scholarly journals Identifying Potential Barriers and Solutions to Patient Partner Compensation (Payment) in Research

2021 ◽  
Author(s):  
Dawn P. Richards ◽  
Kelly Denise Cobey ◽  
Laurie Proulx ◽  
Shoba Dawson ◽  
Maarten de Wit ◽  
...  
Keyword(s):  
Real Life ◽  
Grant Funding ◽  
Institutional Barriers ◽  
Research Teams ◽  
Call To Action ◽  
Potential Barriers ◽  
Principal Investigators ◽  
Compensation Payment ◽  
Patient Partnership ◽  
Policy Guidance

Research that engages patients on the research team is often supported by grant funding from different organizations and, in some cases, principal investigators (who control the grant funding) provide patient partners with compensation (or payment) for their contributions. However, we have noted a gap in resources that identify and address barriers to compensating patient partners. In this paper, we present thoughts and experiences related to barriers to compensating patient partners with the goal of helping individuals identify and find solutions to these obstacles.Based on our experiences as individuals who live with chronic conditions and are patient partners, and those who are researchers who engage patient partners, we have identified eight barriers to compensating patient partners. We discuss each of these barriers: lack of awareness about patient partnership, institutional inflexibility, policy guidance from funders, compensation not prioritized in research budgets, leadership hesitancy to create a new system, culture of research teams, preconceived beliefs about the skills and abilities of patient partners, and expectations placed on patient partners. We demonstrate these barriers with real life examples and we offer some solutions. To further demonstrate these barriers, we ask readers to reflect on some scenarios that present realistic parallel situations to those that patient partners face. The intention is to illustrate, through empathy or putting yourself in someone else’s shoes, how we might all do better with respect to institutional barriers related to patient partner compensation. Last, we issue a call to action to share resources and identify actions to overcome these barriers so we can create a resource hub.

Adherence to clinical evaluations in women with pre-existing diabetes during pregnancy: A call to action from an Italian real-life investigation

2019 ◽  
Vol 154 ◽  
pp. 1-8 ◽  
Author(s):  
Anna Cantarutti ◽  
Federico Rea ◽  
Anna Locatelli ◽  
Luca Merlino ◽  
Rebecca Lundin ◽  
...  
Keyword(s):  
Real Life ◽  
Call To Action ◽  
Clinical Evaluations

scholarly journals Mobile learning policy and practice in Africa: Towards inclusive and equitable access to higher education

2019 ◽  
Vol 35 (6) ◽  
pp. 1-14 ◽  
Author(s):  
Rogers Kaliisa ◽  
Picard Michelle
Keyword(s):  
Higher Education ◽  
Mobile Learning ◽  
Access To Higher Education ◽  
Equitable Access ◽  
Policy And Practice ◽  
African Countries ◽  
Institutional Barriers ◽  
Potential Barriers ◽  
Current State ◽  
African Higher Education

This article presents the results of a review of practice and policy in relation to mobile learning and its potential to enhance inclusive and equitable access to higher education in Africa. We reviewed academic literature on potential barriers. Then, we explored the current state of the mobile learning policy environment in 10 African countries through an analysis of how these policies have tried to address the prominent challenges in the adoption of mobile learning as identified in the literature. The findings reveal that significant resourcing inequalities and epistemological, sociocultural, and institutional barriers remain and affect mobile learning adoption. The analysis also reveals that there is still a policy vacuum in relation to mobile learning specific policies within African higher education institutional and governmental policies. Thus, the formal integration of mobile learning in higher education to facilitate equitable access is very much in its infancy. This article suggests a strong need for institutional, cross-institutional, national and African-wide mobile learning specific policies to ensure better implementation of mobile learning. As interest in mobile learning continues to grow, this review will provide insights into policy and strategic planning for the adoption of mobile learning to achieve inclusive and equitable access to higher education.

scholarly journals 1069Reflection from working with multi-disciplinary teams on practice of teaching epidemiology

2021 ◽  
Vol 50 (Supplement_1) ◽  
Author(s):  
HuiJun Chih ◽  
Ann Firth
Keyword(s):  
Learning Outcomes ◽  
Health Research ◽  
Quantitative Research ◽  
Teaching Practice ◽  
Real Life ◽  
Positive Outcomes ◽  
Threshold Concepts ◽  
Research Skills ◽  
Research Teams ◽  
Practice Of Teaching

