Développement d’une version canadienne-française du Montgomery Borgatta Caregiver Burden Scale

2008 ◽  
Vol 27 (2) ◽  
pp. 181-190 ◽  
Author(s):  
Nathalie Farley ◽  
Louise Demers ◽  
Bonnie R. Swaine

ABSTRACTAssessing the burden linked to caring for the frail elderly is becoming an important issue in rehabilitation. The purpose of this study was to translate/validate the Montgomery Borgatta Caregiver Burden Scale into French for use in Canada. This easy-to-use questionnaire evaluates aspects of burden such as objective, subjective stress and subjective demand burden. The instrument underwent: 1) parallel translation/back-translation; 2) expert's committee review leading to an experimental version; 3) pre-test to ensure wording clarity; and 4) study of psychometric properties with bilingual subjects (n = 27) and French-speaking subjects (n = 18). Results suggest that convergence between the original and the French versions is satisfactory for two of the three sub-scales of the MBCBS (ICC 0.83 et 0.96). The test-retest stability coefficients are also very good (ICC of 0.92 et 0.91), as is internal consistency (0.90, 0.66). The objective burden sub-scale correlates moderately with a measure of functional autonomy (SMAF). Results for the subjective burden scale linked to demand are, however, inadequate. All in all, two of the three sub-scales of the French-Canadian version of the Montgomery Borgatta Caregiver Burden Scale demonstrate adequate psychometric properties, thereby favouring its use in geriatric rehabilitation.

Author(s):  
Hannah Tough ◽  
◽  
Martin W. G. Brinkhof ◽  
Johannes Siegrist ◽  
Christine Fekete

Abstract Background Socioeconomic position (SEP) is an important contextual factor in the Stress Process Model of caregiving. However, the basic assumption that low SEP is associated with greater caregiver burden has so far lacked empirical support. The objective of this study was to investigate social inequalities in the caregiver burden among caregiving partners of persons with a physical disability, i.e., spinal cord injury (SCI), applying a dyadic approach. More specifically, we investigated 1) the association of the caregivers’ SEP with caregiver burden (‘actor effect’); 2) the association of the care-receivers’ SEP with caregiver burden (‘partner effect’), and 3) potential mediators of the association between SEP and caregiver burden. Methods Cross-sectional survey data from 118 couples of persons with SCI and their partners living in Switzerland was used. We firstly employed logistic regression to investigate the actor and partner effects of SEP on objective (hours of caregiving) and subjective caregiver burden (Zarit Burden Interview). We additionally used structural equation modelling to explore whether unfulfilled support needs, psychosocial resources and the care-receivers health status mediated the association between SEP and caregiver burden. SEP was operationalized by household income, education, subjective social position, financial strain and home ownership. Results We observed a consistent trend towards higher objective and subjective burden in lower SEP groups. Caregivers with higher subjective social positon and home ownership indicated lower subjective burden, and caregivers with higher education and absence of financial strain reported lower objective burden. Further evidence suggested a partner effect of SEP on caregiver burden, whereby objective caregiver burden was reduced in couples where the care-receiver had a higher educational level. The negative association between SEP and subjective burden was partially mediated by the unfulfilled support needs and deprived psychological resources of the caregiver, and the poor health status of the care-receiver. Similar mediation effects were not supported for objective burden. Conclusions Our study, in the context of SCI, provides support for the contextual role of SEP in the Stress Process Model of caregiving. To reduce subjective caregiver burden, policy programs may target the strengthening of psychosocial resources, or the improvement of access to support services for caregivers with low SEP.


BMJ Open ◽  
2017 ◽  
Vol 7 (12) ◽  
pp. e017369 ◽  
Author(s):  
Christine Fekete ◽  
Hannah Tough ◽  
Johannes Siegrist ◽  
Martin WG Brinkhof

ObjectiveTo investigate associations of objective caregiver burden, subjective caregiver burden and positive aspects of caregiving with self-reported health indicators in caregiving partners of persons with a severe physical disability (spinal cord injury).DesignCross-sectional, observational.SettingCommunity, Switzerland.ParticipantsCaregiving partners of persons with spinal cord injury (n=118, response rate 19.7%).Outcome measuresGeneral health, role limitations due to physical health, role limitations due to mental health, pain intensity, mental health and vitality were assessed using items from the 36-Item Short Form Health Survey (SF-36). Three items were used to assess the frequency of different types of sleep problems.ResultsSubjective caregiver burden was associated to all self-reported health indicators. A high subjective burden was linked to poorer general health (OR 6.5, 95% CI 2.0 to 21.5), more role limitations due to physical health (OR 4.2, 95% CI 1.4 to 12.8), more role limitations due to mental health (OR 3.6, 95 % CI 1.1 to 11.7), higher pain intensity (OR 4.0, 95% CI 1.4 to 11.5), poorer mental health (coefficient −17.9, 95% CI −24.5 to −11.2), lower vitality (coefficient −20.3, 95% CI −28.4 to −12.1), and more frequent sleep problems (OR 5.3, 95% CI 1.6 to 18.4). Partners who indicated positive aspects of caregiving further reported better mental health (coefficient 6.5, 95% CI 0.2 to 12.8). Objective burden was not related to any health indicator.ConclusionsSubjective burden and lack of positive aspects of caregiving were associated with poorer physical and mental health. Caregiver health may be promoted through the strengthening of psychological and psychosocial resources.


