Cognition and Experience of Patients with Diabetes Mellitus to Obtain Health Information Through the Internet: A Qualitative Study (Preprint)

2021 ◽  
Author(s):  
Feng Jiang ◽  
Jin Huang ◽  
Meicun Zhao ◽  
Rong Xu
Keyword(s):  
Diabetes Mellitus ◽  
Health Information ◽  
Information Acquisition ◽  
Rapid Development ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Related Information ◽  
Patients With Diabetes ◽  
Internet Information

BACKGROUND The rapid development of the Internet has been providing more convenient information services for patients with diabetes mellitus and more and more patients choose to obtain diabetes-related information through the Internet. The different quality of health information on the Internet often makes it difficult for patients to obtain real and effective information. OBJECTIVE To further understand the cognition and experience of patients with DM to obtain health information through the Internet. METHODS Objective sampling method was adopted to select patients with DM in a grade 3A hospital in Changsha from August to September, 2020. Phenomenological research method in qualitative research was used to conduct semi-structured interviews. Colaizzi seven-step analysis was used to analyze the interview data and extract the topics. RESULTS A total of 13 patients were interviewed in this study. The cognition and experience of patients with DM on access to online health information can be divided into three major themes and seven sub-themes: (1) motivations for Internet information acquisition, which include perceived information does not match demands and finding the experience of others; (2) Internet Information acquisition requirements, including acquiring knowledge related to DM and obtaining information efficiently; and (3) obstacles to online information access, including doubt the authenticity of network information, difficult to judge the true or false information and limited eHealth literacy. CONCLUSIONS This study shows that there are both facilitating factors and impeding factors in patients’ accessing diabetes-related information on the Internet, which suggests that medical staffs should guide patients to obtain real and effective health information, the government should strengthen the construction of health websites to enhance patients’ experience of obtaining online health information to make better use of the advantages of the Internet.

scholarly journals Protocol paper for the ‘Harnessing resources from the internet to maximise outcomes from GP consultations (HaRI)’ study: a mixed qualitative methods study

BMJ Open ◽  
2018 ◽  
Vol 8 (8) ◽  
pp. e024188
Author(s):  
Maureen Seguin ◽  
Laura Hall ◽  
Helen Atherton ◽  
Rebecca Barnes ◽  
Geraldine Leydon ◽  
...  
Keyword(s):  
Health Information ◽  
Current Evidence ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Wide Range ◽  
Patient Questionnaires ◽  
Ethical Approval ◽  
Use Of The Internet ◽  
Questionnaire Studies

IntroductionMany patients now turn to the internet as a resource for healthcare information and advice. However, patients’ use of the internet to manage their health has been positioned as a potential source of strain on the doctor–patient relationship in primary care. The current evidence about what happens when internet-derived health information is introduced during consultations has relied on qualitative data derived from interview or questionnaire studies. The ‘Harnessing resources from the internet to maximise outcomes from GP consultations (HaRI)’ study combines questionnaire, interview and video-recorded consultation data to address this issue more fully.Methods and analysisThree data collection methods are employed: preconsultation patient questionnaires, video-recorded consultations between general practitioners (GP) and patients, and semistructured interviews with GPs and patients. We seek to recruit 10 GPs practising in Southeast England. We aim to collect up to 30 patient questionnaires and video-recorded consultations per GP, yielding up to 300. Up to 30 patients (approximately three per participating GP) will be selected for interviews sampled for a wide range of sociodemographic characteristics, and a variety of ways the use of, or information from, the internet was present or absent during their consultation. We will interview all 10 participating GPs about their views of online health information, reflecting on their own usage of online information during consultations and their patients’ references to online health information. Descriptive, conversation and thematic analysis will be used respectively for the patient questionnaires, video-recorded consultations and interviews.Ethics and disseminationEthical approval has been granted by the London–Camden & Kings Cross Research Ethics Committee. Alongside journal publications, dissemination activities include the creation of a toolkit to be shared with patients and doctors, to guide discussions of material from the internet in consultations.

Equal access to online information? Google’s suicide-prevention disparities may amplify a global digital divide

2018 ◽  
Vol 21 (3) ◽  
pp. 562-582 ◽  
Author(s):  
Sebastian Scherr ◽  
Mario Haim ◽  
Florian Arendt
Keyword(s):  
Digital Divide ◽  
Health Information ◽  
Suicide Prevention ◽  
Information Access ◽  
Equal Access ◽  
Online Health Information ◽  
Online Information ◽  
Related Information ◽  
Key Factor ◽  
Global Digital Divide

Worldwide, people profit from equally accessible online health information via search engines. Therefore, equal access to health information is a global imperative. We studied one specific scenario, in which Google functions as a gatekeeper when people seek suicide-related information using both helpful and harmful suicide-related search terms. To help prevent suicides, Google implemented a “suicide-prevention result” (SPR) at the very top of such search results. While this effort deserves credit, the present investigation compiled evidence that the SPR is not equally displayed to all users. Using a virtual agent-based testing methodology, a set of 3 studies in 11 countries found that the presentation of the SPR varies depending on where people search for suicide-related information. Language is a key factor explaining these differences. Google’s algorithms thereby contribute to a global digital divide in online health-information access with possibly lethal consequences. Higher and globally balanced display frequencies are desirable.

scholarly journals Is doctor-patient relationship influenced by health online information?

