Active Participation of Care Partners in a Physical Activity Intervention alongside People with Stroke: A Feasibility Study

2021 ◽  
pp. e20200035
Author(s):  
Reed Handlery ◽  
Elizabeth Regan ◽  
Allison Foster Lewis ◽  
Chelsea Larsen ◽  
Kaci Handlery ◽  
...  
Keyword(s):  
Physical Activity ◽  
Social Support ◽  
Physical Activity Intervention ◽  
Care Partners ◽  
Before And After ◽  
Physical Activity Adherence ◽  
Ongoing Support ◽  
The Relationship

Purpose: This study investigated the feasibility of a physical activity intervention for people with stroke and their care partners and the role social support plays in physical activity adherence. Method: The study used a single-group, pretest–posttest design with follow-up. Participants were adults with chronic stroke and their care partners. The intervention consisted of 8 weeks of structured, group-based physical activity classes, followed by 19 weeks of self-directed physical activity. Recruitment, adherence, safety, and retention were assessed. Familial social support was assessed before and after the 8-week structured portion and again 19 weeks later. Results: A total of 21 participants (15 people with stroke, 6 care partners), mean (SD) age 67.6 (11.6) years, were recruited; 19 (90.5%) completed the 19-week assessment. No adverse events were experienced during the programme. Attendance during the 8-week portion was better than during the 19-week portion (mean difference 0.95; p < 0.001; 95% CI: 0.71, 1.19 visits/wk). No relationship was found between social support and physical activity adherence ( p > 0.05). Conclusions: Involvement of care partners in a physical activity intervention is feasible and safe. Both people with stroke and their care partners may require ongoing support to participate in long-term physical activity. The relationship between social support and physical activity adherence requires further study.

UK Adults’ Exercise Locations, Use of Digital Programs and Associations with Physical Activity During the COVID-19 Pandemic: Longitudinal Analysis of Data from the Health Behaviors During the COVID-19 Pandemic Study (Preprint)

2021 ◽  
Author(s):  
Verena Schneider ◽  
Dimitra Kale ◽  
Aleksandra Herbec ◽  
Emma Beard ◽  
Abi Fisher ◽  
...  
Keyword(s):  
Physical Activity ◽  
Home Environment ◽  
Guideline Adherence ◽  
Indoor Space ◽  
Muscle Strengthening ◽  
Highly Educated ◽  
June July ◽  
The Relationship

BACKGROUND Digital physical activity (PA) program use has been associated with higher PA guideline adherence during COVID-19 pandemic confinements. However, little is known longitudinally about exercise locations (inside vs outside the home environment), digital program use and their associations with moderate-to-vigorous PA (MVPA) and muscle-strengthening activities (MSA) during the pandemic. OBJECTIVE To assess the relationship between exercise location and use of digital programs with PA guideline adherence during the COVID-19 pandemic; to describe how individuals exercised inside and outside of their home environments; to explore which socio-demographic and contextual predictors were associated with exercise locations and digital PA program use. METHODS UK adults (N=1,938) who participated in the 1-month follow-up survey of the HEBECO study (FU1, June/July 2020) and at least one more follow-up survey (FU2, August/September; FU3, November/December 2020) and who engaged in any MVPA or MSA were included. Participants reported exercise locations, types of exercises inside and outside their homes including digital programs (online or app-based fitness classes/programs), MVPA and MSA. Generalized linear mixed models assessed associations of exercise location and digital PA program use with PA guideline adherence (MVPA, MSA, full (combined) adherence), and predictors of exercise location and digital program use. RESULTS As the pandemic progressed, UK adults were less likely to exercise inside or to use digital PA programs compared with periods of initial confinement: 60% (weighted n=1,024), 50% (786) and 49% (723) did any exercise inside their homes at FU1, FU2 and FU3, respectively. Twenty-two percent (385), 17% (265) and 16% (241) used digital PA programs, respectively. Most participants who exercised inside indicated using already owned indoor equipment, digital PA programs or own workout routines, while MVPA and gentle walking were the most frequently reported exercise types outside people’s homes. Being female, non-white, having a condition limiting PA, indoor space, a lower BMI and living in total isolation were associated with increased odds to exercise inside one’s home or garden compared with outside only. Digital PA programs users were more likely to be younger, female, highly educated, have indoor space to exercise and a lower body mass index (BMI). While exercising inside was positively associated with MSA and exercising outside with MVPA guideline adherence, both inside (vs outside only) and outside activities (vs inside only) contributed to full PA guideline adherence (OR=5.05, 95% CI 3.17-8.03, and OR=1.89, 95% CI 1.10-3.23). Digital PA program use was associated with higher odds of MSA (OR ranges=3.97-8.71) and full PA (OR ranges=2.24-3.95), but not with MVPA guideline adherence. CONCLUSIONS During the COVID-19 pandemic, full PA guideline adherence was associated with exercising inside and outside of one’s home environment and using digital PA programs. More research is needed to understand reach, long-term adherence, and differences between digital PA programs.

