scholarly journals Developmental Assets of Adolescents and Young Adults With Chronic Illness and Comorbid Depression: Qualitative Study Using YouTube (Preprint)

2020 ◽  
Author(s):  
Katherine Zheng ◽  
Maureen George ◽  
Eugene Roehlkepartain ◽  
John Santelli ◽  
Jean-Marie Bruzzese ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Illness ◽  
Developmental Assets ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Comorbid Depression ◽  
Use Of Time ◽  
Identity Commitment ◽  
Internal Assets ◽  
Asset Development

BACKGROUND Developmental assets provide a framework for optimizing development among adolescents but have not been studied in adolescents with chronic illness and comorbid depression, which is a group at risk for poor health outcomes. YouTube postings provide valuable insights to understand this understudied population. OBJECTIVE This study aims to explore asset development from the perspectives of adolescents and young adults (AYAs) with chronic illness and comorbid depression. METHODS YouTube was searched using 12 chronic illnesses (eg, diabetes) coupled with “depression” as keywords. Videos were included if they were uploaded by AYAs aged between 11 and 29 years and discussed living with chronic illness and depression during adolescence. Video transcripts were coded deductively for 40 internal and external assets that constitute the Developmental Assets Framework. Categories not captured by deductive coding were identified using conventional content analysis. Categories and their respective assets were labeled as being discussed either negatively or positively. RESULTS In total, 31 videos from 16 AYAs met the inclusion criteria. A total of 7 asset categories, support, constructive use of time, boundaries and expectations (external assets), identity, commitment to learning, positive values, and social competence (internal assets), reflecting 25 (13 internal; 12 external) assets, were discussed. Internal assets, particularly relating to identity, were commonly discussed by AYAs either in a negative way or fluctuated between positive and negative perspectives. CONCLUSIONS In this sample of AYAs with chronic illness and comorbid depression, internal assets were commonly discussed in a negative way. Future research is needed to better understand how assets develop and if the Developmental Assets Framework adequately represents the experiences of this population.

scholarly journals Developmental Assets of Adolescents and Young Adults with Chronic Illness and Co-Morbid Depression: Qualitative Study using YouTube (Preprint)

10.2196/23960 ◽  
2020 ◽  
Author(s):  
Katherine Zheng ◽  
Maureen George ◽  
Eugene Roehlkepartain ◽  
John Santelli ◽  
Jean-Marie Bruzzese ◽  
...  
Keyword(s):  
Young Adults ◽  
Chronic Illness ◽  
Qualitative Study ◽  
Developmental Assets ◽  
Adolescents And Young Adults

Evaluation of an Educational Whiteboard Video to Introduce Fertility Preservation to Female Adolescents and Young Adults With Cancer

2020 ◽  
Vol 16 (6) ◽  
pp. e488-e497
Author(s):  
Talia Greenspoon ◽  
Rebecca Charow ◽  
Janet Papadakos ◽  
Mahsa Samadi ◽  
Anne Marie Maloney ◽  
...  
Keyword(s):  
Young Adults ◽  
Patient Education ◽  
Best Practices ◽  
Fertility Preservation ◽  
Reading Level ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Accurate Information ◽  
Education Material ◽  
Before And After

PURPOSE: Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints. METHODS: We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted. RESULTS: The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients’ knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost. CONCLUSION: A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.

Gender Considerations in Adolescents and Young Adults with Cancer (DRAFT)

2018 ◽  
Author(s):  
Amanda L. Thompson ◽  
Molly A. Gardner
Keyword(s):  
Young Adults ◽  
Psychosocial Adjustment ◽  
Clinical Care ◽  
Developmental Period ◽  
Benefit Finding ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Limited Attention ◽  
Positive Growth

Literature on adolescents and young adults (AYA) with cancer has largely focused on the biopsychosocial challenges of this developmental period, with limited attention paid to the role of gender or to gender differences in adjustment and outcomes. Differences have been found in the self-reported needs of AYA patients both during and after treatment, as well as in the information received regarding fertility preservation, psychological distress, positive growth, and benefit-finding and the role of social support in adjustment. Methodological limitations, however, impact our ability to draw robust conclusions about the role of gender in psychosocial adjustment and outcomes among AYAs with cancer. We present the limited research on gender in AYA patients and survivors, highlight significant gaps in the literature, provide recommendations for future research, and suggest early implications for clinical care.