2018 ◽  
Vol 64 (8) ◽  
pp. 692-699 ◽  
Author(s):  
Luciana Rodrigues Alves da Mota ◽  
Carolina Cavalcanti Gonçalves Ferreira ◽  
Henrique Augusto Alves da Costa Neto ◽  
Ana Rodrigues Falbo ◽  
Suélem de Barros Lorena
Keyword(s):  
Health Information ◽  
Cross Sectional Study ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Patient Relationship ◽  
Physician Patient Relationship ◽  
Doctor Patient Relationship ◽  
Cross Sectional ◽  
Positive Effects

SUMMARY OBJECTIVES To analyse the opinions and attitudes reported by medical specialists regarding online health information and their interference in the doctor-patient relationship. Methods A cross-sectional study developed between 2016 and 2017 in Recife-Pernambuco-Brazil, which used a questionnaire in person in a population of 183 specialists from the Instituto de Medicina Integral Prof. Fernando Figueira. The results were analysed through the Statistical Package for the Social Sciences. Obtained approval of the Ethics Committee under the voucher number 121004/2016. Results In the opinion of 85.2% of physicians, online health information has both positive and negative impacts on the physician-patient relationship. Faced with a questioning patient who claims to have researched information on the internet, 98.9% of the physicians said they would try to explain the reasons for their diagnosis and treatment. 59% already had a patient who modified the treatment recommended after seeing health information on the Internet. 73.8% agreed that online health information has positive effects for the general public, but 89.1% feel that most patients do not know which online health information is reliable CONCLUSION The physicians surveyed view online health information in a positive way, but realize that it is necessary to be cautious as to their repercussions on the treatment of patients. There is concern about the accuracy of online health information, and it is incumbent upon the physician and health institutions to instruct patients about the sources of quality and that they are able to understand, as its known the patients have an active voice through the guarantee of the ethical principle of autonomy.

A cross-sectional study on quality of diabetes information identified from the Internet (Preprint)

2019 ◽  
Author(s):  
Jingchun Fan ◽  
Jean Craig ◽  
Na Zhao ◽  
Fujian Song
Keyword(s):  
Health Information ◽  
Search Engine ◽  
Search Engines ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Significant Difference ◽  
Content Coverage ◽  
Google Search

BACKGROUND Increasingly people seek health information from the Internet, in particular, health information on diseases that require intensive self-management, such as diabetes. However, the Internet is largely unregulated and the quality of online health information may not be credible. OBJECTIVE To assess the quality of online information on diabetes identified from the Internet. METHODS We used the single term “diabetes” or equivalent Chinese characters to search Google and Baidu respectively. The first 50 websites retrieved from each of the two search engines were screened for eligibility using pre-determined inclusion and exclusion criteria. Included websites were assessed on four domains: accessibility, content coverage, validity and readability. RESULTS We included 26 websites from Google search engine and 34 from Baidu search engine. There were significant differences in website provider (P<0.0001), but not in targeted population (P=0.832) and publication types (P=0.378), between the two search engines. The website accessibility was not statistically significantly different between the two search engines, although there were significant differences in items regarding website content coverage. There was no statistically significant difference in website validity between the Google and Baidu search engines (mean Discern score 3.3 vs 2.9, p=0.156). The results to appraise readability for English website showed that that Flesch Reading Ease scores ranged from 23.1 to 73.0 and the mean score of Flesch-Kincaid Grade Level ranged range from 5.7 to 19.6. CONCLUSIONS The content coverage of the health information for patients with diabetes in English search engine tended to be more comprehensive than that from Chinese search engine. There was a lack of websites provided by health organisations in China. The quality of online health information for people with diabetes needs to be improved to bridge the knowledge gap between website service and public demand.

scholarly journals Sources and types of online information that breast cancer patients read and discuss with their doctors

2013 ◽  
Vol 13 (2) ◽  
pp. 107-114 ◽  
Author(s):  
Erin K. Maloney ◽  
Thomas A. D'Agostino ◽  
Alexandra Heerdt ◽  
Maura Dickler ◽  
Yuelin Li ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Side Effects ◽  
Cancer Patients ◽  
Health Information ◽  
Online Health Information ◽  
Online Information ◽  
Breast Cancer Patients ◽  
Internet Information ◽  
Types Of Information ◽  
The Impact

