scholarly journals Where there's smoke: digital storytelling for healing

2022 ◽  
Vol 9 (1) ◽  
pp. 48-49
Author(s):  
Deborah Starr ◽  
Lance Weiler
Keyword(s):  
End Of Life Care ◽  
Digital Storytelling ◽  
Healthcare Providers ◽  
Narrative Medicine ◽  
Columbia University ◽  
Film Festival ◽  
The Arts ◽  
The Family ◽  
Self Discovery ◽  
Immersive Theatre

Columbia University School of the Arts’ Digital Storytelling Lab, in collaboration with Columbia’s Department of Narrative Medicine, developed Where There’s Smoke, a story and grief ritual that mixes interactive documentary, immersive theatre and online collaboration to invite healthcare providers and others into resonant conversations about life, loss and memory, and to imagine how stories can be used to create empathetic healing spaces. When Robert Weiler was diagnosed with terminal colon cancer, the complexity of healthcare and ensuing grief for the family, led his son Lance, a storytelling pioneer, to realize that a straightforward story wasn’t enough to explain and explore the experience, so he created Where There’s Smoke. Where There’s Smoke premiered in 2019 at the Tribeca Film Festival where it was hailed as an “absolute can’t miss” (Backstage). However, when COVID-19 submerged the world in loss, uncertainty, and isolation, Lance reimagined the piece as an online experience. He also combined the piece with protocols of Narrative Medicine as provided by faculty, Deborah Starr. The piece traces a heartbreaking journey through end-of-life care and grief, embracing grief as nonlinear and immersive, grief as an escape room with no escape. Participants sift through artwork, videos, and conversations and are provided with immersive moments for individuals, pairs and groups to have opportunities for self-discovery, unexpected intimacy, and ensuing healing. This is a personal yet universally relevant narrative, which gradually reveals itself to be something more…the possibility of immersive storytelling to create space for empathetic healing, grieving, and connecting.

Coinfection of Ixodes scapularis (Acari: Ixodidae) Nymphs With Babesia spp. (Piroplasmida: Babesiidae) and Borrelia burgdorferi (Spirochaetales: Spirochaetaceae) in Wisconsin

2021 ◽  
Author(s):  
T E Zembsch ◽  
X Lee ◽  
G M Bron ◽  
L C Bartholomay ◽  
S M Paskewitz
Keyword(s):  
United States ◽  
Borrelia Burgdorferi ◽  
Ixodes Scapularis ◽  
Healthcare Providers ◽  
Positive Association ◽  
Sensu Stricto ◽  
Babesia Microti ◽  
Tick Bites ◽  
The Family ◽  
Babesia Spp

Abstract Borrelia burgdorferi, the spirochete that causes Lyme disease, is endemic and widespread in Wisconsin. Research in the northeastern United States has revealed a positive association between Babesia microti, the main pathogen that causes babesiosis in humans, and Bo. burgdorferi in humans and in ticks. This study was conducted to examine associations between the disease agents in the Upper midwestern United States. Ixodes scapularis Say nymphs (N = 2,858) collected between 2015 and 2017 from nine locations in Wisconsin were tested for Babesia spp. and Borrelia spp. using real-time PCR. Two species of Babesia were detected; Ba. microti and Babesia odocoilei (a parasite of members of the family Cervidae). Prevalence of infection at the nine locations ranged from 0 to 13% for Ba. microti, 11 to 31% for Bo. burgdorferi sensu stricto, and 5.7 to 26% for Ba. odocoilei. Coinfection of nymphs with Bo. burgdorferi and Ba. odocoilei was detected in eight of the nine locations and significant positive associations were observed in two of the eight locations. The prevalence of nymphal coinfection with both and Bo. burgdorferi and Ba. microti ranged from 0.81 to 6.5%. These two pathogens were significantly positively associated in one of the five locations where both pathogens were detected. In the other four locations, the observed prevalence of coinfection was higher than expected in all but one site-year. Clinics and healthcare providers should be aware of the association between Ba. microti and Bo. burgdorferi pathogens when treating patients who report tick bites.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

scholarly journals Developing arts-based methods for exploring virtual reality technologies: A university–industry case study

