scholarly journals Narrative interviews to assess quality of life in Peritoneal Dialysis

2021 ◽  
Vol 4 (3) ◽  
pp. 165-173
Author(s):  
Sophie Mougel ◽  
H Tabibi ◽  
M Rosier
Keyword(s):  
Quality Of Life ◽  
Peritoneal Dialysis ◽  
Emotional Health ◽  
Theoretical Data ◽  
Well Being ◽  
Temporary Support ◽  
Data Saturation ◽  
Replacement Technique ◽  
Assess Quality

It has been found that people undergoing dialysis have a lower quality of life than the rest of the population. The aim of dialysis is to improve physical health, but also well-being. We were interested in the perception of the quality of life of patients undergoing Peritoneal Dialysis. We used the narrative interview method to collect their feelings, their daily experience, and their impressions about their care. We conducted four in-depth interviews, following the principle of theoretical data saturation, with adults treated at the Hospital of Nice. These interviews indicated that Peritoneal Dialysis rapidly improves physical and emotional health. Patients are satisfied with the technique, which allows them to return to a social, familial, and professional life. However, they regret that it does not relieve them of dietary restrictions, especially on salt. Patients appreciate the temporary support of a private nurse, which is systematically offered by our center at the beginning of treatment. They wish the involvement of peers to benefit from their experience, explanations and practical demonstrations. Quality of life is important to assess when choosing a renal replacement technique. Caregivers have to understand patients’ expectations and wishes in order to guide them towards the dialysis modality that suits their lifestyle and preferences best. This will improve treatment outcomes.

scholarly journals Study of inter-relationship of depression, seizure frequency and quality of life of people with epilepsy in India

2014 ◽  
Vol 6 (1) ◽  
pp. 1-4
Author(s):  
Shubham Mehta ◽  
Alok Tyagi ◽  
Richa Tripathi ◽  
Mahesh Kumar
Keyword(s):  
Quality Of Life ◽  
Seizure Frequency ◽  
Well Being ◽  
Significant Negative Correlation ◽  
Cross Sectional Study ◽  
Psychological Consequences ◽  
Clinical Predictors ◽  
Cross Sectional ◽  
Assess Quality

Epilepsy is a chronic neurological disorder that can have profound physical, social and psychological consequences. We aimed to assess the clinical predictors of quality of life of people with epilepsy. We recruited 31 patients suffering from epilepsy in this cross-sectional study. Their clinical profile was recorded. Quality Of Life in Epilepsy (QOLIE-31) was used to assess quality of life of our patients. Depression was screened by Neurological Disorders Depression Inventory in Epilepsy (NDDI-E). Among all the clinical variables, only seizure frequency significantly correlated with seizure worry (P=0.002), emotional well-being (P=0.026) and social functions (P=0.013) subscales of QOLIE-31. NDDIE score showed a significant negative correlation with all the subscales of QOLIE-31 except medication effects (P=0.993). A significant positive correlation was also noted between seizure frequency and NDDI-E score (r=0.417, P=0.020). Seizure frequency and depression are the most important predictors of quality of life in epilepsy patients. The management of patients with epilepsy should not only be aimed at just preventing seizures but the treating clinicians should also be cognizant about depression which itself can significantly affect the quality of life of patients.

Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being

Aphasiology ◽  
2003 ◽  
Vol 17 (4) ◽  
pp. 333-353 ◽  
Author(s):  
Madeline Cruice ◽  
Linda Worrall ◽  
Louise Hickson ◽  
Robert Murison
Keyword(s):  
Quality Of Life ◽  
Emotional Health ◽  
Well Being ◽  
Psychological Well Being ◽  
Social And Emotional

scholarly journals Outpatient methadone maintenance treatment program Quality of life and health of opioid-dependent persons in Lithuania

Medicina ◽  
2006 ◽  
Vol 43 (3) ◽  
pp. 235 ◽  
Author(s):  
Žilvinas Padaiga ◽  
Emilis Subata ◽  
Giedrius Vanagas
Keyword(s):  
Quality Of Life ◽  
Methadone Maintenance Treatment ◽  
Maintenance Treatment ◽  
Methadone Maintenance ◽  
Perceived Health ◽  
Well Being ◽  
Life Study ◽  
Assess Quality ◽  
The Impact

