scholarly journals Characteristics of and User Engagement With Antivaping Posts on Instagram: Observational Study (Preprint)

2021 ◽  
Author(s):  
Yankun Gao ◽  
Zidian Xie ◽  
Li Sun ◽  
Chenliang Xu ◽  
Dongmei Li
Keyword(s):  
Social Media ◽  
User Engagement ◽  
Image Content ◽  
Adverse Health Effects ◽  
Related Information ◽  
Youth And Young Adults ◽  
Health Related ◽  
Social Media Platforms ◽  
Text Information ◽  
Image Type

BACKGROUND Although government agencies acknowledge that messages about the adverse health effects of e-cigarette use should be promoted on social media, effectively delivering those health messages is challenging. Instagram is one of the most popular social media platforms among US youth and young adults, and it has been used to educate the public about the potential harm of vaping through antivaping posts. OBJECTIVE We aim to analyze the characteristics of and user engagement with antivaping posts on Instagram to inform future message development and information delivery. METHODS A total of 11,322 Instagram posts were collected from November 18, 2019, to January 2, 2020, by using antivaping hashtags including #novape, #novaping, #stopvaping, #dontvape, #antivaping, #quitvaping, #antivape, #stopjuuling, #dontvapeonthepizza, and #escapethevape. Among those posts, 1025 posts were randomly selected and 500 antivaping posts were further identified by hand coding. The image type, image content, and account type of antivaping posts were hand coded, the text information in the caption was explored by topic modeling, and the user engagement of each category was compared. RESULTS Analyses found that antivaping images of the <i>educational/warning</i> type were the most common (253/500; 50.6%). The average likes of the <i>educational/warning</i> type (15 likes/post) were significantly lower than the <i>catchphrase</i> image type (these emphasized a slogan such as “athletesdontvape” in the image; 32.5 likes/post; <i>P</i>&lt;.001). The majority of the antivaping posts contained the image content element <i>text</i> (n=332, 66.4%), followed by the image content element <i>people/person</i> (n=110, 22%). The images containing <i>people/person</i> elements (32.8 likes/post) had more likes than the images containing other elements (13.8-21.1 likes/post). The captions of the antivaping Instagram posts covered topics including “lung health,” “teen vaping,” “stop vaping,” and “vaping death cases.” Among the 500 antivaping Instagram posts, while most posts were from the <i>antivaping community</i> (n=177, 35.4%) and <i>personal</i> account types (n=182, 36.4%), the <i>antivaping community</i> account type had the highest average number of posts (1.69 posts/account). However, there was no difference in the number of likes among different account types. CONCLUSIONS Multiple features of antivaping Instagram posts may be related to user engagement and perception. This study identified the critical elements associated with high user engagement, which could be used to design antivaping posts to deliver health-related information more efficiently.

scholarly journals Social Media Infodemic During COVID-19 Outbreak

2020 ◽  
Vol 15 (4) ◽  
pp. 95-97
Author(s):  
Jeevan Bhatta ◽  
Sharmistha Sharma ◽  
Shashi Kandel ◽  
Roshan Nepal
Keyword(s):  
Public Health ◽  
Social Media ◽  
Current Situation ◽  
Fake News ◽  
Related Information ◽  
Personal Experiences ◽  
Health Related ◽  
Social Media Platforms ◽  
To Receive ◽  
Common Platform

Social media is a common platform that enables its users to share opinions, personal experiences, perspectives with one another instantaneously, globally. It has played a paramount role during pandemics such as COVID-19 and unveiled itself as a crucial means to communicate between the sources and the individuals. However, it also has become a place to disseminate misinformation and fake news rapidly. Infodemic, a plethora of information, some authentic some not makes it even harder to general people to receive factual and trustworthy information when required, has grown to be a major risk to public health and social media is developing as a trendy platform for this infodemic. This commentary aims to explore how social media has affected the current situation. We also aim to share our insight to control this misinformation.  This commentary contributes to evolving knowledge to counter fake news or health-related information shared over various social media platforms.