2020 ◽  
Vol 46 (Supplement_1) ◽  
pp. S320-S320
Author(s):  
Elaine Di Sarno ◽  
Izabel Napolitano ◽  
Mario Louza Neto

Abstract Background About one-third of patients with schizophrenia are treatment-resistant (TRS). They cause a significative burden for their caregivers (1). Our objective is to compare caregiver burden in TRS versus non-TRS outpatients with schizophrenia. Methods Patients with diagnosis of schizophrenia (DSM-5), 18–50 years, both sexes, and a relative/caregiver, both sexes, aged 18 to 70 years, living in contact with the patient ≥30 hours/week. The use of clozapine for more than 6 months, in stable daily dosage was used as a proxy for TRS; non-TRS were patients using other antipsychotics, with stable dosage for at least 6 months. Psychopathology was evaluated with the CGI-Schizophrenia Scale (2). Family burden was assessed with the Family Burden Interview Schedule (FBIS-BR), objective and subjective total and subscores (3). Student’s t-test and chi-square test were used to compare TRS versus non-TRS patients and caregivers. Results TRS patients: n = 45; (31 male, 14 female); mean age: 37.11 ± 8.93 years; age at onset of illness 20.84 ± 6.20 years; duration of disease: 16.51 ± 9.14 years. CGI: positive: 3.96 ± 1.22; negative: 3.62 ± 1.17; depressive: 2.36 ± 0.98; cognitive: 3.76 ± 1.26; total: 13.66 ± 3.31. TRS Caregivers: n=45 (12 male, 33 female); mean age: 56.7 ± 11.04 years; in contact with the patient 82.53 ± 36.98 hours/week. Non-TRS patients: n= 15 (9 male, 6 female); mean age: 36.00 ± 12.49 years; age onset of illness 21.93 ± 9.73 years; duration of disease: 14.20 ± 13.66 years. CGI: positive: 2.40 ± 1.40; negative: 3.40 ± 1.24; depressive: 2.33 ± 1.11; cognitive: 3.20 ± 0.86; total: 11.33 ± 3.51. Non TRS Caregivers: n=15 (2 males, 13 female); mean age: 53.13 ± 13.61 years; in contact with the patient 106.13 ± 62.47 hours/week. Sociodemographic variables showed no significant differences were observed between TRS and non-TRS groups. CGI positive and total scores were significantly higher in TRS patients compared to non-TRS patients (p<0.001 and p<0.024 respectively). FBIS-BR Scores: TRS caregivers: The mean total score of the objective burden was 2.41 ± 0.66 and subjective burden was 2.00 ± 0.64. Assistance to the patient in daily life (objective) was 2.99 ± 0.55 and its subjective score was 1.56 ± 0.80. Supervision of patients’ problematic behaviors was 1.81 ± 0.61 and its subjective score was 1.00 ± 1.00. Impact on family routine was 2.43 ± 1.13 and worries about the patients’ present and future life (subjective) was 3.45 ± 0.70. Non TRS caregivers: The mean total score of the objective burden was 2.42 ± 0.58 and subjective burden was 2.18 ± 0.51. Assistance to the patient in daily life (objective) was 3.30 ± 0.80 and its subjective score was 1.91 ± 0.93. Supervision of patients’ problematic behaviors was 1.80 ± 0.51 and its subjective score was 0.94 ± 0.59. Impact on family routine was 2.16 ± 0.86 and worries about the patients’ present and future life (subjective) 3.68 ± 0.55. No significant differences were observed between the TRS and non-TRS caregivers’ groups. Discussion Contrary to our initial expectation (1), TRS and non-TRS caregivers showed similar burden, even though TRS patients had higher positive scores on the CGI. This lack of difference may be due to small number of patients in the non-TRS group; non-TRS patients might be refractory but did not receive clozapine yet. It is also possible that TRS caregivers adapt to the caring of these severe patients and learn to deal with the burden the disease.