Background. The evaluation of quality of life and self-perceived health represents an assessment of the impact of treatment on patient functioning and well-being. Objective. Our aim was to explore the impact of methadone maintenance treatment on quality of life and self-perceived health of opioid-dependent persons in Lithuania. Methods. A total of 102 opioid-dependent patients were recruited in the study. A prospective follow-up study design was used. To assess quality of life, the WHOQOL-BREF 26-item version was used. The impact of methadone maintenance treatment on self-perceived health was assessed by Opiate Treatment Index (OTI). Results. Following 6 months of methadone maintenance treatment, significant improvements in physical (P=0.004), psychological (P=0.004), and environmental (P=0.048) components of quality of life were observed; no statistically significant improvements were found in social component of quality of life. Study participants reported lower rates of medical morbidity associated with injection (P<0.001), cardiorespiratory (P=0.034), musculoskeletal (P<0.001), neurological (P=0.013), gastrointestinal (P<0.001), and general health (P<0.001). Conclusions. Methadone maintenance treatment substantially reduces morbidity associated with opioid dependence and improves the quality of life of patients.

Age of First Exposure to Collision Sports Does Not Affect Quality of Life Outcomes in Community Rugby Players

Neurology ◽  
2020 ◽  
Vol 95 (20 Supplement 1) ◽  
pp. S11.2-S11
Author(s):  
Katie Hunzinger ◽  
Katelyn Costantini ◽  
Charles Buz Swanik ◽  
Thomas A. Buckley
Keyword(s):  
Quality Of Life ◽  
Satisfaction With Life ◽  
Short Form ◽  
Later Life ◽  
Well Being ◽  
Psychological Status ◽  
Online Questionnaire ◽  
Assess Quality ◽  
Rugby Players

ObjectiveTo determine the relationship between exposure to repetitive head impacts (RHI) through collision sports prior to the age of 12 and quality of life measures in community rugby players.BackgroundIt is suggested that RHI incurred before age 12 may be associated with later life neurologic impairments. However, research on age of first exposure (AFE) to collision sports and psychological outcomes has not be explored in rugby, a sport which participants often continue in community settings beyond college.Design/MethodsIndividuals over 18 years old who currently or previously played contact rugby completed an online questionnaire. To assess quality of life and psychological status, participants completed the Brief-Symptoms Inventory 18 (BSI-18), Short Form 12 (SF-12), and Satisfaction with Life Survey (SWLS). Participants were dichotomized into AFE to collision sports (12); AFE to rugby was not used since most participated in other collision sports prior to rugby. Data were not normally distributed; therefore, a Mann-Whitney U test was performed to compare outcomes between AFE groups.Results1,037 rugby players (31.6 + 11.3 years, 59.1% male) participated in this study. There were no significant differences between AFE 12 groups on all outcomes: BSI-18 Somatization (U = 97,286, p = 0.307), BSI-18 Depression (U = 100,267, p = 0.778), BSI-18 Anxiety (U = 98,851, p = 0.531), SF-12 Physical (U = 94,413, p = 0.241), SF-12 Mental (U = 96,517, p = 0.512), SWLS (U = 98,866, p = 0.537). Mean scores for all outcomes were: BSI-18 Somatization (2.33 + 2.99), BSI-18 Depression (4.20 + 4.91), BSI-18 Anxiety (3.32 + 3.75), SF-12 Physical (52.40 + 7.25), SF-12 Mental (46.20 + 11.45), SWLS (24.86 + 6.31).ConclusionsConsistent with recent cohort studies, there was no observed difference on three common measures of psychological well-being and quality of life in rugby players based upon AFE to collision sports. However, later life potential consequences of RHI in rugby players remains to be elucidated.

scholarly journals FeV1 and BMI influence King’s Sarcoidosis Questionnaire score in sarcoidosis patients

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Björn Christian Frye ◽  
Laura Potasso ◽  
Erik Farin-Glattacker ◽  
Surrinder Birring ◽  
Joachim Müller-Quernheim ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Function ◽  
General Health ◽  
Unknown Origin ◽  
Well Being ◽  
Current Therapy ◽  
Additional Information ◽  
Related Quality ◽  
Assess Quality