Understanding the Lived Experience of Patients with Melanoma: Real-World Evidence Generated through a European Social Media Listening Analysis (Preprint)

2021 ◽  
Author(s):  
Jyoti Chauhan ◽  
Sathyaraj Aasaithambi ◽  
Iván Márquez-Rodas ◽  
Luigi Formisano ◽  
Sophie Papa ◽  
...  
Keyword(s):  
Social Media ◽  
Lived Experience ◽  
Social Life ◽  
Patient Journey ◽  
Related Information ◽  
Stakeholder Perspectives ◽  
Health Related ◽  
Social Media Platforms ◽  
The Uk ◽  
Media Channels

BACKGROUND Cutaneous melanoma is an aggressive malignancy that is proposed to account for 90% of skin cancer-related mortality. Individuals with melanoma experience both physical and psychological impacts associated with their diagnosis and treatment. Health-related information is being increasingly accessed and shared by stakeholders on social media platforms. OBJECTIVE This study aimed to assess how individuals living with melanoma use social media to discuss their needs and provide their perceptions of the disease, from across 14 European countries. METHODS Social media sources including Twitter, forums, and blogs were searched using predefined search strings of keywords relating to melanoma. Manual and automated relevancy approaches filtered the extracted data for content that provided patient-centric insights. This contextualized data was then mined for insightful concepts around symptoms, diagnosis, treatment, impacts, and the lived experiences of melanoma. RESULTS A total of 182,000 posts related to melanoma were identified between November 2018‒November 2020. Following exclusion of irrelevant posts and using random sampling methodology, 864 posts were identified as relevant to the study objectives. Of the social media channels included, Twitter was the most commonly used, followed by forums and blogs. Most posts originated from the UK (38%) and Spain (16%). Sixty-two percent of relevant posts were categorized as originating from individuals with melanoma. The most frequently discussed melanoma-related topics were treatment (55%), diagnosis and tests (33%), and remission (24%). The majority of treatment discussions were about surgery (67%), followed by immunotherapy (12%). In total, 255 posts discussed the impacts of melanoma, which included emotional burden (70%), physical impacts (24%), effects on social life (17%), and financial impacts (4%). CONCLUSIONS Findings from this study highlight how melanoma stakeholders discuss key concepts associated with the condition on social media, adding to the conceptual model of the patient journey. This social media listening approach is a powerful tool in exploring melanoma stakeholder perspectives, providing insights that can be used to corroborate existing data and inform future studies.

A Study of Social Media Utilization by Individuals With Tinnitus

2018 ◽  
Vol 27 (4) ◽  
pp. 559-569 ◽  
Author(s):  
Aniruddha K. Deshpande ◽  
Shruti Balvalli Deshpande ◽  
Colleen O'Brien
Keyword(s):  
Social Media ◽  
Health Care Providers ◽  
Care Providers ◽  
Related Information ◽  
Health Related ◽  
Social Media Platforms ◽  
Youtube Videos ◽  
Key Words Tinnitus ◽  
Facebook Pages ◽  
Ringing In The Ears

PurposeAs more people experience tinnitus, social awareness of tinnitus has consequently increased, due in part to the Internet. Social media platforms are being used increasingly by patients to seek health-related information for various conditions including tinnitus. These online platforms may be used to seek guidance from and share experiences with individuals suffering from a similar disorder. Some social media platforms can also be used to communicate with health care providers. The aim of this study was to investigate the prevalence of tinnitus-related information on social media platforms.MethodThe present investigation analyzed the portrayal of tinnitus-related information across 3 social media platforms: Facebook (pages and groups), Twitter, and YouTube. We performed a comprehensive analysis of the platforms using the key words “tinnitus” and “ringing in the ears.” The results on each platform were manually examined by 2 reviewers based on social media activity metrics, such as “likes,” “followers,” and “comments.”ResultsThe different social media platforms yielded diverse results, allowing individuals to learn about tinnitus, seek support, advocate for tinnitus awareness, and connect with medical professionals. The greatest activity was seen on Facebook pages, followed by YouTube videos. Various degrees of misinformation were found across all social media platforms.ConclusionsThe present investigation reveals copious amounts of tinnitus-related information on different social media platforms, which the community with tinnitus may use to learn about and cope with the condition. Audiologists must be aware that tinnitus sufferers often turn to social media for additional help and should understand the current climate of how tinnitus is portrayed. Clinicians should be equipped to steer individuals with tinnitus toward valid information.

