scholarly journals Reliability of Clinical Rating Scale in Evaluation of Head Control in children with Cerebral Palsy

2021 ◽  
Vol 11 (1) ◽  
pp. 10-15
Author(s):  
Adamu Yakubu Abdullahi ◽  
◽  
Auwal Abdullahi ◽  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Rating Scale ◽  
Kappa Statistics ◽  
Cross Sectional ◽  
Clinical Rating ◽  
Children With Cerebral Palsy ◽  
Head Control ◽  
Clinical Rating Scale

Introduction The clinical rating scale for head control assesses control of head/neck in children with neurological conditions. Head control is important for activities of daily living and quality of life in children. Objectives The aim of the study was to determine the intra-rater and inter-rater reliability of the scale in children with Cerebral Palsy. Method The study was a cross-sectional study approved by Research ethics committees of Kano State Ministry of Health and Aminu Kano Teaching Hospital involving children with CP. Three independent raters assessed the children using Clinical Rating Scale for Head Control at two different times, and the intra-rater and inter-rater reliabilities were analyzed using kappa statistics and Bland-Altman analysis. Results Fifty children with CP with mean age, 24.17±12.17 months participated in the study. The result of the study showed that there were very good agreement in all the test positions for the three raters and between the first and the second ratings and in all the test positions between the three raters respectively (k>0.8). Similarly, there was no proportional bias between ratings in 24 of the measurements (p>0.05). Conclusion Clinical rating scale for head control seems to be a reliable instrument. Thus, it can be used to monitor the progress of rehabilitation in CP patients to help improve their quality of life.

A Cross-Sectional Study to Evaluate the Quality of Life of Caregivers for Children with Cerebral Palsy in Saudi Arabia, Jeddah

2021 ◽  
Author(s):  
Alanoud Akram Aman ◽  
Bashaer Baharoon ◽  
Haifa Jamal Idrees ◽  
Ahad Mohammedyusuf Taj ◽  
Bassmah Ali Alzahrani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Saudi Arabia ◽  
Cerebral Palsy ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Quality of Life of Children with Cerebral Palsy: A Cross-Sectional KIDSCREEN study in the Southern part of the Netherlands

2015 ◽  
Vol 14 (1) ◽  
pp. 102-109 ◽  
Author(s):  
George Vles ◽  
Ruben Hendriksen ◽  
Jose Hendriksen ◽  
Elisabeth van Raak ◽  
Dan Soudant ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
The Netherlands ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

scholarly journals Children with Cerebral Palsy and their Quality Of Life in Nepal

2018 ◽  
Vol 37 (2) ◽  
pp. 122-128
Author(s):  
Niti Shrestha ◽  
Sabitra Paudel ◽  
Ritesh Thapa
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Classification System ◽  
Cross Sectional Study ◽  
Self Report ◽  
Emotional Wellbeing ◽  
Related Factors ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Introduction: Cerebral Palsy (CP) may affect individual’s everyday life and it may have significant impact on quality of life (QOL). The objective of this study was to assess the quality of life of children with Cerebral Palsy in Nepal.Material and Methods: This is a descriptive cross sectional study that involved 42 children between 4 and 12 years of age. The Socio-demographic variables were obtained from interviews and CP related factors were obtained from medical reports. Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data collection. Severity was assessed using Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication function Classification System (CFCS) and ICD-10 Classification System. Data were summarized using descriptive statistics. Kruskal Wallis and Man Whitney was used to find out association between Cerebral Palsy related factors and Quality of Life.Results: 57.1% (n=24) were between 8 and12 years of age and 42.9% (n=18) were between 4 and 8 years of age. Overall QOL was reported to be fairly good. Both the child and Caregiver gave highest score on “Social wellbeing and acceptance” and “Emotional wellbeing and self-esteem domain” and Lowest Point in “Pain and Impact of disability”. This implies that Psychosocial Quality of Life is good in children with CP. Quality of Life as reported by child was better than Quality of Life reported by Caregiver.Conclusion: Overall QOL is fairly good in children with CP. However, Pain and impact of disability impairs QOL.

