Quality of internet information according to language search on childhood Cancer (Preprint)

2020 ◽  
Author(s):  
Yunam Cuan-Baltazar ◽  
Maria José Muñóz-Pérez ◽  
Elena Soto Vega

BACKGROUND Background: Health information on the internet could vary its quality given that nowadays it is easy for everyone to spread information on the internet even if it is not reliable. Also, one factor that could influence the quality of the information is the language in which it is presented. Parents of children with cancer tend to search for their children´s disease on the internet, and this could affect the decisions the parents take concerning their children´s treatment OBJECTIVE Objective: The aim of this study was to compare the quality of pediatric cancer information on the internet provided in English and Spanish languages METHODS Methods: Three different quality engines were used, JAMA benchmarks, DISCERN and HONcode to assess English and Spanish websites. RESULTS Results: : DISCERN scores were significantly different between English and Spanish websites (Mann-Whitney U test, p<0.001), JAMA benchmarks show a difference between English and Spanish websites (Chi2 test, p=0.009), but HONcode was no different between groups. CONCLUSIONS Conclusions: English websites had a better information quality than Spanish websites.

Author(s):  
Kleopatra Alamantariotou

Recent statistics show that the World Wide Web has now grown to over 100 million sites: a phenomenal expansion in only 15 years (Mulligan 2007). It has been estimated that there are 100,000 sites offering health related information (Wilson 2002). As the amount of health information increases, the public find it increasingly difficult to decide what to accept and what to reject (Burgess 2007). Searching for information on the internet is both deceptively easy and the same time frustratingly difficult (Kiley 2002). The challenge for consumers is to find high quality, relevant information as quickly as possible. There has been ongoing debate about the quality of information aimed at patients and the general public and opinions differ on how it can be improved (Stepperd 1999). The purpose of this chapter is to provide a brief overview of the different perspectives on information quality and to review the main criteria for assessing the quality of health information on the internet. Pointers are provided to enable both clinicians and patients find high quality information sources. An understanding of these issues should help health professionals and patients to make effective use of the internet.


Author(s):  
Emily B. Peterson ◽  
Megan J. Shen ◽  
Jennifer Gueguen Weber ◽  
Carma L. Bylund

The rise of the internet has dramatically changed the way that patients seek cancer-related information, as well as how they discuss these topics with their healthcare providers. Patients’ increased access to web-acquired information has created a power shift in clinician–patient communication, which may either have a beneficial effect on the relationship (e.g. when patients engage in better shared decision-making) or a harmful effect (e.g. when patients directly challenge their provider’s opinions). This chapter first explores how patients utilize the internet both to acquire cancer-related health information and to seek social support through online forums and support groups. The chapter then draws from facework theories to better understand how clinicians and patients introduce, discuss, and evaluate internet information. The chapter concludes with suggested guidelines and exemplary statements to improve clinician–patient communication about health information found on the internet.


2011 ◽  
pp. 204-217 ◽  
Author(s):  
Kleopatra Alamantariotou

Recent statistics show that the World Wide Web has now grown to over 100 million sites: a phenomenal expansion in only 15 years (Mulligan 2007). It has been estimated that there are 100,000 sites offering health related information (Wilson 2002). As the amount of health information increases, the public find it increasingly difficult to decide what to accept and what to reject (Burgess 2007). Searching for information on the internet is both deceptively easy and the same time frustratingly difficult (Kiley 2002). The challenge for consumers is to find high quality, relevant information as quickly as possible. There has been ongoing debate about the quality of information aimed at patients and the general public and opinions differ on how it can be improved (Stepperd 1999). The purpose of this chapter is to provide a brief overview of the different perspectives on information quality and to review the main criteria for assessing the quality of health information on the internet. Pointers are provided to enable both clinicians and patients find high quality information sources. An understanding of these issues should help health professionals and patients to make effective use of the internet.