Abstract Focus of Presentation Health research teams has increasingly worked together as multi-disciplinary teams. Sponsorships and/or fellowships may provide teaching academics the opportunity to collaborate with multi-disciplinary teams on real-life research and enhance their teaching practice. This presentation will focus on sharing reflection of a teaching academic working with multi-disciplinary teams, and the experience on influencing the academic’s practice of teaching epidemiology. Findings The opportunity to work with multi-disciplinary clinicians has been enriching. In addition to building networks, it has helped to build confidence of the academic in clarifying unit learning outcomes, developing well-aligned curricula and designing authentic activities that scaffold threshold concepts effectively to assist students achieve the unit learning outcomes. The confidence of students on the teaching academic is also enhanced as they gain quantitative research skills on real-life examples, which would be useful for the future workforce. Conclusions/Implications The opportunity for academic who teach epidemiology to work with multi-disciplinary research teams can bring along positive outcomes. It not only enhances research outputs of both parties, teaching capability of the academic, but also the confidence of our future workforce in the area of epidemiology. Key messages Teaching academics need opportunities to work with the industry in order to effectively bridge the teaching-research nexus in both directions, and create win-win-win situations for the academics, the students and the industry collaborators.

Down to the Wire

2009 ◽  
Author(s):  
David W. Orr
Keyword(s):  
Real Life ◽  
Well Being ◽  
Future Generations ◽  
Fault Line ◽  
Sea Levels ◽  
Call To Action ◽  
Wide Range ◽  
The Wire ◽  
Rising Sea Levels ◽  
To Come

The real fault line in American politics is not between liberals and conservatives.... It is, rather, in how we orient ourselves to the generations to come who will bear the consequences, for better and for worse, of our actions. So writes David Orr in Down to the Wire, a sober and eloquent assessment of climate destabilization and an urgent call to action. Orr describes how political negligence, an economy based on the insatiable consumption of trivial goods, and a disdain for the well-being of future generations have brought us to the tipping point that biologist Edward O. Wilson calls "the bottleneck." Due to our refusal to live within natural limits, we now face a long emergency of rising temperatures, rising sea-levels, and a host of other related problems that will increasingly undermine human civilization. Climate destabilization to which we are already committed will change everything, and to those betting on quick technological fixes or minor adjustments to the way we live now, Down to the Wire is a major wake-up call. But this is not a doomsday book. Orr offers a wide range of pragmatic, far-reaching proposals--some of which have already been adopted by the Obama administration--for how we might reconnect public policy with rigorous science, bring our economy into alignment with ecological realities, and begin to regard ourselves as planetary trustees for future generations. He offers inspiring real-life examples of people already responding to the major threat to our future. An exacting analysis of where we are in terms of climate change, how we got here, and what we must now do, Down to the Wire is essential reading for those wanting to join in the Great Work of our generation.

scholarly journals Barriers to the Adoption of Urban Living Labs for NBS Implementation: A Systemic Perspective

2021 ◽  
Vol 13 (23) ◽  
pp. 13276
Author(s):  
Shahryar Sarabi ◽  
Qi Han ◽  
A. Georges L. Romme ◽  
Bauke de Vries ◽  
Rianne Valkenburg ◽  
...  
Keyword(s):  
Structural Model ◽  
Real Life ◽  
Structural Modelling ◽  
Institutional Barriers ◽  
Interpretive Structural Modelling ◽  
Urban Living ◽  
Safe Environment ◽  
Living Labs ◽  
Knowledge Brokers ◽  
Systemic Understanding

Urban Living Labs (ULLs) are widely believed to provide a safe environment for experimentation, co-creation and evaluation of innovations in real-life settings. A growing number of cities have been adopting ULLs to co-create and test Nature-Based Solutions (NBS). However, many of these cities have been facing major barriers in trying to adopt the ULL approach for implementing NBS. In this study, we seek to identify these barriers and provide a systemic understanding. Barriers are identified by means of workshops and interviews. Subsequently, interpretive structural modelling serves to identify the interdependencies among the barriers, resulting in a structural model of barriers in adopting ULLs for NBS. Our results show that political and institutional barriers are significantly limiting the adoption of ULLs. Moreover, knowledge brokers and other intermediaries, as well as cross-sectoral collaboration, play a key role in getting ULLs adopted. The findings from this study can help cities to develop strategies that overcome the main barriers for ULL adoption in the context of nature-based solutions.