Abstract Background Sarcoidosis is granulomatous disease of unknown origin affecting organ function and quality of life. The King’s Sarcoidosis Questionnaire (KSQ) serves as a tool to assess quality of life in sarcoidosis patients with general health and organ specific domains. A German translation has been validated in a German cohort. In this study we assessed, whether clinical parameters influence KSQ scores. Methods Clinical data (e.g. lung function, organ impairment, serological parameters) for the German validation cohort were extracted from clinical charts and investigated by correlation and linear regression analyses. Results KSQ subdomain scores were generally lower in patients with respective organ manifestation or on current therapy. LUNG subdomain was significantly predicted by lung functional parameters, however for general health status, only FeV1 exerted significant influence. GHS was not influenced by serological parameters, but was significantly negatively correlated with body mass index (BMI). KSQ provides additional information beyond lung function, clinical or serological parameters in sarcoidosis patients. Notably, high BMI is significantly negatively associated with patients’ well-being as measured by KSQ-GHS. Conclusion This observation may direct further studies investigating the effect of obesity on sarcoidosis-related quality of life and strategies to intervene with steroid-sparing therapies and measures of life style modifications. Trial registration This study was registered in the German Clinical Trials Register (reference number DRKS00010072). Registered January 2016.

scholarly journals Well-being, capabilities and philosophical practice

2014 ◽  
Vol 25 (4) ◽  
pp. 105-120
Author(s):  
Aleksandra Bulatovic
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
New Paradigm ◽  
Philosophical Practice ◽  
The Social ◽  
Unique Definition ◽  
Definition Of ◽  
The Individual ◽  
Assess Quality

The concept of well being has become the main criterion to assess quality of life in contemporary society. Individual well-being describes the individual quality of life, while social well-being refers to quality of life in a society. Given that well-being has a multitude of dimensions, a unique definition of it is elusive to scholars. In this article social well-being is conceptualised as a dynamic process within the context set by social integration as one?s relationship to society and the community. This includes the quality of interaction between the individual and society and one?s ?social actualisation? understood as the realisation of one?s social capacities. Social actualisation also involves one?s ability to influence social processes and to benefit from social cohesion, which consists, in any society, of the quality, organisation and functioning of the social world. Hence the ability to impact society is an integral part of individual well being. This paper suggests that philosophical practice as a new paradigm in the humanities holds out promise for the improvement of both individual and social well-being.

Patient characteristics influencing quality of life in gynecologic cancer

2006 ◽  
Vol 24 (18_suppl) ◽  
pp. 6132-6132
Author(s):  
K. Gil ◽  
H. Frasure ◽  
E. Jenison ◽  
M. Hopkins ◽  
V. Von Gruenigen
Keyword(s):  
Quality Of Life ◽  
Endometrial Cancer ◽  
Educational Level ◽  
Emotional Health ◽  
Gynecologic Oncology ◽  
Gynecologic Cancer ◽  
Patient Characteristics ◽  
Well Being ◽  
Sf 36

6132 Background: The Functional Assessment of Cancer Therapy general (FACT) questionnaire was developed to assess disease and treatment specific issues affecting patients’ quality of life (QoL). Factors other than cancer and its treatment, such as age, general physical and emotional health, and socio-economic status, may have significant effects on QoL and patients’ response to treatments. This study examined the effect of these variables on the domains of the FACT in gynecologic oncology patients undergoing surgery for pelvic mass suspected to be malignant or endometrial cancer. Methods: Demographic information and patient characteristics were obtained pre-operatively. Patients also completed the FACT and the SF-36, a general health questionnaire that measures physical and mental well-being but is not designed to be sensitive to the detection of small treatment effects. Correlation and multiple regression analysis were used to assess the effect of diagnosis, age, body mass index (BMI), educational level, marital status, smoking status, physical (PCS) and mental (MCS) summary scores of the SF-36 on FACT domain scores. Results: Data were collected on 157 women at their pre-operative visit (endometrial cancer, n=45; benign masses, n=79; ovarian cancer, n=33). PCS, MCS and age were positively correlated with scores on the FACT, while BMI and smoking were negatively correlated ( Table ). Educational level was negatively correlated with scores on the social domain but positively correlated with physical scores on the FACT. PCS and MCS accounted for a significant amount of the variance (R2) in regression models for each of the FACT domains ( Table ). Conclusion: Patients’ QoL, as measured by a questionnaire that is sensitive to their disease and treatment, is affected by their baseline characteristics. As treatment options become more complex, these variables are likely to be of increasing importance in evaluating QoL. [Table: see text] No significant financial relationships to disclose.