Author(s):  
Andon Hestiantoro ◽  
Danang T. Pamungkas

Objectives: To investigate health information quality about PCOS on the internet in Indonesian language.Methods: Top website from two separate search engines (Google and Bing) was collected using the keyword of “sindrom ovarium polikistik” (polycystic ovarian syndrome). Analysis of health information quality on those websites was performed.Results: Sixty-nine websites were included for analysis. The majority of those websites have good information quality in terms of content accuracy and website credibility. There was no difference in quality between the two search engines. The website was found at the top two pages in each search engine to have better quality than the later pages (p=0.02). The educational website had better quality (p=0.05). The website made by healthcare organizations had better quality (p=0.04). The non-commercial website had better information quality (p=0.01).Conclusion: Criteria affecting health information quality on the internet were as follows: found at the top two pages on a search engine; educational website; made by healthcare organization; and non-commercial purpose.Keywords: health information quality, Indonesian language, internet-based, polycystic ovarian syndrome Abstrak Tujuan: Untuk melakukan kajian kualitas informasi kesehatan tentang PCOS di internet dalam Bahasa Indonesia.Metode: Situs web teratas dari dua mesin pencari terpisah (Google dan Bing) dikumpulkan dengan menggunakan kata kunci “sindrom ovarium polikistik”. Analisis kualitas informasi kesehatan pada situs-situs tersebut telah dilakukan.Hasil: Enam puluh sembilan situs web dimasukkan untuk analisis. Mayoritas situs web tersebut memiliki kualitas informasi yang baik dalam hal akurasi konten dan kredibilitas situs web. Tidak ada perbedaan kualitas antara kedua mesin pencari tersebut. Situs web ini ditemukan pada dua halaman teratas di setiap mesin pencari memiliki kualitas yang lebih baik daripada halaman-halaman selanjutnya (p = 0,02). Kualitas situs web berbasis pendidikan menunjukkan hasil lebih baik (p = 0,05). Kualitas website yang dibuat oleh organisasi kesehatan menunjukkan hasil lebih baik (p = 0,04). Situs web non-komersial memiliki kualitas informasi yang lebih baik (p = 0,01).Kesimpulan: Kriteria yang mempengaruhi kualitas informasi kesehatan di internet adalah sebagai berikut: ditemukan pada dua halaman teratas pada mesin pencari; situs web berbasis pendidikan; dibuat oleh organisasi kesehatan; dan tujuan non-komersial.Kata kunci : bahasa indonesia, berbasis internet, kualitas informasi kesehatan, sindrom ovarium polikistik.


2018 ◽  
Author(s):  
In Tae So ◽  
Byoung Kuk Jang ◽  
Yoo Jin Lee ◽  
Hye In Jung ◽  
Jae Seok Hwang

BACKGROUND The Internet has a wide range of health information resources, and many patients uses the internet to obtain information about their diseases. However, there is increasing concern regarding the quality of internet information. OBJECTIVE Thus, we aimed to systematically evaluate the quality of websites containing educational information about non-alcoholic fatty liver disease (NAFLD) in Korea. METHODS Naver™, Daum™, and Google™ search engines were searched using the term "Non-alcoholic fatty liver disease" in Korean. Two reviewers independently evaluated website quality using the quality evaluation instrument (QEI), which awarded websites scores for specific information on various aspects of NAFLD, as well as a five-point Likert scale (1-5), the DISCERN instrument, and a global quality scale (GQS). RESULTS Forty-seven websites met the inclusion criteria. We found that the quality of the internet information about NAFLD is generally poor. The mean QEI score with standard deviation was 10.31 ± 5.09 (range 4-22), with only 17% of websites scoring higher than 10 points. The median GQS of the websites was 2.0, with no website achieving a score of 4 or 5. The QEI score was highly associated with the GQS score (r = 0.74, p<0.01). For each DISCERN question from question 1 to question 15, the mean score was less than 3. The intraclass scores, which indicate inter-rater agreement, for the QEI, GQS, and the total DISCERN score were 0.85 (p<0.01), 0.84 (p<0.01), and 0.89 (p<0.01) respectively, indicating an acceptable agreement. CONCLUSIONS Overall, the internet health information for patients regarding NAFLD is poor and in need of much improvement. There is a need for institutional support, qualitative regulation of internet information, and development of an accreditation system to provide patients with internet health information of appropriate quality.