scholarly journals Recognising and Enabling the Collective Dimension of the GDPR and the Right of Access

2020 ◽  
Author(s):  
René Mahieu ◽  
Jef Ausloos
Keyword(s):  
Social Justice ◽  
Real Life ◽  
Vital Role ◽  
Full Potential ◽  
Call To Action ◽  
Digital Society ◽  
Access Rights ◽  
The Right ◽  
Right Of Access ◽  
Collective Dimension

The digitisation and datafication of European society necessitate a robust ecology of transparency to enable scrutinising and challenging digital infrastructures that govern our lives. The GDPR – and its transparency provisions in particular – play a vital role in this pursuit. Crucially, in light of the strong informational power asymmetries in the digital society, the effectiveness of GDPR transparency measures will depend on their collective use. This contribution -- submitted as feedback to the European Commission’s two-year evaluation of the implementation of the GDPR -- aims to highlight this collective dimension of GDPR access rights, emphasising their potential for social justice (with a rich list of real-life examples in the Annex) and the requirements for rendering them effective. We hope the European Commission takes this contribution as a call to action for creating an enabling environment for collective access rights: empowering all actors in the GDPR’s ecology of transparency, and unlocking the full potential of the GDPR in safeguarding a fair digital society.

scholarly journals Antibiotic stewardship implementation at hospitals without on-site infectious disease specialists: A qualitative study

2021 ◽  
pp. 1-6
Author(s):  
Daniel J. Livorsi ◽  
Kenda R. Stewart Steffensmeier ◽  
Eli N. Perencevich ◽  
Matthew Bidwell Goetz ◽  
Heather Schacht Reisinger
Keyword(s):  
Infectious Disease ◽  
Antibiotic Stewardship ◽  
Staff Turnover ◽  
Veterans Health ◽  
Health Administration ◽  
Institutional Barriers ◽  
Potential Barriers ◽  
Primary Responsibility ◽  
Semistructured Interviews ◽  
Infectious Disease Specialists

Abstract Background: Hospitals are required to have antibiotic stewardship programs (ASPs), but there are few models for implementing ASPs without the support of an infectious disease (ID) specialist, defined as an ID physician and/or ID pharmacist. Objective: In this study, we sought to understand ASP implementation at hospitals that lack on-site ID support within the Veterans’ Health Administration (VHA). Methods: Using a mandatory VHA survey, we identified acute-care hospitals that lacked an on-site ID specialist. We conducted semistructured interviews with personnel involved in ASP activities. Setting: The study was conducted across 7 VHA hospitals. Participants: In total, 42 hospital personnel were enrolled in the study. Results: The primary responsibility for ASPs fell on the pharmacist champions, who were typically assigned multiple other non-ASP responsibilities. The pharmacist champions were more successful at gaining buy-in when they had established rapport with clinicians, but at some sites, the use of contract physicians and frequent staff turnover were potential barriers. Some sites felt that having access to an off-site ID specialist was important for overcoming institutional barriers and improving the acceptance of their stewardship recommendations. In general, stewardship champions struggled to mobilize institutional resources, which made it difficult to advance their programmatic goals. Conclusion: In this study of 7 hospitals without on-site ID support, we found that ASPs are largely a pharmacy-driven process. Remote ID support, if available, was seen as helpful for implementing stewardship interventions. These findings may inform the future implementation of ASPs in settings lacking local ID expertise.