2021 ◽  
Vol 5 (2) ◽  
Author(s):  
Stuart Gray ◽  
Chris Bevan ◽  
Kirsten Cater ◽  
Jo Gildersleve ◽  
Caroline Garland ◽  
...  
Keyword(s):  
Virtual Reality ◽  
Knowledge Exchange ◽  
Creative Industry ◽  
New Techniques ◽  
Emergent Technologies ◽  
The Arts ◽  
Immersive Theatre ◽  
Design Fiction ◽  
University Industry

Collaborations between human–computer interaction (HCI) researchers and arts practitioners frequently centre on the development of creative content using novel – often emergent – technologies. Concurrently, many of the techniques that HCI researchers use in evaluative participant-based research have their roots in the arts – such as sketching, writing, artefact prototyping and role play. In this reflective paper, we describe a recent collaboration between a group of HCI researchers and dramatists from the immersive theatre organization Kilter, who worked together to design a series of audience-based interventions to explore the ethics of virtual reality (VR) technology. Through a process of knowledge exchange, the collaboration provided the researchers with new techniques to explore, ideate and communicate their work, and provided the dramatists with a solid academic grounding in order to produce an accurate yet provocative piece of theatrically based design fiction. We describe the formation of this partnership between academia and creative industry, document our journey together, and share the lasting impact it has had upon both parties.

scholarly journals Preferences for Advance Directives in Korea

2012 ◽  
Vol 2012 ◽  
pp. 1-7 ◽  
Author(s):  
So-Sun Kim ◽  
Won-Hee Lee ◽  
JooYoung Cheon ◽  
Jung-Eun Lee ◽  
KiSun Yeo ◽  
...  
Keyword(s):  
End Of Life ◽  
Advance Directives ◽  
End Of Life Care ◽  
Healthcare Providers ◽  
Tube Feeding ◽  
Life Care ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Korean People ◽  
End Stage

Background. The goal of advance directives is to help patients retain their dignity and autonomy by making their own decisions regarding end-stage medical treatment. The purpose of this study was to examine preferences of advance directives among general population in Korea.Method. A descriptive cross-sectional survey was performed from October 2007 to June 2008 in Seoul, Korea. A total of 336 city-dwelling adults self-administered the questionnaire and returned it via mail. Data analyses were conducted using SPSS 17.0.Results. Subjects reported the need for healthcare providers' detailed explanations and recommendations regarding end-of-life care. When there is no hope of recovery and death is imminent, most subjects did not want to receive cardiopulmonary resuscitation nor an IV or tube feeding. However, most of the subjects wanted pain management care.Conclusions. The present study showed that many Korean people have an interest in advance directives. The results show that the autonomy and dignity of patient have increased in importance. To provide better end-of-life care, there is a need to educate patients on the definition and intent of an advance directive. Additional proactive communication between patients and their caregivers should be educated to healthcare providers.

scholarly journals El cuidado informal en tiempos de crisis. Análisis desde la perspectiva enfermera

2018 ◽  
Vol 17 (2) ◽  
pp. 515-541 ◽  
Author(s):  
Manoli Cantillo Monjo ◽  
Teresa Lleopart Coll ◽  
Sandra Ezquerra Samper
Keyword(s):  
Assessment Tools ◽  
Gender Inequalities ◽  
The Arts ◽  
Current Perspective ◽  
The Social ◽  
The Family ◽  
And Gender ◽  
New Research ◽  
Practice Methods ◽  
Use Of Assessment