Characterising JUUL-related posts on Instagram

2019 ◽  
pp. tobaccocontrol-2018-054824 ◽  
Author(s):  
Lauren Czaplicki ◽  
Ganna Kostygina ◽  
Yoonsang Kim ◽  
Siobhan N Perks ◽  
Glen Szczypka ◽  
...  
Keyword(s):  
Social Media ◽  
Youth Culture ◽  
Application Programming Interface ◽  
High Tech ◽  
Related Information ◽  
Youth And Young Adults ◽  
Promotional Efforts ◽  
Social Media Platforms ◽  
Media Platform ◽  
Product Promotion

BackgroundJUUL, a high-tech, popular vaping device, was the first major electronic cigarette (e-cigarette) brand to incorporate social media into its marketing strategy. There is growing concern around the increasing use of JUUL and other electronic nicotine delivery devices among youth, and their potential to addict a new generation to nicotine. The current study analysed the amount and characteristics of JUUL-related posts on Instagram, a social media platform used frequently among youth and young adults.MethodsHashtag-based keyword queries (n=50) were used to collect JUUL-related posts from the Instagram application programming interface, March 2018–May 2018. Using a combination of machine learning methods, keyword algorithms and human coding, posts were characterised as featuring content related to product promotion, nicotine and addiction, youth culture and lifestyle.ResultsKeyword queries captured 14 838 JUUL-relevant posts by 5201 unique users. Over one-third of posts were promotional (eg, linked to commercial website) and 11% contained nicotine and addiction-related information. Approximately half of posts featured content related to youth (55%) or lifestyle (57%). Youth-related content or lifestyle appeals were also notably present within promotional posts and nicotine and addiction-related posts, respectively. Nicotine and addiction-related posts featured memes, hashtags (eg, #nichead, #juulbuzz) and tag lines (eg, ‘more flavor, more buzz’).ConclusionsFindings reveal a proliferation of JUUL-related content on Instagram, which focused on product promotion and nicotine and addiction that included youth culture and lifestyle appeals. Regulatory actions should focus on restricting promotional efforts for e-cigarette products, particularly on social media platforms where young people are a primary audience.

scholarly journals Mis-infodemic: The Achilles’ heel in combating the COVID-19 pandemic in an Indian perspective

2020 ◽  
Vol 90 (2) ◽  
Author(s):  
Soumya Swaroop Sahoo ◽  
Dinesh Prasad Sahu ◽  
Ankita Kankaria
Keyword(s):  
Social Media ◽  
International Organizations ◽  
Communication Strategies ◽  
Related Information ◽  
Governmental Organizations ◽  
The People ◽  
Health Related ◽  
Social Media Platforms ◽  
Negative Role ◽  
Indian Perspective

In this ongoing SARS-CoV2 Corona virus pandemic, we are witnessing an uninhibited spread of mis-information on various social media platforms. This spread of mis-information or “mis-infodemic” is playing a negative role in our fight against the virus with far reaching consequences. International organizations like the WHO and other governmental organizations have geared up to the occasion to limit the spread of these and bring clarity in this context. In this time of crisis, risk communication is vital in the communication between organizations/government and the people. But apart from the organizations, the onus is on the people and media to realise the importance and verify the authenticity of information being circulated. It is imperative that information, being a double edged sword, is handled with caution and effective communication strategies are devised for the dissemination of accurate and scientific health related information. Social media can be used in a constructive way in mitigating the effects of this pandemic for the betterment of the society.

scholarly journals Rapid deployment of a community engagement study and educational trial via social media: implementation of the UC-COVID study

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Lauren E. Wisk ◽  
Russell G. Buhr
Keyword(s):  
Social Media ◽  
Search Activity ◽  
Community Partners ◽  
Community Values ◽  
Sample Representativeness ◽  
Adult Participants ◽  
Health Related ◽  
Social Media Platforms ◽  
Rapid Deployment