2016 ◽  
Vol 2016 ◽  
pp. 1-5 ◽  
Author(s):  
Dwayne T. S. Chang ◽  
Robert Abouassaly ◽  
Nathan Lawrentschuk

Purpose. To compare the quality of health information on the Internet for keywords related to urolithiasis, to assess for difference in information quality across four main Western languages, and to compare the source of sponsorship in these websites. Methods. Health On the Net (HON) Foundation principles were utilised to determine quality information. Fifteen keywords related to urolithiasis were searched on the Google search engine. The first 150 websites were assessed against the HON principles and the source of sponsorship determined. Results. A total of 8986 websites were analysed. A proportion of HON-accredited websites for individual search terms range between 2.5% and 12.0%. The first 50 websites were more likely to be HON-positive compared to websites 51–100 and 101–150. French websites searched were more likely to be HON-positive whereas German websites were less likely to be HON-positive than English websites. There was no statistically significant difference between the rate of HON-positive English and Spanish websites. The three main website sponsors were from government/educational sources (40.2%), followed by commercial (29.9%) and physician/surgeon sources (18.6%). Conclusions. Health information on most urolithiasis websites was not validated. Nearly one-third of websites in this study have commercial sponsorship. Doctors should recognise the need for more reliable health websites for their patients.


2021 ◽  
Vol 5 (2) ◽  
Author(s):  
Hannah C Cai ◽  
Leanne E King ◽  
Johanna T Dwyer

ABSTRACT We assessed the quality of online health and nutrition information using a Google™ search on “supplements for cancer”. Search results were scored using the Health Information Quality Index (HIQI), a quality-rating tool consisting of 12 objective criteria related to website domain, lack of commercial aspects, and authoritative nature of the health and nutrition information provided. Possible scores ranged from 0 (lowest) to 12 (“perfect” or highest quality). After eliminating irrelevant results, the remaining 160 search results had median and mean scores of 8. One-quarter of the results were of high quality (score of 10–12). There was no correlation between high-quality scores and early appearance in the sequence of search results, where results are presumably more visible. Also, 496 advertisements, over twice the number of search results, appeared. We conclude that the Google™ search engine may have shortcomings when used to obtain information on dietary supplements and cancer.


2021 ◽  
Author(s):  
Anna Byrjalsen ◽  
Illja J. Diets ◽  
Jette Bakhuizen ◽  
Thomas van Overeem Hansen ◽  
Kjeld Schmiegelow ◽  
...  

AbstractIncreasing use of genomic sequencing enables standardized screening of all childhood cancer predisposition syndromes (CPS) in children with cancer. Gene panels currently used often include adult-onset CPS genes and genes without substantial evidence linking them to cancer predisposition. We have developed criteria to select genes relevant for childhood-onset CPS and assembled a gene panel for use in children with cancer. We applied our criteria to 381 candidate genes, which were selected through two in-house panels (n = 338), a literature search (n = 39), and by assessing two Genomics England’s PanelApp panels (n = 4). We developed evaluation criteria that determined a gene’s eligibility for inclusion on a childhood-onset CPS gene panel. These criteria assessed (1) relevance in childhood cancer by a minimum of five childhood cancer patients reported carrying a pathogenic variant in the gene and (2) evidence supporting a causal relation between variants in this gene and cancer development. 138 genes fulfilled the criteria. In this study we have developed criteria to compile a childhood cancer predisposition gene panel which might ultimately be used in a clinical setting, regardless of the specific type of childhood cancer. This panel will be evaluated in a prospective study. The panel is available on (pediatric-cancer-predisposition-genepanel.nl) and will be regularly updated.


2021 ◽  
Author(s):  
Anagha Kulkarni ◽  
Mike Wong ◽  
Tejasvi Belsare ◽  
Risha Shah ◽  
Diana Yu Yu ◽  
...  