Infobuttons for Genomic Medicine: Requirements and Barriers

2021 ◽  
Vol 12 (02) ◽  
pp. 383-390
Author(s):  
Luke V. Rasmussen ◽  
John J. Connolly ◽  
Guilherme Del Fiol ◽  
Robert R. Freimuth ◽  
Douglas B. Pet ◽  
...  
Keyword(s):  
Open Source Software ◽  
Genomic Medicine ◽  
Perceived Barriers ◽  
Health Record ◽  
Critical Component ◽  
Institutional Barriers ◽  
Information Technology Projects ◽  
Potential Barriers ◽  
Alternative Systems ◽  
Institutional Priority

Abstract Objectives The study aimed to understand potential barriers to the adoption of health information technology projects that are released as free and open source software (FOSS). Methods We conducted a survey of research consortia participants engaged in genomic medicine implementation to assess perceived institutional barriers to the adoption of three systems: ClinGen electronic health record (EHR) Toolkit, DocUBuild, and MyResults.org. The survey included eight barriers from the Consolidated Framework for Implementation Research (CFIR), with additional barriers identified from a qualitative analysis of open-ended responses. Results We analyzed responses from 24 research consortia participants from 18 institutions. In total, 14 categories of perceived barriers were evaluated, which were consistent with other observed barriers to FOSS adoption. The most frequent perceived barriers included lack of adaptability of the system, lack of institutional priority to implement, lack of trialability, lack of advantage of alternative systems, and complexity. Conclusion In addition to understanding potential barriers, we recommend some strategies to address them (where possible), including considerations for genomic medicine. Overall, FOSS developers need to ensure systems are easy to trial and implement and need to clearly articulate benefits of their systems, especially when alternatives exist. Institutional champions will remain a critical component to prioritizing genomic medicine projects.

scholarly journals Jumped Three Hurdles with One Leap: A Review of Qualitative Research and Complex Teams (Understanding Qualitative Research Series)

2019 ◽  
Author(s):  
Julius Kyakuwa
Keyword(s):  
Qualitative Research ◽  
Research Design ◽  
Real Life ◽  
Qualitative Inquiry ◽  
Narrative Text ◽  
Research Projects ◽  
Qualitative Researcher ◽  
Research Teams ◽  
Personal Experiences ◽  
Research Findings

This book is a guide to ways of conducting and writing qualitative research projects through complex teams and lone research undertakings. The text is grounded in Davidson’s experience as a qualitative researcher and writer, as well as her experience working with complex research teams. With an emphasis on the value of writing in qualitative research, Davidson describes issues of research design, methodological writing, documenting research findings, and implications regarding complex research teams. The book is written in a motivating orientation using a mixture of both a formal and conversational tone. Davidson triangulates this narrative text and builds reliability through personal experiences as a qualitative researcher on complex, small, and lone projects; working with her own students’ qualitative projects; real life field stories as examples; detailed append ices to support her content; and references from her own publications. This book is appropriate for anyone engaged with qualitative inquiry with a beginner researcher considered as well.

scholarly journals Co-designing strategies to support patient partners during a scoping review and reflections on the process: a commentary

2021 ◽  
Vol 7 (1) ◽  
Author(s):  
Tamara L. McCarron ◽  
Fiona Clement ◽  
Jananee Rasiah ◽  
Karen Moffat ◽  
Tracy Wasylak ◽  
...  
Keyword(s):  
Scoping Review ◽  
Health Research ◽  
Research Team ◽  
Capacity Development ◽  
Main Body ◽  
Successful Completion ◽  
Research Teams ◽  
Potential Barriers ◽  
Engagement Strategies ◽  
Research Activities

Abstract Background Patient partners can be described as individuals who assume roles as active members on research teams, indicative of individuals with greater involvement, increased sharing of power, and increased responsibility than traditionally described by patient participants who are primarily studied. A gap still remains in the understanding of how to engage patients. The objective of this commentary is to describe the involvement of four patient partners who worked with researchers during a scoping review. Main body We describe approaches to meaningfully engage patient partners in conducting a scoping review. Patient partners were recruited through existing patient networks. Capacity development in the form of the training was provided to these four patient partners. Engagement strategies were co-designed with them to address potential barriers of involvement and acquiring the necessary skills for the successful completion of this scoping review. Conclusion Involving patients partners early in the project established the foundational relationship so patient partners could contribute to their fullest. We witnessed the success of working alongside patient partners as members of the research team with a clear and mutually agreed upon purpose of the engagement in health research activities and how this seemed to contribute to an effective and rewarding experience for both researcher and patient partner.

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