Abstract Background In response to the COVID-19 pandemic and associated adoption of scarce resource allocation (SRA) policies, we sought to rapidly deploy a novel survey to ascertain community values and preferences for SRA and to test the utility of a brief intervention to improve knowledge of and values alignment with a new SRA policy. Given social distancing and precipitous evolution of the pandemic, Internet-enabled recruitment was deemed the best method to engage a community-based sample. We quantify the efficiency and acceptability of this Internet-based recruitment for engaging a trial cohort and describe the approach used for implementing a health-related trial entirely online using off-the-shelf tools. Methods We recruited 1971 adult participants (≥ 18 years) via engagement with community partners and organizations and outreach through direct and social media messaging. We quantified response rate and participant characteristics of our sample, examine sample representativeness, and evaluate potential non-response bias. Results Recruitment was similarly derived from direct referral from partner organizations and broader social media based outreach, with extremely low study entry from organic (non-invited) search activity. Of social media platforms, Facebook was the highest yield recruitment source. Bot activity was present but minimal and identifiable through meta-data and engagement behavior. Recruited participants differed from broader populations in terms of sex, ethnicity, and education, but had similar prevalence of chronic conditions. Retention was satisfactory, with entrance into the first follow-up survey for 61% of those invited. Conclusions We demonstrate that rapid recruitment into a longitudinal intervention trial via social media is feasible, efficient, and acceptable. Recruitment in conjunction with community partners representing target populations, and with outreach across multiple platforms, is recommended to optimize sample size and diversity. Trial implementation, engagement tracking, and retention are feasible with off-the-shelf tools using preexisting platforms. Trial registration ClinicalTrials.gov NCT04373135. Registered on May 4, 2020

A Scoping Review of Social Media Sites as a Tool for Clinical Trial Recruitment and Retention (Preprint)

2021 ◽  
Author(s):  
Jarett Anderson ◽  
Austin Hamp ◽  
Michelle Militello ◽  
Ryan Geist ◽  
Jaclyn Anderson ◽  
...  
Keyword(s):  
Clinical Trial ◽  
Social Media ◽  
Clinical Trials ◽  
The United States ◽  
User Engagement ◽  
Trial Recruitment ◽  
Recruitment And Retention ◽  
Social Media Platforms ◽  
Clinical Trial Recruitment ◽  
Media Applications

BACKGROUND Clinical trials are an essential process in discovering new biomedical or behavioral outcomes in disease processes. There are several steps involved in creating a clinical trial. One step, patient recruitment, is often touted as the largest contributor to trial delays, which has financial, scientific, and ethical ramifications. Approximately 1.2 billion dollars in the United States is spent each year on this process and as many as 86% of clinical trials do not meet recruitment targets within their perspective timeframes, and 19% of trials had to be terminated early due to insufficient recruitment and/or patient retention1. Social media is a viable, inexpensive tool that can be utilized to improve both recruitment and retention rates2. To date, platforms such as Facebook, Twitter and others have been widely utilized in recruitment for clinical trials, communication among stakeholders, and educational tools. Social media also has the advantage of reaching populations that otherwise would be more difficult to reach3. A list of these platforms and each of their distinct advantages for clinical trial recruitment can be found in Table 1. This review aims to highlight the unique characteristics of several social media platforms and their advantageous properties in increasing recruitment and retention during clinical trials. OBJECTIVE This narrative review analyzes the current use of several social media sites in clinical trial recruitment and retention. It also offers insight concerning potential uses of these sites that are not currently utilized. METHODS A literature search was performed using PubMed, Google Scholar, and ResearchGate to access and review relevant articles published in peer-reviewed journals concerning social media and its use in clinical trials. Two independent researchers with education and experience in dermatology screened publications to select studies featuring quantitative results concerning social media and clinical trial recruitment. RESULTS 13 social media applications were studied and reviewed. 7 of these social media sites or applications have currently been studied, and their use in complementing traditional recruiting methods such as advertisements in newspapers, health fairs, and direct mailing, has been analyzed and reported. 6 additional social media applications have further been studied, and their potential use within clinical trial research has been additionally analyzed. CONCLUSIONS A large number and variety of social media platforms exist to aid in the recruitment and retention process for clinical trials, many of which can utilize niche features and reach a targeted demographic. Although recruitment remains a barrier for researchers involved in clinical trials, the potential to recruit through social media may be underutilized. Many avenues that exist to improve recruitment have not been leveraged. For example, partnering to create collaborative videos with social media influencers on platforms such as Instagram and Youtube may help to broaden the audience and increase clinical trial enrollments. Creating biomedical educational profiles or channels that discuss details of clinical trials with descriptions of these trials could also be employed to increase the scope of the audience. Reddit, Smart Patients, and Patients Like Me can target difficult-to-reach patient populations due to their use of subgroups, allowing researchers to reach their target audience. Additionally, many of these platforms provide user engagement features that allow users to respond directly to videos or posts and could be used to encourage enrollment by allowing users to react directly to clinical trial advertisements.