AbstractObjectives:Most research examining the impact of patients seeking online health information treats internet information homogenously, rather than recognizing that there are multiple types and sources of available information. The present research was conducted to differentiate among sources and types of internet information that patients search for, intend to discuss with their doctors, and recall discussing with their doctors, and to determine how accurate and hopeful patients rate this information.Methods:We surveyed 70 breast cancer patients recruited from the waiting rooms of breast medical oncology and surgery clinics. The main variables in the study were as follows: (1) the sources and types of online information patients have read, intended to discuss, and actually discussed with their doctors, and (2) how accurately and hopefully they rated this information to be.Results:Patients read information most frequently from the websites of cancer organizations, and most often about side effects. Patients planned to discuss fewer types of information with their doctors than they had read about. They most often intended to discuss information from cancer organization websites or WebMD, and the material was most often about alternative therapies, side effects, and proven or traditional treatments. Some 76.8% of total participants rated the information they had read as very or somewhat accurate, and 61% rated the information they had read as very or somewhat hopeful.Significance of Results:Internet information varies widely by source and type. Differentiating among sources and types of information is essential to explore the ways in which online health information impacts patients' experiences.

scholarly journals Factors affecting the quality and reliability of online health information

2020 ◽  
Vol 6 ◽  
pp. 205520762094899 ◽  
Author(s):  
Gopi Battineni ◽  
Simone Baldoni ◽  
Nalini Chintalapudi ◽  
Getu Gamo Sagaro ◽  
Graziano Pallotta ◽  
...  
Keyword(s):  
Health Information ◽  
Web Sites ◽  
Online Survey ◽  
Medical Information ◽  
Negative Impact ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Cross Sectional ◽  
The Web

Background Internet represents a relevant source of information, but reliability of data that can be obtained by the web is still an unsolved issue. Non-reliable online information may have a relevance, especially in taking decisions related to health problems. Uncertainties on the quality of online health data may have a negative impact on health-related choices of citizens. Objective This work consisted in a cross-sectional literature review of published papers on online health information. The two main research objectives consisted in the analysis of trends in the use of health web sites and in the quality assessment and reliability levels of web medical sites. Methods Literature research was made using four digital reference databases, namely PubMed, British Medical Journal, Biomed, and CINAHL. Entries used were “trustworthy of medical information online,” “survey to evaluate medical information online,” “medical information online,” and “habits of web-based health information users”. Analysis included only papers published in English. The Newcastle Ottawa Scale was used to conduct quality checks of selected works. Results Literature analysis using the above entries resulted in 212 studies. Twenty-four articles in line with study objectives, and user characteristics were selected. People more prone to use the internet for obtaining health information were females, younger people, scholars, and employees. Reliability of different online health sites is an issue taken into account by the majority of people using the internet for obtaining health information and physician assistance could help people to surf more safe health web sites. Conclusions Limited health information and/or web literacy can cause misunderstandings in evaluating medical data found in the web. An appropriate education plan and evaluation tools could enhance user skills and bring to a more cautious analysis of health information found in the web.

The readability of online health information for L1 and L2 Australians: text-based and user-focused research

2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Pam Peters ◽  
Jan-Louis Kruger
Keyword(s):  
Health Information ◽  
First Language ◽  
The Internet ◽  
Online Health Information ◽  
Online Information ◽  
Access To Health ◽  
Australian Community ◽  
Reading Patterns ◽  
L1 And L2 ◽  
Complementary Study

Abstract The readability of online health information involves several factors in communication, including textual factors in verbal messaging and demographics relating to the readership, both of which impact on access to health information for first language (L1) and second language (L2) individuals in the Australian community. This research aims to identify the issues inherent in health texts as well as different readers’ comprehension of the information in them. The paper focuses first on the readability of sample health texts, and the extent to which difficult elements can be identified by the standard readability measures (Flesch-Kincaid, SMOG), as well as psycholinguistically informed measures of reading ease developed by Co-Matrix for general (L1) and L2 readers: TERA and Coh-Metrix L2. Coh-Metrix L2 points to linguistic factors that particularly challenge L2 readers of health information. A complementary study using eye-tracking was carried out to investigate the reading behaviours of 30 L1 and L2 participants seeking information from a health website. Statistically significant differences were found between L1 and L2 participants in their reading patterns, with L2 readers working more slowly and less reliably through online information. The findings highlight the need for health communicators to embrace the greater reading challenges for L2 users of the Internet.