Fertility preservation for transgender adolescents and young adults: a systematic review

2019 ◽  
Vol 25 (6) ◽  
pp. 694-716 ◽  
Author(s):  
Shira Baram ◽  
Samantha A Myers ◽  
Samantha Yee ◽  
Clifford L Librach
Keyword(s):  
Systematic Review ◽  
Young Adults ◽  
Fertility Preservation ◽  
Medical Data ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Sex Reassignment Surgery ◽  
Research Papers ◽  
Knowledge And Beliefs ◽  
Desire To Have Children

Abstract BACKGROUND Many transgender individuals choose to undergo gender-affirming hormone treatment (GAHT) and/or sex reassignment surgery (SRS) to alleviate the distress that is associated with gender dysphoria. Although these treatment options often succeed in alleviating such symptoms, they can also negatively impact future reproductive potential. OBJECTIVE AND RATIONALE The purpose of this systematic review was to synthesize the available psychosocial and medical literature on fertility preservation (FP) for transgender adolescents and young adults (TAYAs), to identify gaps in the current research and provide suggestions for future research directions. SEARCH METHODS A systematic review of English peer-reviewed papers published from 2001 onwards, using the preferred reporting items for systematic reviews and meta-analyses protocols (PRISMA-P) guidelines, was conducted. Four journal databases (Ovid MEDLINE, PubMed Medline, Ovid Embase and Ovid PsychINFO) were used to identify all relevant studies exploring psychosocial or medical aspects of FP in TAYAs. The search strategy used a combination of subject headings and generic terms related to the study topic and population. Bibliographies of the selected articles were also hand searched and cross-checked to ensure comprehensive coverage. All selected papers were independently reviewed by the co-authors. Characteristics of the studies, objectives and key findings were extracted, and a systematic review was conducted. OUTCOMES Included in the study were 19 psychosocial-based research papers and 21 medical-based research papers that explore fertility-related aspects specific for this population. Key psychosocial themes included the desire to have children for TAYAs; FP discussions, counselling and referrals provided by healthcare providers (HCPs); FP utilization; the attitudes, knowledge and beliefs of TAYAs, HCPs and the parents/guardians of TAYAs; and barriers to accessing FP. Key medical themes included fertility-related effects of GAHT, FP options and outcomes. From a synthesis of the literature, we conclude that there are many barriers preventing TAYAs from pursuing FP, including a lack of awareness of FP options, high costs, invasiveness of the available procedures and the potential psychological impact of the FP process. The available medical data on the reproductive effects of GAHT are diverse, and while detrimental effects are anticipated, the extent to which these effects are reversible is unknown. WIDER IMPLICATIONS FP counselling should begin as early as possible as a standard of care before GAHT to allow time for informed decisions. The current lack of high-quality medical data specific to FP counselling practice for this population means there is a reliance on expert opinion and extrapolation from studies in the cisgender population. Future research should include large-scale cohort studies (preferably multi-centered), longitudinal studies of TAYAs across the FP process, qualitative studies of the parents/guardians of TAYAs and studies evaluating the effectiveness of different strategies to improve the attitudes, knowledge and beliefs of HCPs.

A systematic review of psychological interventions for adolescents and young adults living with chronic illness.

2012 ◽  
Vol 31 (3) ◽  
pp. 380-393 ◽  
Author(s):  
Ursula M. Sansom-Daly ◽  
Michelle Peate ◽  
Claire E. Wakefield ◽  
Richard A. Bryant ◽  
Richard J. Cohn
Keyword(s):  
Systematic Review ◽  
Young Adults ◽  
Chronic Illness ◽  
Adolescents And Young Adults ◽  
Psychological Interventions

scholarly journals Interventions to Promote Positive Affect and Physical Activity in Children, Adolescents and Young Adults—A Systematic Review

Sports ◽  
2020 ◽  
Vol 8 (2) ◽  
pp. 26 ◽  
Author(s):  
Leon Klos ◽  
Katharina Feil ◽  
Tanja Eberhardt ◽  
Darko Jekauc
Keyword(s):  
Physical Activity ◽  
Systematic Review ◽  
Young Adults ◽  
Positive Affect ◽  
Social Cognitive ◽  
Intervention Group ◽  
Adolescents And Young Adults ◽  
Future Research ◽  
Healthy Children ◽  
School Interventions

Interventions to promote physical activity (PA) in children, adolescents and young adults based on social-cognitive theories often fail to increase PA. In recent years, affect-based approaches have gained interest, but the current state of research is not sufficiently reported. Therefore, a systematic review about the influence of interventions to promote positive affect and PA enjoyment and PA in children, adolescents and young adults was conducted. Literature searches were carried out including studies published between September 2009 and April 2019. Intervention studies targeting healthy children, adolescents or young adults and measuring enjoyment and PA were included. Thirteen studies met the inclusion criteria, including five group-based PA interventions, three multi-component school interventions, two internet-based interventions and three exergaming interventions. Most studies use multiple components in their intervention. Group-based PA programs incorporating task-oriented teaching styles and opportunities for voluntary PA are most consistently associated with positive findings. This review shows moderate evidence of interventions for children, adolescents and young adults being effective in increasing enjoyment and PA. Besides physical education and comprehensive school interventions, heterogenous intervention designs limit the comparability of studies. Future research should focus on theory-based, multi-component interventions with mediator analyses.

Sign in / Sign up

Export Citation Format

Share Document