BACKGROUND The Internet has become a major source of health information especially for adolescents and young adults. Unfortunately, inaccurate, incomplete or outdated health information is widespread online. Often adolescents and young adults turn to authoritative websites such as the student health center (SHC) website of the university they are attending to obtain reliable health information. Although most on-campus SHC clinics comply with the American College Health Association (ACHA) standards, their websites are not subject to any standards or code of conduct. In the absence of quality standards or guidelines, the monitoring and compliance processes do not exist for SHC websites either. As such, there is no oversight on the health information published on the SHC websites by any central governing body. OBJECTIVE Our objective is to enable researchers to monitor online information quality at scale. We have created a tool that can efficiently quantify the quality of information posted on SHC websites about a health topic. Specifically, this quantitative tool provides information on quality, such as reading ease, coverage of the topic, and the degree of fact-based objective information. METHODS Our cross-functional team has designed and developed an open-source software, QMOHI: Quantitative Measures of Online Health Information, using the Agile software development methodology. The QMOHI tool finds the SHC website and gathers information on the specific health topic of interest from a prespecified list of university websites. Based on the retrieved text, the tool computes eight different quality metrics. The QMOHI tool is a fully automated tool that is designed to be scalable, generalizable, and robust. RESULTS The first empirical evaluation shows that the QMOHI tool is highly scalable and substantially more efficient than the manual approach of assessing online information quality. The second experimental results demonstrate QMOHI’s ability to work effectively with starkly different health topics (COVID, Cancer, LARC, and Condom) and with narrowly focused topics (hormonal IUD and copper IUD); thereby establishing the generalizability and versatility of the tool. The results from the last experiment demonstrate that QMOHI is not vulnerable to typical structural changes that SHC websites may undergo (e.g. URL changes) over a long period of time. QMOHI is able to support longitudinal studies by being robust to such website changes. CONCLUSIONS QMOHI allows public health researchers and practitioners to conduct large-scale studies of SHC websites that were previously too time intensive. The capability to generalize broadly or focus narrowly allows for wide applications of QMOHI, equipping researchers to study both mainstream and underexplored health topics. QMOHI’s ability to robustly analyze SHC websites periodically facilitates longitudinal investigations and monitor SHC progress. QMOHI serves as a launching pad for our future work that aims to develop a broadly applicable public health tool for online health information studies with potential applications far beyond SHC websites.


2016 ◽  
Vol 11 (6) ◽  
pp. 32 ◽  
Author(s):  
Shwu-Ing Wu ◽  
Rou Jyun Chen

<p class="ArticleTitle">In recent years, the increasingly innovative and diverse mobile devices have significantly promoted the mobile device-based shopping. What factors influence this kind of shopping? Will consumers purchase things with mobile devices? These are two topics that need to be explored. Through the literature analysis and the empirical research, this study aims to analyze the quality of information, system, service and mobile devices on the mobile device-based shopping platform. Moreover, it studies the attitude of consumers towards mobile device-based shopping, their willingness to adopt the shopping method and the behavioral relationship model in the actual mobile device-based shopping as well as compares the groups of different frequencies of the Internet use in terms of the relationship model.</p>  With the convenient sampling, this study made an investigation among some of those who had experienced shopping on such mobile devices as tablets or smart phones. The 765 retrieved valid copies of questionnaire were divided into three groups—“often”, “average” and “seldom” according to the frequency consumers undertook mobile device-based shopping and were then compared. The results showed that there were significant differences among the three groups in four relationship paths, including: 1) the information quality of the mobile device-based shopping platform has more significant positive influence on consumers’ attitude path of mobile device-based shopping in the “average” group than in the other two; 2) the service quality of the mobile device-based shopping platform has more significant positive influence on consumers’ attitude path of mobile device-based shopping in the “seldom” group than in the other two; 3) the preference for mobile device-based shopping has much significant positive influence on the behavior path of mobile device-based shopping in the “often” group. According to the research results, different groups have different behavior models. These results can serve as reference information in the decision-making of those who establish mobile device-based shopping platforms and manufacture mobile devices.


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