Using the Quality of Well-Being Scale to Assess Quality of Life in Out-of-Treatment Drug Users

2003 ◽  
Vol 35 (4) ◽  
pp. 497-502 ◽  
Author(s):  
Grace L. Reynolds ◽  
Dennis G. Fisher ◽  
Jennifer A. Klahn ◽  
Michele M. Wood
Keyword(s):  
Quality Of Life ◽  
Drug Users ◽  
Well Being ◽  
Assess Quality

28 Quality of life of patients attending marie curie day hospice over time: preliminary findings from a prospective cohort study

2018 ◽  
Vol 8 (3) ◽  
pp. 370.2-370
Author(s):  
Sarah Cudmore ◽  
Anne Finucane ◽  
Gail Holloway ◽  
Pippa Grundy ◽  
Erna Haraldsdottir ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Prospective Cohort ◽  
Emotional Health ◽  
Primary Outcome Measure ◽  
Marie Curie ◽  
Quality Of Life Scale ◽  
Item Quality ◽  
Day Services ◽  
Assess Quality

IntroductionPalliative care day services (PCDS) is a popular if variable palliative intervention provided on a routine basis in many hospices.Aim and methodTo understand PCDS within Marie Curie hospices we set out to identify the structure process and outcome associated with the service. We present preliminary data on quality of life from the Edinburgh service. A prospective cohort design was used to describe outcomes over an eight-week period. Attendance was recorded. Participants were invited to complete a set of questionnaires to assess quality of life at baseline four weeks and eight weeks post-baseline. Patient assessment involved completion of questionnaires covering physical and emotional health quality of life and wellbeing. The primary outcome measure was QoL as assessed by the McGill Quality of Life scale.ResultsOver a nine-week period at one day hospice nine patients and five carers consented to participate. Of the nine patients eight were assessed at four-weeks post baseline (one patient was in hospital); seven patients were assessed at eight weeks post-baseline (one patient had died; one was unwell). Over the eight-week follow up period the total mean score remained stable. The single item quality of life score increased a little (as has quality of health care and environment) whilst symptoms worsened as might be expected in this population.ConclusionDay services may sustain quality of life in spite of deteriorating health. Further data collection from two other sites is underway to enhance sample size.

scholarly journals Lived Experiences of Adolescent Athletes Following Sport-Related Concussion

2017 ◽  
Vol 5 (12) ◽  
pp. 232596711774503 ◽  
Author(s):  
Tamara C. Valovich McLeod ◽  
Alyssa J. Wagner ◽  
Cailee E. Welch Bacon
Keyword(s):  
Quality Of Life ◽  
Emotional Health ◽  
Well Being ◽  
Health Related Quality ◽  
Adolescent Athletes ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Interscholastic Athletes

Background: Previous studies have identified the effect of sport-related concussion on health-related quality of life through the use of patient-reported outcome measures. However, there has been little research exploring the underlying mechanisms that influence these perceptions of health-related quality of life among adolescent athletes who have sustained a sport-related concussion. Purpose: To explore the psychosocial aspects of concussion among adolescent athletes. Study Design: Case series; Level of evidence, 4. Methods: A total of 12 interscholastic athletes (4 girls, 8 boys; mean ± SD age, 15.7 ± 1.7 years; grade level, 10.2 ± 1.4) were interviewed via a semistructured interview protocol between 15 and 30 days postinjury. Data analysis was guided by the consensual qualitative research tradition. Themes and categories emerged through consensus by a 3-person research team, and bias was minimized through the use of multiple-analyst triangulation. Results: Participants identified numerous postconcussion symptoms that resulted in increasing difficulty with emotions (eg, irritable, easily frustrated), roles at school (eg, concentration difficulties, fatigue), and roles in their social environment (eg, letting the team down, not being able to contribute to sport). As a result, participants expressed how they tried to minimize or mask symptoms to decrease the potential of being viewed differently by their peers. Conclusion: Adolescent athletes perceived a significant effect of sport-related concussion on numerous areas of psychosocial and emotional health and well-being. Anticipatory guidance—with education regarding the possible signs and symptoms, risk factors, and recovery expectations following a concussion—is important to include in postinjury management. A better understanding of sport-related concussion and expected recovery could help to improve perceptions of this injury among interscholastic athletes. Additionally, best practices should be identified to assist health care professionals and school personnel in the development of temporary adjustments or formal academic adjustment policies in the secondary school setting, therefore ensuring that the patients receive the support that they need to maintain their roles as students.

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