Objetivos: Cuantificar y caracterizar la producción científica enfermera sobre cuidados informales del período 2007-2016, observar la evolución de la temática durante estos años, adquirir una perspectiva actual sobre el estado de la cuestión y realizar propuestas sobre futuras líneas de investigación e intervención.Metodología: Revisión bibliográfica llevada a cabo mediante dos estrategias: una cuantitativa, y una segunda estrategia cualitativa. Resultados: El tipo de artículo más publicado es el estudio original cuantitativo, aunque se detecta un crecimiento de las publicaciones con enfoque cualitativo. Los temas más tratados son el perfil de la persona cuidadora, los impactos de la atención en su salud y en otros aspectos de su vida cotidiana, las propuestas de intervenciones profesionales para promover el cuidado personal y para evitar la sobrecarga de las personas cuidadoras y, por último, el uso de herramientas de evaluación para la planificación de la atención a las mismas.Conclusiones: Las publicaciones enfermeras identifican con acierto la centralidad del cuidado informal y el giro asistencial hacia el domicilio y la familia. No problematizan, sin embargo, el actual trasvase de responsabilidades hacia el cuidado desde las administraciones públicas hacia el ámbito familiar, ni analizan en profundidad las desigualdades socioeconómicas y de género reinantes en el actual escenario de cuidados. El abordaje a estos dos elementos puede contribuir a abrir nuevas líneas de investigación e intervención en el campo de la enfermería. Goals: To quantify and characterize the scientific production in nursing on informal care from 2007 to 2016, to observe the evolution of the theme during this period, to acquire a current perspective on the state of the arts, and to suggest future directions of both research and professional practice. Methods: Bibliographical review undertaken through two strategies: a quantitative strategy and a qualitative one. Results: The most frequent type of published article is quantitative although there is an increase of qualitative publications. Among the most frequent themes are: the study of the caregiver’s profile, as well as the impacts of care on their health and on their everyday life; practical professional recommendations to promote care and self-care and to prevent caregivers’ overload; and, finally, the use of assessment tools for planning attention of caregivers. Conclusions: While nursing publications rightly identify the centrality of the family and the household in the new care scenario, they do not problematize the current transfer of responsibility for care from public administrations toward the realm of the family. Neither do they problematize the social, economic, and gender inequalities that take place in the context of care. To approach these two themes can contribute to create new research and professional lines in nursing.

Caring for the Family Caregiver

2020 ◽  
pp. 200-214
Author(s):  
Elaine Wittenberg ◽  
Joy V. Goldsmith ◽  
Sandra L. Ragan ◽  
Terri Ann Parnell
Keyword(s):  
Health Literacy ◽  
Family Caregiver ◽  
Contextual Factors ◽  
Healthcare Providers ◽  
Self Care ◽  
Future Research ◽  
Disease Information ◽  
The Family ◽  
Caregiver Needs ◽  
Literacy Framework

There is little evidence for caregiver assessment and interventions based on unique social and contextual factors of caregiving. Current approaches to caring for the family caregiver involve a “one size fits all” approach where caregiver assessment may or may not occur, and there is no link between identification of caregiver needs and recommended resources. When caregiver assessment does occur, it does not involve unique caregiving characteristics that positively impact communication and health literacy. Caring for the Family Caregiver, a communication and health literacy framework, is introduced and consists of teaching healthcare providers to address caregiving types by finding disease information, assessing and integrating information, partnering with the caregiver, finding support, talking with the caregiver, and planning for caregiver self-care. Directions for future research are also summarized.

Attitudes Toward and Beliefs About Family Presence: A Survey of Healthcare Providers, Patients’ Families, and Patients

2007 ◽  
Vol 16 (3) ◽  
pp. 270-279 ◽  
Author(s):  
Christine R. Duran ◽  
Kathleen S. Oman ◽  
Jenni Jordan Abel ◽  
Virginia M. Koziel ◽  
Deborah Szymanski
Keyword(s):  
Neonatal Intensive Care ◽  
Healthcare Providers ◽  
Family Members ◽  
Emotional Responses ◽  
Neonatal Intensive Care Units ◽  
Family Presence ◽  
Positive Attitudes ◽  
The Family ◽  
And Performance ◽  
Accepted Practice

Background Although some healthcare providers remain hesitant, family presence, defined as the presence of patients’ family members during resuscitation and/or invasive procedures, is becoming an accepted practice. Evidence indicates that family presence is beneficial to patients and their families. Objectives To describe and compare the beliefs about and attitudes toward family presence of clinicians, patients’ families, and patients. Methods Clinicians, patients’ families, and patients in the emergency department and adult and neonatal intensive care units of a 300-bed urban academic hospital were surveyed. Results Surveys were completed by 202 clinicians, 72 family members, and 62 patients. Clinicians had positive attitudes toward family presence but had concerns about safety, the emotional responses of the family members, and performance anxiety. Nurses had more favorable attitudes toward family presence than physicians did. Patients and their families had positive attitudes toward family presence. Conclusions Family presence is beneficial to patients, patients’ families, and healthcare providers. As family presence becomes a more accepted practice, healthcare providers will need to accommodate patients’ families at the bedside and address the barriers that impede the practice.

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