Children Using Social Media to Connect with Others and With Consumer Brands

2017 ◽  
pp. 205-220
Author(s):  
Katharine Jones ◽  
Mark S. Glynn
Keyword(s):  
Social Media ◽  
Information Sources ◽  
Media Use ◽  
Next Generation ◽  
Social Media Use ◽  
Related Information ◽  
Interaction Processes ◽  
Social Media Platforms ◽  
Use Of Social Media

Children's use of social media affects their interactions with consumer brands. Because children's social media use is a part of people's increasing use of social platforms to communicate and share content with each other, it is important to understand how children are using such platforms as sources of market-related information. This is because children's socialisation as consumers depends upon their accessing a range of market-related information sources, and social media platforms are envisaged to facilitate such access. Children's interactions with consumer brands are governed by interaction processes, and such processes shape the relationships that children may form with brands. Understanding these interaction processes will provide insights for parents, educators, and business marketers seeking information as to how the next generation of consumers use social media for market-related activities.

Case Study on Patient Groups on Facebook in Turkey

2021 ◽  
pp. 149-174
Author(s):  
Aslıhan Ardıç Çobaner ◽  
Beste Sultan Gülgün
Keyword(s):  
Social Media ◽  
Health Literacy ◽  
Common Ground ◽  
Disease Patient ◽  
Ageing Population ◽  
Economic Determinants ◽  
Critical Health Literacy ◽  
Related Information ◽  
Health Related ◽  
Patient Groups

Increasing prevalence of chronic diseases and ageing population necessitate access to accurate health information for better health. The internet and social media affect and transform the communication of health-related information. Online platforms are enabling patients and patient groups to find common ground to discuss their health and diseases. Focusing on disease/patient group sites, this chapter investigates these sites through analyzing their features, inclusion of social and economic determinants of health in their contents, and level of critical health literacy calling for decision and action. Furthermore, these sites and their organization structures are analyzed by netnography. The findings show that disease/patient sites on Facebook are highly benefitted as an information and experience sharing platform. However, the critical health literacy level of the contents is quite low. Therefore, the role of social media as an improvement area for critical health literacy in health communication is getting more important.

Engagement with Social Media Platforms via Mobile Apps for Improving Quality of Personal Health Management

2014 ◽  
Vol 16 (1) ◽  
pp. 73-89 ◽  
Author(s):  
Sinjini Mitra ◽  
Rema Padman
Keyword(s):  
Social Media ◽  
Health Plan ◽  
Health Management ◽  
Mobile Apps ◽  
Blood Pressure Level ◽  
Health Condition ◽  
Health Plans ◽  
Health And Wellness ◽  
Health Related ◽  
Social Media Platforms

Patient engagement in self health and wellness management has been identified as an important goal in improving health outcomes. As a result, the use of mobile and social media for health and wellness promotion is gathering considerable momentum. Several early adopting health plans and provider organizations have begun to design and pilot social and mobile media platforms to empower members to enhance self management of health and wellness goals. Based on a member survey of a large health plan in Pennsylvania, the authors identify factors that are significantly associated with member interest in adopting such technology platforms for obtaining health related information and services. Analysis of relevant data from more than 4,000 responses from health plan members indicate significant effects of several factors such as age, gender, general health condition (including presence of chronic conditions like diabetes and high blood pressure), level of computer and social media usage and frequency of engaging in different online activities such as banking, shopping, and emailing. This analysis allows us to identify important consumer segments that are correlated with professed willingness to use applications and programs offered by the health plan. Besides, the authors also develop statistical models to predict people's odds of adopting health-related mobile apps and identify the significant predictors thereof. The authors anticipate that these insights can assist health plans to develop and deploy targeted services and tools through integration of mobile and social media platforms for health and wellness management.

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