collectivist society, the family is the oldest and the most important institution that has survived through the ages. With rapid urbanization and an ever-expanding population, there is a scarcity of financial and human resources in the area of mental health. Though progressively decreasing in size, families continue to provide a valuable support system, which can be helpful in the management of various stressful situations. Yet, very often this resource is not adequately and appropriately utilized. This chapter describes the role of family involvement in first-episode psychosis, drawing from various research projects carried out by the Schizophrenia Research Foundation (SCARF) and from other Indian centres. It deals with the identification of prodromes, access to care, treatment adherence and follow-up, and stigma.

Adherence in Pain Medicine

2017 ◽  
Author(s):  
Michael E. Schatman ◽  
Oscar J. Benitez
Keyword(s):  
Treatment Adherence ◽  
Treatment Options ◽  
Point Of View ◽  
Clinical Psychologists ◽  
Pain Medicine ◽  
Adherence To Treatment

This chapter reviews adherence to treatment options in pain medicine from the clinician’s point of view. Adherence is discussed in the context of principle-based ethics through the four tenets of autonomy, nonmaleficence, beneficence, and justice. Treatment adherence for pain medicine on the part of the clinician transcends mere compliance with opioid prescriptions and policies. Adherence is addressed as a broad-based approach that can be clinically appropriate when principle-based ethics are followed. The shortage of clinical therapists and the corresponding role of clinical psychologists are discussed. Ways to find a balance between the issues of abuse and underprescribing are also addressed.

The Second Domain of Palliative Care

2018 ◽  
Author(s):  
E. Alessandra Strada
Keyword(s):  
Palliative Care ◽  
Pain Management ◽  
Treatment Adherence ◽  
Psychological Factors ◽  
Physical Symptoms ◽  
Team Work ◽  
Advanced Illness ◽  
Interdisciplinary Work ◽  
Physical Suffering

This chapter proposes palliative psychology competencies in the second domain of palliative care: physical aspects of care. It discusses the importance of interdisciplinary work in assessment and management of pain and other physical symptoms. Palliative psychologists with the necessary knowledge, skills, and attitudes can contribute greatly to team work by identifying and managing psychological factors that can contribute to the patient’s physical suffering. This chapter also briefly describes relevant approaches to dyspnea and constipation. Clinical examples of pain assessment and intervention are provided based on real case scenarios. The basics of pharmacological approaches to pain management in advanced illness are discussed, in order to facilitate the role of palliative psychologists in promoting communication and treatment adherence. The use of integrative medicine modalities to improve physical symptoms is highlighted.

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