scholarly journals Burden and quality of life of informal caregivers of children with cerebral palsy

Rev Rene ◽  
2021 ◽  
Vol 22 ◽  
pp. e61752
Author(s):  
Abigail Oluwadunni Davis ◽  
Oladapo Michael Olagbegi ◽  
Kayode Orekoya ◽  
Mathew Adekunle ◽  
Olufemi Oyeleye Oyewole ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Caregiver Burden ◽  
Informal Caregivers ◽  
Well Being ◽  
Cross Sectional Survey ◽  
Strain Index ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

Objective: to analyze the caregiver burden and the quality of life of informal caregivers of children with cerebral palsy. Methods: the cross-sectional survey involved 109 caregivers of children with cerebral palsy recruited from physiotherapy clinic at a tertiary hospital. The quality of life and caregiver burden were assessed using the Personal Wellbeing Index Scale and the Modified Caregivers’ Strain Index, respectively. Data were analysed using descriptive and inferential statistics. Results: the mean strain index and quality of life scores of the participants were 11.85 ± 5.72 and 64.68 ± 8.03 respectively. The majority (67.9%) of the caregivers had fair personal well-being, while about one-third (33.0%) had high caregiver’s strain. Child’s age (B=2.454; p<0.005) and caregivers’ occupation (B= -2.547; p=0.001) were predictors of caregiver strain. Conclusion: caring for children with cerebral palsy imposed a substantial burden on the caregivers and child’s age and caregivers’ occupation were predictor variables.

scholarly journals Self-reported quality of life of 8–12-year-old children with cerebral palsy: a cross-sectional European study

The Lancet ◽  
2007 ◽  
Vol 369 (9580) ◽  
pp. 2171-2178 ◽  
Author(s):  
Heather O Dickinson ◽  
Kathryn N Parkinson ◽  
Ulrike Ravens-Sieberer ◽  
Giorgio Schirripa ◽  
Ute Thyen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
European Study ◽  
Cross Sectional ◽  
Children With Cerebral Palsy

scholarly journals Quality of Life among Primary Caregivers of Children with Cerebral Palsy Living in Sarlahi and Rautahat Districts of Nepal

2021 ◽  
Vol 18 (4) ◽  
pp. 619-625
Author(s):  
Bina Pandit ◽  
Jitendra Kumar Singh ◽  
Ananda Kumar Karn ◽  
Rina Pandit
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Primary Caregivers ◽  
Poor Quality ◽  
System Level ◽  
Cross Sectional ◽  
Factors Associated ◽  
Significant Difference ◽  
Children With Cerebral Palsy

Background: The objective of this study was to determine the quality of life and factors associated with quality of life among primary caregivers of children with Cerebral palsy.Methods: A cross-sectional study was carried between primary caregivers of children with cerebral palsy in rehabilitation group and non-rehabilitation group. Purposive sampling technique was used to collect dataResults: Median age of caregivers was 34 years (age 20-70 years), and there was significant difference between age in two groups (p=0.028). 83 (86.5%) caregivers were female with significant difference between gender in rehabilitation and non-rehabilitation group (p=0.03). Majority of primary caregivers were mother 71 (74%) in both groups. Among all 96 caregivers, 78.1% of caregivers had poor quality of life (Score in questionnaire below 75% taken as poor quality of life).There was no significant difference between quality of life in rehabilitation and non-rehabilitation group (p=0.42). Factors associated with quality of life in rehabilitation groups was illiteracy (p=0.005), aggressive nature of child (p=0.050), uncooperative nature of child (p=0.025), poor knowledge about child condition (p<0.001), and low financial support (p=0.051). Similarly, factor associated with quality of life in non-rehabilitation group was gross motor function classification system level of child (p< 0.001) and more perceived stress (p=0.048). Conclusions: Majority of primary caregivers was mother and had poor quality of life and there was no significant difference between overall quality of life of caregivers in rehabilitation and non-rehabilitation group.Keywords: Cerebral palsy; quality of life; primary caregivers

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