The Impact of a Highly Publicized Celebrity Suicide on Suicide-Related Online Information Seeking

Crisis ◽  
2017 ◽  
Vol 38 (3) ◽  
pp. 207-209 ◽  
Author(s):  
Florian Arendt ◽  
Sebastian Scherr
Keyword(s):  
Suicide Prevention ◽  
Information Seeking ◽  
The Internet ◽  
Online Information ◽  
Search Queries ◽  
Related Information ◽  
Search Terms ◽  
Celebrity Suicide ◽  
Online Information Seeking ◽  
The Impact

Abstract. Background: Research has already acknowledged the importance of the Internet in suicide prevention as search engines such as Google are increasingly used in seeking both helpful and harmful suicide-related information. Aims: We aimed to assess the impact of a highly publicized suicide by a Hollywood actor on suicide-related online information seeking. Method: We tested the impact of the highly publicized suicide of Robin Williams on volumes of suicide-related search queries. Results: Both harmful and helpful search terms increased immediately after the actor's suicide, with a substantial jump of harmful queries. Limitations: The study has limitations (e.g., possible validity threats of the query share measure, use of ambiguous search terms). Conclusion: Online suicide prevention efforts should try to increase online users' awareness of and motivation to seek help, for which Google's own helpline box could play an even more crucial role in the future.

A cross-sectional survey among physicians on Internet use for epilepsy-related information (Preprint)

2019 ◽  
Author(s):  
Francesco Brigo ◽  
Simona Lattanzi ◽  
Giorgia Giussani ◽  
Laura Tassi ◽  
Nicola Pietrafusa ◽  
...  
Keyword(s):  
Internet Use ◽  
The Internet ◽  
Online Information ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Related Information ◽  
Internet Users ◽  
Therapeutic Decisions ◽  
The Individual ◽  
The Web

BACKGROUND The Internet has become one of the most important sources of health information, accessed daily by an ever-growing number of both patients and physicians, seeking medical advice and clinical guidance. A deeper insight into the current use of the Web as source of information on epilepsy would help in clarifying the individual attitude towards this medium by Internet users. OBJECTIVE We investigated views towards the Internet in a sample of Italian healthcare specialists involved in epilepsy field, to explore factors which explained the influence of information found on the internet. METHODS This study was a self-administered survey conducted in a group of members of the Italian Chapter of the International League Against Epilepsy (ILAE) in January 2018. RESULTS 184 questionnaires were analyzed. 97.8% of responders reported to seek online information on epilepsy. The Internet was most frequently searched to obtain new information (69.9%) or to confirm a diagnostic or therapeutic decision (37.3%). The influence of consulting the Internet on clinical practice was associated with registration to social network(s) (OR: 2.94; 95%CI: 1.28-6.76; p=0.011), higher frequency of Internet use (OR: 3.66; 95%CI: 1.56-9.21; p=0.006) and higher confidence in reliability of online information (OR: 2.61; 95%CI: 1.09-6.26; p=0.031). No association was found with age, sex, years in epilepsy practice or easiness to find online information. CONCLUSIONS Internet is frequently used among healthcare professionals involved in the epilepsy to obtain information about this disease. The attitude of being influenced by the Internet for diagnostic and/or therapeutic decisions in epilepsy is independent on age and years of experience in epilepsy, and probably reflects an individual approach towards the Web.

scholarly journals Perceived Efficiency Outcomes, Sources and Awareness of Online Health Information among the Elderly during COVID-19

2021 ◽  
Vol 18 (15) ◽  
pp. 8121
Author(s):  
Gizell Green ◽  
Riki Tesler ◽  
Cochava Sharon
Keyword(s):  
Health Status ◽  
Health Information ◽  
The Elderly ◽  
Cross Sectional Study ◽  
Online Health Information ◽  
Online Information ◽  
Safety Skills ◽  
Cross Sectional ◽  
Information Efficiency ◽  
Online Sources

The Internet and social media are crucial platforms for health information. Factors such as the efficiency of online health information, the outcomes of seeking online health information and the awareness of reliable sources have become increasingly important for the elderly during the COVID-19 pandemic. This study aimed to examine differences between elderly individuals’ income above and below the average monthly wage in relation to their online health information efficiency and the outcomes of seeking online health information; to evaluate types of online information sources with online health information efficiency and the outcomes of seeking online health information; and to explore online health information efficiency as a mediator between health status and awareness of online sources. A cross-sectional study design was conducted with 336 elderly participants age 65 or older. The participants volunteered to complete a questionnaire. No differences were found between the two groups regarding efficiency in retrieving health information from official online health sites and Google. Perceived efficiency mediated health status and awareness of online sources. In these challenging times, it is important to provide a tailor-made education strategy plan for reliable sources of online health information for the elderly, in order to enhance their technology safety skills. It is also important to explore other mediating variables between health status and awareness of online sources.

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