Psychological Distress and Social Support in Informal Caregivers of Stroke Survivors

2008 ◽  
Vol 9 (2) ◽  
pp. 152-160 ◽  
Author(s):  
Toby B. Cumming ◽  
Dominique A. Cadilhac ◽  
Gary Rubin ◽  
Naomi Crafti ◽  
Dora C. Pearce
Keyword(s):  
Social Support ◽  
Informal Caregivers ◽  
Stroke Survivors ◽  
Psychological Burden ◽  
Face To Face ◽  
Long Term Impact ◽  
High Degree ◽  
The Relationship

AbstractBackground: A high degree of burden is often experienced by informal caregivers of stroke survivors. However, little is known about the long-term impact of the caregiving role. This study sought to examine the relationship between social support and the psychological effects experienced by long-term caregivers of stroke survivors. Methods: The design was a prospective, multicentre, hospital-based stroke cohort study with 3 years of follow-up. Caregivers of participating stroke survivors completed questionnaires either through face-to-face interview or over the telephone. Primary outcome measures were the Medical Outcome Study (MOS) Social Support Survey and the Irritability, Depression, and Anxiety (IDA) Scale, and the association between them was investigated using multivariate logistic regression. Results: 174/217 (80%) stroke survivors participated at 3 years, involving 116 informal caregivers (mean age 66.9 years, 71% female). Increasing social support was correlated with lower levels of depression, anxiety and inward irritability in caregivers. Social support was independently associated with anxiety (OR 0.55, 95% CI 0.35–0.85; p = .007) and inward irritability (OR 0.47, 95% CI 0.29–0.77; p = .002). Furthermore, social support was significantly associated with carer strain, as assessed by the Caregiver Strain Index. Conclusions: The amount of social support available to long-term caregivers of stroke survivors may be an important factor in lowering psychological burden in these caregivers.

scholarly journals Development and evaluation of the Good Grief program for young people bereaved by familial cancer

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Pandora Patterson ◽  
Fiona E. J. McDonald ◽  
Elizabeth Kelly-Dalgety ◽  
Bianca Lavorgna ◽  
Barbara L. Jones ◽  
...  
Keyword(s):  
Social Support ◽  
Personal Growth ◽  
Unmet Needs ◽  
Meaning Making ◽  
Familial Cancer ◽  
Psychosocial Needs ◽  
Program Satisfaction ◽  
Death Of A Parent

Abstract Background Adolescents and young adults (AYAs) bereaved by the death of a parent or sibling from cancer report unique psychosocial needs and can have difficulty adjusting to their loss. Unaddressed, this can result in poor long-term bereavement outcomes. This paper describes the development and evaluation of Good Grief – a 3-day camp-based program focused on meeting coping, social support, and respite needs of AYAs bereaved by familial cancer. Methods One hundred and nine Australian AYAs (68% female; age: 12–25 years, M = 16.63) participated in the evaluation. Grief intensity (Texas Revised Inventory of Grief), meaning-making (Grief and Meaning Reconstruction Inventory), trauma coping (Perceived Ability to Cope with Trauma Scale) and unmet needs (Bereaved Cancer Needs Instrument) measures were administered pre-program and 3-months post-program. Acceptability was measured after each session and at the program’s conclusion. Appropriateness was measured at 3-month follow-up. Thirteen participants were interviewed three months post-program on their perceptions of the program. Results Participants reported high program satisfaction, engagement with psychosocial sessions, and enjoyment of recreational activities. Significant improvements were observed in trauma coping abilities and reductions in unmet needs for managing emotions, social support, respite, future planning, and accessing information and support domains. No change was evident in grief intensity or meaning-making as measured quantitatively. Interviews supported these quantitative findings but also identified evidence of personal growth, a component of meaning-making. Conclusions Good Grief is a highly acceptable and beneficial intervention that addresses the unique needs of AYAs bereaved by familial cancer.

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