2017 ◽  
Vol 40 (3) ◽  
pp. 367-372 ◽  
Author(s):  
Ata Farajzadeh ◽  
Malahat Akbarfahimi ◽  
Saman Maroufizadeh ◽  
Hamid Reza Rostami ◽  
Amir Hassan Kohan

2020 ◽  
Author(s):  
Arnaud Carre ◽  
Mark Griffiths ◽  
Mélody Mailliez

AbstractThe COVID-19 crisis represents a global health concern, including mental health. Regarding the necessity to assess anxiety related to COVID-19, a scale was developed (Ahorsu et al., 2020). The goal of the present study was to validate of the Fear of COVID-19 Scale (FCV-19S) in French (official language in 29 countries), and investigate its relationship with indicators of affective disturbances.The study was performed on 316 participants. The FCV-19S underwent a double back translation procedure. Its psychometric properties were evaluated.The French FCV-19S demonstrated a stable unidimensional structure with robust psychometric properties (strong internal consistency, good convergent and divergent validity, and good test- retest validity).With its robust psychometric properties in assessing the unidimensional construct of the fear of COVID-19, this scale will help to provide a better understanding of the relationship between emotions and psychological or psychiatric disorders during the pandemics in French-speaking countries.


2019 ◽  
Author(s):  
PAUL ABRAHAM ◽  
Delphine S. COURVOISIER ◽  
Cedric ANNWEILER ◽  
Cliff LENOIR ◽  
Thomas MILLIEN ◽  
...  

Abstract Background The number of elderly patients admitted to the ICU is increasing. To better understand the magnitude of the challenges involved in intensive care practice for this ageing population and discuss a rational allocation of resources (admission, triage and level of care), healthcare practitioners need a reliable evaluation of frailty. In order to promote the adequate use of the clinical frailty Scale (CFS) in French-speaking countries, we aimed to develop, validate and characterise a French (FR) version from the original English (EN) CFS. Methods Translation and back translation method was used to developed and validate a FR version for CFS. Then every patient was assessed by a Doctor a Nurse with another evaluation being perform to evaluate intra inter operator variabilities; We then estimate and compared psychometric properties of the CFS both in FR and EN. Results Inter-rater reliability was 0.87 (95%CI: 0.76-0.93) between doctors for the original CFS-EN version and 0.76 (95%CI: 0.57-0.87) between nurses for the FR version. Inter-rater variability between doctor and nurse was 0.75 (95%CI: 0.56-0.87) for the original version, and 0.73 (95%CI: 0.52-0.85) for the FR version. Test-retest (stability) with the original vs the FR version was 0.86 (95%CI: 0.72-0.93) for doctors and 0.87 (95%CI: 0.76-0.93) for nurses. Differences between the evaluations of the CFS-EN and CSF-FR were not different from 0, with a mean difference of 0.06 (95%CI -0.24, 0.36) for the EN version and -0.03 (95%CI -0.47, 0.41) for the FR version. Agreement between the FR and the EN version for doctors was similar. Average original version ratings were slightly lower than FR version ratings, though this difference did not reach significance: -0.29 (95%CI -0.54, 0.04). Conclusion The CFS-FR version developed and validated in the present study has adequate psychometric properties for doctors or nurses to evaluate frailty in very old intensive care patients.


2018 ◽  
Vol 33 (3) ◽  
pp. 546-556 ◽  
Author(s):  
Loïc Bareyre ◽  
Chloé Gay ◽  
Nicolas Coste ◽  
Armand Bonnin ◽  
Bruno Pereira ◽  
...  

Objective: To validate the Arthritis Self-Efficacy Scale—French version (ASES-F) of the ASES questionnaire designed to evaluate self-efficacy in arthritis population and to confirm its psychometric properties. Design: The translation/back-translation procedure was done in line with cross-cultural adaptation international guidelines. Prospective multicenter validation was performed on 168 patients with osteoarthritis who filled out the ASES-F. Function subscale of the Western Ontario and McMaster Universities Arthritis Index, Hospital Anxiety and Depression (HAD), Knee Osteoarthritis Fears and Beliefs Questionnaire, and pain on visual analog scale were collected. Acceptability, internal consistency, reproducibility, internal and external structure validity, and sensitivity following a self-management program focused on physical activity were analyzed. The retest was performed 15 days later. Results: A culturally adapted version was obtained following the validation procedure. The final translated questionnaire is available within the full article. Cronbach’s alpha coefficient was at 0.95 for the overall ASES-F. Regarding the test–retest reproducibility, Lin’s concordance coefficient was at 0.84. The internal and external validity was also explored with correlations at −0.50 between ASES-F and (WOMAC), and significant correlations between ASES-F and HAD. Sensitivity shown significant improvement at three months for the subscale function only (+2.65, P < 0.01). Conclusion: The ASES-F, French version of the ASES, available in supplemental data, was validated in knee osteoarthritis patients and could be used in clinical practice and research for French-speaking patients. Sensitivity needs to be more explored.


2010 ◽  
Vol 14 (6) ◽  
pp. 705-711 ◽  
Author(s):  
M. Martín-Carrasco ◽  
P. Otermin ◽  
V. Pérez-Camo ◽  
J. Pujol ◽  
L. Agüera ◽  
...  

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